Lgmd Awareness Foundation Inc
"Together We Are Stronger"
Mission
An advocacy organization dedicated to globally raising awareness of the rare neuromuscular diseases known as Limb Girdle Muscular Dystrophy (LGMD). In collaboration with other LGMD foundations, our focus is to provide curated educational information and resources for the LGMD community and public. By increasing awareness of and advocating for individuals living with Limb Girdle Muscular Dystrophy, we hope to assist in advancing the diagnosis, care, and treatment for individuals around the world. We coordinate a worldwide LGMD Awareness Day annually on September 30th.
Ruling year
2020
President / Founder
Carol Abraham
Main address
638 Kennedy Dr
Twin Lakes, WI 53181 USA
EIN
85-1504937
NTEE code
Alliance/Advocacy Organizations (G01)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Communication
Programs and results
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LGMD Awareness Day
Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day is a collaborative effort to globally raise awareness of the rare neuromuscular diseases known as limb-girdle muscular dystrophy. LGMD Awareness Day is celebrated annually on September 30th. Our focus is to provide curated educational information and resources for the LGMD community and the public.
By increasing awareness of and advocating for individuals living with LGMD, we hope individuals living with this progressively debilitating disease will have an easier time accessing diagnosis, care, and treatment around the world.
Where we work
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Operations
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Lgmd Awareness Foundation Inc
Board of directorsas of 09/08/2022
Carol Abraham
LGMD Awareness Foundation, Inc.
Term: 2020 -
Carol Abraham
Karen Cole
Michele Wrubel
Rebecca Gregg
Organizational demographics
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