Respectability
Fighting Stigmas. Advancing Opportunities.
Respectability
EIN: 46-2840232
Programs and results
Reports and documents
Download annual reports Download other documentsWhat we aim to solve
RespectAbility’s three-part strategy combines flexible immediate responsiveness both to the crisis and ongoing needs of individuals with disabilities, with a strong and steady strategy to protect and improve lives and livelihoods. The emergence of COVID-19 has demonstrated that structural inequities have deadly consequences. From food insecurity to medical rationing, employment and beyond, people with disabilities are at extreme risk physically and financially. For example, according to the CDC, 90 percent of the people hospitalized with COVID-19 have underlying conditions. Since the start of the pandemic, nearly one million people with disabilities have lost their jobs, wiping out nearly a decade of economic progress for people with disabilities. Thinking ahead, due to underlying medical conditions, it will be extremely hard for most people with disabilities to resume their lives until there is a vaccine for COVID-19.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Entertainment and News Media
Entertainment and News Media
Standing up against ableism and other prejudice while promoting positive, accurate, diverse and inclusive portrayals in TV, Film and the News Media
RespectAbility is working on changing the narrative in Hollywood to ensure accurate and positive cultural media portrayals of people with disabilities. We partner with leaders in the entertainment industry on the full inclusion of people with disabilities, both in front of and behind the camera, and we continue to look for more partners to help move the needle on two core issues: inclusion and diversity in Hollywood and the employment of people with disabilities.
What people see and hear impacts what they think and feel – and what they think and feel literally can mean life and death consequences. People with disabilities lack access to healthcare, education and employment opportunities.
Policy and Workforce Development
Our promotion of best practices in education, jobs and accessibility creates opportunities for people with disabilities to be recruited, hired and promoted across the workforce. Companies including Bank of America, Coca-Cola, EY, JPMorgan Chase and others have shown that employees with disabilities are loyal, successful and profitable. People with disabilities bring unique characteristics and talents to the workplace that benefit employers and customers.
Out of more than 20 million working-age people with disabilities, only 7.5 million have jobs. That total includes people with physical, cognitive, mental health, sensory and other disabilities, both visible and nonvisible. Pre-pandemic, just 37 percent of working-age people with disabilities had a job, compared to 77 percent of people without disabilities. Since then things have gotten worse and people who have intersectional barriers need real systems change and solutions.
Leadership
Our National Leadership Program enables diverse and talented young leaders to gain critical skills, contacts and experiences necessary for successful careers. The National Leadership Program trains leaders who are committed to disability issues and plan to go into careers in public policy, advocacy, communications, diversity, equity and inclusion, fundraising, nonprofit management or faith-based inclusion. The program enables participants to gain skills and contacts while making a positive difference for people with disabilities.
Faith Inclusion and Belonging
When the Americans with Disabilities Act was passed more than 30 years ago, it exempted faith-based organizations. Thus, many such organizations do have not yet have the attitudes, physical facilities or training they need to appropriately welcome people of all abilities. Given the very important role that faith and faith-based organizations play in America, RespectAbility is working for full inclusion in all faith groups. However, it has started its faith-based inclusion work with a focus on the Jewish community and institutions. As model practices are established, we will work broadly across faiths to share best practices.
Where we work
External reviews

Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of participants who gain employment
This metric is no longer tracked.Totals By Year
Population(s) Served
People with disabilities
Related Program
Entertainment and News Media
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
We have had over 200 fellows come through our program. We are very excited for the opportunity to better prepare our fellows through professional development and career advancement experiences.
Number of stories successfully placed in the media
This metric is no longer tracked.Totals By Year
Population(s) Served
People with disabilities
Related Program
Leadership
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Context Notes
•Raised public awareness of the abilities of PwDs through earned and paid media and constant promotion of positive images and stories that counter negative stereotypes.
Number of Social media participants/like on Facebook, Twitter, and through our free webinars.
This metric is no longer tracked.Totals By Year
Population(s) Served
People with disabilities
Related Program
Policy and Workforce Development
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Context Notes
#RespectTheAbility, shows employers, society, and PwDs the benefits and successes that can be achieved from hiring those with disabilities. We also have a huge presence on Facebook and Twitter.
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
As an education and advocacy nonprofit, we seek to identify best practices that can and should be replicated so people with disabilities can be fully included in all aspects of community. We also work to build agency, reshape attitudes and change behavior so people with disabilities can thrive. Our intermediary goals are to convene and educate stakeholders, build alliances, collect and share compelling data, and disseminate best employment practices. Our long-term goal is to dismantle ableism and fuel systemic change to increase the number of people with disabilities working in the open job market at minimum wage and above. Rather than simply advocate for more benefits for people with disabilities, RespectAbility shows policy makers that most people with disabilities want to work and can be the best talent for many jobs: a win-win-win for people with disabilities, employers and taxpayers alike.
What are the organization's key strategies for making this happen?
Since our founding, in 2013, RespectAbility’s advocacy work has included training for employers and nonprofit leaders, and nonpartisan outreach to campaigns on behalf of individuals with disabilities. For example, our nonpartisan election-year advocacy ensures that issues relevant to people with disabilities are part of the campaign conversation, and that we are all afforded equal opportunity to participate fully in the political process. We interview candidates and produce voting guides through www.VoteAbility.com. During the COVID-19 pandemic, we hosted webinars that have already attracted thousands. Our efforts have brought the needs of individuals with disabilities to the public via media on ABC, CNN, NBC, NPR and in TIME and Forbes.
RespectAbility annually trains and mentors adults ages 20 to 45 with disabilities for leadership track careers. The National Leadership & Apprenticeship Program is a Fellowship that annually trains and mentors young adults with disabilities for their first real careers in the competitive, integrated job market to create a talent pipeline of authentic and diverse self-advocates who have agency, impact and power. RespectAbility recruits, trains and empowers young leaders with disabilities and their allies from across the nation. Our Fellows not only go on to great careers but learn how to ensure accommodations for people with a variety of disabilities. Our leadership pipeline work stream also includes a program to train women with disabilities to be self-advocates and speakers in New York City.
In stigma reduction, RespectAbility has been working with Hollywood studios and networks since 2016 as consultants on scripts and disability inclusion and accessibility. In 2019, we began to address this issue in a new way, through a Lab training program similar to our National Leadership Program, to increase the number of people with disabilities hired behind the camera. An increase in people with disabilities behind-the-scenes will ensure characters with disabilities are written into scripts, actors with disabilities are hired, and authentic stories are told.
In advancing opportunities, RespectAbility has been tireless in advancing the opportunity agenda for people with disabilities by working in a nonpartisan manner at the federal, state and local level as well as working directly with leading private sector employers. We work with leaders at federal agencies to develop policies informed by best practices that will create more avenues for people with disabilities to enter the workforce.
We work in a nonpartisan way with candidates for public office and others to educate them on the importance of voters with disabilities and how to make their campaigns accessible to everyone. At the state level, we coordinate with fellow advocates to encourage states to learn from one-another and implement cost-effective programs.
What are the organization's capabilities for doing this?
Led by diverse people with disabilities, RespectAbility envisions a time when opportunities for individuals with disabilities are not constrained by the limitations of poverty, implicit bias and discrimination. RespectAbility works toward this future by inspiring change in our leaders, challenging assumptions through positive representations, and nourishing the seeds of systems change in minds of individuals with disabilities and ourselves. One practice to make this happen is that our entire staff and young leadership Fellows meet together every day, since mid-March of 2020, via Zoom. We are a very “flat” organization in that everyone is encouraged to bring forward their ideas, leadership and passion.
What have they accomplished so far and what's next?
During the coronavirus crisis, through actively listening and organizing with people with disabilities, including through online town hall meetings, large-scale national polling and almost daily video conference sessions with groups ranging from one to three dozen individuals with disabilities, we benefit from diverse experiences and ideas so we can amplify many voices on the local, state and national stage. For example, as part of our coronavirus response, we have been using these approaches to learn how COVID-19 is affecting the lives of people with disabilities. It was through these town-hall meetings that we learned that millions of individuals with disabilities across the country were struggling with food insecurity in the face of the pandemic but could not use SNAP online. Today, thanks to collaboration between RespectAbility and our partner groups of advocates, 90 percent of SNAP recipients no longer must choose between catching a deadly virus or going hungry with the option of home food delivery. This helped 9.9 million people with disabilities have safe access to food.
Moving into the second phase of this crisis, RespectAbility will utilize our time-tested strategies to continue to fight for people with disabilities on the following fronts:
• Include people with disabilities in the new normal: As state and local governments grapple with the need to balance budgets, we must activate our networks to prevent individuals with disabilities and the programs they need from being forgotten in the economic recovery. We are beginning to leverage the credibility that we have built up with governors, legislators and countless officials at all levels to ensure that people with disabilities have a place at the decision-making table. We will be educating them on these important issues and enlisting them in the fight for our community.
