Disease, Disorders, Medical Disciplines

NATIONAL COALITION FOR CANCER SURVIVORSHIP

aka Shelley Fuld Nasso

Silver Spring, MD

Mission

NCCS's mission is to advocate for quality cancer care for all people touched by cancer.

Ruling Year

1997

Chief Executive Officer

Mrs. Shelley Fuld Nasso

Main Address

8455 Colesville Road Suite 930

Silver Spring, MD 20910 USA

Keywords

cancer, survivor, survivorship, advocacy, policy, education, health, healthcare, palliative, awareness, insurance, rights, cancerversary, Toolbox, Cancer Survival Toolbox, NCCS

EIN

85-0357897

 Number

5391180762

Cause Area (NTEE Code)

Cancer (G30)

Alliance/Advocacy Organizations (E01)

Alliance/Advocacy Organizations (W01)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Programs + Results

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Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Cancer Survival Toolbox

Journey Forward

Cancer Policy Roundtable

Legislative Actions

Cancer Policy Matters Blog

Take Charge of Your Care

Cancer Policy Advocacy Training

Where we workNew!

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

NCCS public policy efforts focus on:

Delivery and payment reforms that provide cancer survivors access to cancer care planning services and coordinated care.

Achieve enactment of the Planning Actively for Cancer Treatment (PACT) Act establishing a new Medicare service for cancer care planning and coordination.

Encourage delivery by physicians of transitional care management services, as established in the 2013 Medicare physician fee schedule, to foster continuity of care from the hospital to community for cancer survivors and other patients.

Encourage policymakers to test and evaluate innovative models for cancer care delivery, including cancer medical homes and systems that foster planning and communication.

Implementation of the Affordable Care Act so that it best serves the needs of cancer survivors.

Monitor enrollment and ensure that patients have access to plans that adequately cover needed cancer services and therapies.

Protect patient access to clinical trials consistent with provisions of the ACA and ensure access to out-of-network care when necessary and appropriate.

Resources to support an efficient and effective cancer drug review process at the Food and Drug Administration that takes into consideration the needs of cancer patients.

Ensure adequate resources for high-quality review so that safe and effective new cancer drugs reach patients expeditiously.

Support FDA efforts to strengthen clinical trials and accelerate therapeutic development.

Delivery and payment reforms that provide cancer survivors access to cancer care planning services and coordinated care.

Achieve passage and enactment of the Planning Actively for Cancer Treatment (PACT) Act establishing a new Medicare service for cancer care planning and coordination.

Encourage delivery by physicians of transitional care management services, as established in the 2013 Medicare physician fee schedule, to foster continuity of care from the hospital to community for cancer survivors and other patients.

Encourage policymakers to test and evaluate innovative models for cancer care delivery, including cancer medical homes and systems that foster planning and communication.

Implementation of the Affordable Care Act so that it best serves the needs of cancer survivors.

Monitor enrollment and ensure that patients have access to plans that adequately cover needed cancer services and therapies.

Protect patient access to clinical trials consistent with provisions of the ACA and ensure access to out-of-network care when necessary and appropriate.

Resources to support an efficient and effective cancer drug review process at the Food and Drug Administration that takes into consideration the needs of cancer patients.

Ensure adequate resources for high-quality review so that safe and effective new cancer drugs reach patients expeditiously.

Support FDA efforts to strengthen clinical trials and accelerate therapeutic development.

The National Coalition for Cancer Survivorship (NCCS) advocates for quality cancer care for all people touched by cancer. For more than a quarter century, NCCS has worked with legislators and policy makers to represent cancer patients and survivors in efforts to improve their quality of care and quality of life after diagnosis. Our unique niche in the cancer advocacy landscape is promoting policy change to ensure quality cancer care. While we hope for the cure, we must focus on the care.

Ensuring quality cancer care is complex, and there are many areas for improvement and policy action. An important gap is in treatment decision-making and coordination of the multiple facets of cancer care. To address this gap, we have set a primary goal to ensure that every cancer patient has access to cancer care planning and coordination services. These services provide cancer patients information to make informed decisions about treatments; encourage collaboration among the multi-disciplinary cancer care providers; and facilitate transitions from active treatment to survivorship. Cancer care planning and coordination services are a critical first step toward reform of the cancer care delivery and payment system.

With the rapidly changing health care system, there has never been a better time to effect policy change, and NCCS pursues legislative, regulatory, and private payer solutions to achieve our goals. We educate patients and physicians to facilitate shared decision-making and increase the adoption of cancer care planning. We convene thought leaders, policymakers, advocates, and the private sector biannually at the NCCS Cancer Policy Roundtable to exchange ideas about the most pressing policy issues, and we move these ideas into action.

NCCS charts progress towards engagement with policy initiatives by publishing all policy comments and achievements on the NCCS website, and through tracking meetings, outreach, and speaking engagements that permit us to advocate for patient-centered care in national policy discussions. NCCS uses robust analytics to chart distribution of resources, engagement of our constituency with policy initiatives, and social media influence.

NCCS has actively monitored and participated in policy discussions related to the 2015 policy initiatives. A full listing of this engagement can be found on the NCCS website. Additionally, the introduction of the 2015 PACT Act (H.R. 2846), establishing a new Medicare service for cancer care planning and coordination was a critical step in improving the quality of cancer care. The PACT Act is consistent with ongoing efforts to improve the coordination of care provided to Medicare beneficiaries. Coordination of care contributes to quality improvement efforts as well as to more efficient utilization of health care resources. The legislation responds to individual health care needs as well as to the needs of the entire system.

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Financials

NATIONAL COALITION FOR CANCER SURVIVORSHIP

Fiscal year: Jan 01 - Dec 31

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Operations

The people, governance practices, and partners that make the organization tick.

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Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

No

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

No