PATIENTS RISING INC
PATIENTS RISING INC
EIN: 47-5016851
as of November 2023
as of November 13, 2023
Mission
Patients Rising was formed to stand up for patients. To advocate for their rights. To fight for their access to the medications they need and deserve. And to tell the truth about health care.
Ruling year
2016
Co-Founder & CEO
Terry Wilcox
Main address
11710 Plaza America Drive Suite 2000
Reston, VA 20190 USA
EIN
47-5016851
Health
Medical support services
Population served
Low-income people
People with diseases and illnesses
NTEE code
Alliance/Advocacy Organizations (E01)
IRS subsection
501(c)(3) Public Charity
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
Tax forms
Communication
Affiliations
Programs and results
What we aim to solve
Patients Rising is a national nonprofit organization dedicated to providing support and education to people with chronic and life-threatening illnesses and use the health care system at least once per month. We work with patients to advocate for access to the treatments, innovations, and care they need.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Patients Rising University
Through an online learning resource, Patients Rising University clarifies the barriers that affect patients' ability to access the health care they need when they need it. As they navigate a complex coverage and care environment, we offer pocket access to resources and best practices
Where we work
External reviews
Videos
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
To date, Patients Rising has directly helped more than 2,000 patients and caregivers learn how to access the care they need and advocate for themselves and their loved ones.
Our goal is to double our patients served every year, and we aim to do that through the following:
- Patients Rising Concierge: a free program that supports patients and caregivers by connecting them to free or reduced-cost services that are personalized to their needs. To get
- Help patients and caregivers educate themselves to better navigate the healthcare system through webinars, events and personalized assistance
- Create relevant content and share information and resources through our media outlets: The Patients Rising Podcast, Voices of Value Blog and Social Media Channels
What are the organization's key strategies for making this happen?
This year we will:
- Expand of the Patients Rising Concierge Program by employing robust software infrastructure and support, plus hiring additional Patient Navigators
- Host monthly patient education focused webinars, and a fall Patient Advocacy Day on Capital Hill
- Launch the Patients Rising Podcast
- Launch a COVID-19 resources site for Immunocompromised Communities
What are the organization's capabilities for doing this?
We have expanded our team to Patient Navigators to personally handle and direct Patients Rising Concierge requests, as as well as a content creation team, led by both industry leaders in healthcare advocacy, as well as patient advocates who can speak from personal experience.
What have they accomplished so far and what's next?
In 2020, we have launched Patients Rising Concierge, the Patients Rising Podcast and a COVID-19 specific website + private Facebook group dedicated to Immunocompromised Communities, and offers weekly updates + ongoing support for those who are at an increased risk for COVID-19.
Financials
Revenue vs. expenses: breakdown
Liquidity in 2022 info
0.04
Months of cash in 2022 info
0.3
Fringe rate in 2022 info
15%
Funding sources info
Assets & liabilities info
Financial data
PATIENTS RISING INC
Balance sheetFiscal Year: Jan 01 - Dec 31
The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.
Fiscal Year: Jan 01 - Dec 31
This snapshot of PATIENTS RISING INC’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.
Created in partnership with
Business model indicators
| Profitability info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Unrestricted surplus (deficit) before depreciation | -$57,926 | $5,914 | -$182,484 | $112,070 | -$679,672 |
| As % of expenses | -8.1% | 0.9% | -20.5% | 12.4% | -43.8% |
| Unrestricted surplus (deficit) after depreciation | -$57,926 | $5,914 | -$182,484 | $112,070 | -$679,672 |
| As % of expenses | -8.1% | 0.9% | -20.5% | 12.4% | -43.8% |
| Revenue composition info | |||||
|---|---|---|---|---|---|
| Total revenue (unrestricted & restricted) | $657,697 | $663,562 | $707,707 | $993,326 | $872,251 |
| Total revenue, % change over prior year | 7.0% | 0.9% | 6.7% | 40.4% | -12.2% |
| Program services revenue | 0.0% | 0.0% | 0.2% | 0.0% | 0.0% |
| Membership dues | 0.1% | 0.1% | 2.9% | 55.4% | 23.5% |
| Investment income | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Government grants | 0.0% | 0.0% | 0.4% | 9.8% | 3.3% |
| All other grants and contributions | 99.9% | 99.9% | 96.4% | 34.8% | 73.2% |
| Other revenue | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Expense composition info | |||||
|---|---|---|---|---|---|
| Total expenses before depreciation | $715,623 | $657,648 | $890,191 | $903,886 | $1,551,923 |
| Total expenses, % change over prior year | 0.2% | -8.1% | 35.4% | 1.5% | 71.7% |
| Personnel | 20.8% | 38.8% | 30.2% | 31.8% | 26.2% |
| Professional fees | 53.3% | 46.9% | 59.1% | 50.0% | 57.1% |
| Occupancy | 1.3% | 1.9% | 2.3% | 0.8% | 0.9% |
| Interest | 0.0% | 0.1% | 0.1% | 0.0% | 0.9% |
| Pass-through | 0.0% | 0.0% | 0.0% | 4.4% | 0.0% |
| All other expenses | 24.6% | 12.3% | 8.3% | 13.0% | 14.9% |
| Full cost components (estimated) info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Total expenses (after depreciation) | $715,623 | $657,648 | $890,191 | $903,886 | $1,551,923 |
| One month of savings | $59,635 | $54,804 | $74,183 | $75,324 | $129,327 |
| Debt principal payment | $28,126 | $12,500 | $21,874 | $962 | $0 |
| Fixed asset additions | $0 | $0 | $0 | $0 | $0 |
| Total full costs (estimated) | $803,384 | $724,952 | $986,248 | $980,172 | $1,681,250 |
Capital structure indicators
| Liquidity info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Months of cash | 0.3 | 0.5 | 0.3 | 1.0 | 0.3 |
| Months of cash and investments | 0.3 | 0.5 | 0.3 | 1.0 | 0.5 |
| Months of estimated liquid unrestricted net assets | -0.3 | -0.2 | -2.6 | -1.1 | -5.9 |
| Balance sheet composition info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Cash | $20,843 | $26,745 | $25,248 | $74,961 | $32,815 |
| Investments | $0 | $0 | $0 | $0 | $30,000 |
| Receivables | $0 | $0 | $0 | $455,000 | $25,000 |
| Gross land, buildings, equipment (LBE) | $0 | $0 | $0 | $0 | $0 |
| Accumulated depreciation (as a % of LBE) | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Liabilities (as a % of assets) | 187.6% | 144.6% | 843.6% | 115.6% | 968.2% |
| Unrestricted net assets | $0 | $0 | $0 | $0 | $0 |
| Temporarily restricted net assets | $0 | N/A | N/A | N/A | N/A |
| Permanently restricted net assets | $0 | N/A | N/A | N/A | N/A |
| Total restricted net assets | $0 | $0 | $0 | $0 | $0 |
| Total net assets | -$18,260 | -$12,346 | -$194,830 | -$82,760 | -$762,432 |
Key data checks
| Key data checks info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Material data errors | No | No | No | No | No |
Operations
The people, governance practices, and partners that make the organization tick.
Documents
Co-Founder & CEO
Terry Wilcox
Number of employees
Source: IRS Form 990
PATIENTS RISING INC
Officers, directors, trustees, and key employeesSOURCE: IRS Form 990
Compensation data
There are no highest paid employees recorded for this organization.
PATIENTS RISING INC
Board of directorsas of 01/19/2023
Board of directors data
John Kabateck
Kabateck Strategies
Term: 2019 - 2023
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
-
Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
Contractors
Fiscal year endingGuideStar Pro Reports
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