GBIA INC

Dedicated to improving the brain injury care path for all

aka Global Brain Injury Awareness   |   Sacramento, CA   |  https://globalbia.org

Mission

GBIA is dedicated to improving the brain injury care path for survivors and is actively involved in the global standardization of brain injury diagnosis and treatment protocols.

Notes from the nonprofit

GBIA INC is the incorporation of 'Global Brain Injury Awareness' founded by Anne Ricketts in 2012 with the inauguration of the 'Brain Injury Global Picnic,' a public and media awareness event. Global Brain Injury Awareness became a CIC in April 2019 in the UK, founded by Anne Ricketts, and GBIA CIC in April 2022, adding Lisa Hirsch as Co-director. Since 2010 Anne Ricketts has provided peer support and psychoeducation to individuals and their families through Facebook support groups and then via the Global Picnic website. The organisation has campaigned for acknowledgement, awareness and research in sports-related injuries, the prevalence of homelessness, incarceration and suicide among the population living with an injury to the brain. Anne has actively encouraged and involved families in the rehabilitation process bringing noticeable change to people and their relationships with relatives and friends. The organisation has always focused on those with little or no medical support.

Ruling year info

2022

Co-founder, CEO

Dr. Lisa B. Hirsch

Co-founder, Executive Director

Anne Ricketts

Main address

3400 Cottage Way Ste G2 #9381

Sacramento, CA 95825 USA

Show more contact info

EIN

88-1755069

NTEE code info

Alliance/Advocacy Organizations (G01)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Currently, unknown numbers of people receive little or no medical support following a brain injury. There are many reasons for this, but the main ones are: + doctors do not have adequate training + brain injury is classified as an event, and treatment protocols are therefore limited + there is a lack of diagnostic tools, biomarkers and effective scanning + people fail to report head injuries because they believe they will 'get over it' Traumatic brain injury affects 213 people per minute globally - public understanding is in line with the medical classification of TBI being an event rather than a chronic disease meaning prevention is not taken seriously. Posttraumatic prolonged and progressive neuroinflammation is associated with neurodegeneration. So far, clinical trials of neuroprotective substances have been disappointing due to the complexities of deleterious neurochemical, metabolic and cellular events.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Global Awareness

GBIA wants to change the public perception of BI so that people understand this is a life-changing condition that can have life-shortening and severe health consequences when left untreated.
TBI is currently classified as an injury event rather than a chronic disease, which gives the public a quick recovery mindset.
Our global awareness campaign reaches the public via:
• Global Brain Injury Awareness Day events, worldwide July 23rd annually
• Monthly Magazines
• Daily social media educational posts
• Exhibitions at conferences
GBIA focuses on helping the public understand that the brain can be injured.
When public perception is changed, people take prevention seriously.

Population(s) Served
Ethnic and racial groups
Caregivers
Families
People with disabilities
Parents

GBIA is actively involved in the global standardization of brain injury diagnosis and treatment protocols.
There are many gaps and inadequacies causing catastrophic consequences for the patient and their family. As scientific understanding continues to bring more details to light, many researchers are racing to provide brain injury-specific biomarkers. These biomarkers will improve the understanding health care providers have of the effects of brain injury on a patient and will improve diagnosis and treatment.

There is no national or global standard of care for the diagnosis and treatment of brain injury as a chronic disease.

Further research is needed to evidence standard protocols for:

• Neuroradiology diagnosis
• Blood biomarkers
• Patient discharge information
• Subsequent long-term health provisions sympathetic to the causation event and the chronic inflammatory cascade
• Rehabilitation
• Return to work and school

Population(s) Served
Ethnic and racial groups
Parents
People with disabilities
Economically disadvantaged people
Families

GBIA provide free webinars to help people following an injury to the brain to navigate the complex challenges they and their families face.
These include understanding brain anatomy and function to remind people how an uninjured brain works and what changes after brain injury, for example, behavioural, social, cognitive and executive impairments.
Every webinar helps people to understand why they need to learn about the information, which supports their ability to relate to the content and topic of each webinar.

Population(s) Served
Families
Parents
People with disabilities
Economically disadvantaged people
Incarcerated people

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

1. Change the current paradigm so that everyone receives a diagnosis plus medical treatment and information

2. Change public perception of traumatic brain injury to eliminate stigmatization and increase the use of safety precautions

3. Change professional perceptions and understanding of traumatic brain injury outcomes and effects to include a general knowledge of limited capacity amongst doctors, law enforcement, employers, teachers, and other authority figures

4. Fair treatment for all regardless of socioeconomic factors

5. Initialise research into a nutraceutical that supports the beneficial aspects of neurological inflammation whilst calming the deleterious effects

GBIA INC is actively involved in creating a worldwide standardisation of diagnostic and treatment protocols.

We are campaigning to reclassify Traumatic Brain Injury as a chronic disease.

We are changing public perception of traumatic and other types of acquired brain injury.

We are educating individuals and families whose lives have been devastated by an injury to the brain. We include professionals in our educational webinars.

We support local groups and organisations worldwide that aim to improve the lives of people affected by brain injury.

We run awareness campaigns throughout the year culminating in Global Brain Injury Awareness Day, July 23.

GBIA INC has collaborative relationships with experts, researchers and professionals worldwide.

We bridge the gap between academia and the community of people whose lives have been changed inexorably by an injury to the brain.

Since 2012 we have brought attention to the vast number of pitfalls that beset people following an injury to the brain. We have increased families' understanding and encouraged them to learn more to support their loved ones. In 2012 we didn't have any relatives in the numerous online support groups, whereas now they number around 50% of members.

In 2021 and 2022, we have continued to increase the number of followers to our community page to more than 7,000. We successfully started a new educational group on Facebook, which has over 600 members. The support group we started in 2010 now has over 17,000 members.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
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  • What challenges does the organization face when collecting feedback?

Financials

GBIA INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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GBIA INC

Board of directors
as of 08/05/2022
SOURCE: Self-reported by organization
Board co-chair

Dr. Lisa Hirsch

GBIA INC

Term: 2021 -


Board co-chair

Anne Ricketts

GBIA INC

Term: 2019 -

Marce Evans

GBIA INC

Dave Lieberman

Disney

Paul Undercliff

Undercliff Accounting

Organizational demographics

SOURCE: Self-reported; last updated 8/2/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Decline to state
Disability status
Person with a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Decline to state
Disability status
Person with a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability