Brain Inflammation Collaborative, Inc.

Revealing the Connection Between Brain Inflammation and Mental Health

Delafield, WI   |
GuideStar Charity Check

Brain Inflammation Collaborative, Inc.

EIN: 87-4063264


Our mission is to revolutionize the diagnosis and treatment of neuroinflammatory illnesses through a coordinated research effort that connects both patients and researchers through centralized patient data. Through our unique online longitudinal data collection and biobank platform, grant funding, and research coordination, we look to empower patients, clinicians, and researchers with the tools they need to further the advancements in diagnosis, treatment and prevention of neuroinflammatory illness or brain inflammation. The connection between brain inflammation and health is often misunderstood and misdiagnosed – we feel strongly that the solution is hidden in plain sight.

Ruling year info



Christy Jagdfeld CPA

Principal Investigator, Unhide

Dr. Denise Calaprice-Whitty

Main address

925 Genesee St Unit 180440

Delafield, WI 53018 USA

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Formerly known as

Brain Health and Inflammation Collaborative



Subject area info


Brain and nervous system disorders

Population served info

Children and youth


Ethnic and racial groups

NTEE code info

Brain Disorders (H48)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990-N.


Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

The Unhide Project

The Unhide™ Project is the first online and ongoing clinical research study of its kind. It's a simple to use online longitudinal data collection and biobank platform that tracks patient journeys with coordinating bio-samples allowing us to look for patterns and triggers in both mental & physical health. Inflammation, as the result of autoimmune processes, infection, allergy, or injury can sometimes trigger or mimic common mental health symptoms such as depression, anxiety, OCD or behavioral changes. We look to further the advancements in diagnosis, treatment and prevention of brain inflammation.

We include diagnoses or suspected diagnoses of long covid, OCD, anorexia, PANDAS/PANS, POTS, EDS, AE, Sjogren's, autoimmune arthritis, PTSD, Tourette’s & more. Visit our website for a list. By participating in the project, patients, clinicians & researchers will join a larger collaborative effort to help us learn about mental health symptoms that we feel are driven by brain inflammation.

Population(s) Served

We are coordinating research in a way that has never been done before. We seek to empower the research community with the tools needed to guide and support research objectives toward the fastest possible breakthroughs - including access to networking, knowledge-sharing opportunities, and seed grant funding.

Research collaborators will be able to use large-scale, regulatory-grade patient data and coordinating bio-samples (including healthy controls) to help them better understand the mystery surrounding brain inflammation and mental health.

We believe that collaborating and sharing data and resources will amplify our research as it drives us to new scientific discoveries. The data and resources developed through the Brain Inflammation Collaborative's sponsored research will be made available to other researchers after its publication so that the benefits can be used in again furthering new research.

Population(s) Served

Patients and caregivers, researchers, clinicians, and even donors are communities we intend to engage and connect. We plan to inspire and empower these communities to join us in leading the charge HEAD ON to drive research to the answers that are long overdue.

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If you want to go fast, go alone. If you want to go far, go together. - African Proverb

Population(s) Served
People with diseases and illnesses
Ethnic and racial groups
People with diseases and illnesses
Ethnic and racial groups

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our goal is to look for patterns and triggers in both mental and physical health.

We look to empower patients, researchers and clinicians by providing them with the tools needed to further the advancements in diagnosis, treatment and prevention of brain inflammation.


Brain Inflammation Collaborative, Inc.

Financial data

SOURCE: Self-reported by organization

Brain Inflammation Collaborative, Inc.

Revenue & expenses

Fiscal Year: 2022

SOURCE: Self-reported by organization

Contributions, Grants, Gifts $520,000
Program Services $0
Membership Dues $0
Special Events $0
Other Revenue $0
Total Revenue $520,000
Program Services $323,309
Administration $62,321
Fundraising $0
Payments to Affiliates $0
Other Expenses $0
Total Expenses $387,180

Brain Inflammation Collaborative, Inc.

Balance sheet

Fiscal Year: 2022

SOURCE: Self-reported by organization

Total Assets $171,450
Total Liabilities $38,630
Fund balance (EOY)
Net Assets $132,820


The people, governance practices, and partners that make the organization tick.

Letter of Determination is not available for this organization
Form 1023/1024 is not available for this organization


Christy Jagdfeld CPA

Jagdfeld worked for six years as a volunteer and eventual Board Member and Treasurer of Dysautonomia International from 2014 to 2020. During that time she helped organize awareness events, 5K’s, seminars, conferences and in-person and on-line support groups. She attended local conferences and spoke at local events. On a national level, she helped with fundraising, networking, attending professional conferences and handled many of the business aspects of the organization. She is also Treasurer of PANDAS Network as well as a BOD member of the Waukesha Express Swim Team. Prior to her advocacy work, Jagdfeld spent time raising 3 children, one in the chronic illness world. She graduated from the University of Wisconsin-Whitewater with a BBA in Accounting. She spent time in public and private accounting.

Principal Investigator, Unhide

Denise Calaprice-Whitty

After receiving her Bachelor’s degree in Biology from Harvard University and her MS and PhD from Princeton, Dr. Denise Calaprice-Whitty became an NIH fellow at Columbia University’s College of Physicians and Surgeons in the departments of Clinical and Genetic Epidemiology and Child Psychiatry. During her time at Columbia, her research on the psychoneuroimmunology of childhood anxiety and mood disorders led to the prestigious Young Investigator Award from NARSAD (National Alliance for Research on Schizophrenia and Depression). Her post-Columbia career led her into industry, where she has spent more than two decades designing and directing clinical research programs and creating innovative development and operational strategies in a variety of settings. Her positions have included Senior Director of Immunology Therapeutics at IQVIA (then Quintiles), Head of Clinical Research for North America at Altana/BykGulden, and Senior Director of Clinical Research at Regeneron. See her LinkedIn.

There are no officers, directors or key employees recorded for this organization

There are no highest paid employees recorded for this organization.

Brain Inflammation Collaborative, Inc.

Board of directors
as of 07/31/2023
SOURCE: Self-reported by organization
Board of directors data
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Board chair

CPA Christy Jagdfeld

Diana Pohlman

PANDAS Network

Heather Korbmacher

Christy Jagdfeld

Organizational demographics

SOURCE: Self-reported; last updated 7/28/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.


The organization's leader identifies as:

Race & ethnicity
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Gender identity

Race & ethnicity

No data

Gender identity

No data


No data

Sexual orientation

No data


No data