SILVER2024

OPMD Association

Advocating for the OPMD Community

San Antonio, TX   |  opmd.org

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Mission

The OPMD Association's Mission is to advocate for and serve people affected with Oculopharyngeal Muscular Dystrophy (OPMD) by providing education, resources and programs and by creating partnerships with research institutions and corporations in order to discover treatments and a cure for OPMD.

Ruling year info

2022

Founder, CEO

Michele Mulholland

V.P. of Marketing and Social Media

Rebecca Hastings

Main address

18018 Overlook Loop STE 105 #1050

San Antonio, TX 78258 USA

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EIN

88-1258710

NTEE code info

Alliance/Advocacy Organizations (G01)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

OPMD Community Advocacy

1. Advocate for those who have OPMD, their families and caregivers
• Raise awareness of OPMD (website, social media posts, newsletters and events)
• Provide a source of information (studies, resources, treatment options)
• Educate government officials and the public

2. Partner with nonprofit organizations and medical communities
• Local, state, national and international Muscular Dystrophy Associations
• Local, state, national and international nonprofit organizations such as the Society for the Health and Treatment of OPMD (Israel)

3. Partner with medical and research organizations
• University of New Mexico Department of Neurology (U.S. OPMD National Registry)
• U.S. and international Muscular Dystrophy departments and clinics
• Local, state, national and international physicians and research institutions

4. Promote and help secure funding for research, treatments and eventual cures
• Partner with pharmaceutical companies
• Explore and secure grants and donations

Population(s) Served

Where we work

Financials

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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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OPMD Association

Board of directors
as of 02/01/2024
SOURCE: Self-reported by organization
Board chair

Mrs. Michele Mulholland

OPMD Association

Term: 2022 - 2027