Rareability

Mindfully Creating Empowering Communities

CHULA VISTA, CA   |  https://www.rareability.org

Mission

RareABILITY was formed to help create EMPOWERMENT programs for those battling Rare Diseases. We are striving to not only create empowering and support programs for those in the Rare disease community but to utilize our advocacy and education programs to help raise awareness within the community as how to best create inclusive programs for people of varying ABILITIES. This includes interactive STEAM Awareness programs for youth to integrated platforms increasing communication between the medical community & patient advocates with a focus on Patient centered programs. We serve the RARE community with array of educational programs including but not limited to Medical & Self-advocacy, Mindfulness & Guided breath work, support groups and adaptive creative programs.

Ruling year info

2021

CEO

Deborah Vick

Main address

2833 N COMPASS CIR

CHULA VISTA, CA 91914 USA

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EIN

86-3357161

NTEE code info

Alliance/Advocacy Organizations (B01)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Circle of Kindness

Creating custom kits for personalized for individuals with disABILITIES in disadvantaged communities . These kits will include a variety of creative supplies coupled with Mindfulness, Gratitude and Breath work programs. We will encourage recipients to donate some of the items created as part of their personal mindfulness creative programs to local children's hospitals, residents in nursing centers and/or rehab centers. Recipients, through their donations are creating a Circle of Kindness through benefiting from our programs and continuing to pay it forward to others in need of an uplifting gift.

Population(s) Served
Health
Family relationships
Age groups
Social and economic status

Where we work

Financials

Rareability
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Rareability

Board of directors
as of 11/29/2021
SOURCE: Self-reported by organization

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Not applicable
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 09/12/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

No data

Race & ethnicity

Gender identity

 

Sexual orientation

Disability