PLATINUM2024

Hsu Family Charitable Fund Inc

Uniting Minds, Conquering Brain Cancer

aka Brain Cancer Research Alliance   |   The Villages, FL   |  https://braincancerresearchalliance.org/

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Mission

THE MISSION OF THE HSU FAMILY CHARITABLE FUND FOR BRAIN CANCER RESEARCH IS TO RAISE THE AWARENESS AND FUNDING FOR BRAIN CANCER RESEARCH, ULTIMATELY ENABLING NEW TREATMENT OPTIONS. THROUGH PARTNERSHIPS WITH RELATED INDUSTRY AND NONPROFIT ORGANIZATIONS AND COORDINATING FUNDRAISING EVENTS WE AIM TO FUEL OUR EFFORTS AND BRING SUPPORT TO THE BRAIN CANCER COMMUNITY. OUR END GOAL IS TO CHANGE THE TREATMENT PARADIGM AND HELP BRING FORWARD NEW TREATMENTS FOR BRAIN CANCER PATIENTS WITHIN THE NEXT DECADE.

Notes from the nonprofit

Our organization also works under another name - DBA. It is the Brain Cancer Research Alliance. www.braincancerresearchalliance.org Please see attached documentation.

Ruling year info

2023

Principal Officer

Elizabeth Hsu

Co Principal Officer

Felix Hsu

Main address

3817 Wine Palm Way

The Villages, FL 32163 USA

Show more contact info

EIN

92-1409875

NTEE code info

Human Services - Multipurpose and Other N.E.C. (P99)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Brain cancer is one of the worlds deadliest cancers. It kills more children and adults under 40 than any other cancer, yet remains one of the most under researched of all the cancer groups. Unlike most cancers, brain cancer survival rates have not improved significantly over the last 30 years and remain among one of the lowest of all the cancer survival rates. - Over 700,000 people in the US have brain tumors, yet there is little awareness and therefore, little funding. As a result, existing treatments are from the 1970's and patients do not survive. - Approximately 90,000 people in the US will receive a brain tumor diagnosis this year

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Community Fundraising support program

Program Description: Facilitate fundraising initiatives and select and support research programs that aim to transform the treatment landscape for brain cancer.

Population(s) Served

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of individuals reached to raise awareness and funding for brain cancer

This metric is no longer tracked.
Totals By Year
Related Program

Community Fundraising support program

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

In our efforts to raise funding and awareness for brain cancer, we have held multiple fundraising events in addition to running social media campaigns.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The mission of the Brain Cancer Research Alliance (Hsu Family
Charitable Fund for Brain Cancer Research) is to raise the
awareness and funding for brain cancer research, ultimately
enabling new treatment options. Through partnerships with
related industry and nonprofit organizations and coordinating
fundraising events we aim to fuel our efforts and bring support to
the brain cancer community. Our end goal is to change the
treatment paradigm and help bring forward new treatments for
brain cancer patients within the next decade.

Start in local markets and expand regionally
Initial fundraisers in The Villages FL and Boston

Expand to other east coast states (and beyond as we grow organically)

Expand in FL, and maybe some nearby states

Or, investigate and determine the best way to

Opportunistically look to expand locally and test franchise model

Trial in MN with Chris and Gwen Kelly in October

Build tactics and recruit people to sustain fundraising activities

Strengthen regional presence by aligning with local/regional brain cancer centers to expand events.
****************************************************************
Focus on Where to Spend the Money

Through local KOLs and SABS understand studies

Provide funding through larger grants to have more impact and get more attention

Pool funding over multiple years, offer 2-year grants for $100k +

Request semi-annual reviews

Require 90% of funding goes into research or studies
***********************************************************
Explore alliances with different parties/non-profit fund raisers
Brain Cancer Collective

Our team consists of individuals who have executive level experience in the bio-medical field, non-profit and bio-medical communications. As a result, we have the knowledge and experience to execute the strategy we've provided above. For more information please visit our website at:

https://braincancerresearchalliance.org/https://braincancerresearchalliance.org/


Our organization was established as a non-profit organization in 2023. Since that time we have held multiple fundraising events in Florida, and the Boston area. We have participated in lobbying campaigns to advocate for brain cancer patients and to increase funding for brain cancer and have forged new relationships with leading brain cancer research institutions in the United States.

Guidestar has requested progress from 2022. However, our organization was in the process of establishing itself as a registered nonprofit at that time. In 2022 we initiated our first fundraisers and raised almost 20,000 which went directly to brain cancer research.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback

Financials

Hsu Family Charitable Fund Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Hsu Family Charitable Fund Inc

Board of directors
as of 02/07/2024
SOURCE: Self-reported by organization
Board chair

Felix Hsu

Brain Cancer Research Alliance

Term: 2022 - 2027

Chris Becker

Kate Contreras

Real Chemistry

Becky Hsu

Brain Cancer Research Alliance

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 12/6/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Decline to state
Disability status
Decline to state

The organization's co-leader identifies as:

Race & ethnicity
Asian/Asian American
Gender identity
Male
Sexual orientation
Decline to state
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

Equity strategies

Last updated: 12/05/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.