SILVER2023

Kbg Foundation Inc

every link matters

Manchester, MD   |  http://www.kbgfoundation.com

Mission

The KBG Foundation is dedicated to providing support, assisting in research programs and advocating to raise awareness about the syndrome.

Ruling year info

2021

Executive Director/CEO

Annette Maughan

Main address

2813 Ridgeleigh Ct

Manchester, MD 21102 USA

Show more contact info

EIN

85-3324551

NTEE code info

Health Support Services (E60)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

This profile needs more info.

If it is your nonprofit, add a problem overview.

Login and update

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Contact Registry

The KBG Foundation hosts a contact registry for individuals and their families diagnosed with KBG Syndrome. This registry is de-identified and provides basic information about the respondents.

Population(s) Served
Age groups
Ethnic and racial groups

The KBG Foundation is acutely aware that living with KBG syndrome is challenging. Our Care Package Program is intended to provide comfort, care and support for families when it's needed most.  

A Care Package can be requested by the patient's guardian or a loved one when they are experiencing a challenging medical event such as illness or surgery. Each Care Package contains various items for the KBG-affected individual and their families and is designed to deliver a bit of fun and comfort to them in their time of need.

Currently, these care packages can only be shipped in the United States. We are hoping to expand our shipping worldwide as soon as the shipping challenges improve.

This program has been made possible through generous donations by the members of the KBG Foundation Board of Directors.  In order to continue providing Care Packages to families, additional donations are needed.  Your generosity will help us reach more families in need of comfort and support. 

Population(s) Served

Seed Fund Grant Program is intended to expedite research projects by supporting investigative research into KBG syndrome and ANKRD11 or otherwise enabling projects exploring KBG syndrome and potential treatments to move forward. For the fiscal years 2022 and 2023, the Foundation will award up to three grants of up to $10,000 each year. Application is open to certified researchers with demonstrated interest in and capability to advance the understanding and treatment of KBG syndrome. Awards will be issued with 50% of the funds up front with the remainder issued after six months or the completion of the project, whichever comes first.

Population(s) Served
People with diseases and illnesses

Where we work

Financials

Kbg Foundation Inc
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Kbg Foundation Inc

Board of directors
as of 03/09/2023
SOURCE: Self-reported by organization
Board chair

Glenn Maughan

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes