VESTIBULAR DISORDERS ASSOCIATION

Life Rebalanced

aka VeDA   |   Portland, OR   |  https://vestibular.org

Mission

The Vestibular Disorders Association's mission is to inform, support and advocate for the vestibular community.

We envision a global community where vestibular disorders are widely recognized, rapidly diagnosed, and effectively treated.

Ruling year info

1986

Executive Director

Ms. Cynthia Ryan MBA

Main address

5018 NE 15th Ave

Portland, OR 97211 USA

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Formerly known as

Dizziness and Balance Disorders Association of America

EIN

93-0914340

NTEE code info

Ear/Throat (G42)

Professional Societies & Associations (E03)

Ear and Throat (H42)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

According to the National Institutes of Health, 40% of the U.S. population over 40 will experience a balance disorder in their lifetime. Dizziness is the 3rd most common major medical symptom reported, yet the majority of cases remain unexplained. More than 12 million people over 65 experience a dizziness or balance problem that significantly interferes with their life. Falls are the leading cause of injury death for people over 65, with an estimated $19 billion spent annually to treat fall-related injuries. A further complication is the difficulty of diagnosing vestibular disorders. As a result, vestibular patients often spend 3-5 years seeking a diagnosis. It is not uncommon to see 7-9 doctors in different specialties before receiving a diagnosis. Once patients do receive a diagnosis, treatment is frequently not effective. There is an urgent need to address the needs of vestibular patients for information and improvement in diagnosis and treatment.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Education and Outreach

VeDA provides information to people seeking to learn about vestibular disorders.
• What is a vestibular disorder?
• Why do I feel dizzy or disoriented?
• How can I find a doctor who will help me figure out what's wrong with me?
• Will I ever get better?
• Where can I connect with others who have similar symptoms?

VeDA's free publications answer these questions and more. We provide scientifically validated information about specific types of vestibular disorders, diagnosis, treatment and coping mechanisms. Our quarterly newsletter, On the Level, reports on current news about vestibular disorders, provides tips for daily living, and shares personal stories from our members. Through our website and social media outlets we share links to scientific articles and public interest stories relevant to our readership.

We keep people informed by providing a basis for understanding vestibular disorders while keeping them connected to the latest news. VeDA is the authoritative source for information and education about vestibular balance disorders.

Population(s) Served

The  Vestibular Disorders Association (VEDA) builds, manages, and maintains a Web site (www.vestibular.org) with information and resource links. This year 704,000 visitors viewed more than 2.2 million pages of our information about vestibular disorders, the human balance, system, and diagnosis and treatment options and resources.

Population(s) Served

The Vestibular Disorders Association (VEDA) builds and maintains support networks that include 28 support groups, a member-to-member linking service for its 2,470 members, a Facebook page with 1,994 fans, and a provider directory of vestibular disorder specialists (requested 195,100 times this year).

Population(s) Served

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

1) Increase awareness about vestibular disorders among the general public, so that patients who are suffering with an inner ear or brain condition that affects their balance, hearing, cognition, and emotional stability can understand what they are going through and find help.

2) Increase awareness about vestibular disorders among the medical community so that patients are more rapidly diagnosed and effectively treated.

3) Support research into the diagnosis and treatment of vestibular disorders.

4) Advocate for increased insurance coverage for vestibular diagnostics and treatment.

1) Provide scientifically validated information about vestibular disorders through multiple communication channels.

2) Cultivate relationships within the medical community.

3) Create vestibular triage protocols to help primary healthcare practitioners differentiate between vestibular and non-vestibular forms of dizziness, and refer patients to the appropriate specialist so they can get accurately diagnosed.

4) Manage a patient registry on vestibular disorders.

5) Partner with academia and industry to promote scientific research.

6) Testify to the Social Security Administration, Medicare, and major insurance companies to demonstrate the prevalence of vestibular disorders among the general public, the impact they have on the daily life of patients and their family, and the cost associated with the widespread misdiagnosis of vestibular patients.

Executive Director: Cynthia Ryan graduated summa cum laude with an MBA in Management and brings over 20 years executive management experience.

The VeDA board of directors is composed of vestibular patients and professionals who are geographically and professionally diverse - from medical doctors to audiologists and physical therapists, as well as management consultants, CPAs and sales associates. All are passionate about raising awareness about vestibular disorders and devote a considerable amount of time to VeDA's strategic planning and committee work.

VeDA's Medical and Scientific Advisory Board includes medical professionals with the highest regard in the vestibular community. All are involved in research and many engage in clinical practice.

1) We have over 100 short publications on vestibular disorders covering diagnosis, treatment and coping strategies written by medical professionals.

2) We have a free online provider directory to help patients find a specialist near their location.

3) We have a successful annual awareness campaign (Balance Awareness Week) that engages partners across the U.S. and in many different countries.

4) We have a support group network that connects patients within their local communities.

5) We have an online forum to connect patients who are limited in their ability to travel, and/or who have no local support group.

6) We have vestibular triage protocols to help primary healthcare providers differentiate between vestibular and non-vestibular forms of dizziness and refer patients to the appropriate specialist.

7) We have a patient registry with over 1,200 participants.

Financials

VESTIBULAR DISORDERS ASSOCIATION
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Operations

The people, governance practices, and partners that make the organization tick.

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VESTIBULAR DISORDERS ASSOCIATION

Board of directors
as of 10/16/2020
SOURCE: Self-reported by organization
Board co-chair

Ms. Kathleen Stross

In Harmony Physical Therapy

Term: 2020 - 2023


Board co-chair

Mr. Kamran Barin

self employed

Term: 2020 - 2023

Dennis Fitzgerald

Washington Hospital Center

Jordan Tucker

Virginia Western Community College

Danielle Tate

Horizon Rehabilitation Sports Medicine

Rebecca Rubin

self-employed

Holly Fisher

retired

Patricia Gerend

retired

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes