GOLD2024

Brain Inflammation Collaborative, Inc.

Revealing the Connection Between Brain Inflammation and Mental Health

Delafield, WI   |  https://braininflammation.org/
GuideStar Charity Check

Brain Inflammation Collaborative, Inc.

EIN: 87-4063264


Mission

Our mission is to revolutionize the diagnosis and treatment of neuroinflammatory illnesses through a coordinated research effort that connects both patients and researchers through centralized patient data. Through our unique online longitudinal data collection and biobank platform, grant funding, and research coordination, we look to empower patients, clinicians, and researchers with the tools they need to further the advancements in diagnosis, treatment and prevention of neuroinflammatory illness or brain inflammation. The connection between brain inflammation and health is often misunderstood and misdiagnosed – we feel strongly that the solution is hidden in plain sight.

Ruling year info

2022

CEO

Christy Jagdfeld CPA

Principal Investigator, Unhide

Dr. Denise Calaprice-Whitty

Main address

925 Genesee St Unit 180440

Delafield, WI 53018 USA

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Formerly known as

Brain Health and Inflammation Collaborative

EIN

87-4063264

Subject area info

School-based health care

Preventive care

Organ and tissue banks

Mental health care

Immunology

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Population served info

Children

Preteens

Adolescents

Adults

NTEE code info

Brain Disorders (H48)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Show Forms 990

Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

The Unhide Project

The Unhide™ Project is the first online and ongoing clinical research study of its kind. It's a simple to use online longitudinal data collection and biobank platform that tracks patient journeys with coordinating bio-samples allowing us to look for patterns and triggers in both mental & physical health. Inflammation, as the result of autoimmune processes, infection, allergy, or injury can sometimes trigger or mimic common mental health symptoms such as depression, anxiety, OCD or behavioral changes. We look to further the advancements in diagnosis, treatment and prevention of brain inflammation.

We include diagnoses or suspected diagnoses of long covid, OCD, anorexia, PANDAS/PANS, POTS, EDS, AE, Sjogren's, autoimmune arthritis, PTSD, Tourette’s & more. Visit our website for a list. By participating in the project, patients, clinicians & researchers will join a larger collaborative effort to help us learn about mental health symptoms that we feel are driven by brain inflammation.

Population(s) Served

We are coordinating research in a way that has never been done before. We seek to empower the research community with the tools needed to guide and support research objectives toward the fastest possible breakthroughs - including access to networking, knowledge-sharing opportunities, and seed grant funding.

Research collaborators will be able to use large-scale, regulatory-grade patient data and coordinating bio-samples (including healthy controls) to help them better understand the mystery surrounding brain inflammation and mental health.

We believe that collaborating and sharing data and resources will amplify our research as it drives us to new scientific discoveries. The data and resources developed through the Brain Inflammation Collaborative's sponsored research will be made available to other researchers after its publication so that the benefits can be used in again furthering new research.

Population(s) Served

Patients and caregivers, researchers, clinicians, and even donors are communities we intend to engage and connect. We plan to inspire and empower these communities to join us in leading the charge HEAD ON to drive research to the answers that are long overdue.

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If you want to go fast, go alone. If you want to go far, go together. - African Proverb

Population(s) Served
People with diseases and illnesses
Ethnic and racial groups
People with diseases and illnesses
Ethnic and racial groups

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our goal is to look for patterns and triggers in both mental and physical health.

We look to empower patients, researchers and clinicians by providing them with the tools needed to further the advancements in diagnosis, treatment and prevention of brain inflammation.

Financials

Brain Inflammation Collaborative, Inc.
Fiscal year: Jan 01 - Dec 31
done  Yes, financials were audited by an independent accountant. info

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2022 info

SOURCE: IRS Form 990

2.94

Average of 2.94 over 1 years

Months of cash in 2022 info

SOURCE: IRS Form 990

4.6

Average of 4.6 over 1 years

Fringe rate in 2022 info

SOURCE: IRS Form 990

0%

Average of 0% over 1 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

Brain Inflammation Collaborative, Inc.

