INFLAMMATORY BREAST CANCER RESEARCH FOUNDATION

aka IBC Research Foundation   |   West Lafayette, IN   |  www.ibcresearch.org

Mission

The Inflammatory Breast Cancer Research Foundation's mission is to improve the lives of those touched by inflammatory breast cancer through the power of advocacy and action. We do this by fostering innovative inflammatory breast cancer research, educating stakeholders, and tirelessly advocating for both patients and survivors.

Ruling year info

2000

Executive Director

Ginny (Virginia) Mason

Main address

P. O. Box 2805

West Lafayette, IN 47996 USA

Show more contact info

EIN

92-0169401

NTEE code info

Alliance/Advocacy Organizations (G01)

Cancer (G30)

Cancer Research (H30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2019, 2018 and 2017.
Register now

Communication

Programs and results

What we aim to solve

This profile needs more info.

If it is your nonprofit, add a problem overview.

Login and update

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

No Lump Required

Inflammatory breast cancer (IBC) patients are invited to complete an on-line survey of questions about their IBC experience as well as some health related common data elements. Data is de-identified and made available to researchers studying the disease. This is an IRB approved, PCORI project allowing patients to set their own privacy levels on their de-identified data.

Population(s) Served

Four educational webinars designed to meet needs of those with metastatic inflammatory breast cancer (IBC). Topics include management of skin metastasis, lymphedema, disability, sexuality issues, & family challenges.

Population(s) Served

Where we work

This profile needs more info.

If it is your nonprofit, add geographic service areas to create a map on your profile.

Login and update

Financials

INFLAMMATORY BREAST CANCER RESEARCH FOUNDATION
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

INFLAMMATORY BREAST CANCER RESEARCH FOUNDATION

Board of directors
as of 7/2/2019
SOURCE: Self-reported by organization
Board co-chair

Ginny Mason

Inflammatory Breast Cancer Research Foundation

Term: Apr 2017 - Apr 2018


Board co-chair

RK VanOrsdal

Carol McWilliams retired

Phyllis Johnson retired

Jennifer Sickels Accounting & Tax preparation

Jackson Hewitt

R. K. VanOrsdal retired

Bryon Milburn Entrepreneur

Blakepoint

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No