SILVER2023

Long Covid Association Inc

Together, We Solve Long COVID!

aka LONG COVID ASSOCIATION   |   Mc Lean, VA   |  https://www.longcovidassociation.com

Mission

Over 17 million in the USA have become newly disabled by the virus that causes COVID-19. Most are young adults between the ages of 18-54 yrs old. Anyone who gets infected with the virus or its proteins can develop the chronic multi-organ post viral syndrome. Long COVID disproportionately affects those who are financially disadvantaged, have limited access to health care resources: specialists, diagnostic tests, medications, immune supportive nutritional supplements and health monitors. Our mission is to scientifically research available vitamins, nutritional dietary supplements and nutraceuticals along with specific diet and lifestyle that are immune and system supportive along with our health equity programs to educate & advocate for recovery for all those disabled by Long COVID.

Ruling year info

2022

Director

Amira A. Saleh M.S.

Main address

6841 Elm St Unit 565

Mc Lean, VA 22101 USA

Show more contact info

EIN

87-4719799

NTEE code info

Specifically Named Diseases Research (H80)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Health Equity and Scientific Research

LONG COVID ASSOCIATION scientifically evaluates and researches available vitamins, nutritional dietary supplements and nutraceuticals along with specific diet and lifestyle that are immune and system supportive to help Long COVID patients with symptom management and improve their quality of life and overall well-being. We are building a network of community support programs, health education systems and Long COVID Recovery Clinics to help equalize the access to health care and recovery programs so that anyone who suffers from Long COVID recovers. And those of low income have equal access to health resources and immune supportive nutrition for recovery. Health Equity and LONG COVID Scientific Research for Recovery!
Our mission is to provide LONG COVID scientific research, education, health equity and advocacy for recovery to help benefit those disabled by Post COVID-19 Condition or Long COVID and the public.

Population(s) Served

The numbers of folks affected by Long COVID in the United States are over 20 Million (CDC.gov estimates 9/29/22). The current process of getting a diagnosis and beginning available treatment is taking upwards of 1 to 1-1/2 years as there are not enough medical providers and access to specialized treatments and care is outside the reach of those financially disadvantaged. We are developing a help line to answer questions related to Long COVID and offer resources that are available that those suffering may not be aware. Also, the number of people with despair from this multi organ post viral condition are too many. In addition to our website, our help hotline offers the caller someone to talk to that believes their condition is real, will listen and can share information about available federal and state resources and program information to offer hope. Too many have been lost to the virus. Let's not lose any more to lack of information.

Population(s) Served
People with diseases and illnesses
People with disabilities
Adults
Children and youth
Economically disadvantaged people
People with diseases and illnesses
People with disabilities
Adults
Children and youth
Economically disadvantaged people

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don’t have the right technology to collect and aggregate feedback efficiently, It is difficult to find the ongoing funding to support feedback collection

Financials

Long Covid Association Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Long Covid Association Inc

Board of directors
as of 06/29/2023
SOURCE: Self-reported by organization
Board chair

Amira Saleh

Organizational demographics

SOURCE: Self-reported; last updated 10/24/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Multi-Racial/Multi-Ethnic (2+ races/ethnicities)
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data