PLATINUM2024

Cancer Support Community

Community is stronger than cancer

Washington, DC   |  https://www.cancersupportcommunity.org/

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Mission

CSC uplifts and strengthens people impacted by cancer by providing support, fostering compassionate communities, and breaking down barriers to care.

Ruling year info

1993

CEO

Ms. Sally Werner

Main address

5614 Connecticut Avenue NW Suite 280

Washington, DC 20015 USA

Show more contact info

EIN

95-4163931

NTEE code info

Nonmonetary Support N.E.C. (E19)

Nonmonetary Support N.E.C. (F19)

Nonmonetary Support N.E.C. (G19)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

We are a global non-profit network of 175 locations, including CSC and Gilda's Club centers, hospital and clinic partnerships, and satellite locations that deliver more than $50 million in free support and navigation services to patients and families. In addition, we administer a toll-free helpline and produce award-winning educational and digital resources that, together with the locations, reach more than one million people each year. We also conduct cutting-edge research on the emotional, psychological, and financial journey of cancer patients and advocate at all levels of government for policies to help individuals whose lives have been disrupted by cancer.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Direct Services

Our network of CSC and Gilda's Club centers, healthcare partnerships, outreach and satellite locations deliver more than $50 million in free support services to patients and families each year, including support groups, counseling, community-building activities, resource and referral services, educational sessions, and health & wellness programs. All CSC programs are facilitated by trained, licensed mental health professionals and are designed to help people address their specific needs, from diagnosis, treatment, and post-treatment to long-term survivorship and/or end of life.

In addition, CSC administers a toll-free telephone helpline, hosts a robust online community of more than 40,000 patients, caregivers, and their supporters, and produces award-winning educational resources that reach more than one million people each year.

Population(s) Served
Adults

The Cancer Support Community studies the emotional, psychological, and financial impacts of cancer, led by a multidisciplinary team of clinical and research professionals, including PhD-level clinical psychologists, epidemiologists, statisticians, and anthropologists.

The CSC Research and Training Institute (RTI) is the country’s only institute dedicated to psychosocial, behavioral and survivorship cancer research and training. The RTI manages the Cancer Experience Registry, which documents the distinctive needs of those affected by cancer, and CancerSupportSource, which measures cancer-related distress. Findings from these two flagship research programs are used to develop and refine program and service offerings, inform policy decision making, enhance patient communication with healthcare providers, and increase patient understanding of their cancer experience.

Population(s) Served
People with diseases and illnesses

Through the Cancer Policy Institute (CPI), CSC advocates at all levels of government to help individuals whose lives have been impacted by cancer. The CPI brings together patient advocates and policy experts to ensure the voices of cancer patients and their loved ones play a central role in federal and state legislative, regulatory and executive policy making.

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of new donors

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Average number of dollars received per donor

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Average number of dollars given by new donors

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of individuals diagnosed with cancer and caregivers that are part of the Cancer Experience Registry

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Cancer Support Community strives to fund pivotal programs that will transform cancer care in America. It aims to meet the onslaught in demand for its quality social and emotional support programs and services by increasing its capacity in the areas of service delivery, technology, research and training, and engagement with key decision-makers.

Working with hospitals and cancer centers to implement critical programs onsite.
Validate the cost-saving benefits of psychosocial care.
Leverage new digital technologies to improve services and reach remote and underserved populations.
Educate policymakers about the health and economic benefits of comprehensive care.
Determine the health benefits of psychosocial care for other chronic diseases.

The Cancer Support Community holds over 50 years of experience providing the highest quality social and emotional support for people impacted by cancer through a network of more than 47 licensed affiliates, over 175 satellite locations and a vibrant online community, touching more than 1.4 million people each year.

Additionally, all of the support resources offered by the Cancer Support Community are backed by research occurring at its Research and Training Institute (RTI). The RTI is the first Institute in the United States dedicated to psychosocial, behavioral and survivorship research and training in cancer.

More than 1.4 million people are touched each year through the Cancer Support Community's online and telephone services, or by attending in-person programs at one of our more than 175 program locations in the Cancer Support Community network. In 2013, nearly 80,000 people made more than 750,000 visits to Cancer Support Community centers across the country and around the globe. Through the opening of new Cancer Support Community Affiliate locations and on-site centers at hospitals, the Cancer Support Community continues to offer these programs and services to an increasing number of people impacted by cancer.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We act on the feedback we receive, We share the feedback we received with the people we serve

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome, It is difficult to find the ongoing funding to support feedback collection

Financials

Cancer Support Community
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Cancer Support Community

Board of directors
as of 05/15/2024
SOURCE: Self-reported by organization
Board chair

Mr. Rich Mutell

Charles R Scheper

Kenneth Scalet

Jill Durovsik

Lauren G Barnes

Don Elsey

Paula J Malone

Andrew Sandler

Holly Tyson

Fauzea Hussain

Rich Mutell

Lynne O'Brien

Bjoern Albrecht

Jonathan Marks

Craig Cole

Robert Defrantz

Rujul H. Desai

Jeffrey A. Galvin

John Jaeger

Shannon La Cava

David Lesser

Dennis Serrette

Jean Smart

Bev Soult

Organizational demographics

SOURCE: Self-reported; last updated 1/25/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 05/15/2024

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.