The NVLD Project
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The NVLD Project
EIN: 46-0785955
as of September 2023
as of September 18, 2023
Mission
The NVLD Project is dedicated to raising awareness, building support, and creating helpful solutions for children, adolescents, and adults with Non-Verbal Learning Disability. This goal is accomplished through a variety of programs, including educational workshops, research, and community outreach.
Long term, The NVLD Project seeks to define and establish NVLD as a valid disorder in the Diagnostic and Statistical Manual of Mental Disorders (DSM).
Ruling year
2013
Executive Director
Paula Dennis
Main address
177 East 87th Street, Suite 501
New York, NY 10128 USA
EIN
46-0785955
Philanthropy
Population served
Parents
People with learning disabilities
Academics
NTEE code
Fund Raising and/or Fund Distribution (T12)
IRS subsection
501(c)(3) Public Charity
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
Tax forms
Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Educational workshops
The outreach team includes clinicians, scientists, and educators who are responsible for conducting workshops that raise awareness about NVLD, describe how it presents in school settings, and present techniques for helping school faculty support the academic and social challenges of children with NVLD.
Research
The NVLD Project is conducting evidenced-based research with several renowned institutions and experts, including Columbia University Medical Center and Children’s Hospital of Los Angeles. This includes epidemiologic, neuroimaging and MRI studies. Our research examines NVLD symptoms in groups of children in order to see how NVLD presents itself and how its symptoms differ from symptoms of other disorders.
Where we work
External reviews
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of research studies funded
This metric is no longer tracked.Totals By Year
Population(s) Served
Children and youth, Adults, Families, People with learning disabilities, People with psychosocial disabilities
Related Program
Research
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The NVLD Project is trying to get non-verbal learning disability recognized as a valid stand alone diagnosis in the Diagnostic And Statistical Manual of Mental Disorders, DSM-5. Once that is achieved, we will begin to look at treatment and solutions for individuals who have NVLD.
If and when NVLD is in the DSM we will be able to apply for grants to help with the research.
NVLD is being diagnosed all over the world but very little is being done to treat it. Since it is not in the DSM you cannot have an IEP or get insurance for it.
What are the organization's key strategies for making this happen?
We are currently funding research at Columbia University Medical Center to help with the proposal that will be submitted to the DSM committee.
We have also funded one of the only NVLD Clinics in the country at Yeshiva University. It should open sometime in 2024.
What are the organization's capabilities for doing this?
We partner with very reputable medical organizations to do the research needed to reach our goals. We do fund raising events to help generate money for the research. We are building awareness in the general public and doing community outreach.
What have they accomplished so far and what's next?
We have had the researchers submit a proposal to the DSM committee and we are working on the response, funding more research to meet the questions asked by the committee.
As said before we are helping to open one of the only clinics to specialize in NVLD and related disorders. We are also funding work on possible medical interventions.
We have built a referral list for individuals to come for help to see what clinician would work with NVLD. We are currently who of the only organizations world wide dedicated specifically NVLD.
Financials
Financial documents
Download audited financialsRevenue vs. expenses: breakdown
Liquidity in 2021 info
0.10
Months of cash in 2021 info
2.5
Fringe rate in 2021 info
8%
Funding sources info
Assets & liabilities info
Financial data
The NVLD Project
Balance sheetFiscal Year: Jan 01 - Dec 31
The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.
Fiscal Year: Jan 01 - Dec 31
This snapshot of The NVLD Project’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.
