Reston, VA   |
GuideStar Charity Check


EIN: 47-5016851


Patients Rising was formed to stand up for patients. To advocate for their rights. To fight for their access to the medications they need and deserve. And to tell the truth about health care.

Ruling year info


Co-Founder & CEO

Terry Wilcox

Main address

11710 Plaza America Drive Suite 2000

Reston, VA 20190 USA

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Subject area info


Medical support services

Population served info

Low-income people

People with diseases and illnesses

NTEE code info

Alliance/Advocacy Organizations (E01)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Show Forms 990



See related organizations info

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Patients Rising is a national nonprofit organization dedicated to providing support and education to people with chronic and life-threatening illnesses and use the health care system at least once per month. We work with patients to advocate for access to the treatments, innovations, and care they need.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patients Rising University

Through an online learning resource, Patients Rising University clarifies the barriers that affect patients' ability to access the health care they need when they need it. As they navigate a complex coverage and care environment, we offer pocket access to resources and best practices

Population(s) Served
People with diseases and illnesses

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To date, Patients Rising has directly helped more than 2,000 patients and caregivers learn how to access the care they need and advocate for themselves and their loved ones.

Our goal is to double our patients served every year, and we aim to do that through the following:

- Patients Rising Concierge: a free program that supports patients and caregivers by connecting them to free or reduced-cost services that are personalized to their needs. To get
- Help patients and caregivers educate themselves to better navigate the healthcare system through webinars, events and personalized assistance
- Create relevant content and share information and resources through our media outlets: The Patients Rising Podcast, Voices of Value Blog and Social Media Channels

This year we will:
- Expand of the Patients Rising Concierge Program by employing robust software infrastructure and support, plus hiring additional Patient Navigators
- Host monthly patient education focused webinars, and a fall Patient Advocacy Day on Capital Hill
- Launch the Patients Rising Podcast
- Launch a COVID-19 resources site for Immunocompromised Communities

We have expanded our team to Patient Navigators to personally handle and direct Patients Rising Concierge requests, as as well as a content creation team, led by both industry leaders in healthcare advocacy, as well as patient advocates who can speak from personal experience.

In 2020, we have launched Patients Rising Concierge, the Patients Rising Podcast and a COVID-19 specific website + private Facebook group dedicated to Immunocompromised Communities, and offers weekly updates + ongoing support for those who are at an increased risk for COVID-19.


Fiscal year: Jan 01 - Dec 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2022 info

SOURCE: IRS Form 990


Average of 0.41 over 7 years

Months of cash in 2022 info

SOURCE: IRS Form 990


Average of 0.9 over 7 years

Fringe rate in 2022 info

SOURCE: IRS Form 990


Average of 9% over 7 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990


Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data


Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data


Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

This snapshot of PATIENTS RISING INC’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

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Business model indicators

Profitability info 2018 2019 2020 2021 2022
Unrestricted surplus (deficit) before depreciation -$57,926 $5,914 -$182,484 $112,070 -$679,672
As % of expenses -8.1% 0.9% -20.5% 12.4% -43.8%
Unrestricted surplus (deficit) after depreciation -$57,926 $5,914 -$182,484 $112,070 -$679,672
As % of expenses -8.1% 0.9% -20.5% 12.4% -43.8%
Revenue composition info
Total revenue (unrestricted & restricted) $657,697 $663,562 $707,707 $993,326 $872,251
Total revenue, % change over prior year 7.0% 0.9% 6.7% 40.4% -12.2%
Program services revenue 0.0% 0.0% 0.2% 0.0% 0.0%
Membership dues 0.1% 0.1% 2.9% 55.4% 23.5%
Investment income 0.0% 0.0% 0.0% 0.0% 0.0%
Government grants 0.0% 0.0% 0.4% 9.8% 3.3%
All other grants and contributions 99.9% 99.9% 96.4% 34.8% 73.2%
Other revenue 0.0% 0.0% 0.0% 0.0% 0.0%
Expense composition info
Total expenses before depreciation $715,623 $657,648 $890,191 $903,886 $1,551,923
Total expenses, % change over prior year 0.2% -8.1% 35.4% 1.5% 71.7%
Personnel 20.8% 38.8% 30.2% 31.8% 26.2%
Professional fees 53.3% 46.9% 59.1% 50.0% 57.1%
Occupancy 1.3% 1.9% 2.3% 0.8% 0.9%
Interest 0.0% 0.1% 0.1% 0.0% 0.9%
Pass-through 0.0% 0.0% 0.0% 4.4% 0.0%
All other expenses 24.6% 12.3% 8.3% 13.0% 14.9%
Full cost components (estimated) info 2018 2019 2020 2021 2022
Total expenses (after depreciation) $715,623 $657,648 $890,191 $903,886 $1,551,923
One month of savings $59,635 $54,804 $74,183 $75,324 $129,327
Debt principal payment $28,126 $12,500 $21,874 $962 $0
Fixed asset additions $0 $0 $0 $0 $0
Total full costs (estimated) $803,384 $724,952 $986,248 $980,172 $1,681,250

Capital structure indicators

Liquidity info 2018 2019 2020 2021 2022
Months of cash 0.3 0.5 0.3 1.0 0.3
Months of cash and investments 0.3 0.5 0.3 1.0 0.5
Months of estimated liquid unrestricted net assets -0.3 -0.2 -2.6 -1.1 -5.9
Balance sheet composition info 2018 2019 2020 2021 2022
Cash $20,843 $26,745 $25,248 $74,961 $32,815
Investments $0 $0 $0 $0 $30,000
Receivables $0 $0 $0 $455,000 $25,000
Gross land, buildings, equipment (LBE) $0 $0 $0 $0 $0
Accumulated depreciation (as a % of LBE) 0.0% 0.0% 0.0% 0.0% 0.0%
Liabilities (as a % of assets) 187.6% 144.6% 843.6% 115.6% 968.2%
Unrestricted net assets $0 $0 $0 $0 $0
Temporarily restricted net assets $0 N/A N/A N/A N/A
Permanently restricted net assets $0 N/A N/A N/A N/A
Total restricted net assets $0 $0 $0 $0 $0
Total net assets -$18,260 -$12,346 -$194,830 -$82,760 -$762,432

Key data checks

Key data checks info 2018 2019 2020 2021 2022
Material data errors No No No No No


The people, governance practices, and partners that make the organization tick.

Form 1023/1024 is not available for this organization

Co-Founder & CEO

Terry Wilcox

Number of employees

Source: IRS Form 990


Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.


Board of directors
as of 01/19/2023
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

John Kabateck

Kabateck Strategies

Term: 2019 - 2023

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 11/11/2021

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.


The organization's leader identifies as:

Race & ethnicity
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data


No data

Sexual orientation

No data


No data


Fiscal year ending
There are no fundraisers recorded for this organization.