ME International
Raising awareness, providing science based education and empowering patients.
Mission
The purpose of ME (Myalgic Encephalomyelitis) International is to educate the general public, medical providers, and governments throughout the world about ME, and support ME patients, caregivers, advocates, organizations, family and friends. ME International recognizes ME as a neurological disease classified by the World Health Organization under G93.3. ME is described in the International Consensus Primer for Medical Practitioners as "Profound dysfunction/dysregulation of the neurological control system results in faulty communication and interaction between the CNS and major body systems, notably the immune and endocrine systems, dysfunction of cellular energy metabolism and ion transport, and cardiac impairments."
Ruling year
2019
President
James Lutey
Vice-President
David Steckel
Main address
1915 Windsong Dr
Johnstown, CO 80534 USA
EIN
84-3568066
NTEE code
Alliance/Advocacy Organizations (G01)
Specifically Named Diseases (G80)
IRS filing requirement
This organization is required to file an IRS Form 990-N.
Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Myalgic Encephalomyelitis (ME) and the ICC
Promote the International Consensus Criteria to properly define ME and educate patients, caregivers, and the medical community on how to diagnose and treat ME.
Where we work
External reviews
Videos
Our Sustainable Development Goals
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Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Myalgic encephalomyelitis (ME) has been recognized by the medical community since the 1950s, but has been ignored by the CDC and NIH since. ME International wants the GLOBAL medical community to recognize ME as a distinct disease, and use the 2011 International Consensus Criteria to diagnose ME and its associative Primer to begin proper study of the disease, while addressing treatment of its symptoms.
From the IC Primer: "Myalgic encephalomyelitis, a name that originated in the 1950s, is the most accurate and appropriate name because it reflects the underlying multi-system pathophysiology of the disease. Our panel strongly recommends that only the name ‘myalgic encephalomyelitis’ be used to identify patients meeting the ICC because a distinctive disease entity should have one name. Patients diagnosed using broader or other criteria for CFS or its hybrids (Oxford, Reeves, London, Fukuda, CCC, etc.) should be reassessed with the ICC. Those who fulfill the criteria have ME; those who do not would remain in the more encompassing CFS classification."
What are the organization's key strategies for making this happen?
What are the organization's capabilities for doing this?
What have they accomplished so far and what's next?
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
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ME International
Board of directorsas of 7/16/2021
James Lutey
David Steckel
Colleen Steckel
Pam Lutey
Mary Kelley
Jennifer Caldwell
Janet Flynt
Organizational demographics
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Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
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Gender identity
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Sexual orientation
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Disability
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