SILVER2023

Lymphoma Research Foundation

Finding Cures Starts Here

aka LRF   |   New York, NY   |  www.lymphoma.org

Mission

The Lymphoma Research Foundation's (LRF) mission is to eradicate lymphoma and serve those touched by this disease.

Ruling year info

1996

CEO

Ms. Meghan Gutierrez

Main address

Wall Street Plaza/88 Pine Street Suite 2400

New York, NY 10005 USA

Show more contact info

EIN

95-4335088

NTEE code info

Cancer (G30)

Cancer Research (H30)

Health (General and Financing) (E80)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2019.
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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Nearly one million people in the United States are living with, or in remission from, a form of lymphoma or chronic lymphocytic leukemia. In fact, more than 100,000 people in the United States are diagnosed each year.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Lymphoma Educational Resources and Support Services

LRF offers a wide range of support services, educational programs and free publications for people living with lymphoma and their loved ones. Whether you are newly diagnosed, want detailed information about lymphoma, are looking for ongoing support, or seeking help with long-term survivorship, LRF is here to help.

Digital Resources and Tools: Recognizing that people learn in different ways, LRF offers a range of educational tools to learn about the diagnosis, treatment and management of lymphoma including webcasts, teleconferences, YouTube videos and the award-winning Focus on Lymphoma app.

Free Lymphoma Publications: LRF offers free publications on current disease information, treatment options and the latest in lymphoma research. Lymphoma patients and their loved ones can access these publications by visiting lymphoma.org/publications.

In-Person Education Programs: LRF is committed to providing members of the lymphoma community with accurate, and up-to-date information about the diagnosis and treatment of this disease. LRF’s nationwide in-person education programs provide lymphoma patients, survivors and caregivers the opportunity to learn about lymphoma and have their questions answered by some of the world’s leading lymphoma experts.

LRF Helpline: Trained staff members at the LRF Helpline provide individual support and information to more than 10,000 patients, survivors and caregivers each year. Support services include, but are not limited to:
- Information on diagnosis, types of lymphomas, treatment options, potential side effects, and up-to-date research finding.
- Referrals to financial assistance programs, legal and other support services
- Clinical trial searches based on patients’ individual diagnosis and treatment history
The LRF Helpline is available via phone at 800-500-9976 or email at [email protected] Monday-Friday, 9:30am – 7pm ET.

Lymphoma Support Network: Understanding that coping with any serious disease is an ongoing process, it is important to connect with others. More than 6,000 volunteers make up LRF’s Lymphoma Support Network to provide peer-to-peer support for lymphoma patients, survivors and caregivers.

Stories of Hope: Everyone’s lymphoma story is unique and special. Stories of Hope is LRF’s ongoing effort to give those affected by lymphoma a voice. Lymphoma patients, survivors and their loved ones can read personal stories written by members of the lymphoma community to find shared experiences, hope and inspiration.

To learn more about LRF’s educational resources and support services, visit lymphoma.org/learn.

Population(s) Served
People with diseases and illnesses
Caregivers

LRF is committed to funding the most promising lymphoma researcher who have the greatest potential to improve patient care and, ultimately, to improve patient outcomes. To date, LRF has funded more than $62 million in lymphoma specific research and has supported countless lymphoma researchers, leading to a better understanding of lymphoma and increased treatment options for patients. Grants are selected once a year with the guidance of the LRF Scientific Advisory Board (SAB). Applications are reviewed by a panel of experts in lymphoma research from the SAB, who make recommendations on applications to the LRF Board of Directors.

LRF’s Lymphoma research program includes:
- Postdoctoral Fellowship Program, for PhD and MD fellows undertaking bench, translational, and/or clinical research in lymphoma.
- Lymphoma Clinical Research Mentoring Program, for MD fellows and junior faculty pursuing a clinical research career in lymphoma.
- Clinical Investigator Career Development Award, for MD fellows and junior faculty undertaking clinical research in lymphoma.
- Disease Focus Area Grants, supporting research in specific lymphoma subtypes and/or patient populations, directed by a principal investigator at the faculty level.

