SILVER2022

ALZHEIMERS FOUNDATION OF AMERICA INC

AFA was created to be that resource for families in their time of need.

aka AFA   |   New York, NY   |  www.alzfdn.org

Mission

The mission of the Alzheimer’s Foundation of America (AFA) is to provide support, services and education to individuals, families and caregivers affected by Alzheimer’s disease and related dementias nationwide, and fund research for better treatment and a cure.

Ruling year info

1998

President & CEO

Mr. Charles J. Fuschillo Jr.

Main address

322 Eighth Ave 16th fl

New York, NY 10001 USA

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EIN

91-1792864

NTEE code info

Alzheimer's (G83)

Alliance/Advocacy Organizations (G01)

Hot Line, Crisis Intervention (F40)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Alzheimer's Foundation of America

AFA was founded in 2002 by a caregiver whose mother lived with Alzheimer’s disease from 1980-1992. At that time, there was little information available and nowhere to turn for support. His goal was to make sure that no other family living with Alzheimer’s disease would have to go the journey alone.

AFA was created to be that resource for families in their time of need. AFA operates a National Toll-Free Helpline (866-232-8484), staffed entirely by licensed social workers, which provides support and assistance to callers, as well as connect them with resources in their area, no matter where in the United States they live. The helpline has grown into a seven-day a week service. AFA’s national network of more than 2,800 member organizations serves families affected by Alzheimer’s disease and other dementia-related illnesses in each of the fifty states.

To help individuals take a proactive approach to brain health, AFA has a National Memory Screening Program which provides, free, confidential memory screenings at sites across the country. What began as a program on a single day in November has grown into a year-round service which has screened more than 5 million people to date.

AFA also works with professional caregivers and dementia-care settings to provide them with additional training and continuing education to elevate the level of care they provide on a daily basis. Through its Dementia Care Professionals of America division, AFA has trained more than 16,000 healthcare professionals in dementia-specific care.

Population(s) Served
Adults

Where we work

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Individuals, families and caregivers affected by Alzheimer’s disease and related dementias nationwide.

  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • What significant change resulted from feedback?

    Comments regarding the need for additional support services resulted in AFA expanding the hours and days of our Helpline, as well as adding a web chat and text message feature that can serve individuals in more than 90 languages. We expanded our support group offerings, and also expanded access to our memory screening program by making it available in-person, virtually, and over the phone. We also undertook a survey of all subscribers to our Alzheimer's TODAY free caregiver magazine to get their feedback on the types of stories and method of delivery they prefer. These responses helped guide content in future issues to make it more impactful for those served by the magazine.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

ALZHEIMERS FOUNDATION OF AMERICA INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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ALZHEIMERS FOUNDATION OF AMERICA INC

Board of directors
as of 10/03/2022
SOURCE: Self-reported by organization
Board chair

Mr. Bert Brodsky

Bert E. Brodsky

Barry Berg, CPA

Luisa Echevarria

Jerry Angowitz, Esq.

Edward Miller

Steve Israel

Arthur S. Laitman, Esq.

Organizational demographics

SOURCE: Self-reported; last updated 10/3/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data