ME International

Raising awareness, providing science based education and empowering patients.

Johnstown, CO   |  https://www.me-international.org

Mission

The purpose of ME (Myalgic Encephalomyelitis) International is to educate the general public, medical providers, and governments throughout the world about ME, and support ME patients, caregivers, advocates, organizations, family and friends. ME International recognizes ME as a neurological disease classified by the World Health Organization under G93.3. ME is described in the International Consensus Primer for Medical Practitioners as "Profound dysfunction/dysregulation of the neurological control system results in faulty communication and interaction between the CNS and major body systems, notably the immune and endocrine systems, dysfunction of cellular energy metabolism and ion transport, and cardiac impairments."

Ruling year info

2019

President

James Lutey

Vice-President

David Steckel

Main address

1915 Windsong Dr

Johnstown, CO 80534 USA

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EIN

84-3568066

NTEE code info

Alliance/Advocacy Organizations (G01)

Specifically Named Diseases (G80)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Myalgic Encephalomyelitis (ME) and the ICC

Promote the International Consensus Criteria to properly define ME and educate patients, caregivers, and the medical community on how to diagnose and treat ME.

Population(s) Served
People with diseases and illnesses
Caregivers

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

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Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Myalgic encephalomyelitis (ME) has been recognized by the medical community since the 1950s, but has been ignored by the CDC and NIH since. ME International wants the GLOBAL medical community to recognize ME as a distinct disease, and use the 2011 International Consensus Criteria to diagnose ME and its associative Primer to begin proper study of the disease, while addressing treatment of its symptoms.

From the IC Primer: "Myalgic encephalomyelitis, a name that originated in the 1950s, is the most accurate and appropriate name because it reflects the underlying multi-system pathophysiology of the disease. Our panel strongly recommends that only the name ‘myalgic encephalomyelitis’ be used to identify patients meeting the ICC because a distinctive disease entity should have one name. Patients diagnosed using broader or other criteria for CFS or its hybrids (Oxford, Reeves, London, Fukuda, CCC, etc.) should be reassessed with the ICC. Those who fulfill the criteria have ME; those who do not would remain in the more encompassing CFS classification."

Financials

ME International
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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ME International

Board of directors
as of 7/16/2021
SOURCE: Self-reported by organization
Board co-chair

James Lutey


Board co-chair

David Steckel

Colleen Steckel

Pam Lutey

Mary Kelley

Jennifer Caldwell

Janet Flynt

Organizational demographics

SOURCE: Self-reported; last updated 02/03/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data