Lgmd Awareness Foundation Inc

"Together We Are Stronger"

Twin Lakes, WI   |  https://lgmd-info.org

Mission

An advocacy organization dedicated to globally raising awareness of the rare neuromuscular diseases known as Limb Girdle Muscular Dystrophy (LGMD). In collaboration with other LGMD foundations, our focus is to provide curated educational information and resources for the LGMD community and public. By increasing awareness of and advocating for individuals living with Limb Girdle Muscular Dystrophy, we hope to assist in advancing the diagnosis, care, and treatment for individuals around the world. We coordinate a worldwide LGMD Awareness Day annually on September 30th.

Ruling year info

2020

President / Founder

Carol Abraham

Main address

638 Kennedy Dr

Twin Lakes, WI 53181 USA

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EIN

85-1504937

NTEE code info

Alliance/Advocacy Organizations (G01)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

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LGMD Awareness Day

Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day is a collaborative effort to globally raise awareness of the rare neuromuscular diseases known as limb-girdle muscular dystrophy. LGMD Awareness Day is celebrated annually on September 30th. Our focus is to provide curated educational information and resources for the LGMD community and the public.

By increasing awareness of and advocating for individuals living with LGMD, we hope individuals living with this progressively debilitating disease will have an easier time accessing diagnosis, care, and treatment around the world.

Population(s) Served
People with physical disabilities
Chronically ill people
Age groups

Where we work

Our Sustainable Development Goals

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Financials

Lgmd Awareness Foundation Inc

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Operations

The people, governance practices, and partners that make the organization tick.

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Lgmd Awareness Foundation Inc

Board of directors
as of 4/2/2021
SOURCE: Self-reported by organization
Board chair

Carol Abraham

LGMD Awareness Foundation, Inc.

Term: 2020 -

Carol Abraham

Karen Cole

Michele Wrubel