• Prevent the 7 million students (the majority of whom are also people of color and/or immigrants) with individualized education plans and other disability-related learning needs from being lost in the shuffle: As some school districts around the country contemplate reopening, we do not know if or when it will be safe to return for students whose disabilities make them particularly vulnerable to COVID-19. Meanwhile, much of distance learning is inaccessible to students who are blind or Hard of Hearing. Distance learning also opens wide the digital divide for many students in diverse communities. Graduation rates for students with disabilities already were low before COVID-19. We will advocate with state and local jurisdictions, as well as private organizations, to protect these children and young adults from being left without high quality distance learning options.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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Who are the people you serve with your mission?
Entertainment and News Media – Increase diverse and authentic representation of disabled people in media so people with disabilities are seen for what they can do, instead of what they cannot. Leadership – Enable diverse people with disabilities to participate fully in decision-making. Policy – Promote best practices in education, employment, entrepreneurship, civic engagement, and access. Faith Inclusion – Ensure the inclusion of people with disabilities in faith-based communities.
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How is your organization using feedback from the people you serve?
To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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What significant change resulted from feedback?
When we learn about challenges that need to be solved, as well as solutions that work, we implement them. For example, when the pandemic started, millions of people with disabilities who received SNAP (food stamps) were forced to shop in person—a huge health risk. Our team, working alongside partners, enabled 90% of all SNAP recipients to have critical supplies delivered at home. Today, 9.9 million people with disabilities in America now have safe access to food on an ongoing basis. Our hearts break every time we see the lines at food banks across our country, so we know there is still more work to be done. But millions are better off.
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Which of the following feedback practices does your organization routinely carry out?
We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time
Financials
Financial documents
Download audited financialsRevenue vs. expenses: breakdown
Liquidity in 2021 info
14.22
Months of cash in 2021 info
23.9
Fringe rate in 2021 info
15%
Funding sources info
Assets & liabilities info
Respectability
Revenue & expensesFiscal Year: Jan 01 - Dec 31
SOURCE: IRS Form 990
Respectability
Balance sheetFiscal Year: Jan 01 - Dec 31
SOURCE: IRS Form 990
The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.
Fiscal Year: Jan 01 - Dec 31
SOURCE: IRS Form 990
This snapshot of Respectability’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.
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Business model indicators
Profitability info | 2017 | 2018 | 2019 | 2020 | 2021 |
---|---|---|---|---|---|
Unrestricted surplus (deficit) before depreciation | $188,299 | -$104,487 | $1,702,205 | $340,880 | -$134,642 |
As % of expenses | 21.4% | -7.9% | 112.5% | 21.0% | -6.7% |
Unrestricted surplus (deficit) after depreciation | $187,566 | -$105,915 | $1,699,843 | $338,201 | -$140,726 |
As % of expenses | 21.3% | -8.0% | 112.2% | 20.8% | -7.0% |
Revenue composition info | |||||
---|---|---|---|---|---|
Total revenue (unrestricted & restricted) | $1,539,299 | $1,087,546 | $3,824,091 | $1,508,280 | $3,667,866 |
Total revenue, % change over prior year | 177.5% | -29.3% | 251.6% | -60.6% | 143.2% |
Program services revenue | 0.0% | 0.0% | 0.0% | 5.7% | 10.8% |
Membership dues | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Investment income | 0.0% | 0.2% | 0.1% | 0.2% | 0.1% |
Government grants | 0.0% | 0.0% | 2.3% | 13.5% | 0.0% |
All other grants and contributions | 100.0% | 99.8% | 97.5% | 80.0% | 88.9% |
Other revenue | 0.0% | 0.0% | 0.1% | 0.6% | 0.1% |
Expense composition info | |||||
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Total expenses before depreciation | $878,589 | $1,318,736 | $1,512,724 | $1,625,232 | $1,997,710 |
