GOLD2023

AJ Patient Advocacy Inc

Your Personal Healthcare Navigator

aka A+J Patient Advocacy   |   Las Vegas, NV   |  http://www.heart4advocacy.com

Mission

A+J Patient Advocacy is your personal healthcare navigator, supporting children, teens, and young adults living with chronic illness. We are on a mission to reduce health disparities by promoting access to appropriate care for the most marginalized patients, increasing patient engagement, and providing knowledge of diagnosis, treatment, and outcomes for patients and their families. Our work is not done until you, the patient, is thriving!

Ruling year info

2022

Executive Director

Rebeka Acosta

Main address

9620 S. Las Vegas Blvd, Suite E4-1170

Las Vegas, NV 89123 USA

Show more contact info

EIN

88-2881149

NTEE code info

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Health Advocacy & Education

- Navigating your diagnosis / illness
- Finding your care team / interviewing providers
- Requesting medical records and treatment summaries / test results
- Organizing records / care notebooks
- Navigating medical language, system processes, and care team members
- Communicating across large care teams, both medical and social service
- Creating a medical calendar / prioritizing specialists and treatments
- Creating disease roadmaps and long-term medical planning
- Health education (transition counseling) for older children and teens, including real world practice to master skills
- Help finding your voice for children, teens, young adults, and family caregivers
- Referrals to community organizations and professionals that provide food or housing assistance, educational system advocacy, insurance review and plan selection, medication review and education, mental health support, disease-specific resources, sibling and caregiver support

Population(s) Served
Parents
Families
People with disabilities
Children and youth
Young adults

Where we work

Awards

Vegas Stronger Champion 2023

KTNV Channel 13

Affiliations & memberships

The Alliance of Professional Health Advocates 2021

National Association of Healthcare Advocacy 2021

Greater National Advocates 2022

Health Advocate X 2022

Unite Nevada 2022

Patients for Patient Safety US 2022

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of new champions or stakeholders recruited

This metric is no longer tracked.
Totals By Year
Related Program

Health Advocacy & Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of media articles reflecting preferred issue framing

This metric is no longer tracked.
Totals By Year
Related Program

Health Advocacy & Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of first-time donors

This metric is no longer tracked.
Totals By Year
Related Program

Health Advocacy & Education

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Average number of days taken to respond to customers

This metric is no longer tracked.
Totals By Year
Related Program

Health Advocacy & Education

Type of Metric

Context - describing the issue we work on

Direction of Success

Holding steady

Number of phone calls/inquiries

This metric is no longer tracked.
Totals By Year
Related Program

Health Advocacy & Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of participants engaged in programs

This metric is no longer tracked.
Totals By Year
Related Program

Health Advocacy & Education

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

AJ Patient Advocacy Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

AJ Patient Advocacy Inc

Board of directors
as of 05/13/2023
SOURCE: Self-reported by organization
Board chair

Sara Cox

Veradigm Health Solutions

Term: 2022 - 2025

Elizabeth Schurrer

St. Ignatius of Loyola School

Marie-France Hache

PwC

James Lee

Salesforce

Joel Cox

Veradigm Health Solutions

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 5/13/2023
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Hispanic/Latino/Latina/Latinx
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 05/13/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.