PROSTATE CANCER RESEARCH INSTITUTE

We help prostate cancer patients and caregivers research their treatment options.

aka PCRI   |   Culver City, CA   |  http://www.pcri.org

Mission

The Prostate Cancer Research Institute (PCRI), a 501(c)(3) not-for-profit organization, that is dedicated to helping prostate cancer patients and caregivers research your treatment options. We understand that they have lots of questions and we can help them find the answers that are specific to their case. All of our resources are designed by a multidisciplinary team of patients, advocates, and leading medical doctors, for the patient. We believe that by educating oneself about the disease, they will have more productive interactions with their medical professionals, and get better individualized care.

Ruling year info

1998

Executive Director

Mark Scholz MD

Main address

300 Corporate Pointe Suite 383

Culver City, CA 90230 USA

Show more contact info

EIN

95-4617875

NTEE code info

Alliance/Advocacy Organizations (B01)

Cancer (G30)

Research Institutes and/or Public Policy Analysis (E05)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Millions of men will be and are diagnosed with prostate cancer; most will hear a limited number of options before rushing into treatment with irreversible consequences. This can be prevented if people are better informed. PCRI helps millions learn their personal prostate cancer stage, so they can choose the optimal treatment choice of their individual case.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Helpline Resource Center

Education is integral to empowerment and finding the right course of action. Our Helpline Resource Center contains information to help you learn about prostate cancer and how it affects you personally. Call our Helpline to have your questions answered. Experienced prostate cancer patients and advocates are available to answer your questions. Watch our educational videos to get a basic understanding about your medical records and what they mean, as this will help you understand the type of prostate cancer you have. We have a list of support groups and useful books to help you understand your situation better.

Population(s) Served
Men and boys
Caregivers

The Prostate Cancer Research Institute aims to educate the attendees on how to manage and treat their specific prostate cancer with state-of-the-art diagnostic and therapeutic techniques. This three-day event attracts more than 800 prostate cancer patients, survivors, support group leaders, physicians, patient advocates, researchers, and healthcare professionals from around the world. It is an opportunity to gather together and collectively learn about the latest in prostate cancer care and lifestyle, as well as, treatments of landmark importance. Patients will interact closely with the world's most knowledgeable physicians and recognized academic researchers, who have extensive experience or specialty in prostate cancer care.

Population(s) Served
Men and boys
Caregivers

Insights is a free educational periodical written to inform you of essential concepts in prostate cancer. We present new data and developments, and review information of landmark importance. All medical articles are fully referenced, and citations are provided for you to investigate further. Patients, physicians, and other health care professionals can subscribe to Insights free of charge.

Population(s) Served
Men and boys
Caregivers

We have a vast library of free educational videos on every topic of prostate cancer. A brief search of our YouTube channel offers quick answers to patient questions. Once the cancer stage is known (by taking the quiz), patients can browse our playlists that are specific to that stage. These videos can give a condensed education about each type of prostate cancer. Patients can sign up for our quarterly live webinar, which includes a medical professional presentation followed by a Q+A period that allows individuals to participate by texting in questions. Patients can subscribe to stay up to date with the latest developments.

Population(s) Served
Adults
Men and boys

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of clients participating in educational programs

This metric is no longer tracked.
Totals By Year
Population(s) Served

Men and boys, Caregivers, Women and girls, Families, Health

Related Program

Prostate Cancer Youtube Channel

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This metric tracks how many YouTube channel views we have received from prostate cancer patients and their families.

Number of groups/individuals benefiting from tools/resources/education materials provided

This metric is no longer tracked.
Totals By Year
Population(s) Served

Men and boys, Caregivers, Women and girls

Related Program

Prostate Cancer Conferences

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The number of views on the 2020 conference videos.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our mission is to help prostate cancer patients and caregivers choose the right treatment and obtain individualized care by educating them about their case and providing information about the latest developments and research. We fight misinformation by providing information based on sound scientific research and by meeting the educational needs of the prostate cancer community. We believe that the status quo of prostate cancer treatment and diagnosis is not in the best interest of the patient and that through education, patients can achieve a more accurate diagnosis. Hence, they will have individualized treatment with lower side effects and better outcomes.l

We aim to change the status quo in prostate cancer care by educating patients, helping them access individualized care.

We are the ultimate source of information for prostate cancer patients.

The primary objective of the Prostate Cancer Research Institute is to disseminate educational information about prostate cancer to prostate cancer patients, caregivers, and those in the process of working with their doctors to determine whether or not they have the disease. From diagnosis to treatment and beyond, prostate cancer is a complicated and oftentimes controversial disease; it presents itself in many forms, and there are usually many options for diagnosing and treating it, each with its own risks and benefits. Studies have confirmed that prostate cancer patients have better outcomes and are significantly more satisfied when they are able to make informed decisions in collaboration with their doctors as opposed to being passive in the doctor-patient dynamic. The PCRI seeks to facilitate patient education to achieve better outcomes.

Our strategy is to create and market informational materials and programs which address every educational need that patients and caregivers have.

-Free Helpline — Anyone can call into the PCRI’s free helpline and speak with a trained educational facilitator to receive assistance finding scholarly articles pertinent to their case, information about getting second opinions, and more. For example, our facilitators can provide studies that compare the cure rates and side effects of different treatments for a particular stage of cancer. The patient then has the opportunity to discuss further with his physician(s).

-Conferences — Twice-annually the PCRI holds a Prostate Cancer PATIENT Conference where experts from the top of their field give straightforward presentations, followed by a moderated Q&A session. Then there is an additional Q&A where patients can individually ask their questions-receiving a personalized response from the presenter. Additionally, conferences offer a good opportunity to patients for networking and learning from each other’s experiences.

-YouTube Channel — The PCRI manages the most visited and watched channel on Youtube for prostate cancer. Generally, two or three educational videos are released per week. Most are written by Dr. Mark Scholz, a medical oncologist who specializes in the treatment of prostate cancer. If patients are ever confused or intrigued by something in a video, they then can call our helpline for follow up information at no cost.

-Prostate Digest and PCRI.org Articles — The PCRI.org hosts a range of articles on topics related to prostate cancer. The PCRI Digest is a quarterly free newsletter with the latest news on prostate cancer research.

-Resources — The PCRI website hosts: a listing of prostate cancer support groups and facilities with the latest imaging technology, information about the latest clinical trials, and much more.

With funding from donations and sponsorships, the PCRI is able to produce quality content and organize well-attended and received conferences. Additionally, partnerships and collaboration with patient-focused groups gives us access to even more resources and opportunities to share our services.

We have the largest active youtube channel on the topic of prostate cancer.
We have served over patients on our helpline
Thousands of patients have attended our conferences which have been held since 1996.
We are currently working on an update on our staging system to help patients better define their options.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • Who are the people you serve with your mission?

    We serve prostate cancer patients, caregivers and their families.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Constituent (client or resident, etc.) advisory committees,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    We received feedback recently that our audience would prefer shorter, more understandable content from our programs and we have worked to create bite sized, easily understanding learning tools in prostate cancer education.

  • With whom is the organization sharing feedback?

    Our staff, Our board, Our community partners,

  • Which of the following feedback practices does your organization routinely carry out?

    We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

PROSTATE CANCER RESEARCH INSTITUTE
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

PROSTATE CANCER RESEARCH INSTITUTE

Board of directors
as of 5/24/2021
SOURCE: Self-reported by organization
Board co-chair

Chester Swenson


Board co-chair

Michael Steinberg

Chester Swenson

Jerome Seliger

Harry Hathaway

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 05/24/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 05/24/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.