PLATINUM2024

Tick-Borne Conditions United

Providing education, research, and advocacy for the lesser-known tick-borne conditions.

Pittsboro, NC   |  https://TBCUnited.org/
GuideStar Charity Check

Tick-Borne Conditions United

EIN: 83-4201096


Mission

Our mission at Tick-borne Conditions United is to bridge the gap between patients and healthcare providers using emerging science and education.

Ruling year info

2019

CoFounder and Director of Programs

Jennifer Platt, DrPH

CoFounder and Director of Advocacy

Beth Carrison INHC

Main address

916 East St Unit 1126

Pittsboro, NC 27312 USA

Show more contact info

EIN

83-4201096

Subject area info

Public health

Diseases and conditions

Population served info

People with diseases and illnesses

NTEE code info

Specifically Named Diseases (G80)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Tax forms

Show Forms 990

Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Tick-Borne Conditions United addresses the lack of knowledge about the impact, distribution, diagnosis, and treatment of lesser-known tick-borne conditions such as Alpha-gal Syndrome. TBCU also aims to prevent exposure to tick-borne conditions by educating the public about tick bite avoidance and mitigation.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Education

TBCU provides education for audiences of all ages about lesser-known tick-borne diseases and conditions and how to prevent exposure. TBC United provides support for:
1. Patients who have contracted a tick-borne disease or condition, and the loved ones who care for them;
2. Healthcare providers who must diagnose and treat patients with tick-borne diseases; and
3. Commercial businesses, government agencies, and public utilities that must protect employees or constituents outdoors.

Population(s) Served
People with diseases and illnesses
Adults
Children and youth

The Alpha-gal Syndrome Patient Symptoms and Experiences Survey has been running since 2019. Details at https://tbcunited.org/alpha-gal-syndrome-patient-experiences-survey-aaaai22-poster-presentation/

Population(s) Served
Adults
Children and youth
People with diseases and illnesses

TBCU advocates at the federal, state, and local levels. In 2020 and 2022 we served on the Alpha-gal Syndrome Subcommittee and the HHS Tick-borne Disease Working Group, respectively.

We also collaborate with other organizations for federal funding. Check out our 2023 “Turn the States Green” initiative to make Alpha-gal Syndrome a reportable condition in every state. https://tbcunited.org/help-us-turn-the-ags-state-reporting-map-green/

Population(s) Served
Adults
People with diseases and illnesses
Children and youth

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of meetings or briefings held with policymakers or candidates

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Number of stories successfully placed in the media

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Number of grants received

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Holding steady

Number of Facebook followers

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our FB page is a source of often lifesaving and life altering information about tick-borne diseases and conditions.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Tick-Borne Conditions United’s goal is to serve as the bridge between patients and emerging
science and the education needed for healthcare providers and the public.

Education Program: TBCU provides education for audiences of all ages about lesser-known tick-borne diseases and conditions and how to prevent exposure. TBC United provides support for:
1. Patients who have contracted a tick-borne disease or condition, and the loved ones who care for them;
2. Healthcare providers who must diagnose and treat patients with tick-borne diseases; and
3. Commercial businesses, government agencies, and public utilities that must protect employees or constituents outdoors.


Patient Research Program. The Alpha-gal Syndrome Patient Symptoms and Experiences Survey has been running since 2019. Details at https://tbcunited.org/alpha-gal-syndrome-patient-experiences-survey-aaaai22-poster-presentation/

Advocacy Program: TBCU advocates at the federal, state, and local levels. In 2020 and 2022 we served on the Alpha-gal Syndrome Subcommittee and the HHS Tick-borne Disease Working Group, respectively. We also collaborate with other organizations for federal funding. Check out our 2023 “Turn the States Green” initiative to make Alpha-gal Syndrome a reportable condition in every state. https://tbcunited.org/help-us-turn-the-ags-state-reporting-map-green/

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time

Financials

Tick-Borne Conditions United
Fiscal year: Jan 01 - Dec 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2022 info

SOURCE: IRS Form 990

150.83

Average of 38.88 over 4 years

Months of cash in 2022 info

SOURCE: IRS Form 990

9.6

Average of 5 over 4 years

Fringe rate in 2022 info

SOURCE: IRS Form 990

0%

Average of 2% over 4 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

Tick-Borne Conditions United

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

Tick-Borne Conditions United

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

Tick-Borne Conditions United

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

This snapshot of Tick-Borne Conditions United’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

