Well Spouse Association
When one is sick, two need help
Well Spouse Association
EIN: 36-3651073
Programs and results
Reports and documents
Download annual reportsWhat we aim to solve
Chronic illness changes relationships. Almost 6 million people in the US care for an ill or disabled partner. When spouses or partners transition to caregiver and patient roles, they often face the loss of that singular intimate relationship and the companionship it brings. Spousal caregivers spend more hours caregiving each week, doing more intense tasks, and with less outside assistance, than other types of caregivers. The financial impacts of caregiving are different for well spouses from other types of caregivers too - often the partner with illness and the caregiver must give up paid employment. Caregiving for your wife, husband, or partner impacts the decision to have children, the way children are raised, and where and how one lives, works, and retires. There are few areas of life that are left untouched by chronic illness and caregiving in partnered relationships.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
WSA Programs and Services
WSA coordinates a network of peer support groups throughout the US and Canada attended by members who are all spousal caregivers or well spouses.
WSA publishes "Mainstay", a quarterly newsletter circulated to 1,600 people. Mainstay is written by and for our members and is dedicated to the issues faced by well spouses.
We produce and host webinars and symposia on topics of interest to well spouses.
WSA produces an annual National Conference and several regional respite weekends each year.
WSA maintains an active social media presence for 24x7 support and for people who cannot attend our events. This includes our website, which hosts a online forum for members, an active Facebook group, a Reddit subreddit, and a Twitter feed.
WSA also provides continuing support for members whose spouses have died.
Where we work
Awards
Rosalynn Carter Caregiving Award/Nat’l Quality Caregiving Coalition 1994
Rosalynn Carter Caregiving Institute
Caregiver Award 2000
Health Insurance Plan (HIP) of NY
External reviews

Photos
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Well Spouse Association provides support and resources to people of all ages who care for partners with chronic illness or disability. We provide support whether you identify as a caregiver or not. The diagnosis doesn't matter to us, and you don't even need to know the diagnosis at all. What matters is that you feel you need support from a community of people who understand. We are an inclusive and welcoming community - no matter your age, partnership arrangement, sexuality, orientation, gender, or religious beliefs.
What are the organization's key strategies for making this happen?
What are the organization's capabilities for doing this?
What have they accomplished so far and what's next?
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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Who are the people you serve with your mission?
The spouses and partners of people living with chronic illness and/or disability.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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What significant change resulted from feedback?
Prior to the pandemic, most of our events were held in person, and people loved to meet other members. Peer support is our model, after all. We shifted to a Zoom model for our events during the pandemic which has been well-received, with one exception - surveys showed that people wanted our larger events on Zoom to have more member interaction. We have been able to use smaller Zoom meetings for some events to encourage members to build connections between each other directly.
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Which of the following feedback practices does your organization routinely carry out?
We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
Revenue vs. expenses: breakdown
Well Spouse Association
Revenue & expensesFiscal Year: Jan 01 - Dec 31
SOURCE: IRS Form 990
Well Spouse Association
Balance sheetFiscal Year: Jan 01 - Dec 31
SOURCE: IRS Form 990
The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.
Operations
The people, governance practices, and partners that make the organization tick.
Documents
President and Board Member
Laurel Wittman
Laurel joined WSA as a member in 2014 and joined the Board in 2020 to focus on outreach for younger well spouses. She was elected President in 2021. She and her husband Eduardo have been married for 16 years. Eddie was diagnosed with MS in 1998 at the age of 24, and his disease course has been aggressive. Laurel has been a venture lender with Oxford Finance LLC since 2004, providing loan facilities to biotech, pharmaceutical, and medical device companies in the US, Canada, and Europe. Prior nonprofit Board experience includes serving as Treasurer for CLAW USA, a non-profit alliance of theatrical lady arm wrestlers focused on social justice, for two years. She has a BS in Commerce with a concentration in Finance from the University of Virginia and was a member of Beta Gamma Sigma, the academic honor society for business students.
Well Spouse Association
Officers, directors, trustees, and key employeesSOURCE: IRS Form 990
Compensation data
There are no highest paid employees recorded for this organization.
Well Spouse Association
Board of directorsas of 03/19/2023
Board of directors data
Bob Mastrogiovanni
No affilation
Term: 2021 - 2023
Terri Corcoran
No Affiliation
Donna Amato
No Affiliation
Gerald Bishop
No Affiliation
Lawrence Bocchiere III
No Affiliation
Robert Mastrogiovanni
No Affiliation
Al Kozin
Barry Appelbaum
Jane Lupo
Laurel Wittman
Rona Auster
Sheldon Friedman
Carol Christofero-Snider
John Camp
Tatiana Durbak
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data