GOLD2023

North Carolina Down Syndrome Alliance

Empower Connect Support

aka NCDSA   |   RALEIGH, NC   |  https://www.ncdsalliance.org/
GuideStar Charity Check

North Carolina Down Syndrome Alliance

EIN: 31-1630412


Mission

To empower, connect, and support the lifespan of individuals with Down syndrome, their families, and the community through outreach, advocacy, and education in North Carolina.

Ruling year info

1999

Executive Director

Christina Reaves

Main address

PO BOX 99562

RALEIGH, NC 27624 USA

Show more contact info

Formerly known as

Triangle Down Syndrome Network

EIN

31-1630412

Subject area info

Patient social services

Mental health care

Developmental disability services

Population served info

Families

Parents

People with disabilities

NTEE code info

Developmentally Disabled Services/Centers (P82)

Patient Services - Entertainment, Recreation (E86)

Single Organization Support (F11)

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Buddy Walk

This is our major social, fundraising, and community awareness event of the year.  Held each October and March in celebration of Down syndrome awareness Month, NCDSA held its first Buddy Walk in 1999 and each year it has grown bigger and better.  The walk is a short fun-walk, non-competitive on a stroller-friendly path but the day is filled with activities and entertainment for the whole families including carnival games, rides, food and refreshments.

Population(s) Served
Families
People with intellectual disabilities

NCDSA offers free and confidential services
New and Expectant Parent Program

•NCDSA believes every baby deserves a joyful welcome and provides
New and Expectant Parents with resources, Prenatal Diagnosis packet, a Welcome Baby Bag, home and hospital visits, and pairing with trained Parent Mentors mentoring to build positive connections among
new families. Multilingual resources are available.

Medical Outreach Program
NCDSA is a resource to the healthcare community by keeping providers updated regarding:

•Best practices on delivering a compassionate diagnosis including accurate and unbiased information about Down syndrome
•Current information on the quality of life for people with Down syndrome
•Healthcare Guidelines developed specifically for children and adults with Down syndrome

North Carolina First Call Program also provides resources for:

•New to Area
•New Caregivers
•New to Adoption

Population(s) Served

NCDSA facilitates opportunities for people with Down syndrome and their family members
to connect with other people with Down syndrome and their families through a
variety of events and activities.

Annual events: family picnics, Hispanic family picnic, holiday parties, teen and adult dances

Regularly scheduled activities: playgroups, Moms Night Out, Dads Night Out, T-21 Club, Sibshops™,
community outings, virtual social opportunities, and diverse social groups

Population(s) Served

The Learning Institute provides training to all skill and age levels of individuals with Down syndrome, educators, parents, and community members.
Programs include Lifespan Transitions Series, The Learning Program™, After School Academy, Lending Library, Educators Institute, Community Classroom, and Workforce Training.

Population(s) Served

Advocacy and awareness are key elements to dispelling misconceptions and stereotypes while increasing opportunities for people with Down syndrome. NCDSA trains parents and people with Down syndrome about their rights and how to access services and supports. Advocacy 101 and I Have a Voice Academy programs empower people to seek system-wide policy change as well as speak up for themselves and others. Trained advocates participate in Advocacy in Action campaigns that promote the best interest of people with Down syndrome and the community that supports them.

Population(s) Served

NCDSA serves the lifespan of individuals with Down syndrome, their families, and the communities who support them. NCDSA helps families assemble the building blocks at every step of development to construct a fulfilling life for an individual with Down syndrome. NCDSA hosts numerous opportunities to receive support across the lifespan including:

•Local Community Groups
•Homeschool Co-op
•Teen and Young Adult Parent Support Meetings
•New Parent Support Meetings
•Age specific programs
•Online Communities

Population(s) Served
Ethnic and racial groups
Caregivers
Families
Non-adult children
Widows and widowers
Ethnic and racial groups
Caregivers
Families
Non-adult children
Widows and widowers
Ethnic and racial groups
Caregivers
Families
Non-adult children
Widows and widowers
Ethnic and racial groups
Caregivers
Families
Non-adult children
Widows and widowers
Ethnic and racial groups
Caregivers
Families
Non-adult children
Widows and widowers

Where we work

Affiliations & memberships

Down Syndrome Affiliates in Action 2023

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Hours of mentoring

This metric is no longer tracked.
Totals By Year
Related Program

North Carolina First Call Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Hours of tutoring administered

This metric is no longer tracked.
Totals By Year
Related Program

Learning Institute

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time

Financials

North Carolina Down Syndrome Alliance
Fiscal year: Jan 01 - Dec 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2022 info