Created in partnership with

Business model indicators

Profitability info 2021 2022
Unrestricted surplus (deficit) before depreciation $9,308 $4,779
As % of expenses 36.6% 17.4%
Unrestricted surplus (deficit) after depreciation $9,308 $4,779
As % of expenses 36.6% 17.4%
Revenue composition info
Total revenue (unrestricted & restricted) $34,770 $32,205
Total revenue, % change over prior year 0.0% -7.4%
Program services revenue 0.0% 0.0%
Membership dues 0.0% 0.0%
Investment income 0.0% 0.0%
Government grants 0.0% 0.0%
All other grants and contributions 100.0% 99.5%
Other revenue 0.0% 0.5%
Expense composition info
Total expenses before depreciation $25,462 $27,425
Total expenses, % change over prior year 0.0% 7.7%
Personnel 42.3% 39.3%
Professional fees 10.8% 13.6%
Occupancy 0.0% 0.0%
Interest 0.0% 1.2%
Pass-through 0.0% 0.0%
All other expenses 47.0% 45.9%
Full cost components (estimated) info 2021 2022
Total expenses (after depreciation) $25,462 $27,425
One month of savings $2,122 $2,285
Debt principal payment $0 $0
Fixed asset additions $0 $0
Total full costs (estimated) $27,584 $29,710

Capital structure indicators

Liquidity info 2021 2022
Months of cash 10.2 9.6
Months of cash and investments 10.2 9.6
Months of estimated liquid unrestricted net assets 8.1 9.6
Balance sheet composition info 2021 2022
Cash $21,747 $22,021
Investments $0 $0
Receivables $0 $0
Gross land, buildings, equipment (LBE) $0 $0
Accumulated depreciation (as a % of LBE) 0.0% 0.0%
Liabilities (as a % of assets) 21.4% 0.7%
Unrestricted net assets $17,096 $21,875
Temporarily restricted net assets N/A N/A
Permanently restricted net assets N/A N/A
Total restricted net assets $0 $0
Total net assets $17,096 $21,875

Key data checks

Key data checks info 2021 2022
Material data errors No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Form 1023/1024 is not available for this organization

CoFounder and Director of Programs

Jennifer Platt, DrPH

Dr. Jennifer Platt has decades of experience in public health and environmental program development. She has led the creation of nationally recognized, award-winning education programs and has spoken extensively to audiences of all sizes. While working on her doctorate in public health from the University of North Carolina in 2011, Dr. Platt contracted Ehrlichiosis. She was later confirmed to also have Lyme Disease and Babesia. Dr. Platt’s personal experience with tick-borne illness led her to create TickWarriors in 2016, which provides eco-friendly tick protection for people, pets, and property. The pervasive need for education and awareness led Dr. Platt to co-found Tick-borne Conditions United in 2018 with Beth Carrison.

CoFounder and Director of Advocacy

Beth Carrison

Beth Carrison has 30+ years of experience in business development and healthcare patient advocacy. Since 1996, she has managed over 30 different food allergies within her family unit; in addition, two family members were diagnosed multiple times with Lyme Disease. Being diagnosed herself with two tick-borne conditions – Lyme Disease and Alpha-gal Syndrome (also known as the “Red Meat Allergy” or “Mammalian Meat Allergy”) unfortunately gave Ms. Carrison a firsthand perspective on both tick-borne conditions and anaphylaxis. Since her diagnosis, she has passionately given her time to others in the Alpha-gal community thorough individual connections and numerous speaking engagements across the country. In 2019 Ms. Carrison was appointed as a patient advocate to the federal 2020 Alpha-gal Syndrome Subcommittee, which serves the federal Tick-Borne Disease Working Group (TBDWG) under the Department of Health and Human Services (HHS).

Number of employees

Source: IRS Form 990

Tick-Borne Conditions United

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

Tick-Borne Conditions United

Board of directors
as of 01/24/2024
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Dr. Tina Merritt

Allergy & Asthma Clinic of Northwest Arkansas

Term: 2019 - 2025

Harold Carrison

Fast Innovations, Inc

Heather Szerlong

TICKNOLOGY

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 11/21/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Gay, Lesbian, Bisexual, or other sexual orientations in the LGBTQIA+ community
Disability status
Person with a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

Equity strategies

Last updated: 11/21/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.