GOLD2023

The Children's Rare Disorders Fund

The Children's Rare Disorders Fund is dedicated to curing rare genetic disorders.

aka The CRD Fund   |   New York, NY   |  www.thecrdfund.org

Mission

Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space. The Fund raises and distributes funds to research projects aimed at curing and treating rare disorders, to include FOXG1. The CRD Fund aims to fund research for as many rare disorders as possible, in order to cure as many children as possible.

Ruling year info

2022

CEO, Co-Founder

Megan Nolan

CFO, Co-Founder

Kamal Sandhu

Main address

954 Lexington Avenue #1034

New York, NY 10021 USA

Show more contact info

EIN

88-3452294

NTEE code info

Fund Raising and/or Fund Distribution (H12)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Grant Making

We are currently focused on FOXG1 and issues related to FOXG1. Related issues may be applicable to numerous rare genetic disorders as well as to more widespread neurological disorders such as Alzheimer's Disease, Multiple Sclerosis, etc.

We accept grant applications year-round.

Population(s) Served

Where we work

Financials

The Children's Rare Disorders Fund
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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The Children's Rare Disorders Fund

Board of directors
as of 03/03/2023
SOURCE: Self-reported by organization
Board co-chair

Megan Nolan


Board co-chair

Kamal Sandhu

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable