PLATINUM2024

NORTHWEST PARKINSON'S FOUNDATION

No one should walk their Parkinson’s journey alone.

aka NWPF   |   Mercer Island, WA   |  http://www.nwpf.org

Mission

The mission of the Northwest Parkinson's Foundation is to establish optimal quality of life for the Northwest Parkinson's community through awareness, education, advocacy, and care.

Notes from the nonprofit

Northwest Parkinson's Foundation is a local, independent non-profit. We exist to make the lives of people with Parkinson's Disease better. We offer free Masters of Social Work services and a myriad of free educational and exercise programming open to anyone. We have a Spanish-speaking only Support Group and are finding other ways to reach all members of our Parkinson's community.

Ruling year info

1998

Executive Director

Mr. Virgil Sweeney, MBA

Main address

3010 77TH AVE SE, Suite 101

Mercer Island, WA 98040 USA

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EIN

91-1923159

NTEE code info

Specifically Named Diseases (G80)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

HOPE Conference on Parkinson's

Northwest Parkinson's Foundation continues to hold its annual HOPE Conferences despite pandemic restrictions. NW Parkinson's was able to pivot and provide a virtual conference this year. We are hoping for an in-person event in 2022!

Population(s) Served
Adults

A website designed to inspire people with Parkinson’s and their loved
ones to make positive personal changes that contribute to living their best
with a chronic disease. It couples up-to-date education on Parkinson’s with
information on holistic health, self-care and personal healing to enhance
wellness.

Population(s) Served
Adults

PD Link is a peer-to-peer network that matches individual volunteers living with Parkinson's, or their caregivers, to patients whose diagnosis is more recent. PD Link clients are recently diagnosed individuals or their family members who do not feel ready to engage in a group conversation, and as such would greatly benefit from a broad and well-trained base of volunteers.

Population(s) Served
People with diseases and illnesses

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of patient consultations

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers, Families, Adults, People with disabilities, People with diseases and illnesses

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To meaningfully touch each of the approx. 70,000 persons living with Parkinson's throughout the Pacific Northwest.

To measurably improve quality of life for those we serve.

To ensure caregivers and family members receive the support and guidance they need.

Continue to expand our outreach through traditional and non-traditional media.

Provide educational opportunities on the latest in Parkinson's treatment and care for all phases of the care continuum.

Enhance our ability to capture and measure program outcomes in order to improve program impacts.

The staff of NWPF has extensive nonprofit and nonprofit management experience, as well as direct knowledge and experience in working with populations living with debilitating conditions. We currently have a Masters of Social Work (MSW) on staff to help those impacted by Parkinson's.

NWPF has recently augmented it's staff in order to develop and execute more effective programming and is in the process of re-launching its website improve navigation and ease of use, enabling users to more readily find and benefit from the information it contains. We continue to seek partnerships with like-minded organizations and individuals in order to more effectively reach and serve our core constituency.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, We don’t have the right technology to collect and aggregate feedback efficiently, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time

Financials

NORTHWEST PARKINSON'S FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

NORTHWEST PARKINSON'S FOUNDATION

Board of directors
as of 02/22/2024
SOURCE: Self-reported by organization
Board chair

Mr. Steve Bodnar

Retired

Term: 2025 - 2022

Larry Jacobson

Community Volunteer

David Newsom

Sandcastle Web Design & Development

Grove Ayers

Property Development

Doreen Nicholas

Speech Therapist

Dr. Steve Bodnar

Retired Superintendent

Dr. Steve Gilbert

Scientist

Pat Brzusek

Retired Nurse

Nikki Gale

Instructor

Dr. Karin Sue Duncan

Naturopath

David Sanders

Administrator

Kim Fredericks

Retired

Bob Masin

Retired Business Owner

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 10/19/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Asian/Asian American
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 10/19/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.