No Stomach For Cancer, Inc.
Supporting Research. Empowering Families
No Stomach For Cancer, Inc.
EIN: 27-1011363
Mission
The mission of No Stomach For Cancer is to support research and unite the caring power of people worldwide affected by stomach cancer.
We advance awareness and education about stomach cancer, including Hereditary Diffuse Gastric Cancer (HDGC), provide a support network for affected families, and support research efforts for screening, early diagnosis, treatment, and prevention of stomach cancer. No Stomach For Cancer, Inc. is an approved 501(c)(3) nonprofit organization under the Internal Revenue Code.
Notes from the nonprofit
Periwinkle Global, a No Stomach For Cancer campaign, responds to the ongoing and critical need to bring stomach cancer to the forefront of the cancer battle. The campaign calls for increases in collaboration and advocacy by individuals, cancer organizations, research institutions, medical professionals, companies, and philanthropists to participate in stomach cancer awareness and research funding worldwide. Stomach cancer is a worldwide public health crisis and a silent killer. It is one of the deadliest cancers and the third leading cause of cancer death worldwide. Yet, awareness of the disease is shockingly low. Thus far, stomach cancer has received little media attention or research funding. We believe that collaboration and partnership will move us toward success and actively seek relationships to advance the fight against stomach cancer.
Ruling year
2010
Executive Director
Jon Florin
Main address
PO Box 46070
Madison, WI 53744 USA
Formerly known as
Chelcun Family Fund for Stomach Cancer Research
Be Strong Hearted
EIN
27-1011363
Health
Cancers
Population served
Children
Preteens
Adolescents
Adults
People of Middle Eastern descent
NTEE code
Cancer (G30)
Cancer Research (H30)
Alliance/Advocacy Organizations (E01)
IRS subsection
501(c)(3) Public Charity
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
Tax forms
Communication
Programs and results
Reports and documents
Download other documentsWhat we aim to solve
Periwinkle Global, a No Stomach For Cancer campaign, responds to the ongoing and critical need to bring stomach cancer to the forefront of the cancer battle. The campaign calls for increases in collaboration and advocacy by individuals, cancer organizations, research institutions, medical professionals, companies, and philanthropists to participate in stomach cancer awareness and research funding worldwide.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Education and Awareness
Education and Collaboration are a focus of our mission. Our goals include: Helping individuals and families recognize their risks for Stomach Cancer. Supporting medical professionals to identify families at risk, especially for Hereditary Diffuse Gastric Cancer Syndrome (HDGC), in time for preventive actions and sponsoring a National Stomach Cancer Awareness Month and creating educational programs for people to use in their communities all over the world to promote greater awareness and prevention. Stimulating and expanding interest in genetic stomach cancers and promoting family health history efforts. Recognizing that HDGC may be under-identified, and therefore encouraging genetic counseling at every early opportunity and providing an online support network for those affected by stomach cancer.
Education, Prevention, Research.
No Stomach For Cancer is dedicated to supporting innovative research to further the understanding of stomach cancer and improve prevention, early detection, treatment, and quality of life for stomach cancer patients.
International Alliance for Hereditary Diffuse Gastric Cancer Research
The motivation for creating this Alliance is to attract more attention and funding to this disease and to open lines of communication between key opinion leaders. It has been more than ten years since our Founder, Karen Chelcun-Schreiber, created this organization, and we are proud of what we have accomplished so far. However, there is a palatable sense of urgency within the patient community, and we must answer that call with big ideas and a louder voice. The next ten years may prove to be the most impactful if we can push harder for collaboration and increases in research funding.
Where we work
Affiliations & memberships
GI Cancers Alliance 2016
External reviews
Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of community events or trainings held and attendance
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults, Terminally ill people, Researchers, Students, Teachers
Related Program
Education, Prevention, Research.
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
The Spotlight on Stomach Cancer is a unique opportunity for those in the stomach cancer community, the medical community, and the general public to come together to learn more about stomach cancer
Number of first-time donors
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Advance awareness and education about stomach cancer, including Hereditary Diffuse Gastric Cancer (HDGC).
Establish and maintain a network of support for affected families.
