LUPUS FOUNDATION OF NORTHERN CALIFORNIA

Improving Lives Impacted by Lupus

aka LFNC   |   San Jose, CA   |  www.lfnc.org
This organization has provided GuideStar with documentation indicating that it is recognized as tax-exempt by the IRS. If you have any questions or concerns, please check with a tax professional to confirm the tax deductibility of any contributions.

Mission

The Lupus Foundation of Northern California, founded in 1978, provides a wide range of health education and support services to lupus patients and their families and works cooperatively with health providers. Our mission is to be the premier source of information on lupus by providing programs and services designed to educate and increase the knowledge of those affected by lupus, promote lupus awareness, and support external lupus research efforts.

Ruling year info

1978

Chairman of the Board of Directors

Mr. Doug Carlen

Main address

2635 N First St Suite 211

San Jose, CA 95134 USA

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Formerly known as

Bay Area Lupus Foundation

EIN

94-2469741

NTEE code info

Health Support Services (E60)

Specifically Named Diseases (G80)

Nerve, Muscle and Bone Diseases (G50)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2017, 2016 and 2015.
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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The Lupus Foundation of Northern California aims to educate and support lupus patients in Northern California and beyond.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Buddy Program

The Lupus Buddy Program aims to create, nurture and sustain an environment in which patients can share their experience and knowledge by pairing relatively experienced patients with newly diagnosed patients, the "lupus buddies." This program strives to recruit patients that may benefit from having a support buddy. It collects information from participants to pair them with other participants in a confidential manner. Provides follow up resources and techniques to support each buddy pair, increase awareness and stay up-to-date with its best practices. Ideal candidates are experienced patients who have advice to offer, inexperienced patients who feel they need support, individuals who want to expand their support network or prefer a one-on-one experience rather than sharing with a group. There are 3 C’s to being a great Lupus Buddy. Communication, Confidentiality and Compatibility.

Population(s) Served
People with physical disabilities
People with disabilities

Support groups are facilitated by trained leaders and are safe and supportive environments for lupus patients and friends to come together and share concerns, hopes, and experiences in living with lupus.

Population(s) Served
Families
Non-adult children

Patient education classes are lead by trained instructors, and are designed for those newly diagnosed with lupus and their families. Classes focus on teaching patients & caregivers varied techniques of living everyday life with lupus.

Population(s) Served
People with diseases and illnesses
Multiracial people

This ​new ​wellness program ​is about ​​helping people living with lupus get access to or learn new or different ​ways to find positivity and some relief for the ​physical ​stress​es​ and emotional strain that comes with a diagnosis of lupus.

Population(s) Served
People with diseases and illnesses
Multiracial people

Our medical mini-conferences, headlined by leading physicians & researchers, are held in English and Spanish annually and are for medical professionals, patients and loved ones. Now offered virtually and also available via video on demand. CEU credits are offered to California Registered Nurses.

Population(s) Served
Adults

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Since 1978, with a mission to improve lives impacted by lupus, the Lupus Foundation of Northern California has served the Northern California lupus community. We continue to pursue our mission of being a key provider of support services, educational programs, and information to empower lupus patients, their loved ones, and their care teams

Financials

LUPUS FOUNDATION OF NORTHERN CALIFORNIA
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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LUPUS FOUNDATION OF NORTHERN CALIFORNIA

Board of directors
as of 4/15/2022
SOURCE: Self-reported by organization
Board co-chair

Mr Douglas Carlen


Board co-chair

Mr. Jay Remley

Google

Term: 2017 -

Carol Siebenmorgen

Symantec

Greg Genetti

LMGW

Tzielan Lee

Lucile Packard Children's Hospital at Stanford

Deidre Baptista

Misty Reistad

Kirsten Maeda

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 10/27/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

No data

Race & ethnicity

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 08/28/2020

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
Policies and processes
  • We have community representation at the board level, either on the board itself or through a community advisory board.