PLATINUM2024

PARKINSON COUNCIL

Your local partner in the movement against Parkinson's disease

aka The Parkinson Council   |   Philadelphia, PA   |  www.theparkinsoncouncil.org

Mission

The Parkinson Council is the premiere local organization that dedicated to improving the quality of life for people with Parkinson's and their families. We invest in research, education, and programs provided by world-renowned institutions and innovative service organizations in the greater Philadelphia area. We strengthen our role in the Parkinson's community by increasing the number of lives we touch every year.

Ruling year info

2003

Chief Executive Officer

Ms. Wendy R. Lewis

Main address

12 W. Willow Grove Avenue

Philadelphia, PA 19118 USA

Show more contact info

EIN

91-1803234

NTEE code info

Fund Raising and/or Fund Distribution (G12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Improving the quality of life for people with Parkinson's and their carepartners in the Delaware Valley (Philadelphia) region. The local funds we raise is reinvested back into the community for comprehensive care, scientific and clinical research, education, outreach and movement programs.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Comprehensive Care, Education, Research, Quality of Life Programs and Services

Nurse and social worker support, research and education, and quality of life (art, music and movement classes) for care partners and family members.

Population(s) Served
Caregivers
People with physical disabilities
People with other disabilities
Chronically ill people
Older adults

Where we work

Awards

Diversity in Business Award 2023

Philadelphia Business Journal

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of grassroots organizations supported

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, Adults, Caregivers, Families, People with physical disabilities

Related Program

Comprehensive Care, Education, Research, Quality of Life Programs and Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Parkinson Council provides funding for small community-based organizations tackling issues to keep people with Parkinson's and their families socially and emotionally engaged.

Number of organizations applying for grants

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Comprehensive Care, Education, Research, Quality of Life Programs and Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

Organizations that were previously funded were invited to submit RFPs for funding in 2023. All organizations that applied received funding that ranged from $80,000 to $1,100.

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers, People with disabilities, Families, People with diseases and illnesses

Related Program

Comprehensive Care, Education, Research, Quality of Life Programs and Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Grant funding is dependent on fundraising and awareness-promoting events success. The Parkinson Council strives to fund vital and viable programs that increase the number of lives touched each year.

Total number of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Grant funding increased from the previous year due to an increase in fundraising and a decrease in expenses.

Number of individuals attending community events or trainings

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers, People with disabilities, Adults

Related Program

Comprehensive Care, Education, Research, Quality of Life Programs and Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Parkinson Council is rebuilding in-person events due to the pandemic; we continue to offer virtual education events. We held two in-person events in 2023 that attracted over 2500 people.

Number of funding dollars secured for demonstration projects or pilots

This metric is no longer tracked.
Totals By Year
Population(s) Served

People of African descent, People with disabilities, Interfaith groups

Related Program

Comprehensive Care, Education, Research, Quality of Life Programs and Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The shifting focus of donors to social justice and community outreach efforts helped secure dollars that concentrate on eliminating barriers to care.

Number of new organizations signing on as collaborators

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities, Multiracial people

Related Program

Comprehensive Care, Education, Research, Quality of Life Programs and Services

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

DIVERSITY PD (Delaware Valley Endeavor for Racial Solidarity in Parkinson's) collaborates with health care providers, specialists, community advocates, and faith-based institutions.

Number of independent organizations served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers, People with diseases and illnesses

Related Program

Comprehensive Care, Education, Research, Quality of Life Programs and Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

The Parkinson Council provides grant funding to both world-renowned and community-based institutions focused on comprehensive care, art-education and exercise for families impacted by Parkinson's.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We invest in research, education and programs provided by world-renowned institutions and innovative service organizations in the greater Philadelphia area.

We are committed to keeping all of the funding we raise local to support quality of life programs and research.

We strengthen our role in the Parkinson's community by increasing the number of lives we touch every year.

In 2024, our goal is to increase the visibility of our work, strengthen our partnerships, and diversify our funding base. Our strategies include:

1. Grow available resources to provide programs and services to a growing number of people impacted by Parkinson's disease in the region.
2. Support research at local universities and hospitals to enhance their ability to learn more about the disease and its impact on those on families.
3. Invest in services designed to improve the quality of life for local families.
4. Increase awareness and understanding about the disease in the region.
5. Grow and strengthen our board to ensure continuity, consistency, and diversity.
6. Expand TPC outreach to more diverse communities and touch more lives of people of color through partnerships.

The Parkinson Council serves as a trusted source information on changing health initiatives and modalities that support its constituents and it actively shares information about Parkinson's disease in a timely and responsible fashion.

7 Ways We Change Lives

1. More people, including low-income people, are getting more therapy, education, and social support.

2. Doctors at Penn and Jefferson are doing research that will improve Parkinson's therapies.

3. More people who need home visits are getting them.

4. A mentorship program designed to appropriately match newly diagnosed people living with Parkinson's to cope and self-manage their diagnosis.

5. The Philadelphia Museum of Art teaches painting, drawing, papermaking, pottery, and sculpture to people with Parkinson's.

6. The University of Delaware is helping more patients get access to Movement Disorder Specialists.

7. All over the region, people with Parkinson's are dancing and singing, many for the first time.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

PARKINSON COUNCIL
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Operations

The people, governance practices, and partners that make the organization tick.

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  • Compare nonprofit financials to similar organizations

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

PARKINSON COUNCIL

Board of directors
as of 01/18/2024
SOURCE: Self-reported by organization
Board co-chair

Executive Committee


Board co-chair

Ms. Erica Domingo

William Quinlan

Jeff Keefer

Suzanne Reichwein

Scott Larson

Lorraine Iacovitti

George Pilallis

Erica Domingo

Eric Berkowitz

Shilpa Agarwala

Sharon Klazmer

Lance Wilson

Jason Ross

Carlie Johnson-Tully

Cherie Cosby-Weeks

Howard Hurtig

Susan Lehman

Kevin Hayes

Steven Biss

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 1/12/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Black/African American
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Decline to state

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

Equity strategies

Last updated: 09/21/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.