PLATINUM2023

Leukemia Research Foundation, Inc.

A world without leukemia

Northfield, IL   |  https://leukemiarf.org
GuideStar Charity Check

Leukemia Research Foundation, Inc.

EIN: 36-6102182


Mission

Our mission is to cure leukemia by funding innovative research, and to support patients and families.

Ruling year info

1954

Executive Director

Mr. Kevin Radelet

Board Chair

Blake Brandwein

Main address

191 Waukegan Road Ste 105

Northfield, IL 60093 USA

Show more contact info

EIN

36-6102182

Subject area info

Health

Hematology

Cancers

Leukemia

Population served info

People with diseases and illnesses

NTEE code info

Fund Raising and/or Fund Distribution (H12)

Cancer (G30)

Cancer Research (H30)

What we aim to solve

SOURCE: Self-reported by organization

Leukemia does not discriminate. It can happen to anyone, regardless of age, gender, or race - at anytime. Leukemia is the second most prevalent blood cancer in the United States. While leukemia survival rates have increased over the past 75 years, much work still needs to be done. Funding research is the only way to discover the ultimate cure. At the same time, supporting those with a leukemia diagnosis is critical. The need for patient education is widely recognized in the medical community. Well-educated patients are better able to understand and manage their own health and medical care throughout their lives. The financial costs of cancer care are a tremendous burden to people diagnosed with cancer, their families, and society as a whole. The economic toll of cancer can be profound.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Grant Program

The Leukemia Research Foundation’s Patient Grant Program offers a one-time grant to eligible leukemia patients living in Illinois or within 100 miles of Chicago.

Population(s) Served
People with diseases and illnesses

The Leukemia Research Foundation is the nation's largest nonprofit focused exclusively on funding leukemia research to accelerate the development of new and better treatments and an ultimate cure. Leukemia is a complex disease with numerous subtypes that differ in clinical presentation and treatment response. Our grants fund a broad range of topics so researchers can investigate leukemia from every angle. With millions directed toward research, we are on the path to finding a cure – and won't stop until we do.

Population(s) Served

Through our patient-centered approach, access to leukemia experts, and nationwide partnerships, our support programs help patients and their loved ones navigate every step of their cancer journey. Our goal is to provide leukemia patients and their families with a single and trusted source for information, education programs, and support services and connect them with other credible organizations and resources.

Population(s) Served
People with diseases and illnesses
People with diseases and illnesses

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of research studies funded

This metric is no longer tracked.
Totals By Year
Related Program

Leukemia Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Each year, the Leukemia Research Foundation provides two-year grants of up to $150K to help fund research projects. The numbers for each year are the number of grants awarded.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Vision: A world without leukemia.

Mission: Our mission is to cure leukemia by funding innovative research, and to support patients and families.

1. Advance science
-Identify optimal outcomes to demonstrate science advancement
-Increase research funding
-Expand portfolio of research grant program(s)

2. Cultivate strategic leadership
-Attract new members and enhance the role of the Board of Directors, Medical Advisory Board, and Patient Advisory Committee
-Develop a culture of learning and development

3. Expand our reach
-Increase our network of patients, caregivers, donors, researchers, and healthcare professionals
-Identify strategic partnerships and build new relationships

4. Enhance value
-Obtain regular feedback from stakeholders
-Better understand our audiences and their needs
-Develop targeted programs and communications

Cancer is costly: physically, emotionally, and economically. Funding research to find a cure is the only permanent solution. The ability to translate science from laboratory research into effective therapies is vital. The rate of progress in cancer diagnosis, treatment, and prevention must continue until the disease is conquered. Over seven decades, the Leukemia Research Foundation's capacity to provide these programs grew out of the dedication of countless volunteers committed to finding a cure. Today there are 23 active chapters that comprise the underpinning of the Leukemia Research Foundation Within these chapters, hundreds of volunteers conduct a variety of fundraising events every year to raise funds to support our programs.

In addition to the important event-focused chapter work, the Leukemia Research Foundation relies on the support of everyday people from around the country who long for a world without leukemia. Financial support from individuals, corporations, foundations, and other giving entities are necessary to reach our goals and are pursued through a variety of traditional philanthropic methods including direct mail, sponsorship, cause-marketing partnerships, grants, major gifts, employee giving, and much more. Legions of non-chapter volunteer groups nationwide, who are intensely dedicated to the goals and purpose of the Leukemia Research Foundation, also join forces by conducting various large and small fundraising events in their local area. The L

The Leukemia Research Foundation maintains a modest reserve account in case of emergency, but is committed to distributing annual charitable contributions for their donor's intended use in the year in which they are received.

The Leukemia Research Foundation's leadership is made up of people who have coped with, firsthand, the death of a loved one, or have personally survived a leukemia diagnosis themselves. As a result, the Fundation's policy and governance is based upon personal experience as well as true compassion with the hope that in the future no one will experience what they, themselves have endured.

As the nation’s largest nonprofit focused exclusively on funding leukemia research, the Foundation has invested in more than 600 research projects worldwide to accelerate the development of new and better treatments and an ultimate cure for leukemia. Through its patient-centered approach, access to leukemia experts, and nationwide partnerships, the Foundation’s support programs help patients and their loved ones navigate every step of the cancer journey. With more than $80M raised in support of its mission, the Leukemia Research Foundation is on the path to finding a cure.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback

Financials

Leukemia Research Foundation, Inc.
Fiscal year: Jul 01 - Jun 30
Financial documents
2023 FY23 Audit 2020 Leukemia Research Foundation Audit FYE2020 2019
done  Yes, financials were audited by an independent accountant. info

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2023 info

SOURCE: IRS Form 990

1.98

Average of 2.22 over 10 years

Months of cash in 2023 info

SOURCE: IRS Form 990

18

Average of 10.4 over 10 years

Fringe rate in 2023 info

SOURCE: IRS Form 990

19%

Average of 18% over 10 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

Leukemia Research Foundation, Inc.

Revenue & expenses

Fiscal Year: Jul 01 - Jun 30

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

Leukemia Research Foundation, Inc.

Balance sheet

Fiscal Year: Jul 01 - Jun 30

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

Leukemia Research Foundation, Inc.

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jul 01 - Jun 30

SOURCE: IRS Form 990 info

This snapshot of Leukemia Research Foundation, Inc.’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

Created in partnership with

Business model indicators

Profitability info 2019 2020 2021 2022 2023
Unrestricted surplus (deficit) before depreciation $305,226 $304,516 $290,997 $487,713 $24,000
As % of expenses 12.9% 12.4% 11.8% 19.5% 0.7%
Unrestricted surplus (deficit) after depreciation $303,554 $302,907 $289,696 $486,588 $23,732
As % of expenses 12.8% 12.3% 11.7% 19.5% 0.7%
Revenue composition info
Total revenue (unrestricted & restricted) $2,386,635 $2,620,594 $2,562,072 $2,910,174 $4,193,244
Total revenue, % change over prior year -6.6% 9.8% -2.2% 13.6% 44.1%
Program services revenue 0.0% 0.0% 0.0% 0.0% 0.0%
Membership dues 0.0% 0.0% 0.0% 0.0% 0.0%
Investment income 0.3% 0.9% 0.6% 0.2% 2.2%
Government grants 0.0% 0.0% 7.3% 0.0% 0.0%
All other grants and contributions 99.7% 99.1% 93.2% 100.5% 98.1%
Other revenue 0.0% 0.0% -1.1% -0.7% -0.2%
Expense composition info
Total expenses before depreciation $2,369,467 $2,458,873 $2,470,895 $2,499,934 $3,582,217
Total expenses, % change over prior year -4.8% 3.8% 0.5% 1.2% 43.3%
Personnel 30.1% 30.4% 29.0% 30.2% 20.4%
Professional fees 3.9% 1.7% 0.8% 1.2% 1.1%
Occupancy 2.6% 2.6% 2.6% 2.7% 2.0%
Interest 0.0% 0.0% 0.0% 0.0% 0.0%
Pass-through 54.3% 59.1% 62.8% 60.5% 68.1%
All other expenses 9.1% 6.2% 4.8% 5.4% 8.4%
Full cost components (estimated) info 2019 2020 2021 2022 2023
Total expenses (after depreciation) $2,371,139 $2,460,482 $2,472,196 $2,501,059 $3,582,485
One month of savings $197,456 $204,906 $205,908 $208,328 $298,518
Debt principal payment $0 $0 $89,100 $0 $0
Fixed asset additions $2,964 $0 $0 $0 $0
Total full costs (estimated) $2,571,559 $2,665,388 $2,767,204 $2,709,387 $3,881,003

Capital structure indicators

Liquidity info 2019 2020 2021 2022 2023
Months of cash 15.8 5.0 4.5 8.3 18.0
Months of cash and investments 15.8 17.3 16.8 20.4 18.0
Months of estimated liquid unrestricted net assets 9.7 10.8 12.2 14.4 10.1
Balance sheet composition info 2019 2020 2021 2022 2023
Cash $3,123,780 $1,014,771 $935,431 $1,726,622 $5,367,425
Investments $0 $2,519,971 $2,532,316 $2,533,606 $0
Receivables $103,790 $125,329 $556,556 $385,386 $973,939
Gross land, buildings, equipment (LBE) $134,506 $134,506 $134,506 $134,506 $134,506
Accumulated depreciation (as a % of LBE) 96.6% 97.8% 98.7% 99.6% 99.8%
Liabilities (as a % of assets) 32.2% 33.4% 32.0% 31.4% 39.6%
Unrestricted net assets $1,913,324 $2,216,231 $2,505,927 $2,992,515 $3,016,247
Temporarily restricted net assets $223,519 N/A N/A N/A N/A
Permanently restricted net assets $493,388 N/A N/A N/A N/A
Total restricted net assets $716,907 $552,278 $568,380 $460,114 $1,132,213
Total net assets $2,630,231 $2,768,509 $3,074,307 $3,452,629 $4,148,460

Key data checks

Key data checks info 2019 2020 2021 2022 2023
Material data errors No No No No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Form 1023/1024 is not available for this organization

Executive Director

Mr. Kevin Radelet

Board Chair

Blake Brandwein

Number of employees

Source: IRS Form 990

Leukemia Research Foundation, Inc.

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

Leukemia Research Foundation, Inc.

Board of directors
as of 09/28/2023
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board co-chair

Blake Brandwein


Board co-chair

Savyon Amit

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 5/25/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male
Sexual orientation
Decline to state
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male
Sexual orientation
Decline to state
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data

There are no contractors recorded for this organization.

Professional fundraisers

Fiscal year ending

SOURCE: IRS Form 990 Schedule G

Solicitation activities
Gross receipts from fundraising
Retained by organization
Paid to fundraiser