PARKINSON COUNCIL
Your local partner in the movement against Parkinson's disease
Programs and results
What we aim to solve
Improving the quality of life for people with Parkinson's and their carepartners in the Delaware Valley (Philadelphia) region. The local funds we raise is reinvested back into the community for comprehensive care, scientific and clinical research, education, outreach and movement programs.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Comprehensive Care, Education, Research, Quality of Life Programs and Services
Nurse and social worker support, research and education, and quality of life (art, music and movement classes) for care partners and family members.
Where we work
Awards
Diversity in Business Award 2023
Philadelphia Business Journal
External reviews
Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of grassroots organizations supported
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, Adults, Caregivers, Families, People with physical disabilities
Related Program
Comprehensive Care, Education, Research, Quality of Life Programs and Services
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
The Parkinson Council provides funding for small community-based organizations tackling issues to keep people with Parkinson's and their families socially and emotionally engaged.
Number of organizations applying for grants
This metric is no longer tracked.Totals By Year
Population(s) Served
People with disabilities
Related Program
Comprehensive Care, Education, Research, Quality of Life Programs and Services
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Context Notes
Organizations that were previously funded were invited to submit RFPs for funding in 2023. All organizations that applied received funding that ranged from $80,000 to $1,100.
Total dollar amount of grants awarded
This metric is no longer tracked.Totals By Year
Population(s) Served
Caregivers, People with disabilities, Families, People with diseases and illnesses
Related Program
Comprehensive Care, Education, Research, Quality of Life Programs and Services
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Grant funding is dependent on fundraising and awareness-promoting events success. The Parkinson Council strives to fund vital and viable programs that increase the number of lives touched each year.
Total number of grants awarded
This metric is no longer tracked.Totals By Year
Population(s) Served
Health
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Grant funding increased from the previous year due to an increase in fundraising and a decrease in expenses.
Number of individuals attending community events or trainings
This metric is no longer tracked.Totals By Year
Population(s) Served
Caregivers, People with disabilities, Adults
Related Program
Comprehensive Care, Education, Research, Quality of Life Programs and Services
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
The Parkinson Council is rebuilding in-person events due to the pandemic; we continue to offer virtual education events. We held two in-person events in 2023 that attracted over 2500 people.
Number of funding dollars secured for demonstration projects or pilots
This metric is no longer tracked.Totals By Year
Population(s) Served
People of African descent, People with disabilities, Interfaith groups
Related Program
Comprehensive Care, Education, Research, Quality of Life Programs and Services
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
The shifting focus of donors to social justice and community outreach efforts helped secure dollars that concentrate on eliminating barriers to care.
Number of new organizations signing on as collaborators
This metric is no longer tracked.Totals By Year
Population(s) Served
People with disabilities, Multiracial people
Related Program
Comprehensive Care, Education, Research, Quality of Life Programs and Services
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Context Notes
DIVERSITY PD (Delaware Valley Endeavor for Racial Solidarity in Parkinson's) collaborates with health care providers, specialists, community advocates, and faith-based institutions.
Number of independent organizations served
This metric is no longer tracked.Totals By Year
Population(s) Served
Caregivers, People with diseases and illnesses
Related Program
Comprehensive Care, Education, Research, Quality of Life Programs and Services
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Context Notes
The Parkinson Council provides grant funding to both world-renowned and community-based institutions focused on comprehensive care, art-education and exercise for families impacted by Parkinson's.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
We invest in research, education and programs provided by world-renowned institutions and innovative service organizations in the greater Philadelphia area.
We are committed to keeping all of the funding we raise local to support quality of life programs and research.
We strengthen our role in the Parkinson's community by increasing the number of lives we touch every year.
What are the organization's key strategies for making this happen?
In 2024, our goal is to increase the visibility of our work, strengthen our partnerships, and diversify our funding base. Our strategies include:
1. Grow available resources to provide programs and services to a growing number of people impacted by Parkinson's disease in the region.
2. Support research at local universities and hospitals to enhance their ability to learn more about the disease and its impact on those on families.
3. Invest in services designed to improve the quality of life for local families.
4. Increase awareness and understanding about the disease in the region.
5. Grow and strengthen our board to ensure continuity, consistency, and diversity.
6. Expand TPC outreach to more diverse communities and touch more lives of people of color through partnerships.
What are the organization's capabilities for doing this?
The Parkinson Council serves as a trusted source information on changing health initiatives and modalities that support its constituents and it actively shares information about Parkinson's disease in a timely and responsible fashion.
What have they accomplished so far and what's next?
7 Ways We Change Lives
1. More people, including low-income people, are getting more therapy, education, and social support.
2. Doctors at Penn and Jefferson are doing research that will improve Parkinson's therapies.
3. More people who need home visits are getting them.
4. A mentorship program designed to appropriately match newly diagnosed people living with Parkinson's to cope and self-manage their diagnosis.
5. The Philadelphia Museum of Art teaches painting, drawing, papermaking, pottery, and sculpture to people with Parkinson's.
6. The University of Delaware is helping more patients get access to Movement Disorder Specialists.
7. All over the region, people with Parkinson's are dancing and singing, many for the first time.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
PARKINSON COUNCIL
Board of directorsas of 01/18/2024
Executive Committee
Ms. Erica Domingo
William Quinlan
Jeff Keefer
Suzanne Reichwein
Scott Larson
Lorraine Iacovitti
George Pilallis
Erica Domingo
Eric Berkowitz
Shilpa Agarwala
Sharon Klazmer
Lance Wilson
Jason Ross
Carlie Johnson-Tully
Cherie Cosby-Weeks
Howard Hurtig
Susan Lehman
Kevin Hayes
Steven Biss
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
Disability
Equity strategies
Last updated: 09/21/2023GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We review compensation data across the organization (and by staff levels) to identify disparities by race.
- We ask team members to identify racial disparities in their programs and / or portfolios.
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We disaggregate data by demographics, including race, in every policy and program measured.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.