SOURCE: IRS Form 990

17.03

Average of 28.00 over 10 years

Months of cash in 2022 info

SOURCE: IRS Form 990

5.1

Average of 11.3 over 10 years

Fringe rate in 2022 info

SOURCE: IRS Form 990

13%

Average of 8% over 10 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

North Carolina Down Syndrome Alliance

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

North Carolina Down Syndrome Alliance

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

North Carolina Down Syndrome Alliance

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

This snapshot of North Carolina Down Syndrome Alliance’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

Created in partnership with

Business model indicators

Profitability info 2018 2019 2020 2021 2022
Unrestricted surplus (deficit) before depreciation $1,701 $5,686 $17,010 -$24,944 $38,880
As % of expenses 0.9% 2.1% 6.4% -7.8% 9.4%
Unrestricted surplus (deficit) after depreciation $1,458 $3,918 $13,638 -$28,735 $32,528
As % of expenses 0.7% 1.4% 5.1% -8.9% 7.7%
Revenue composition info
Total revenue (unrestricted & restricted) $201,056 $280,156 $282,073 $295,614 $454,079
Total revenue, % change over prior year 33.3% 39.3% 0.7% 4.8% 53.6%
Program services revenue 7.1% 12.4% 6.8% 6.9% 5.8%
Membership dues 0.0% 0.0% 0.0% 0.0% 0.0%
Investment income 0.0% 0.1% 0.1% 0.1% 0.3%
Government grants 0.0% 0.0% 9.1% 0.0% 21.5%
All other grants and contributions 92.8% 87.5% 84.0% 93.0% 72.4%
Other revenue 0.0% 0.0% 0.0% 0.0% 0.0%
Expense composition info
Total expenses before depreciation $199,355 $274,470 $265,063 $320,558 $415,200
Total expenses, % change over prior year 31.2% 37.7% -3.4% 20.9% 29.5%
Personnel 51.1% 45.8% 62.6% 56.7% 56.8%
Professional fees 1.0% 1.0% 1.0% 0.8% 1.1%
Occupancy 0.0% 0.0% 0.0% 6.4% 0.0%
Interest 0.0% 0.0% 0.0% 0.0% 0.0%
Pass-through 0.0% 0.0% 0.0% 0.0% 0.0%
All other expenses 47.8% 53.2% 36.4% 36.2% 42.1%
Full cost components (estimated) info 2018 2019 2020 2021 2022
Total expenses (after depreciation) $199,598 $276,238 $268,435 $324,349 $421,552
One month of savings $16,613 $22,873 $22,089 $26,713 $34,600
Debt principal payment $0 $0 $0 $0 $0
Fixed asset additions $0 $16,258 $0 $13,833 $0
Total full costs (estimated) $216,211 $315,369 $290,524 $364,895 $456,152

Capital structure indicators

Liquidity info 2018 2019 2020 2021 2022
Months of cash 10.1 6.8 8.2 6.3 5.1
Months of cash and investments 10.1 6.8 8.2 6.3 5.1
Months of estimated liquid unrestricted net assets 10.3 7.0 8.0 5.2 5.1
Balance sheet composition info 2018 2019 2020 2021 2022
Cash $167,520 $155,024 $181,470 $167,206 $174,974
Investments $0 $0 $0 $0 $0
Receivables $0 $0 $0 $0 $0
Gross land, buildings, equipment (LBE) $2,180 $18,438 $19,189 $33,022 $34,837
Accumulated depreciation (as a % of LBE) 88.3% 20.0% 36.8% 32.9% 49.4%
Liabilities (as a % of assets) 0.8% 1.7% 4.0% 19.2% 5.1%
Unrestricted net assets $0 $0 $0 $0 $0
Temporarily restricted net assets $0 N/A N/A N/A N/A
Permanently restricted net assets $0 N/A N/A N/A N/A
Total restricted net assets $0 $0 $0 $0 $0
Total net assets $171,657 $175,575 $189,213 $160,478 $193,006

Key data checks

Key data checks info 2018 2019 2020 2021 2022
Material data errors No No No No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Form 1023/1024 is not available for this organization

Executive Director

Christina Reaves

Number of employees

Source: IRS Form 990

North Carolina Down Syndrome Alliance

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

North Carolina Down Syndrome Alliance

Board of directors
as of 10/10/2023
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board co-chair

Tara Moore

MSW

Term: 2021 - 2023


Board co-chair

Jeffrey Lineberry

Lineberry Marketing

Term: 2021 - 2023

Stacy Strickland

Bruce Allen Construction Company

Tara Moore

Transitions LifeCare, LLC

Jeffrey Lineberry

Lineberry Marketing

Diane Cavanagh

Retired

Jason Ho

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Matt Cooper

GitHub

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Adam Cato

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Anthony Nicholson

McPherson, Rocamora, Nicholson, Wilson & Hinkle, PLLC

Kate Westmoreland

UNC Hospital

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 10/10/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 10/10/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.