Total expenses, % change over prior year | 8.5% | 50.1% | 14.7% | 7.4% | 22.9% |
Personnel | 43.9% | 41.3% | 44.1% | 59.4% | 69.8% |
Professional fees | 16.4% | 22.2% | 19.9% | 21.5% | 16.8% |
Occupancy | 14.6% | 10.2% | 9.8% | 7.9% | 0.8% |
Interest | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Pass-through | 0.0% | 0.0% | 0.0% | 0.0% | 1.2% |
All other expenses | 25.1% | 26.3% | 26.2% | 11.1% | 11.4% |
Full cost components (estimated) info | 2017 | 2018 | 2019 | 2020 | 2021 |
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Total expenses (after depreciation) | $879,322 | $1,320,164 | $1,515,086 | $1,627,911 | $2,003,794 |
One month of savings | $73,216 | $109,895 | $126,060 | $135,436 | $166,476 |
Debt principal payment | $0 | $0 | $0 | $0 | $0 |
Fixed asset additions | $3,318 | $5,719 | $2,582 | $0 | $19,483 |
Total full costs (estimated) | $955,856 | $1,435,778 | $1,643,728 | $1,763,347 | $2,189,753 |
Capital structure indicators
Liquidity info | 2017 | 2018 | 2019 | 2020 | 2021 |
---|---|---|---|---|---|
Months of cash | 7.4 | 8.2 | 8.3 | 11.9 | 23.9 |
Months of cash and investments | 7.4 | 8.2 | 8.3 | 11.9 | 23.9 |
Months of estimated liquid unrestricted net assets | 0.0 | -1.0 | 12.6 | 14.3 | 10.7 |
Balance sheet composition info | 2017 | 2018 | 2019 | 2020 | 2021 |
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Cash | $541,624 | $901,750 | $1,050,805 | $1,606,001 | $3,972,842 |
Investments | $0 | $0 | $0 | $0 | $0 |
Receivables | $901,298 | $286,079 | $2,452,186 | $1,844,926 | $1,366,774 |
Gross land, buildings, equipment (LBE) | $5,448 | $11,167 | $13,749 | $13,749 | $28,768 |
Accumulated depreciation (as a % of LBE) | 22.6% | 23.8% | 36.5% | 56.0% | 32.4% |
Liabilities (as a % of assets) | 1.4% | 0.4% | 0.4% | 1.5% | 5.2% |
Unrestricted net assets | $6,777 | -$99,138 | $1,600,705 | $1,938,906 | $1,798,180 |
Temporarily restricted net assets | $1,451,982 | $1,325,279 | N/A | N/A | N/A |
Permanently restricted net assets | $0 | $0 | N/A | N/A | N/A |
Total restricted net assets | $1,451,982 | $1,325,279 | $1,934,441 | $1,476,609 | $3,291,407 |
Total net assets | $1,458,759 | $1,226,141 | $3,535,146 | $3,415,515 | $5,089,587 |
Key data checks
Key data checks info | 2017 | 2018 | 2019 | 2020 | 2021 |
---|---|---|---|---|---|
Material data errors | No | No | No | No | No |
Operations
The people, governance practices, and partners that make the organization tick.
Documents
CEO and President
Ariel Simms
Ariel Simms (they/them or she/hers) is the President and Chief Executive Officer of RespectAbility, a nonprofit organization fighting stigmas and advancing opportunities so people with disabilities can fully participate in all aspects of community. A queer and multiply disabled social justice advocate, leader, and educator, Ariel has worked to promote equity, justice, and meaningful inclusion of marginalized communities throughout their career. A life-long member of the disability community, Ariel grew into their first disabilities in childhood, while also supporting disabled family members. Ariel understands firsthand the challenges faced by those whose disabilities are not always readily apparent.
Number of employees
Source: IRS Form 990
Respectability
Officers, directors, trustees, and key employeesSOURCE: IRS Form 990
Compensation data
Respectability
Highest paid employeesSOURCE: IRS Form 990
Compensation data
Respectability
Board of directorsas of 05/14/2023
Board of directors data
Olegario "Ollie" Cantos VII
Shelley Cohen
Evelyn Kelley
Jonathan Murray
Judith Creed
Andrew Egan
Eleanor Clift
Linda Burger
Co-Treasurer
Vivian G. Bass
Vice Chair
Delbert Whetter
Vice Chair
Gabrielle Einstein-Sim
Gerard Robinson
Randall Duchesneau
Vice Chair
Janie Jeffers
Olegario V Cantos VII
Chair
Calvin J. Harrison
Chair Emeritus
Ila Eckhoff
Sneha Dave
Jaime Pacheco-Orozco
Khadija Bari
Co-Treasurer
Christine Cadena
Victor Pineda
Paul Martin
Karen Horne
Stacie De Armas
Craig Leen
Steve Bartlett
Chair Emeritus
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Sexual orientation
Disability
Equity strategies
Last updated: 04/13/2023GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We review compensation data across the organization (and by staff levels) to identify disparities by race.
- We ask team members to identify racial disparities in their programs and / or portfolios.
- We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.