Mission
Our mission is to prevent any harm, stillbirth or infant death caused by alloimmunization/HDFN. We are dedicated to providing patient advocacy, support, and education while promoting research and improving healthcare practices for the condition.
Ruling year
2019
CEO
Bethany Weathersby
Main address
720 Heritage Dr
Tuscaloosa, AL 35406 USA
EIN
84-2785519
NTEE code
Alliance/Advocacy Organizations (E01)
Alliance/Advocacy Organizations (H01)
IRS filing requirement
This organization is required to file an IRS Form 990-N.
Communication
Programs and results
What we aim to solve
Alloimmunization is when person develops antibodies against blood cells that are not his/her own. This happens mostly with women during pregnancy. When we say Alloimmunization, we are referring to a woman who has made antibodies against the baby she is carrying. These antibodies cross the placenta and attach to the baby’s red blood cells, destroying them. If a fetus or newborn has lost enough blood cells, it can cause jaundice, anemia, hydrops, heart failure, and even death. Women with alloimmunization need to be closely monitored throughout pregnancy to try and prevent fetal loss. After birth, infants must be monitored for 3 months, sometimes longer in severe cases to prevent brain damage and death. The effects of the disease do not stop there. Women who have been alloimmunized need to take special precautions for the rest of their lives to avoid a hemolytic transfusion reaction; a severe reaction may lead to death.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Patient Registry
The Patient Registry will be a voluntary way that women with alloimmunization can choose to share their health records relating to pregnancy with researchers. The data will be de-identified so that it is anonymous and will be used only for research relating to alloimmunization
Point of Care Materials
We have developed point of care materials for physicians and patients. These materials will be distributed to every fetal center and MFM fellowship in the USA in 2021. Materials include educational brochures, flip books for prenatal and neonatal care, and posters for exam rooms and offices.
Customized Medical Alert Cards to Prevent Hemolytic Transfusion Reactions
We have developed a customized web-based tool to allow alloimmunized women to create their own medical alert cards. Cards are customized with the woman's name, date of birth, specific antibodies, allergies/other conditions, and emergency contacts. Women are able to print their own medical alert cards and save a pdf version to their phone or other device for ICE information. As part of this tool, information about hemolytic transfusion reactions and recommendations from current medical literature are presented to improve patient and provider education regarding the life-long risks due to alloimmunization.
Where we work
External reviews
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The Allo Hope Foundation aims to reduce harm, stillbirth and infant death.
What are the organization's key strategies for making this happen?
We have developed an informative website with current, resourceful material for both patients and providers. This website is increasing awareness about alloimmunization and HDFN, access to current information, and engaging patients and providers about the programs offered.
We are working to develop a patient registry where women can choose to share their health data in order to increase research for the disease.
We are working on providing free, durable medical alert cards to women to reduce the risk of hemolytic transfusion reactions.
We are providing speakers, booth attendants, and literature at medical conferences and other speaking venues to increase awareness of the disease and treatment options.
We are working on developing multilingual literature for distribution. Language should not impede a woman's understanding of her condition.
To do all of these things, we have a medical advisory board and a patient advisory board. The medical advisory board will ensure accuracy of any created literature and published text. They will also help us to stay connected to the medical community and current research. The patient advisory board will keep the organization connected to the women with the disease so that we do not loose sight of their needs and ways we can best support them.
What are the organization's capabilities for doing this?
We regularly review and update our website with new content related to alloimmunization and HDFN.
We continually apply for grant funding to improve our programs and reach.
We have a nonprofit coordinator who provides valuable guidance and insight into the set up and running of a nonprofit. Her office also provides event options and sets up speaking engagements.
We have doctors and organizations who have pledged ongoing support.
What have they accomplished so far and what's next?
We have successfully launched our educational website and continue to curate new content. Our website serves as a landing pad for resources for providers and patients regarding clinical trials, calculators, clinical decision support tools, point of care materials, grief resources, and more.
We have developed point of care materials and are in the process of printing and shipping them.
We have made a social media presence and are continuing to grow that with engaging content.
We are currently writing grants for multiple programs.
We are currently in talks with a company for developing a patient registry.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
-
How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve
-
What significant change resulted from feedback?
Patient feedback has helped us to develop point of care materials that will accurately reach all demographics of women, not only those with internet access. We are using feedback from our Patient Advisory Board to determine needs in the patient community, new programs, and ways to reach low-income families. We have also used patient feedback to re-design portions of our website and forms to be more user-friendly.
-
Which of the following feedback practices does your organization routinely carry out?
-
What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more
about GuideStar Pro.
Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Allo Hope Foundation
Board of directorsas of 10/07/2022
Bethany Weathersby
Josh Weathersby
Bethany Weathersby
Meredith Brock
Jessica Fountain
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
-
Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Not applicable -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
Thanks for signing up!
An email has been sent to the address you provided. Click on the link in that email to get more GuideStar Nonprofit Profile data today!
(Don't see an email in your inbox? Click here to resend it.)
GuideStar Pro Reports
Report successfully added to your cart!
Want more data?
A GuideStar Pro report containing the following information is available for this organization:
- Financial data for the most recent year (2021)*
- Officer and/or Employee data for 2021, 2020
- Contractor and/or Paid Preparer data for 2021, 2020
- Board of Directors data for 2022
- *with the ability to download the data for 2021, 2020
Download it now for $125.
Need the ability to download nonprofit data and more advanced search options?Consider a Pro Search subscription.