PLATINUM2024

The NVLD Project

Count Me In

aka The NVLD Project   |   New York, NY   |  nvld.org
GuideStar Charity Check

The NVLD Project

EIN: 46-0785955


Mission

The NVLD Project is dedicated to raising awareness, building support, and creating helpful solutions for children, adolescents, and adults with Non-Verbal Learning Disability. This goal is accomplished through a variety of programs, including educational workshops, research, and community outreach.

Long term, The NVLD Project seeks to define and establish NVLD as a valid disorder in the Diagnostic and Statistical Manual of Mental Disorders (DSM).

Ruling year info

2013

Executive Director

Paula Dennis

Main address

177 East 87th Street, Suite 501

New York, NY 10128 USA

Show more contact info

EIN

46-0785955

Subject area info

Philanthropy

Population served info

Parents

People with learning disabilities

Academics

NTEE code info

Fund Raising and/or Fund Distribution (T12)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Communication

Programs and results

What we aim to solve

This profile needs more info.

If it is your nonprofit, add a problem overview.

Login and update

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Educational workshops

The outreach team includes clinicians, scientists, and educators who are responsible for conducting workshops that raise awareness about NVLD, describe how it presents in school settings, and present techniques for helping school faculty support the academic and social challenges of children with NVLD.

Population(s) Served
Academics
Parents

The NVLD Project is conducting evidenced-based research with several renowned institutions and experts, including Columbia University Medical Center and Children’s Hospital of Los Angeles. This includes epidemiologic, neuroimaging and MRI studies. Our research examines NVLD symptoms in groups of children in order to see how NVLD presents itself and how its symptoms differ from symptoms of other disorders.

Population(s) Served
People with learning disabilities
Academics

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of research studies funded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Adults, Families, People with learning disabilities, People with psychosocial disabilities

Related Program

Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The NVLD Project is trying to get non-verbal learning disability recognized as a valid stand alone diagnosis in the Diagnostic And Statistical Manual of Mental Disorders, DSM-5. Once that is achieved, we will begin to look at treatment and solutions for individuals who have NVLD.
If and when NVLD is in the DSM we will be able to apply for grants to help with the research.
NVLD is being diagnosed all over the world but very little is being done to treat it. Since it is not in the DSM you cannot have an IEP or get insurance for it.

We are currently funding research at Columbia University Medical Center to help with the proposal that will be submitted to the DSM committee.
We have also funded one of the only NVLD Clinics in the country at Yeshiva University. It should open sometime in 2024.

We partner with very reputable medical organizations to do the research needed to reach our goals. We do fund raising events to help generate money for the research. We are building awareness in the general public and doing community outreach.

We have had the researchers submit a proposal to the DSM committee and we are working on the response, funding more research to meet the questions asked by the committee.
As said before we are helping to open one of the only clinics to specialize in NVLD and related disorders. We are also funding work on possible medical interventions.
We have built a referral list for individuals to come for help to see what clinician would work with NVLD. We are currently who of the only organizations world wide dedicated specifically NVLD.

Financials

The NVLD Project
Fiscal year: Jan 01 - Dec 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2022 info

SOURCE: IRS Form 990

0.06

Average of 0.19 over 8 years

Months of cash in 2022 info

SOURCE: IRS Form 990

2

Average of 1.3 over 8 years

Fringe rate in 2022 info

SOURCE: IRS Form 990

8%

Average of 9% over 8 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

The NVLD Project

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

The NVLD Project

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

The NVLD Project

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

This snapshot of The NVLD Project’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

