Brain Inflammation Collaborative, Inc.
Revealing the Connection Between Brain Inflammation and Mental Health
Brain Inflammation Collaborative, Inc.
EIN: 87-4063264
as of September 2023
as of September 18, 2023
Mission
Our mission is to revolutionize the diagnosis and treatment of neuroinflammatory illnesses through a coordinated research effort that connects both patients and researchers through centralized patient data. Through our unique online longitudinal data collection and biobank platform, grant funding, and research coordination, we look to empower patients, clinicians, and researchers with the tools they need to further the advancements in diagnosis, treatment and prevention of neuroinflammatory illness or brain inflammation. The connection between brain inflammation and health is often misunderstood and misdiagnosed – we feel strongly that the solution is hidden in plain sight.
Ruling year
2022
CEO
Christy Jagdfeld CPA
Principal Investigator, Unhide
Dr. Denise Calaprice-Whitty
Main address
925 Genesee St Unit 180440
Delafield, WI 53018 USA
Formerly known as
Brain Health and Inflammation Collaborative
EIN
87-4063264
Health
Brain and nervous system disorders
Population served
Children and youth
Adults
Ethnic and racial groups
NTEE code
Brain Disorders (H48)
IRS subsection
501(c)(3) Public Charity
IRS filing requirement
This organization is required to file an IRS Form 990-N.
Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
The Unhide Project
The Unhide™ Project is the first online and ongoing clinical research study of its kind. It's a simple to use online longitudinal data collection and biobank platform that tracks patient journeys with coordinating bio-samples allowing us to look for patterns and triggers in both mental & physical health. Inflammation, as the result of autoimmune processes, infection, allergy, or injury can sometimes trigger or mimic common mental health symptoms such as depression, anxiety, OCD or behavioral changes. We look to further the advancements in diagnosis, treatment and prevention of brain inflammation.
We include diagnoses or suspected diagnoses of long covid, OCD, anorexia, PANDAS/PANS, POTS, EDS, AE, Sjogren's, autoimmune arthritis, PTSD, Tourette’s & more. Visit our website for a list. By participating in the project, patients, clinicians & researchers will join a larger collaborative effort to help us learn about mental health symptoms that we feel are driven by brain inflammation.
Research Coordination & Seed Grant Funding
We are coordinating research in a way that has never been done before. We seek to empower the research community with the tools needed to guide and support research objectives toward the fastest possible breakthroughs - including access to networking, knowledge-sharing opportunities, and seed grant funding.
Research collaborators will be able to use large-scale, regulatory-grade patient data and coordinating bio-samples (including healthy controls) to help them better understand the mystery surrounding brain inflammation and mental health.
We believe that collaborating and sharing data and resources will amplify our research as it drives us to new scientific discoveries. The data and resources developed through the Brain Inflammation Collaborative's sponsored research will be made available to other researchers after its publication so that the benefits can be used in again furthering new research.
Connecting Communities
Patients and caregivers, researchers, clinicians, and even donors are communities we intend to engage and connect. We plan to inspire and empower these communities to join us in leading the charge HEAD ON to drive research to the answers that are long overdue.
Watch for more info...
If you want to go fast, go alone. If you want to go far, go together. - African Proverb
Where we work
External reviews
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our goal is to look for patterns and triggers in both mental and physical health.
We look to empower patients, researchers and clinicians by providing them with the tools needed to further the advancements in diagnosis, treatment and prevention of brain inflammation.
What are the organization's key strategies for making this happen?
What are the organization's capabilities for doing this?
What have they accomplished so far and what's next?
Financials
Financial data
Brain Inflammation Collaborative, Inc.
Revenue & expensesFiscal Year: 2022
SOURCE: Self-reported by organization
| Revenue | |
|---|---|
| Contributions, Grants, Gifts | $520,000 |
| Program Services | $0 |
| Membership Dues | $0 |
| Special Events | $0 |
| Other Revenue | $0 |
| Total Revenue | $520,000 |
| Expenses | |
|---|---|
| Program Services | $323,309 |
| Administration | $62,321 |
| Fundraising | $0 |
| Payments to Affiliates | $0 |
| Other Expenses | $0 |
| Total Expenses | $387,180 |
Brain Inflammation Collaborative, Inc.
Balance sheetFiscal Year: 2022
SOURCE: Self-reported by organization
| Assets | |
|---|---|
| Total Assets | $171,450 |
| Liabilities | |
|---|---|
| Total Liabilities | $38,630 |
| Fund balance (EOY) | |
|---|---|
| Net Assets | $132,820 |
Operations
The people, governance practices, and partners that make the organization tick.
Documents
CEO
Christy Jagdfeld CPA
Jagdfeld worked for six years as a volunteer and eventual Board Member and Treasurer of Dysautonomia International from 2014 to 2020. During that time she helped organize awareness events, 5K’s, seminars, conferences and in-person and on-line support groups. She attended local conferences and spoke at local events. On a national level, she helped with fundraising, networking, attending professional conferences and handled many of the business aspects of the organization. She is also Treasurer of PANDAS Network as well as a BOD member of the Waukesha Express Swim Team.
Prior to her advocacy work, Jagdfeld spent time raising 3 children, one in the chronic illness world. She graduated from the University of Wisconsin-Whitewater with a BBA in Accounting. She spent time in public and private accounting.
Principal Investigator, Unhide
Denise Calaprice-Whitty
After receiving her Bachelor’s degree in Biology from Harvard University and her MS and PhD from Princeton, Dr. Denise Calaprice-Whitty became an NIH fellow at Columbia University’s College of Physicians and Surgeons in the departments of Clinical and Genetic Epidemiology and Child Psychiatry. During her time at Columbia, her research on the psychoneuroimmunology of childhood anxiety and mood disorders led to the prestigious Young Investigator Award from NARSAD (National Alliance for Research on Schizophrenia and Depression).
Her post-Columbia career led her into industry, where she has spent more than two decades designing and directing clinical research programs and creating innovative development and operational strategies in a variety of settings. Her positions have included Senior Director of Immunology Therapeutics at IQVIA (then Quintiles), Head of Clinical Research for North America at Altana/BykGulden, and Senior Director of Clinical Research at Regeneron. See her LinkedIn.
There are no officers, directors or key employees recorded for this organization
There are no highest paid employees recorded for this organization.
Brain Inflammation Collaborative, Inc.
Board of directorsas of 07/31/2023
Board of directors data
CPA Christy Jagdfeld
Diana Pohlman
PANDAS Network
Heather Korbmacher
Christy Jagdfeld
Organizational demographics
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Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
No data
Gender identity
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Sexual orientation
No data
Disability
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