Nevada Childhood Cancer Foundation

Embrace The Life of A Child

aka Nevada Childhood Cancer Foundation   |   Las Vegas, NV   |  www.nvccf.org

Mission

The mission of the Nevada Childhood CancerFoundation (NCCF) is to provide social, emotional, educational, andpsychological support services and programs to families of ALL children diagnosed with life threatening or critical illnesses such as cancer, HIV/AIDS, sickle cell, hemophilia, renal disorders, and immunologic diseases and provide healing arts and wellness programs to adults touched by cancer and to chronically ill children and their caregivers.

Ruling year info

1994

President and CEO

Mr. Jeffrey R Gordon

Vice President and Director of Marketing

Ms. Stephanie Parker

Main address

3711 E. Sunset Rd www.nvccf.org

Las Vegas, NV 89120 USA

Show more contact info

EIN

88-0302673

NTEE code info

Health Support Services (E60)

Patient Services - Entertainment, Recreation (E86)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

NVCCF works to fill the voids that exist in serving pediatric patients, from infancy to age 23, diagnosed with cancer, HIV/AIDS, sickle cell, renal, blood and immunologic diseases who need social, emotional, educational, psychological, and financial support services. NVCCF is the ONLY facility in Nevada which offers these support services to children diagnosed with sickle cell and immunologic disease. As of 2019, NVCCF offers over 20 programs and services and continues to grow to meet the needs of the community. In addition, many adults diagnosed with cancer find themselves in financial crisis due to the overwhelming costs of medical treatments. NVCCF works though its ORION CANCER FUND to grant adults with funding for basic living needs. This is a growing need for those in financial crisis prior to diagnosis. NVCCF's adult services, The Caring Place Program, provides massage, reflexology, meditation, nutrition classes and more to ease the side-effects of cancer and its treatment.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Project A.R.K. (Aids and Resources for Kids)

Project A.R.K. (Aids and Resources for Kids) is the social services division of the Nevada Childhood Cancer Foundation (NVCCF).  This division has provided free counseling, financial support, education services and more to over 4,600 Southern Nevada families with children diagnosed with life threatening and critical illnesses such as cancer, HIV/AIDS, sickle cell, hemophilia, renal disorders and immunologic diseases.Project A.R.K. offers over 25 programs and services including the for ill children and their families (AT NO COST).  Within 48 hours of receiving a referral, the NVCCF service professionals work in tandem to identify the resources and needs for each family.  These referrals originate from local hospital personnel, out-patient medical clinics, and social workers.

NVCCF offers over 20 programs and services for critically ill children and their families including education and tutoring services, a summer camp program welcoming over 130 critically ill children and their siblings, free counseling, therapeutic workshops, support groups, special events, and ongoing monthly programs supporting the immediate needs of families and their children diagnosed with life threatening and critical illnesses.

Population(s) Served
Children and youth
Families

The Caring Place, a program of Nevada Childhood Cancer Foundation, is dedicated to easing the journey of those adults touched by cancer as well as pediatric patients diagnosed with life threatening illnesses. An oasis away from medical facilities, The Caring Place provides no-cost programs and services to support, educate and empower those who have or have had cancer as well as their direct caregivers.

The programs and services are intended to assist in healing mind, body, and soul and are not a replacement for medical care. We are committed to improving your quality of life and helping you experience joy and peace.

Pediatric services offered by The Caring Place include:

Kids Konnected for children of parents with cancer Relaxing Yoga for Kids
Reflexology Reiki Sessions
KOOL KIDS: 2nd & 4th Saturdays for children Arts & Crafts Activities
Education Support and Tutoring for school age children
Adult services offered by The Caring Place include:

Support Groups Massage Therapy Reflexology
Guided Imagery Gentle Yoga Art Classes
Meditation for Stress Reduction Reiki Singing Bowls Meditation
Cranial Sacral Therapy Stress Relief with Beads
Chi Gong Nutrition Lectures
“The Reiki is incredible. I have felt such a relief from the pain and the side effects from chemo. The second you walk into the center the love comes from all angles. It makes me feel valued in a cancer world that can be sterile and cold.”
Alix, 53, Participant diagnosed with Multiple Myeloma

Population(s) Served
People with diseases and illnesses
Caregivers

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of therapy hours provided to clients

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Nevada Childhood Cancer Foundation provides over 45 programs and services to both children and adults. Emotional & psychological focused support is a fraction of our focus.