Created in partnership with

Business model indicators

Profitability info 2018 2019 2020 2021 2022
Unrestricted surplus (deficit) before depreciation -$370,030 -$128,849 -$190,037 $86,780 -$36,282
As % of expenses -78.2% -33.7% -47.4% 17.1% -9.4%
Unrestricted surplus (deficit) after depreciation -$370,030 -$128,849 -$190,037 $86,780 -$36,282
As % of expenses -78.2% -33.7% -47.4% 17.1% -9.4%
Revenue composition info
Total revenue (unrestricted & restricted) $102,894 $235,617 $210,662 $595,376 $347,838
Total revenue, % change over prior year 169.9% 129.0% -10.6% 182.6% -41.6%
Program services revenue 0.0% 0.0% 0.0% 0.0% 0.0%
Membership dues 0.0% 0.0% 0.0% 0.0% 0.0%
Investment income 0.0% 0.0% 0.0% 0.0% 0.0%
Government grants 0.0% 0.0% 13.3% 4.4% 0.0%
All other grants and contributions 100.0% 100.0% 86.7% 95.6% 100.0%
Other revenue 0.0% 0.0% 0.0% 0.0% 0.0%
Expense composition info
Total expenses before depreciation $472,924 $382,793 $400,699 $508,596 $384,120
Total expenses, % change over prior year 24.3% -19.1% 4.7% 26.9% -24.5%
Personnel 30.8% 37.2% 33.6% 25.0% 34.2%
Professional fees 1.3% 3.5% 4.4% 5.0% 5.7%
Occupancy 0.8% 1.1% 1.0% 0.8% 1.2%
Interest 0.0% 0.0% 0.0% 0.0% 0.0%
Pass-through 55.7% 53.0% 57.2% 59.0% 52.1%
All other expenses 11.4% 5.2% 3.8% 10.1% 6.8%
Full cost components (estimated) info 2018 2019 2020 2021 2022
Total expenses (after depreciation) $472,924 $382,793 $400,699 $508,596 $384,120
One month of savings $39,410 $31,899 $33,392 $42,383 $32,010
Debt principal payment $0 $0 $0 $0 $0
Fixed asset additions $0 $0 $0 $0 $0
Total full costs (estimated) $512,334 $414,692 $434,091 $550,979 $416,130

Capital structure indicators

Liquidity info 2018 2019 2020 2021 2022
Months of cash 0.4 2.3 0.4 2.5 2.0
Months of cash and investments 0.4 2.3 0.4 2.5 2.0
Months of estimated liquid unrestricted net assets -18.1 -26.4 -30.9 -22.3 -30.6
Balance sheet composition info 2018 2019 2020 2021 2022
Cash $13,822 $73,315 $12,398 $105,058 $64,007
Investments $0 $0 $0 $0 $0
Receivables $0 $0 $0 $0 $0
Gross land, buildings, equipment (LBE) $0 $0 $0 $0 $0
Accumulated depreciation (as a % of LBE) 0.0% 0.0% 0.0% 0.0% 0.0%
Liabilities (as a % of assets) 5252.5% 1247.1% 5741.0% 998.8% 1525.7%
Unrestricted net assets $0 $0 $0 $0 $0
Temporarily restricted net assets $0 N/A N/A N/A N/A
Permanently restricted net assets $0 N/A N/A N/A N/A
Total restricted net assets $0 $0 $0 $0 $0
Total net assets -$712,184 -$841,033 -$1,031,070 -$944,290 -$980,572

Key data checks

Key data checks info 2018 2019 2020 2021 2022
Material data errors No No No No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Letter of Determination is not available for this organization
Form 1023/1024 is not available for this organization

Executive Director

Paula Dennis

With more than 20 years expertise in marketing and communications, Paula joined The NVLD Project in 2013. As Executive Director, she is responsible for overseeing all aspects of the organization and works closely with the Founder and staff to grow and expand the Project's reach and impact.

Prior to working with The NVLD Project, Paula worked for nearly two decades in the fashion industry where she held executive positions with several renowned fashion houses. This included Pamela Dennis where she was Director of Public Relations for more than 15 years and Darby Scott. Her work in fashion covered a multitude of marketing and entertainment disciplines, including public relations, media, brand awareness, fashion shows, casting and publicity.

Paula holds a Master of Arts in speech/language pathology from New York University and serves on several fundraising committees for both academic and charitable institutions.

She resides in Manhattan with her family.

Number of employees

Source: IRS Form 990

The NVLD Project

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

The NVLD Project

Board of directors
as of 01/19/2024
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Dr. Laura Lemle

William Frosch

MD

David Pratt

Proskaur Rose LLP

Rebecca Zilkha Halpin

Sean Gallary

GP Capital Solutions

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 5/30/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data