Haleys Heroes Foundation

Haley's Heroes - A Batten Disease Foundation

Mission

The Haley’s Heroes Foundation exits to find and fund research for a cure for Batten Disease, specifically CLN1, while also increasing awareness for this fatal and rare pediatric disease.

Ruling year info

2021

Principal Officer

Melissa Pollman

Main address

4676 Commercial St SE # 418

Salem, OR 97302 USA

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EIN

84-4416912

NTEE code info

Specifically Named Diseases Research (H80)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Rare Disease Research

Haley's Heroes Foundation funds rare disease research for Batten Disease. Batten Disease is a rare and fatal neurodegenerative disease that impacts children. The research we fund range from natural history studies and large animal model studies to bridging financials gaps for researchers working towards clinical trials. The cost of research is high. The access to funding for rare disease research is scarce. The cost of doing nothing ensures death to the children afflicted with Batten Disease.

Population(s) Served
Children and youth
Terminally ill people
Families
Caregivers

Where we work

Financials

Haleys Heroes Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Haleys Heroes Foundation

Board of directors
as of 9/8/2021
SOURCE: Self-reported by organization