Childrens Choanal Atresia Foundation

Imagine, being born without the ability to breathe.

aka babynose.org   |   TACOMA, WA   |  www.babynose.org

Mission

Children's Choanal Atresia Foundation mission is to support awareness thus improve diagnosis, research to improve treatment and care, and research to identify possible genetic links and possible long term developmental issues. Choanal atresia is a birth defect that impairs a newborn infant’s ability to breathe. According to the NIH/CDC each year over 750 newborn infants suffocate to death before they reach 27 days of age and are termed SIDS incidents. Some of these deaths may be due to undiagnosed CA. The Foundation also provides Parent-to-Parent support through our “Angel Network” which began in 1989.

Ruling year info

2009

Founder

Mr. James Loomis

Main address

1809 N VASSAULT ST

TACOMA, WA 98406 USA

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EIN

91-2071899

NTEE code info

Ear/Throat (G42)

Birth Defects, Genetic Diseases Research (H20)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Breath of Life Campaign

The Breath of Life Campaign is an awareness campaign to share information about choanal atresia its devastating impact on newborn infants and the loss of life due to a failure to properly and timely diagnose this birth defect.

Population(s) Served

Saving Infant Lives Campaign is directed toward health care professionals for a greater awareness about the life threatening birth defect of choanal atresia in order to facilitate improved treatment, care, and research about CA.

Population(s) Served

Nasal Stent Project is a collaborative effort between The Boeing Company, Seattle Children’s Hospital including its departments of Otolaryngology, Dentistry, and Pathology. and the Seattle based firm of Model Instrument and Design who provided rapid tooling capabilities for the project. The team developed a nasal stent design to improve treatment recovery and care for infants born with choanal atresia. The nasal stent can be viewed at the foundations web site www.babynose.org.

Population(s) Served

Parent-To-Parent “Angel Network” Project provides personal emotional support as well as shared experience between parents who have experienced the difficulties and trauma of a child born with CA and providing the day to day care for these children.

Population(s) Served

Where we work

Financials

Childrens Choanal Atresia Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Childrens Choanal Atresia Foundation

Board of directors
as of 07/20/2018
SOURCE: Self-reported by organization
Board chair

Mr. James Loomis

Children's Choanal Atresia Foundation

Mark Richardson M.D.