GOLD2023

Rise Above Parkinsons Inc

Because you are more than your diagnosis

Trinity, FL   |  https://riseaboveparkinsons.org

Mission

We provide non-medical financial assistance to people living with Parkinsons so that they can access the services and support they need to live a quality life.

Ruling year info

2021

President

Dr. Dawn MacLaughlin

Vice President

Wayne MacLaughlin

Main address

2222 Edelweiss Loop

Trinity, FL 34655 USA

Show more contact info

EIN

87-2142378

NTEE code info

Public Foundations (T30)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Over and above the medical costs, the average annual indirect and non-medical costs for a person with Parkinson’s is over $19K - over $25K when combined with caregiver burden. Parkinson's patients are often forced with making difficult decisions about which necessary services they are able to access. We at Rise Above Parkinsons know what that's like. Our loved one has been on his Parkinson’s journey for over a decade now, and during that time, we’ve financed home renovations, adaptive gear, therapeutic services, and more. We’ve found these supportive services to be critical to his well-being and quality of life, and to allow him to continue to contribute and grow and make an impact. And we want that for your loved one too. Rise Above Parkinsons is a place where people with Parkinson's can feel cared for, where they can receive financial support, trust, and the attention they need. Our goal is to help them live the best life possible. Because you are much more than your diagnosis

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Rise Up

The Rise Up program provides financial assistance to people living with Parkinson's disease/PSP so that they can access the services and tools they need to live a quality life.

Population(s) Served
People with physical disabilities
Chronically ill people

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, People with physical disabilities

Related Program

Rise Up

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We began awarding grants in April of 2022.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome

Financials

Rise Above Parkinsons Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Rise Above Parkinsons Inc

Board of directors
as of 06/08/2023
SOURCE: Self-reported by organization
Board chair

Dr. Dawn MacLaughlin

Rise Above Parkinsons, Inc

Term: 2021 - 2024

Wayne MacLaughlin

Rise Above Parkinsons, Inc

Pnina Levermore

Tampa Jewish Community Centers & Federation

Fiona Melvin

Edward Jones

Quita Remick

Designed Intelligently LLC

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 6/8/2023
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person with a disability

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

Equity strategies

Last updated: 06/08/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Policies and processes
  • We have community representation at the board level, either on the board itself or through a community advisory board.