Number of clients participating in support groups

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

As previously stated this is a fraction of our focus however, our support groups grew and continued to grow until COVID shut down. Virtual outreach has proven to be a successful area for our populatio

Number of patient visits

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our offices serves a variety of programs and services over a vast population. Covid shut down limited our ability to reach people in person, however, we grew our virtual offerings.

Hours of no-cost treatment provided

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Nevada Childhood Cancer Foundation provides all of the programs and services at NO cost to the population we serve.

Number of chronically ill patients served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We serve critically and chronically ill populations.

Number of support groups offered

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Nevada Childhood Cancer Foundation provides support group services to our clients. We adjust groups on client needs. This # is based on the groups offered not on the # of sessions annually.

Number of new clients within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Based strictly off of flux between years until 2021.

Number of children with a source of ongoing care

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Related Program

Project A.R.K. (Aids and Resources for Kids)

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of adults with a source of ongoing care

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Related Program

The Caring Place

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Unless a client is re-diagnosed we provide a 5 year span of services offered.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The goal of Nevada Childhood Cancer Foundation programming is to improve and provide a better quality of life for critically ill children and their families as well as adults diagnosed with cancer living in Southern Nevada. Specifically, services such as Patient and Family Counseling/Workshops for critically ill children, siblings and parents, Emergency Prescription: Caring for Kids (funding for medications not covered by insurance), and Emergency Family Funding (funding families in financial crisis due to diagnosis including food, travel for medical services, living costs and basic living needs) greatly impact families and demonstrate a measurable increase in quality of life for children. Patient and Family Counseling eliminate the psycho-social limitations and barriers to a good quality of life. Studies show that children are surviving longer (at least five years), however they are reporting a decrease in quality of life due to secondary effects of fighting a disease as the threat of death is almost as damaging as death itself. Through NVCCF counseling services, attitudes are uplifted, and children and families are given hope for the future and courage as they battle illness and cope with its life altering ramifications and disabilities. What’s more, the Emergency Prescription program will reduce fear, anxiety and long wait periods in emergency rooms to receive the medications required to fight disease, pain, and treatment side-effects by funding medications which families are unable to afford and not covered by insurance. NVCCF also works to relieve financial distress for families in financial crisis with the Emergency Family Funding program which helps to stabilize a family so that they may focus on the health of their child rather than wondering if they will be evicted or if their power may be turned off due to financial crisis due to diagnosis. Most often one parent must quit their job to care for the diagnosed child however when there is only one parent the diagnosis affects every aspect of their lives.

In addition, a variety of adult support groups, financial grants, hands on therapies, and social activities are scheduled each month to meet the needs of those adults in cancer treatment and their caregivers. New therapies and social activities are added each year to help adults through a devastating journey in their lives.

NVCCF employs licensed social workers and clinical workers to structure pediatric activities to support the social and emotional needs of pediatric patients, their siblings and family members. Support Workshops are created to help patients, siblings, teens, and parents to work together through the traumatic experience of fighting a daily battle against disease. Private counselings if offered as well and all an NO COST TO FAMILIES. NVCCF staffers work with local medical personnel to identify the needs of critically ill children and their families needs.

NVCCF staffers also visit adult oncology clinics and email monthly messages to all area oncology clinics to ensure that medical staff are aware of the emotional and financial support services for adults in cancer treatment.

NVCCF has also partnered with other local non-profit organizations inviting them for a tour of NVCCF's new 16,000 square foot Britney Spears Campus and to host meetings at the new facility. American Cancer Societies CANCER ACTION NETWORK is just one group who hold their quarterly meeting at NVCCF as well as ROUND TABLE events welcoming up to 65 attendees.

