Cancer Support Community

So no one faces cancer alone

Washington, DC   |  www.cancersupportcommunity.org

Mission

To ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

Ruling year info

1993

CEO

Ms. Kim Thiboldeaux

Main address

734 15th Street NW Suite 300

Washington, DC 20005 USA

Show more contact info

EIN

95-4163931

NTEE code info

Nonmonetary Support N.E.C. (E19)

Nonmonetary Support N.E.C. (F19)

Nonmonetary Support N.E.C. (G19)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

We are a global non-profit network of 175 locations, including CSC and Gilda's Club centers, hospital and clinic partnerships, and satellite locations that deliver more than $50 million in free support and navigation services to patients and families. In addition, we administer a toll-free helpline and produce award-winning educational and digital resources that, together with the locations, reach more than one million people each year. We also conduct cutting-edge research on the emotional, psychological, and financial journey of cancer patients and advocate at all levels of government for policies to help individuals whose lives have been disrupted by cancer.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Direct Services

Our network of CSC and Gilda's Club centers, healthcare partnerships, outreach and satellite locations deliver more than $50 million in free support services to patients and families each year, including support groups, counseling, community-building activities, resource and referral services, educational sessions, and health & wellness programs. All CSC programs are facilitated by trained, licensed mental health professionals and are designed to help people address their specific needs, from diagnosis, treatment, and post-treatment to long-term survivorship and/or end of life.

In addition, CSC administers a toll-free telephone helpline, hosts a robust online community of more than 40,000 patients, caregivers, and their supporters, and produces award-winning educational resources that reach more than one million people each year.

Population(s) Served
Adults

The Cancer Support Community studies the emotional, psychological, and financial impacts of cancer, led by a multidisciplinary team of clinical and research professionals, including PhD-level clinical psychologists, epidemiologists, statisticians, and anthropologists.

The CSC Research and Training Institute (RTI) is the country’s only institute dedicated to psychosocial, behavioral and survivorship cancer research and training. The RTI manages the Cancer Experience Registry, which documents the distinctive needs of those affected by cancer, and CancerSupportSource, which measures cancer-related distress. Findings from these two flagship research programs are used to develop and refine program and service offerings, inform policy decision making, enhance patient communication with healthcare providers, and increase patient understanding of their cancer experience.

Population(s) Served
People with diseases and illnesses

Through the Cancer Policy Institute (CPI), CSC advocates at all levels of government to help individuals whose lives have been impacted by cancer. The CPI brings together patient advocates and policy experts to ensure the voices of cancer patients and their loved ones play a central role in federal and state legislative, regulatory and executive policy making.

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of new donors

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Average number of dollars received per donor

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Average number of dollars given by new donors

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of individuals diagnosed with cancer and caregivers that are part of the Cancer Experience Registry

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Cancer Support Community strives to fund pivotal programs that will transform cancer care in America. It aims to meet the onslaught in demand for its quality social and emotional support programs and services by increasing its capacity in the areas of service delivery, technology, research and training, and engagement with key decision-makers.

Working with hospitals and cancer centers to implement critical programs onsite.
Validate the cost-saving benefits of psychosocial care.
Leverage new digital technologies to improve services and reach remote and underserved populations.
Educate policymakers about the health and economic benefits of comprehensive care.
Determine the health benefits of psychosocial care for other chronic diseases.

The Cancer Support Community holds over 50 years of experience providing the highest quality social and emotional support for people impacted by cancer through a network of more than 47 licensed affiliates, over 175 satellite locations and a vibrant online community, touching more than 1.4 million people each year.

Additionally, all of the support resources offered by the Cancer Support Community are backed by research occurring at its Research and Training Institute (RTI). The RTI is the first Institute in the United States dedicated to psychosocial, behavioral and survivorship research and training in cancer.

More than 1.4 million people are touched each year through the Cancer Support Community's online and telephone services, or by attending in-person programs at one of our more than 175 program locations in the Cancer Support Community network. In 2013, nearly 80,000 people made more than 750,000 visits to Cancer Support Community centers across the country and around the globe. Through the opening of new Cancer Support Community Affiliate locations and on-site centers at hospitals, the Cancer Support Community continues to offer these programs and services to an increasing number of people impacted by cancer.

Financials

Cancer Support Community
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Cancer Support Community

Board of directors
as of 2/26/2021
SOURCE: Self-reported by organization
Board chair

Ms. Jill Durovsik

Charles Scheper

Kenneth Scalet

William Ashbaugh

Jill Durovsik

Stuart Arbuckle

Nick Baker

Lauren Barnes

Don Elsey

Paula Malone

Andrew Sandler

Holly Tyson

Tom Wallace

Michael Paese

Donetta Behen

Fauzea Hussain

Jing Liang

Charlotte Jensen

Rich Mutell

Lynne O'Brien

Michael Zilligen

Bjoern Albrecht

Kate Green

Kelly Harris

Jonathan Marks

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 02/18/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
Decline to state
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data