GOLD2023

Well Spouse Association

When one is sick, two need help

Freehold, NJ   |  http://www.wellspouse.org
GuideStar Charity Check

Well Spouse Association

EIN: 36-3651073


Mission

Well Spouse Association, a nonprofit 501(c)(3) membership organization, provides peer support and advocates for people caring for a chronically ill and/or disabled spouse or partner. We offer peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses face every day.

Ruling year info

1993

President and Board Member

Laurel Wittman

Main address

63 W Main St Suite H

Freehold, NJ 07728 USA

Show more contact info

Formerly known as

Well Spouse Foundation

WSF

EIN

36-3651073

Subject area info

Medical support services

Mental health counseling

Support groups

Human services

Family disability resources

Population served info

People with disabilities

People with diseases and illnesses

NTEE code info

Nonmonetary Support N.E.C. (P19)

Counseling Support Groups (F60)

Health Support Services (E60)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Communication

What we aim to solve

SOURCE: Self-reported by organization

Chronic illness changes relationships. Almost 6 million people in the US care for an ill or disabled partner. When spouses or partners transition to caregiver and patient roles, they often face the loss of that singular intimate relationship and the companionship it brings. Spousal caregivers spend more hours caregiving each week, doing more intense tasks, and with less outside assistance, than other types of caregivers. The financial impacts of caregiving are different for well spouses from other types of caregivers too - often the partner with illness and the caregiver must give up paid employment. Caregiving for your wife, husband, or partner impacts the decision to have children, the way children are raised, and where and how one lives, works, and retires. There are few areas of life that are left untouched by chronic illness and caregiving in partnered relationships.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

WSA Programs and Services

WSA coordinates a network of peer support groups throughout the US and Canada attended by members who are all spousal caregivers or well spouses.
WSA publishes "Mainstay", a quarterly newsletter circulated to 1,600 people. Mainstay is written by and for our members and is dedicated to the issues faced by well spouses.
We produce and host webinars and symposia on topics of interest to well spouses.
WSA produces an annual National Conference and several regional respite weekends each year.
WSA maintains an active social media presence for 24x7 support and for people who cannot attend our events. This includes our website, which hosts a online forum for members, an active Facebook group, a Reddit subreddit, and a Twitter feed.
WSA also provides continuing support for members whose spouses have died.

Population(s) Served
Adults
Caregivers
Widows and widowers
People with diseases and illnesses
People with disabilities

Where we work

Awards

Rosalynn Carter Caregiving Award/Nat’l Quality Caregiving Coalition 1994

Rosalynn Carter Caregiving Institute

Caregiver Award 2000

Health Insurance Plan (HIP) of NY

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Well Spouse Association provides support and resources to people of all ages who care for partners with chronic illness or disability. We provide support whether you identify as a caregiver or not. The diagnosis doesn't matter to us, and you don't even need to know the diagnosis at all. What matters is that you feel you need support from a community of people who understand. We are an inclusive and welcoming community - no matter your age, partnership arrangement, sexuality, orientation, gender, or religious beliefs.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    The spouses and partners of people living with chronic illness and/or disability.

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • What significant change resulted from feedback?

    Prior to the pandemic, most of our events were held in person, and people loved to meet other members. Peer support is our model, after all. We shifted to a Zoom model for our events during the pandemic which has been well-received, with one exception - surveys showed that people wanted our larger events on Zoom to have more member interaction. We have been able to use smaller Zoom meetings for some events to encourage members to build connections between each other directly.

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Well Spouse Association
Fiscal year: Jan 01 - Dec 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Financial data

Source: IRS Form 990 info

Well Spouse Association

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990

Fiscal year ending: cloud_download Download Data

Well Spouse Association

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Form 1023/1024 is not available for this organization

President and Board Member

Laurel Wittman

Laurel joined WSA as a member in 2014 and joined the Board in 2020 to focus on outreach for younger well spouses. She was elected President in 2021. She and her husband Eduardo have been married for 16 years. Eddie was diagnosed with MS in 1998 at the age of 24, and his disease course has been aggressive. Laurel has been a venture lender with Oxford Finance LLC since 2004, providing loan facilities to biotech, pharmaceutical, and medical device companies in the US, Canada, and Europe. Prior nonprofit Board experience includes serving as Treasurer for CLAW USA, a non-profit alliance of theatrical lady arm wrestlers focused on social justice, for two years. She has a BS in Commerce with a concentration in Finance from the University of Virginia and was a member of Beta Gamma Sigma, the academic honor society for business students.

Well Spouse Association

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

Well Spouse Association

Board of directors
as of 03/19/2023
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Bob Mastrogiovanni

No affilation

Term: 2021 - 2023

Terri Corcoran

No Affiliation

Donna Amato

No Affiliation

Gerald Bishop

No Affiliation

Lawrence Bocchiere III

No Affiliation

Robert Mastrogiovanni

No Affiliation

Al Kozin

Barry Appelbaum

Jane Lupo

Laurel Wittman

Rona Auster

Sheldon Friedman

Carol Christofero-Snider

John Camp

Tatiana Durbak

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 10/27/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

 

Sexual orientation

Disability