Hemophilia Council of California

Open access to quality innovative care and choice of treatment for all people with bleeding disorders.

aka Hemophilia Council of California   |   Sacramento, CA   |
GuideStar Charity Check

Hemophilia Council of California

EIN: 68-0182998


Hemophilia Council Of California was founded in the 1970's and in 1989 we incorporated as a 501(c)3 nonprofit organization, to coordinate their shared advocacy agenda to create a more effective and unified voice for individuals living with bleeding disorders. We continue to pursue our mission to promote access to care and advance the quality of life of people with bleeding disorders through advocacy, education and outreach in the collaboration with member organizations.

Ruling year info


Executive Director

Lynne Kinst

Main address

717 K Street 501

Sacramento, CA 95814 USA

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Subject area info


Community and economic development

Human services

Diseases and conditions

Population served info


Young adults


NTEE code info

Alliance/Advocacy Organizations (G01)

Alliance/Advocacy Organizations (S01)

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms



Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Confidential Bilingual Hotline

The Hemophilia Council of California seeks to establish an anonymous bilingual consumer Hotline which will provide a professional, impartial and confidential source of basic information and/or referral source to the appropriate chapter or resource capable of providing additional, more detailed assistance; or, to an appropriate avenue for registering a complaint, when appropriate, to community members who may be intimidated by the use of alternative forms of requesting the same information.

Population(s) Served

Join us for the Future Leader Program! Each year young men and women ages 14-22 come together from all over California to Sacramento for a unique learning experience. Learn about how California Government works and the programs that support people with bleeding disorders through out the state.
Learn how to tell your story to legislators about living with a bleeding disorder.
Learn how to be an advocate for yourself and others.
Learn about career choices and challenges for people with bleeding disorders.
Meet other young people from across the state who want their voices heard.
The program starts at 6:00 PM Monday, May 13 and ends at 4:00 PM Wednesday, May 15, 2013 in Sacramento, California. The Hemophilia Council of California pays for all expenses for travel to and from Sacramento, meals, and accommodations.

Population(s) Served
Young adults

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

 What are the new and creative funding options to pursue in the state?

 How do we increase the brand recognition of HCC?

 After 20 years how can we reinforce and fortify this role/legacy?
 How can we effectively recruit and develop greater participation and leadership growth within HCC?
 How to support the BD community more effectively
 How do we make sure those in the state know we are here to help them?

Strong Advocacy work and passed our Standards Bill

Continuing to develop long term plans and hiring a consultant for more input.


Hemophilia Council of California
Fiscal year: Jan 01 - Dec 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2021 info

SOURCE: IRS Form 990


Average of 20.45 over 10 years

Months of cash in 2021 info

SOURCE: IRS Form 990


Average of 16.4 over 10 years

Fringe rate in 2021 info

SOURCE: IRS Form 990


Average of 16% over 10 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

Hemophilia Council of California

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

Hemophilia Council of California

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

Hemophilia Council of California

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

This snapshot of Hemophilia Council of California’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

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Business model indicators

Profitability info 2016 2017 2018 2019 2021
Unrestricted surplus (deficit) before depreciation $30,302 $47,206 $31,927 $30,525 $42,569
As % of expenses 13.3% 23.2% 14.5% 13.3% 17.5%
Unrestricted surplus (deficit) after depreciation $29,655 $46,138 $31,255 $30,250 $42,427
As % of expenses 12.9% 22.5% 14.2% 13.2% 17.4%
Revenue composition info
Total revenue (unrestricted & restricted) $271,194 $258,291 $237,466 $270,213 $254,433
Total revenue, % change over prior year -1.9% -4.8% -8.1% 13.8% 0.0%
Program services revenue 81.1% 60.9% 94.2% 93.6% 94.2%
Membership dues 0.0% 0.0% 0.0% 0.0% 0.0%
Investment income 1.6% 6.3% 0.1% 0.1% 0.1%
Government grants 0.0% 0.0% 0.0% 0.0% 0.0%
All other grants and contributions 17.1% 32.5% 5.6% 6.3% 5.8%
Other revenue 0.2% 0.2% 0.1% 0.0% 0.0%
Expense composition info
Total expenses before depreciation $228,632 $203,631 $219,478 $229,356 $243,374
Total expenses, % change over prior year 14.7% -10.9% 7.8% 4.5% 0.0%
Personnel 33.2% 38.5% 48.0% 48.0% 60.5%
Professional fees 34.8% 30.3% 26.8% 25.9% 28.6%
Occupancy 1.7% 1.8% 2.0% 1.7% 1.6%
Interest 0.0% 0.0% 0.0% 0.0% 0.0%
Pass-through 0.0% 0.0% 0.0% 0.0% 0.0%
All other expenses 30.3% 29.4% 23.1% 24.3% 9.3%
Full cost components (estimated) info 2016 2017 2018 2019 2021
Total expenses (after depreciation) $229,279 $204,699 $220,150 $229,631 $243,516
One month of savings $19,053 $16,969 $18,290 $19,113 $20,281
Debt principal payment $0 $0 $0 $0 $0
Fixed asset additions $4,214 $0 $0 $0 $0
Total full costs (estimated) $252,546 $221,668 $238,440 $248,744 $263,797

Capital structure indicators

Liquidity info 2016 2017 2018 2019 2021
Months of cash 15.9 19.2 19.4 18.8 22.2
Months of cash and investments 15.9 19.2 19.4 18.8 22.2
Months of estimated liquid unrestricted net assets 14.5 19.1 19.5 20.3 21.4
Balance sheet composition info 2016 2017 2018 2019 2021
Cash $302,837 $326,222 $354,328 $359,277 $449,240
Investments $0 $0 $0 $0 $0
Receivables $0 $52,500 $26,500 $36,275 $0
Gross land, buildings, equipment (LBE) $5,346 $5,346 $1,377 $1,377 $1,377
Accumulated depreciation (as a % of LBE) 15.2% 35.2% 42.0% 62.0% 90.8%
Liabilities (as a % of assets) 8.7% 14.5% 6.2% 2.4% 3.5%
Unrestricted net assets $0 $0 $0 $0 $434,225
Temporarily restricted net assets $0 $0 $0 N/A N/A
Permanently restricted net assets $0 $0 $0 N/A N/A
Total restricted net assets $0 $0 $0 $0 $0
Total net assets $280,889 $327,027 $358,282 $388,532 $434,225

Key data checks

Key data checks info 2016 2017 2018 2019 2021
Material data errors No No No No No


The people, governance practices, and partners that make the organization tick.

Form 1023/1024 is not available for this organization

Executive Director

Lynne Kinst

Lynne Kinst was the Executive Director of Central California Hemophilia Foundation (CCHF) from July 2017 until December 2019. Previously she worked for California State Board of Equalization Board Members George Runner and Diane Harkey, and the Taxpayer’s Rights Advocate. In addition, Lynne spent eight years as director of administration with a non-profit organization now known as Capitol Commission. Prior to working at the non-profit she had four years of political experience working for state elected officials in a variety of capacities. Lynne attended the University of California, Davis earning a bachelor’s degree in political science, with minors in human development and religious studies. Her father, Jim Carey, was an active member of the CCHF Board, serving as treasurer since the chapter’s founding until his death in 1994. Previously, Lynne served on both the CCHF and Hemophilia Council of California Boards of Directors. Lynne is herself a carrier of Hemophilia.

Number of employees

Source: IRS Form 990

Hemophilia Council of California

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

Hemophilia Council of California

Board of directors
as of 06/15/2023
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Mr. Michael Bradley


Term: 2017 - 2021

Michelle Gilmore

Paul Clement

Renatto Medranda

Raeann Purnell

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 10/5/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.


No data

Race & ethnicity

Gender identity


Sexual orientation


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