LRF’s research program also supports innovative research in lymphoma through a robust calendar of scientific programs. These programs bring together researchers with a variety of expertise in lymphoma to share information and ideas, foster collaborations, and make recommendations on issues crucial to future research.

To learn more about LRF’s research program, visit lymphoma.org/research.

Population(s) Served
People with diseases and illnesses
Caregivers

LRF offers a wide range of lymphoma-focused educational activities designed to increase the knowledge, skills and performance of healthcare professionals and to maximize the quality of care for lymphoma patients.

- The Lymphoma Rounds program provides a forum for local healthcare professionals to meet on a regular basis and address issues specific to the diagnosis and treatment of their lymphoma patients. Participants network, share best practices and learn the latest information on new therapies and advances in the management of lymphoma through interactive case studies presented by lymphoma experts in the local area.
- Caring for the Lymphoma Patient: Nursing Education on Non-Hodgkin Lymphoma in-person continuing education program, as part of LRF’s nurse education intiative, provides an opportunity for nurses to learn about recent updates on the treatment of lymphoma and the management of the disease
- Frontline is a biannual professional education publication featuring three case studies from the Foundation’s signature CME program, Lymphoma Rounds.
To learn more about LRF’s professional education programs, visit lymphoma.org/professionaled.

Population(s) Served
People with diseases and illnesses
Caregivers

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of Facebook followers

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of people on the organization's email list

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Number of new advocates recruited

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of press releases developed and distributed

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

With a mission to eradicate lymphoma and serve those touched by this diesease, the Lymphoma Research Foundation (LRF) funds innovative lymphoma research and provide the most up-to-date information through evidence-based patient and professional education programs.

LRF takes a holistic approach by empowering patients, survivors and their loved ones to have the knowledge needed to become their own health advocate; convening the world's leading lymphoma experts through our prestigious Scientific Advisory Board (SAB) and in-person educational conferences; and funding research with the greatest ability to positively impact the field and move the national research agenda forward.

The Lymphoma Research Foundation (LRF) offers a wide range of support services, educational programs and free publications for people with lymphoma and their loved ones.

In addition, to ensure that the next generation of cancer researchers are dedicated to studying lymphoma, the Foundation’s renowned Scientific Advisory Board is committed to investing in early career scientists who have the greatest ability to impact the future of lymphoma research.

To date, LRF has funded more than $67 million in lymphoma-specific research and has supported countless lymphoma researchers, leading to a better understanding of lymphoma and increased treatment options for patients. Through its award-winning programs, services, and digital resources, the Foundation serves more than one million people and 2,000 healthcare professional each year.

Our goal is to change the future for everyone whose life has been affected by a lymphoma diagnosis, and we believe our unique commitment to young investigators to ensure the next generation of researchers are focused on improving outcomes for lymphoma patients; and our dedication to meeting the needs of patients and caregivers through award-winning education programs helps us to achieve that goal.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Lymphoma Research Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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  • Analyze a variety of pre-calculated financial metrics
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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Lymphoma Research Foundation

Board of directors
as of 03/15/2023
SOURCE: Self-reported by organization
Board chair

Mr. Steven Eichberg

Michael Akinyele

Jerry Bertino

Morton Coleman, MD

Errol M. Cook

Kevin Fennessey

Barbara Freundlich

Jerry Freundlich

Tom Goldstone

Keith Hoogland

John Leonard, MD

Bob Mcauley

John Nelson

Leigh Olson

Steven J. Prince

Donna Reinbolt

Sheri Rosenfeld

Robert Werner

Kim Metcalf

Andrew D Zelenetz, MD, PhD

Scott Pansky

Jeff Block

Diane Parks

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 10/21/2020

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Decline to state
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 09/10/2020

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.