Support research efforts for screening, early detection, treatment and prevention of stomach cancer.
Sustain a strong and high performing organization.
What are the organization's key strategies for making this happen?
The 1-2 year plan is to further develop our functioning board to facilitate the changes needed to strengthen our organization. We are also focused on improving our face to the world. Our website serves as our global communication tool and a primary resource for information, awareness, support to patients, and connection people worldwide. Enhancements to the site, including language translation, will help us to further our reach and our connections around the globe.
Our long-term plan is to further establish NSFC as the global thought leader for the stomach (a.k.a. gastric) cancer community through continual development of educational materials, research efforts, prevention and treatment. Consistent development of our programs and services will allow us to accomplish our mission and create the top-of-mind awareness that is necessary to save lives.
What are the organization's capabilities for doing this?
We have a capable, and dedicated board of directors supported by an expert scientific advisory council.
What have they accomplished so far and what's next?
January 2023
Entered into discussions with the American Cancer Society to bring more awareness and research funding to stomach cancer.
January 2022
Took ownership and responsibility for Gastrectomy Connections, the only patient support website and community for gastrectomy patients and their caregivers.
June 2021
Founded the International Alliance for HDGC Research
Dec. 2012-January 2023 - We have awarded over $600,000 to medical researchers around the globe to help fund and identify new and improved methods for gastric cancer, prevention, detection, treatment and therapy.
Dec 2012: Awarded first research grant of $10,000 with an additional $50,000 committed to grant for a research project yet to be determined.
Nov 2012: Hosted the 1st Annual No Stomach For Cancer® Walk, the first-of-its-kind global event to raise stomach cancer awareness. United on this day were participants from more than 34 states and ten countries. Over $35,000 was raised for stomach cancer research.
Sep 2010: NSFC champions Senator Russ Feingold's (D-WI) introduction of Senate Resolution 655, co-sponsored by Senator Dick Durbin (D-IL). The resolution is passed by unanimous consent, establishing the month of November as Stomach Cancer Awareness Month®.
Sep 2010: Developed a Scientific Advisory Board comprised of researchers and gastric cancer specialists from the United States, Canada, New Zealand, and Portugal. These professionals will provide expert and comprehensive perspectives as well as guidance to No Stomach For Cancer concerning technical, medical, and research related topics.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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Who are the people you serve with your mission?
We serve stomach cancer patients and caregivers.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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What significant change resulted from feedback?
We implemented an instant messaging option on our primary website.
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
Financial documents
Download audited financialsRevenue vs. expenses: breakdown
Liquidity in 2022 info
73.68
Months of cash in 2022 info
28.3
Fringe rate in 2022 info
8%
Funding sources info
Assets & liabilities info
No Stomach For Cancer, Inc.
Revenue & expensesFiscal Year: Jul 01 - Jun 30
SOURCE: IRS Form 990
No Stomach For Cancer, Inc.
Balance sheetFiscal Year: Jul 01 - Jun 30
SOURCE: IRS Form 990
The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.
Fiscal Year: Jul 01 - Jun 30
SOURCE: IRS Form 990
This snapshot of No Stomach For Cancer, Inc.’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.