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Business model indicators
| Profitability info | 2017 | 2018 | 2019 | 2020 | 2021 |
|---|---|---|---|---|---|
| Unrestricted surplus (deficit) before depreciation | -$342,451 | -$370,030 | -$128,849 | -$190,037 | $86,780 |
| As % of expenses | -90.0% | -78.2% | -33.7% | -47.4% | 17.1% |
| Unrestricted surplus (deficit) after depreciation | -$342,451 | -$370,030 | -$128,849 | -$190,037 | $86,780 |
| As % of expenses | -90.0% | -78.2% | -33.7% | -47.4% | 17.1% |
| Revenue composition info | |||||
|---|---|---|---|---|---|
| Total revenue (unrestricted & restricted) | $38,124 | $102,894 | $235,617 | $210,662 | $595,376 |
| Total revenue, % change over prior year | -91.4% | 169.9% | 129.0% | -10.6% | 182.6% |
| Program services revenue | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Membership dues | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Investment income | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Government grants | 0.0% | 0.0% | 0.0% | 13.3% | 4.4% |
| All other grants and contributions | 100.0% | 100.0% | 100.0% | 86.7% | 95.6% |
| Other revenue | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Expense composition info | |||||
|---|---|---|---|---|---|
| Total expenses before depreciation | $380,575 | $472,924 | $382,793 | $400,699 | $508,596 |
| Total expenses, % change over prior year | -9.8% | 24.3% | -19.1% | 4.7% | 26.9% |
| Personnel | 37.2% | 30.8% | 37.2% | 33.6% | 25.0% |
| Professional fees | 3.5% | 1.3% | 3.5% | 4.4% | 5.0% |
| Occupancy | 0.0% | 0.8% | 1.1% | 1.0% | 0.8% |
| Interest | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Pass-through | 46.8% | 55.7% | 53.0% | 57.2% | 59.0% |
| All other expenses | 12.6% | 11.4% | 5.2% | 3.8% | 10.1% |
| Full cost components (estimated) info | 2017 | 2018 | 2019 | 2020 | 2021 |
|---|---|---|---|---|---|
| Total expenses (after depreciation) | $380,575 | $472,924 | $382,793 | $400,699 | $508,596 |
| One month of savings | $31,715 | $39,410 | $31,899 | $33,392 | $42,383 |
| Debt principal payment | $0 | $0 | $0 | $0 | $0 |
| Fixed asset additions | $0 | $0 | $0 | $0 | $0 |
| Total full costs (estimated) | $412,290 | $512,334 | $414,692 | $434,091 | $550,979 |
Capital structure indicators
| Liquidity info | 2017 | 2018 | 2019 | 2020 | 2021 |
|---|---|---|---|---|---|
| Months of cash | 2.5 | 0.4 | 2.3 | 0.4 | 2.5 |
| Months of cash and investments | 2.5 | 0.4 | 2.3 | 0.4 | 2.5 |
| Months of estimated liquid unrestricted net assets | -10.8 | -18.1 | -26.4 | -30.9 | -22.3 |
| Balance sheet composition info | 2017 | 2018 | 2019 | 2020 | 2021 |
|---|---|---|---|---|---|
| Cash | $79,464 | $13,822 | $73,315 | $12,398 | $105,058 |
| Investments | $0 | $0 | $0 | $0 | $0 |
| Receivables | $0 | $0 | $0 | $0 | $0 |
| Gross land, buildings, equipment (LBE) | $0 | $0 | $0 | $0 | $0 |
| Accumulated depreciation (as a % of LBE) | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Liabilities (as a % of assets) | 530.6% | 5252.5% | 1247.1% | 5741.0% | 998.8% |
| Unrestricted net assets | $0 | $0 | $0 | $0 | $0 |
| Temporarily restricted net assets | $0 | $0 | N/A | N/A | N/A |
| Permanently restricted net assets | $0 | $0 | N/A | N/A | N/A |
| Total restricted net assets | $0 | $0 | $0 | $0 | $0 |
| Total net assets | -$342,154 | -$712,184 | -$841,033 | -$1,031,070 | -$944,290 |
Key data checks
| Key data checks info | 2017 | 2018 | 2019 | 2020 | 2021 |
|---|---|---|---|---|---|
| Material data errors | No | No | No | No | No |
Operations
The people, governance practices, and partners that make the organization tick.
Documents
Executive Director
Paula Dennis
With more than 20 years expertise in marketing and communications, Paula joined The NVLD Project in 2013. As Executive Director, she is responsible for overseeing all aspects of the organization and works closely with the Founder and staff to grow and expand the Project's reach and impact.
Prior to working with The NVLD Project, Paula worked for nearly two decades in the fashion industry where she held executive positions with several renowned fashion houses. This included Pamela Dennis where she was Director of Public Relations for more than 15 years and Darby Scott. Her work in fashion covered a multitude of marketing and entertainment disciplines, including public relations, media, brand awareness, fashion shows, casting and publicity.
Paula holds a Master of Arts in speech/language pathology from New York University and serves on several fundraising committees for both academic and charitable institutions.
She resides in Manhattan with her family.
Number of employees
Source: IRS Form 990
The NVLD Project
Officers, directors, trustees, and key employeesSOURCE: IRS Form 990
Compensation data
There are no highest paid employees recorded for this organization.
The NVLD Project
Board of directorsas of 06/13/2023
Board of directors data
Dr. Laura Lemle
William Frosch
MD
David Pratt
Proskaur Rose LLP
Rebecca Zilkha Halpin
Sean Gallary
GP Capital Solutions
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
-
Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
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