WILLIAM GUY FORBECK RESEARCH FOUNDATION
Driving cancer research through collaboration and communication.
WILLIAM GUY FORBECK RESEARCH FOUNDATION
EIN: 57-0788084
Programs and results
Reports and documents
Download annual reportsWhat we aim to solve
WGFRF is focused on bringing together the top clinicians and researchers in oncology to work together, to collaborate and to develop innovative treatments for those suffering from this disease. WGFRF bridges the gap in collaboration and communication among oncology scientists by hosting Forbeck Forums on specialized topics in cancer research.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Forbeck Forum
The Foundation's center piece activity is the Forbeck Forum. The Scientific Advisory Board reviews advanced research areas and applications from acclaimed oncologists and researchers to select topics for Forbeck Forums.
Twelve to twenty leading scientists from around the world, from a variety of disciplines associated with the specific topic, are invited to participate in each Forbeck Forum. They meet in a private "think tank" environment, where they can freely exchange ideas in the hope of building on each other's ideas, knowledge, and experience. New approaches are suggested and examined, and the most promising are actively pursued.
The objective is not to discuss published research, but rather to provide a forum for the cross fertilization of ideas, concepts, and observations in the hope of shortening the cancer research timetable.
Scholar Retreat
The Foundation annually selects junior clinical or post-doctoral fellows to be Forbeck Scholars. Applicants have a very high level of scientific achievement as well as relevance to the topic. Awardees attend the Forbeck Forum they applied to and then the Scholar Retreat for the following consecutive three years. During the Forum, recipients of the award have an unrivaled opportunity to interact with international experts in a particular field of cancer research. The Scholar Retreat, which they attend for the subsequent three years, gives them further opportunities to interact with their peers from different fields of cancer research and meet with international experts to discuss their work. Existing awardees have found these interactions invaluable in developing collaborations as well as opening up a variety of career opportunities.
Genomic Data Commons (formerly INRG Database)
The Genomic Data Commons (formerly iINRGdb) facilitates international, multi-institutional, interdisciplinary research in childhood neuroblastoma, advancing our understanding of the pathogenesis of this neoplasm, and ultimately leading to the development of more effective treatment strategies for children with neuroblastoma. We also foresee that technologies developed and implemented as part of this initiative will be applicable across a wide variety of pediatric and adult malignancies. We have obtained IRB approval from the University of Chicago to house the INRG data and to develop the iINRGdb (IRB # 10-568-A).
Where we work
External reviews

Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of reports written/published
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Related Program
Forbeck Forum
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
The Foundation works hard to collect all publications, reports, press articles resulting from a Forbeck meeting. The number of publications resulting from Forbeck programs is continuously updated.
Number of new programs/program sites
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
WGFRF's 2020 programming goal was impacted by the COVID-19 pandemic. 2020 Forum's will take place in 2021 & 2022. It is still the goal of WGFRF to increase programming in the coming years.
Number of participants attending course/session/workshop
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Related Program
Forbeck Forum
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
The number of participants is inclusive of participants at Focus Meetings, the Annual Forum and the Scholar Retreat. The meetings focus on different topics and groups of oncologists.
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The William Guy Forbeck Research Foundation is aiming to shorten the timetable to find a cure for cancer through collaboration and communication. The goal is to ensure that research reaches the patient in forms of new and innovative treatments.
What are the organization's key strategies for making this happen?
The core programs of the Foundation include the Forbeck Forum and Scholar Retreat. In addition, the Foundation has tripled its programming over the past 3 years by increasing annual programming. Starting in 2018, WGFRF is moved forward with hosting up to 10 research meetings each year. Previously, the foundation hosted 2-3 annually. This will equate to significant positive impact in cancer research.
What are the organization's capabilities for doing this?
The Forbeck Foundation has been operating high quality scientific think tanks for 35 years. The quality of this meeting is well known with in the scientific community and these meetings are coveted by the scientific participants.
What have they accomplished so far and what's next?
We have accomplished all goals this organization originally set out to do. We continue to operate high quality think tanks and plan to continue to do so for the long distance future. The scientific community praises WGFRF for our unique meeting structure, allowing participants to discuss freely about their research with no boundaries or barriers.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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Who are the people you serve with your mission?
The WGFRF serves both the scientific community and those impacted by cancer.
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How is your organization using feedback from the people you serve?
To inform the development of new programs/projects, To strengthen relationships with the people we serve
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What significant change resulted from feedback?
The Forbeck Foundation recently expanded the Forbeck Forum program from two annual meetings to over eight annual meetings as a direct result of participant feedback. The WGFRF\u0027s goal is to host ten annual Forbeck Forum\u0027s.
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We act on the feedback we receive
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
Financial documents
Download audited financialsRevenue vs. expenses: breakdown
Liquidity in 2021 info
148.72
Months of cash in 2021 info
16.9
Fringe rate in 2021 info
6%
Funding sources info
Assets & liabilities info
WILLIAM GUY FORBECK RESEARCH FOUNDATION
Revenue & expensesFiscal Year: Jan 01 - Dec 31
SOURCE: IRS Form 990
WILLIAM GUY FORBECK RESEARCH FOUNDATION
Balance sheetFiscal Year: Jan 01 - Dec 31
SOURCE: IRS Form 990
The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.
Fiscal Year: Jan 01 - Dec 31
SOURCE: IRS Form 990
This snapshot of WILLIAM GUY FORBECK RESEARCH FOUNDATION’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.
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Business model indicators
Profitability info | 2017 | 2018 | 2019 | 2020 | 2021 |
---|---|---|---|---|---|
Unrestricted surplus (deficit) before depreciation | $548,454 | -$345,654 | $537,452 | $733,334 | -$252,809 |
As % of expenses | 114.7% | -64.7% | 104.8% | 244.4% | -25.9% |
Unrestricted surplus (deficit) after depreciation | $548,454 | -$345,654 | $537,452 | $733,334 | -$252,809 |
As % of expenses | 114.7% | -64.7% | 104.8% | 244.4% | -25.9% |
Revenue composition info | |||||
---|---|---|---|---|---|
Total revenue (unrestricted & restricted) | $913,344 | $559,089 | $544,905 | $595,093 | $760,654 |
Total revenue, % change over prior year | 82.6% | -38.8% | -2.5% | 9.2% | 27.8% |
Program services revenue | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Membership dues | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Investment income | 8.8% | 16.1% | 16.1% | 12.9% | 7.8% |
Government grants | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
All other grants and contributions | 27.8% | 34.5% | 33.0% | 27.8% | 25.4% |
Other revenue | 63.4% | 49.3% | 50.9% | 59.3% | 66.7% |
Expense composition info | |||||
---|---|---|---|---|---|
Total expenses before depreciation | $478,078 | $534,091 | $512,945 | $300,065 | $977,291 |
Total expenses, % change over prior year | -43.7% | 11.7% | -4.0% | -41.5% | 225.7% |
Personnel | 23.0% | 21.4% | 22.0% | 56.8% | 17.9% |
Professional fees | 8.7% | 15.7% | 18.4% | 14.4% | 4.7% |
Occupancy | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Interest | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Pass-through | 20.9% | 0.0% | 0.0% | 0.0% | 58.9% |
All other expenses | 47.3% | 62.8% | 59.6% | 28.8% | 18.5% |
Full cost components (estimated) info | 2017 | 2018 | 2019 | 2020 | 2021 |
