Cancer Support Community
So no one faces cancer alone
Mission
To ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.
Ruling year
1993
CEO
Ms. Kim Thiboldeaux
Main address
5614 Connecticut Avenue NW Suite 280
Washington, DC 20015 USA
EIN
95-4163931
NTEE code
Nonmonetary Support N.E.C. (E19)
Nonmonetary Support N.E.C. (F19)
Nonmonetary Support N.E.C. (G19)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
Sign in or create an account to view Form(s) 990 for 2020, 2019 and 2019.
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Communication
Programs and results
What we aim to solve
We are a global non-profit network of 175 locations, including CSC and Gilda's Club centers, hospital and clinic partnerships, and satellite locations that deliver more than $50 million in free support and navigation services to patients and families. In addition, we administer a toll-free helpline and produce award-winning educational and digital resources that, together with the locations, reach more than one million people each year. We also conduct cutting-edge research on the emotional, psychological, and financial journey of cancer patients and advocate at all levels of government for policies to help individuals whose lives have been disrupted by cancer.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Direct Services
Our network of CSC and Gilda's Club centers, healthcare partnerships, outreach and satellite locations deliver more than $50 million in free support services to patients and families each year, including support groups, counseling, community-building activities, resource and referral services, educational sessions, and health & wellness programs. All CSC programs are facilitated by trained, licensed mental health professionals and are designed to help people address their specific needs, from diagnosis, treatment, and post-treatment to long-term survivorship and/or end of life.
In addition, CSC administers a toll-free telephone helpline, hosts a robust online community of more than 40,000 patients, caregivers, and their supporters, and produces award-winning educational resources that reach more than one million people each year.
Research and Training Institute
The Cancer Support Community studies the emotional, psychological, and financial impacts of cancer, led by a multidisciplinary team of clinical and research professionals, including PhD-level clinical psychologists, epidemiologists, statisticians, and anthropologists.
The CSC Research and Training Institute (RTI) is the country’s only institute dedicated to psychosocial, behavioral and survivorship cancer research and training. The RTI manages the Cancer Experience Registry, which documents the distinctive needs of those affected by cancer, and CancerSupportSource, which measures cancer-related distress. Findings from these two flagship research programs are used to develop and refine program and service offerings, inform policy decision making, enhance patient communication with healthcare providers, and increase patient understanding of their cancer experience.
Cancer Policy Institute (CPI)
Through the Cancer Policy Institute (CPI), CSC advocates at all levels of government to help individuals whose lives have been impacted by cancer. The CPI brings together patient advocates and policy experts to ensure the voices of cancer patients and their loved ones play a central role in federal and state legislative, regulatory and executive policy making.
Where we work
External reviews
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of new donors
This metric is no longer tracked.Totals By Year
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Average number of dollars received per donor
This metric is no longer tracked.Totals By Year
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Average number of dollars given by new donors
This metric is no longer tracked.Totals By Year
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of individuals diagnosed with cancer and caregivers that are part of the Cancer Experience Registry
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The Cancer Support Community strives to fund pivotal programs that will transform cancer care in America. It aims to meet the onslaught in demand for its quality social and emotional support programs and services by increasing its capacity in the areas of service delivery, technology, research and training, and engagement with key decision-makers.
What are the organization's key strategies for making this happen?
Working with hospitals and cancer centers to implement critical programs onsite.
Validate the cost-saving benefits of psychosocial care.
Leverage new digital technologies to improve services and reach remote and underserved populations.
Educate policymakers about the health and economic benefits of comprehensive care.
Determine the health benefits of psychosocial care for other chronic diseases.
What are the organization's capabilities for doing this?
The Cancer Support Community holds over 50 years of experience providing the highest quality social and emotional support for people impacted by cancer through a network of more than 47 licensed affiliates, over 175 satellite locations and a vibrant online community, touching more than 1.4 million people each year.
Additionally, all of the support resources offered by the Cancer Support Community are backed by research occurring at its Research and Training Institute (RTI). The RTI is the first Institute in the United States dedicated to psychosocial, behavioral and survivorship research and training in cancer.
What have they accomplished so far and what's next?
More than 1.4 million people are touched each year through the Cancer Support Community's online and telephone services, or by attending in-person programs at one of our more than 175 program locations in the Cancer Support Community network. In 2013, nearly 80,000 people made more than 750,000 visits to Cancer Support Community centers across the country and around the globe. Through the opening of new Cancer Support Community Affiliate locations and on-site centers at hospitals, the Cancer Support Community continues to offer these programs and services to an increasing number of people impacted by cancer.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Cancer Support Community
Board of directorsas of 07/13/2022
Ms. Lauren Barnes
Charles R Scheper
Kenneth Scalet
Jill Durovsik
Stuart Arbuckle
Nick Baker
Lauren G Barnes
Don Elsey
Paula J Malone
Andrew Sandler
Holly Tyson
Fauzea Hussain
Rich Mutell
Lynne O'Brien
Bjoern Albrecht
Jonathan Marks
Craig Cole
Robert Defrantz
Rujul H. Desai
Jeffrey A. Galvin
John Jaeger
Shannon La Cava
David Lesser
Dennis Serrette
Jean Smart
Bev Soult
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
-
Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
No data
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
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