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Business model indicators
| Profitability info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Unrestricted surplus (deficit) before depreciation | $89,886 | $136,439 | -$21,100 | $35,175 | $104,229 |
| As % of expenses | 49.5% | 43.5% | -8.9% | 12.5% | 44.2% |
| Unrestricted surplus (deficit) after depreciation | $89,886 | $136,439 | -$21,100 | $35,175 | $100,357 |
| As % of expenses | 49.5% | 43.5% | -8.9% | 12.5% | 41.8% |
| Revenue composition info | |||||
|---|---|---|---|---|---|
| Total revenue (unrestricted & restricted) | $273,385 | $449,053 | $218,654 | $232,169 | $379,724 |
| Total revenue, % change over prior year | 18.4% | 64.3% | -51.3% | 6.2% | 63.6% |
| Program services revenue | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Membership dues | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Investment income | 0.4% | 0.4% | 0.9% | 0.2% | 0.6% |
| Government grants | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| All other grants and contributions | 98.8% | 98.7% | 98.7% | 98.7% | 99.2% |
| Other revenue | 0.9% | 0.9% | 0.5% | 1.1% | 0.2% |
| Expense composition info | |||||
|---|---|---|---|---|---|
| Total expenses before depreciation | $181,718 | $313,318 | $237,733 | $281,449 | $236,060 |
| Total expenses, % change over prior year | -18.1% | 72.4% | -24.1% | 18.4% | -16.1% |
| Personnel | 28.4% | 16.7% | 23.0% | 19.4% | 23.2% |
| Professional fees | 11.2% | 2.7% | 3.7% | 2.8% | 2.9% |
| Occupancy | 2.3% | 1.3% | 1.7% | 1.5% | 1.8% |
| Interest | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Pass-through | 28.3% | 57.5% | 43.8% | 57.9% | 43.8% |
| All other expenses | 29.8% | 21.7% | 27.7% | 18.3% | 28.3% |
| Full cost components (estimated) info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Total expenses (after depreciation) | $181,718 | $313,318 | $237,733 | $281,449 | $239,932 |
| One month of savings | $15,143 | $26,110 | $19,811 | $23,454 | $19,672 |
| Debt principal payment | $0 | $0 | $0 | $0 | $0 |
| Fixed asset additions | $0 | $0 | $0 | $0 | $23,231 |
| Total full costs (estimated) | $196,861 | $339,428 | $257,544 | $304,903 | $282,835 |
Capital structure indicators
| Liquidity info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Months of cash | 22.0 | 21.2 | 22.3 | 19.9 | 28.3 |
| Months of cash and investments | 25.3 | 23.2 | 24.9 | 22.4 | 31.0 |
| Months of estimated liquid unrestricted net assets | 24.6 | 19.5 | 24.6 | 22.3 | 30.7 |
| Balance sheet composition info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Cash | $333,221 | $554,527 | $440,829 | $467,884 | $557,540 |
| Investments | $49,613 | $52,130 | $51,991 | $57,806 | $52,132 |
| Receivables | $0 | $0 | $0 | $0 | $0 |
| Gross land, buildings, equipment (LBE) | $0 | $0 | $0 | $0 | $23,231 |
| Accumulated depreciation (as a % of LBE) | 0.0% | 0.0% | 0.0% | 0.0% | 16.7% |
| Liabilities (as a % of assets) | 2.6% | 15.6% | 1.1% | 0.9% | 1.2% |
| Unrestricted net assets | $372,781 | $509,220 | $488,120 | $523,295 | $623,652 |
| Temporarily restricted net assets | $3,956 | $5,225 | N/A | N/A | N/A |
| Permanently restricted net assets | $15,433 | $15,553 | N/A | N/A | N/A |
| Total restricted net assets | $19,389 | $20,778 | $21,742 | $27,139 | $55,639 |
| Total net assets | $392,170 | $529,998 | $509,862 | $550,434 | $679,291 |
Key data checks
| Key data checks info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Material data errors | No | No | No | No | No |
Operations
The people, governance practices, and partners that make the organization tick.
Documents
Executive Director
Jon Florin
WHAT I DO: I help Stomach Cancer Patients, Families, and Caregivers by providing the information and resources they need to navigate the difficult journey from diagnosis to survivorship.
WHO I SERVE: Our Board of Directors, Patients, Families, Caregivers, and Donors.
Number of employees
Source: IRS Form 990
No Stomach For Cancer, Inc.
Officers, directors, trustees, and key employeesSOURCE: IRS Form 990
Compensation data
There are no highest paid employees recorded for this organization.
No Stomach For Cancer, Inc.
Board of directorsas of 04/27/2023
Board of directors data
Dylan Davison
No Affiliation
Term: 2018 -
Dylan Davison
Melanie Torborg
Terri Beach
Hannah Davis
Cailyn Reilly-Knapp
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
Sexual orientation
Disability
We do not display disability information for organizations with fewer than 15 staff.
Equity strategies
Last updated: 10/25/2021GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We use a vetting process to identify vendors and partners that share our commitment to race equity.
- We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.
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