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Total expenses (after depreciation) | $478,078 | $534,091 | $512,945 | $300,065 | $977,291 |
One month of savings | $39,840 | $44,508 | $42,745 | $25,005 | $81,441 |
Debt principal payment | $0 | $0 | $0 | $0 | $0 |
Fixed asset additions | $0 | $0 | $0 | $0 | $0 |
Total full costs (estimated) | $517,918 | $578,599 | $555,690 | $325,070 | $1,058,732 |
Capital structure indicators
Liquidity info | 2017 | 2018 | 2019 | 2020 | 2021 |
---|---|---|---|---|---|
Months of cash | 13.6 | 10.0 | 11.6 | 45.7 | 16.9 |
Months of cash and investments | 114.0 | 91.9 | 109.2 | 215.9 | 62.9 |
Months of estimated liquid unrestricted net assets | 112.1 | 92.6 | 108.9 | 215.6 | 63.1 |
Balance sheet composition info | 2017 | 2018 | 2019 | 2020 | 2021 |
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Cash | $541,223 | $444,968 | $497,348 | $1,143,559 | $1,379,205 |
Investments | $4,001,200 | $3,647,406 | $4,169,387 | $4,256,212 | $3,739,744 |
Receivables | $0 | $0 | $0 | $0 | $0 |
Gross land, buildings, equipment (LBE) | $0 | $0 | $0 | $0 | $0 |
Accumulated depreciation (as a % of LBE) | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Liabilities (as a % of assets) | 2.2% | 0.1% | 1.5% | 0.1% | 0.7% |
Unrestricted net assets | $4,465,149 | $4,119,495 | $4,656,947 | $5,390,281 | $5,137,472 |
Temporarily restricted net assets | $0 | $0 | N/A | N/A | N/A |
Permanently restricted net assets | $0 | $0 | N/A | N/A | N/A |
Total restricted net assets | $0 | $0 | $0 | $80,000 | $0 |
Total net assets | $4,465,149 | $4,119,495 | $4,656,947 | $5,470,281 | $5,137,472 |
Key data checks
Key data checks info | 2017 | 2018 | 2019 | 2020 | 2021 |
---|---|---|---|---|---|
Material data errors | No | No | No | No | No |
Operations
The people, governance practices, and partners that make the organization tick.
Documents
Executive Director
Mrs. Jamie Collins
Jamie Forbeck Collins has been the Executive Director of the William Guy Forbeck Research Foundation since 2011. She has been heavily involved with the Foundation throughout her life since her brother, Billy Guy, passed away. Jamie manages the day-to-day functions of the Foundation with a dedicated passion to the foundation mission on driving cancer research through collaboration and communication.
President
Charles Jesser
The William Guy Forbeck Research Foundation recently elected Charles H. Jesser as President of its' Board of Directors. Chuck has been involved in the Foundation since its creation in 1984 from the very day Billy Guy succumbed to Neuroblastoma. With Chuck's leadership the Foundation will continue to thrive and grow, providing new venues for scientific collaboration.
Number of employees
Source: IRS Form 990
WILLIAM GUY FORBECK RESEARCH FOUNDATION
Officers, directors, trustees, and key employeesSOURCE: IRS Form 990
Compensation data
There are no highest paid employees recorded for this organization.
WILLIAM GUY FORBECK RESEARCH FOUNDATION
Board of directorsas of 03/28/2023
Board of directors data
Mr. Charles Jesser
Jesser, Ravid, Jason, Basso and Farber LLP
Mr. Ronald Miller
DSP Insurance Services
Matthew Gerdes
Jesser, Ravid, Jason, Basso and Farber LLP
Jamie Collins
William Guy Forbeck Research Foundation
William Kasten
William Blair & Company
John Kemshead
Scientific Advisory Board WGFRF
Maureen Wheeler
Jesser, Ravid, Jason, Basso and Farber LLP
Ronald Miller
Bensman
Aaron H. Jesser
William Guy Forbeck Research Foundation
Charles H. Jesser
Jesser, Ravid, Jason, Basso and Farber LLP
Galen Eckland
Bredemeier
Norine Smyth
Sponsor Chicago
John O'Neill
O'Neill Zbuilders
Ann Lehman Cipria
Patrick Joyce
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Not applicable -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
No data
Gender identity
Sexual orientation
No data
Disability
No data