Most of all, NVCCF staffers work hard to identify new and perpetual funding to support the over 45 programs and services which it offers. NVCCF also opened the only in-patient classroom in the state of Nevada at Sunrise Children's Hospital. This program is structured and managed by NVCCF professional staffers and offers tutoring and over eight locations in Southern Nevada. This allows children to continue their education as they fight disease.

Increases in donations and funding help NVCCF with the ability to grow its services and increase direct funding for its clients. NVCCF utilizes a strong board of directors to assist in supporting fundraising events, creating fundraising activities, and identifying new private and business donor opportunities. NVCCF also writes grants requests to a number of local and national resources. Additionally, NVCCF social workers identify funding sources for pediatric and adult clients.

Annually, NVCCF serves over 450 children and their families as well as over 950 adults touched by cancer living in Southern Nevada. Within 24 hours of receiving a referral, the NVCCF service professionals work in tandem to identify the financial, educational, and psychological needs for critically ill children and their families. These referrals originate from local and out of state hospital personnel, out-patient medical and oncology clinics.

In September 2011, NVCCF announced the addition of a local foundation into its programs which provides health and wellness support to adults diagnosed and touched by cancer. The Caring Place Program serves as a complement to medical treatment by providing services including Reiki, reflexology, yoga, stress management, massage, wellness seminars, nutrition classes, support groups and various other services for adults diagnosed with cancer and their caregivers. With this addition of services, NVCCF now offers over 45 programs and services AT NO COST for critically ill children, caregivers, and adults touched by cancer living in Southern Nevada.

In June 2008, NVCCF introduced the Education Services program and opened the first in-patient classroom in the state of Nevada located at Sunrise Children’s Hospital. The program has grown to provide education services to over 175 children each year and hosts education services at Summerlin Hospital. Education staff members work closely with Clark County School District employees to ensure the continued education of children who battle a daily fight against cancer and other life-threatening illnesses. NVCCF Tutoring Services, staffed by volunteers, are available at multiple locations, valley wide, five days per week.

In June 2011, NVCCF became the official Nevada Chapter of the Sickle Cell Disease Association of America, Inc. NVCCF was the first and is the only foundation in Nevada to respond to the needs of sickle cell patients (90% African American and 10% Hispanic) and also those with immunologic diseases in the Las Vegas community.

In 2012, NVCCF became an approved host master site for clinic internship for social workers (post-masters) working to attain their clinical license (3,000 hours of direct individual and family counseling experience). Additionally, NVCCF is the selected facility for student interns completing their practicum (300 hours) for the UNLV Master of Social Work program.

In 2016, NVCCF announced the addition of a local program into its services for adults diagnosed with cancer. The ORION Cancer Grant provides financial grants to support adults diagnosed and in treatment with cancer who need assistance for basic living needs such as food, housing, transportation, and utility payments. Applications and funding information are available at www.nvccf.org .

In July 2017, NVCCF opened its new 16,000 square foot facility to accommodate the growing number of services and programs for those who fight a daily battle against cancer and other life-threatening illnesses. The goal of NVCCF is to improve the quality of life for critically ill children in Southern Nevada and for adults touched by cancer. For information on all services, programs and location, visit www.nvccf.org .

Funding is needed each year to support those in financial crisis and NVCCF continues to search for new funding to support those who fight a daily battle against disease.

Financials

Nevada Childhood Cancer Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Nevada Childhood Cancer Foundation

Board of directors
as of 8/31/2021
SOURCE: Self-reported by organization
Board chair

Mr. Scot Silber

Direct Compounding

Term: 1993 -

Scot Silber

Direct Compounding

Donna Momcilovic-Cook

Modern Realty, Longpoint Ventures, & Firm RCM

Travis Burton

SR Construction Inc.

Ken Alber

PENTA Building Group

Chris Fusch

Fusch Interior Designs

Shawn Danoski

Danoski Building Group

Greg Herlean

Horizon Trust

Al Marquis

Marquis Aurbach Coffing, Law Group

Eamon Springall

STITCHED INC.

John Zaby

Continental Bank

Kimberly Parker-Hansen

Hansen Wealth Mgt. Group

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 02/10/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability