NATIONAL STUTTERING ASSOCIATION

If You Stutter, You're Not Alone

aka NSA   |   Staten Island, NY   |  www.WeStutter.org

Mission

The mission of the National Stuttering Association is to bring hope and empowerment to children and adults who stutter, their families, and speech professionals through support, education, advocacy, research, and outreach. As the preeminent support organization for people who stutter, the National Stuttering Association takes a leadership role in shaping the way stuttering is viewed and treated and is a primary provider of education and information nationwide.

Ruling year info

1977

Executive Director

MS. Tammy Flores

Main address

3285-B Richmond Ave, #119 Attn: Tammy Flores

Staten Island, NY 10312 USA

Show more contact info

EIN

94-2420533

NTEE code info

Nonprofit Management (S50)

Human Services - Multipurpose and Other N.E.C. (P99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The mission of the National Stuttering Association is to bring hope and empowerment to children and adults who stutter, their families, and speech professionals through support, education, advocacy, research, and outreach. As the preeminent support organization for people who stutter, the National Stuttering Association takes a leadership role in shaping the way stuttering is viewed and treated and is a primary provider of education and information nationwide.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

We Stutter @ Work

The vision of the We Stutter @ Work initiative is to eliminate the many stigmas faced by people who stutter in the workplace, to encourage workplaces to become more inclusive, and for people who stutter to gain the confidence to pursue their desired careers. The initiative includes:

-Mock job interviews and free interactive webinars to help people who stutter gain experience and confidence going into a job interview;
-One-day conferences to educate employers, diversity and inclusion executives, and career-focused adults who stutter about stuttering in the workplace issues; and
-Employer education to provide free educational resources to correct false stereotypes and misperceptions about the workplace capabilities of people who stutter.

Population(s) Served
Adults
Unemployed people

The National Stuttering Association is the world's largest stuttering support organization dedicated to providing resources to people who stutter and their families. Our mission is to bring hope and empowerment to children and adults who stutter, their families, and professionals through support, education, advocacy, and research.

The NSA provides education and training to parents, professionals, and the public in an ongoing effort to increase understanding of stuttering. It also serves as a reliable and valuable resource for speech-language pathologists. The NSA’s successful school in-service program has provided education and resources about effective therapy to speech therapists and educators since 1989. Funded by the American Speech-Language-Hearing Association, this rewarding program partners NSA members with children who stutter and their parents so that they can share experiences about how stuttering has affected their lives, and importantly, about how they have learned to meet the challenges they have faced.

With over three million Americans sharing the challenges associated with stuttering, the NSA also plays a vital role in connecting people who stutter and helping them understand that they are not alone. For many children who stutter, they are often the only students in their schools who stutter, and they may not have ever met anyone else who stutters. Reading about successful adults who stutter and learning that there are resources for them is not only beneficial to these children, but this information is also passed along to their parents and siblings.

We plan to distribute printed educational materials to school-aged children who stutter and teachers to further communicate what stuttering is and how it can affect the lives of people who stutter. The NSA's motto is "If you stutter, you are not alone." With your support, we will be able to develop and print materials targeted to this often isolated population and let them know that if they stutter, they are not alone.

Population(s) Served
Families
Children and youth

The National Stuttering Association is increasing its outreach to the military to serve as a resource for those persons who stutter who are in, or want to be in, the military. A committee of dedicated supporters has worked on revising an employment brochure to be specifically geared towards the military.

The NSA's long-term vision is to communicate that stuttering is not a disqualifier from serving in many branches of the military. Right now, some persons who stutter are automatically disqualified from service because they stutter. Others are waived in. The NSA would like to see all people who stutter have the opportunity to serve in the military, and to have military medical personnel have enough familiarity with stuttering to offer support and resources if needed for the personnel to best do their job and serve their country.

Population(s) Served
Military personnel

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of Annual Conference participants

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with other disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We know that stuttering can be about more than speech and affect more aspects of everyday life than can be seen by an outsider. We want all individuals who stutter to pursue their dreams with confidence, in a world where they know they are not alone. However, for children who stutter – particularly for those who do not know any other peers who stutter – stuttering can be humiliating, frustrating, and isolating. It is therefore essential that adults who can most effectively help have the capacity and be empowered with accurate information to best serve children and teens who stutter.

By providing information and resources, professional support, opportunities to engage with others within the field, and continuing education opportunities, together we can increase awareness of stuttering, improve acceptance of how people who stutter communicate, and better understand how to best meet the needs of children and teens who stutter.

Our goal is to be the premier support resource for improving the lives of people who stutter through the following four ways:

Outreach & Support
The NSA provides support and resources to the stuttering community, instilling the sense of self-worth so often missing in the lives of those who stutter. With nearly 200 local support groups serving our thousands of members nationwide, the NSA also offers a proven outlet to build self-confidence, practice speaking and therapeutic techniques in a safe environment, and explore new ways to cope with stuttering through mutual aid and support in a listener-friendly environment. In addition, for the past 34 years, the NSA has hosted an annual conference for children, teens, and adults who stutter, as well as their family members and speech professionals. The conference serves as an opportunity for people who stutter to meet one another and develop coping strategies for their stuttering, as well as for family members to learn more about their children and siblings who stutter.

Research
Through its research partnerships, the NSA aims to search for a cure for stuttering while simultaneously enhancing speech therapies and treatments that exist today. Not only does the NSA host a research symposium for speech professionals in conjunction with its popular member-driven annual conference, but it also provides expert review of speech therapies, coordinates research among various professional and educational institutions, and funds seed grants for new research opportunities.

Professional Support
In addition to providing support and resources to people who stutter and their families, the NSA offers continuing education workshops for speech-language pathologists and other speech professionals throughout the year, including a research symposium held in conjunction with our popular annual conference. The NSA’s Research Symposium is recognized by the stuttering community for connecting our organization’s expertise in stuttering support with consumer insights and unique, forward-thinking approaches with top researchers, speech professionals, and families of people who stutter.

Education & Advocacy
The NSA provides information about stuttering, increases public awareness, advocates for better understanding of the disorder and the needs of people who stutter, and serves as a national referral organization for speech therapy resources.

With over three million Americans sharing the challenges associated with stuttering, the NSA plays a vital role in connecting people who stutter and helping them understand that they are not alone.

As the first organization in the United States to help people speak out – fluently or not – the National Stuttering Association connects people who stutter, their families, speech-language professionals, and stuttering researchers all over the country. Throughout our nationwide network of local support group chapters, we encourage people who stutter to meet each other and share their experiences with stuttering – both negative and positive.

The National Stuttering Association began humbly in California by Bob Goldman and Michael Sugarman in 1977, as the National Stuttering Project. Through public service announcements, ads in local newspapers, and appearances on local radio and television shows, this effort increased awareness of stuttering. One of the group’s most important projects was the establishment of local self-help groups across California. Forty-two years later, in 2019, more than 2,500 people gather together in a network of nearly 200 local chapters across the U.S. each month to discuss stuttering, its impact on their lives, and how best to cope with their disfluencies. The National Stuttering Association has local self-help chapters for Adults, Kids, Teens, Family, and Military personnel. We reach thousands of people every day, concurrently providing education and resources to people who stutter and the public about stuttering.

The grassroots spirit embodied by the initial vision of Bob Goldman and Michael Sugarman during the launch of the National Stuttering Project decades ago manifests throughout the National Stuttering Association’s operations today.

Our unique approach towards empowering people who stutter – and not trying to “fix” them – through education, resources, and support has been successful for thousands of people who stutter nationwide. The National Stuttering Association has developed its local support group chapters into thriving organizations run by dedicated volunteer chapter leaders throughout the country. By utilizing the existing grassroots support of chapter participants and more effectively engaging with speech-language pathologists, the National Stuttering Association is able to provide wraparound support to children who stutter and their families by providing educational resources, professional support through speech-language pathologists, and opportunities for acceptance and personal growth through participation in one of our many local chapters.

In addition to the nationwide engagement, education, and support provided by the National Stuttering Association, we have launched new initiatives that work to continuing improving the lives of people who stutter. These include:

We Stutter @ Work Initiative:
The NSA’s We Stutter @ Work initiative promotes career success for people who stutter. The vision of the WE STUTTER @ WORK initiative is to eliminate the many stigmas faced by people who stutter in the workplace, to encourage workplaces to become more inclusive, and for people who stutter to gain the confidence to pursue their desired careers.

While employers are likely to encounter people who stutter among job applicants and within their workforce, people who stutter often experience difficulty being hired and advancing within their careers. Research indicates a significant disparity in earnings between people who stutter and people who do not stutter. Components of the WE STUTTER @ WORK initiative include:
• Mock Job Interviews: Free online job interview practice sessions to help people who stutter gain experience and confidence going into a job interview.
• Webinars: Free interactive webinars addressing relevant issues people who stutter face in the workplace.
• One-Day Conferences: The National Stuttering Association will be hosting at least two one-day conferences educating employers, diversity and inclusion executives, and career-focused adults who stutter about stuttering in the workplace issues.
• Employer Education: Free educational resources to correct false stereotypes and misperceptions about the workplace capabilities of people who stutter.

Military Initiative:
We understand that military personnel face unique challenges as people who stutter. Personnel often don’t seek advice or support because in the military, differences are generally perceived as weaknesses. Through the NSA’s Military Stuttering Network (MSN), we will raise awareness and educate military health specialists and command staff in all of the US armed forces, so that stuttering is not viewed so negatively in the military.

We invite you to check out our Military Support and Adult Local Chapters for active and former military personnel. These support groups explore the challenges unique to those PWS who serve in a safe and understanding environment.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    The National Stuttering Association serves children, teens, and adults who stutter; their families and those who support them; and speech professionals, educators, and researchers.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Social media,

  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • With whom is the organization sharing feedback?

    Our staff, Our board,

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We act on the feedback we receive,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback,

Financials

NATIONAL STUTTERING ASSOCIATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

NATIONAL STUTTERING ASSOCIATION

Board of directors
as of 2/17/2022
SOURCE: Self-reported by organization
Board chair

Ms. Kristine Short

Chad Mannisi

Bob Wellington

Angela Medina

Charley Adams

Carl Coffey

Peter Katz

Dough Scott

Steve Ernst

Holly Nover

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 08/27/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

Gender identity

No data

 

No data

Sexual orientation

Disability

Equity strategies

Last updated: 03/22/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.