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

Brain Inflammation Collaborative, Inc.

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

Brain Inflammation Collaborative, Inc.

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

This snapshot of Brain Inflammation Collaborative, Inc.’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

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Business model indicators

Profitability info 2022
Unrestricted surplus (deficit) before depreciation $223,486
As % of expenses 75.4%
Unrestricted surplus (deficit) after depreciation $220,358
As % of expenses 73.5%
Revenue composition info
Total revenue (unrestricted & restricted) $520,000
Total revenue, % change over prior year 0.0%
Program services revenue 0.0%
Membership dues 0.0%
Investment income 0.0%
Government grants 0.0%
All other grants and contributions 100.0%
Other revenue 0.0%
Expense composition info
Total expenses before depreciation $296,514
Total expenses, % change over prior year 0.0%
Personnel 0.0%
Professional fees 73.1%
Occupancy 0.0%
Interest 0.0%
Pass-through 3.4%
All other expenses 23.6%
Full cost components (estimated) info 2022
Total expenses (after depreciation) $299,642
One month of savings $24,710
Debt principal payment $0
Fixed asset additions $0
Total full costs (estimated) $324,352

Capital structure indicators

Liquidity info 2022
Months of cash 4.6
Months of cash and investments 4.6
Months of estimated liquid unrestricted net assets 8.9
Balance sheet composition info 2022
Cash $113,646
Investments $0
Receivables $25,000
Gross land, buildings, equipment (LBE) $0
Accumulated depreciation (as a % of LBE) 0.0%
Liabilities (as a % of assets) 14.9%
Unrestricted net assets $220,358
Temporarily restricted net assets N/A
Permanently restricted net assets N/A
Total restricted net assets $0
Total net assets $220,358

Key data checks

Key data checks info 2022
Material data errors No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Letter of Determination is not available for this organization
Form 1023/1024 is not available for this organization

CEO

Christy Jagdfeld CPA

Jagdfeld worked for six years as a volunteer and eventual Board Member and Treasurer of Dysautonomia International from 2014 to 2020. During that time she helped organize awareness events, 5K’s, seminars, conferences and in-person and on-line support groups. She attended local conferences and spoke at local events. On a national level, she helped with fundraising, networking, attending professional conferences and handled many of the business aspects of the organization. She is also Treasurer of PANDAS Network as well as a BOD member of the Waukesha Express Swim Team. Prior to her advocacy work, Jagdfeld spent time raising 3 children, one in the chronic illness world. She graduated from the University of Wisconsin-Whitewater with a BBA in Accounting. She spent time in public and private accounting.

Principal Investigator, Unhide

Denise Calaprice-Whitty

After receiving her Bachelor’s degree in Biology from Harvard University and her MS and PhD from Princeton, Dr. Denise Calaprice-Whitty became an NIH fellow at Columbia University’s College of Physicians and Surgeons in the departments of Clinical and Genetic Epidemiology and Child Psychiatry. During her time at Columbia, her research on the psychoneuroimmunology of childhood anxiety and mood disorders led to the prestigious Young Investigator Award from NARSAD (National Alliance for Research on Schizophrenia and Depression). Her post-Columbia career led her into industry, where she has spent more than two decades designing and directing clinical research programs and creating innovative development and operational strategies in a variety of settings. Her positions have included Senior Director of Immunology Therapeutics at IQVIA (then Quintiles), Head of Clinical Research for North America at Altana/BykGulden, and Senior Director of Clinical Research at Regeneron. See her LinkedIn.

Number of employees

Source: IRS Form 990

There are no officers, directors or key employees recorded for this organization

There are no highest paid employees recorded for this organization.

Brain Inflammation Collaborative, Inc.

Board of directors
as of 01/18/2024
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

CPA Christy Jagdfeld

Diana Pohlman

PANDAS Network

Heather Korbmacher

Christy Jagdfeld

Organizational demographics

SOURCE: Self-reported; last updated 7/28/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Gender identity
Female

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data