GOLD2024

Happy Lungs Project

We help RET-positive lung cancer patients live fuller, healthier lives.

Austin, TX   |  https://happylungsproject.org/

Learn how to support this organization

Mission

The Happy Lungs Projects mission is to save the lives of RET-positive lung cancer patients by advancing research and treatment options.

Ruling year info

2021

Principal Officer

Ilana Stomberg

Main address

3209 Sunny Ln

Austin, TX 78731 USA

Show more contact info

EIN

87-0957020

NTEE code info

Fund Raising and/or Fund Distribution (H12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022 and 2021.
Register now

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

A lung cancer diagnosis is especially alarming for a healthy nonsmoker. Just ask Ilana S., who was diagnosed in 2019 with stage 2 RET-Positive Non-Small Cell Lung Cancer, or Jeff S. who was diagnosed in 2020. Neither Ilana nor Jeff had any prior risk or known genetic or environmental risk factors. Unfortunately, Ilana and Jeffs stories are not unique. Lung cancer is the third most common cancer diagnosed in the United States (approximately 1 in 17 people) and the leading cause of cancer deaths. Yet there is a lack of funding and research for lung cancer, particularly for RET-positive patients like Ilana and Jeff. Thats why The Happy Lungs Project exists: to advance scientific research and treatments to empower RET-positive lung cancer patients like Ilana and Jeff to live fuller, healthier lives.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

RET-positive Cancer Research Funding and Patient Clinical Trial Connection

The Happy Lungs Project is working to advance scientific research so more RET-positive lung cancer patients can live fuller, healthier lives. We fund and facilitate cancer research, and we educate and empower patients to participate in biomarker testing, clinical trials, and lung cancer registries.

Population(s) Served
People with diseases and illnesses

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Happy Lungs Project is working to advance scientific research so more RET-positive lung cancer patients can live fuller, healthier lives. We fund and facilitate cancer research, and we educate and empower patients to participate in biomarker testing, clinical trials, and lung cancer registries. Since our inception in 2021, The Happy Lungs Project has awarded more than $1 million in RET-positive cancer research grants and facilitated millions in additional research funding. We also educate patients and caregivers across the country about how participating in clinical trials and biomarker testing can improve RET-positive treatment options and patient survival.

Scientific research can be confusing and overwhelming, so The Happy Lungs Project helps patients and caregivers understand RET-positive research and what it means for current treatment options and future therapies.
*HLP hosts regular webinars that bring together members of the scientific community with patients and caregivers.
*HLP offers a weekly video series that features questions from patients and caregivers answered by members of the scientific community.
*HLPs website features regular blog posts from our Scientific Advisory Board members and other partners from the scientific community.

The Happy Lungs Project connects RET-positive cancer patients with clinical trials, revealing potential treatment options and helping researchers gather critical information upon which to base their research.
*According to the National Institutes of Health, clinical trials are at the heart of all medical advances. Clinical trials help determine whether treatment, prevention and behavior approaches are safe and effective.
*Clinical trials offer hope to patients and critical information to researchers that can lead to improved treatment options.

HLP funds and facilitates research for treatments so that more RET-positive lung cancer patients will live fuller, healthier lives.
*HLP-funded researchers are investigating resistance to currently available targeted therapies
Identifying new, more effective combination therapies for RET-inhibitor resistant disease
Testing innovative adaptive T cell therapies such as TCR immunotherapies for RET cancers
Generating new RET cancer preclinical models, including cell likes and patient-derived xenograft mouse models
*HLP works closely with the offices of leading cancer research institutions to assist them in securing grant funding for continued RET-positive research.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Happy Lungs Project
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Happy Lungs Project

Board of directors
as of 07/12/2024
SOURCE: Self-reported by organization
Board chair

Mark Strama

Happy Lungs Project

Edward "Ned" Stewart

Ilana Stromberg

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Not applicable
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 6/26/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Gender identity
Female

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 06/26/2024

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.