PLATINUM2023

PROJECT SLEEP

Let's Make Sleep Cool!

Los Angeles, CA   |  www.project-sleep.com
GuideStar Charity Check

PROJECT SLEEP

EIN: 46-3665317


Mission

Let’s Make Sleep Cool! Project Sleep aims to improve public health by educating individuals and healthcare professionals about the importance of sleep health and sleep disorders.

Ruling year info

2014

President & CEO

Julie Flygare

Main address

Po Box 70206

Los Angeles, CA 90070 USA

Show more contact info

EIN

46-3665317

Subject area info

Diseases and conditions

Population served info

Adolescents

Adults

NTEE code info

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Show Forms 990

Communication

Blog

What we aim to solve

SOURCE: Self-reported by organization

The consequences of sleep loss and sleep disorders affect nearly every indicator of public health, from quality of life and family well-being to healthcare utilization and mortality. According to the Rand Corporation, insufficient sleep creates a $411 billion annual economic loss in the U.S. alone. Project Sleep offers programs to make individuals and communities more aware of sleep health and sleep disorders.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Jack & Julie Narcolepsy Scholarship

Since 2014, Project Sleep has provided college scholarships of $1,000 each to high school seniors with narcolepsy or idiopathic hypersomnia (IH). In the first 10 years, Project Sleep has awarded 191 scholarships to 191 students living with narcolepsy or idiopathic hypersomnia. This first-of-its-kind national scholarship program supports students dealing with narcolepsy while fostering awareness of this misunderstood condition in school settings.

Population(s) Served
Adolescents

To improve public understanding of sleep disorders, Project Sleep offers leadership training to help people with sleep disorders to share their stories through public speaking and writing with local communities, healthcare providers, news outlets, blogs, and beyond. To date, Rising Voices program has trained over 160 patient advocates in 18 countries around the world. Our speakers have delivered 115 presentations, reaching over 10,000 audience members since the program began in 2017.

Population(s) Served
Adults

Through the Sleep Advocacy Program, Project Sleep is increasing federal awareness of sleep, ensuring sleeps place in the federal advocacy process, and increasing the effective coordination of sleep-related advocacy to improve outcomes for patients. This initiative involves: 1. a year-round national advocacy program 2. a grassroots advocacy program 3. a centerpiece Sleep Advocacy Forum each fall in Washington, DC.

Population(s) Served
Adults

The Narcolepsy: Not Alone campaign is Project Sleep’s international awareness campaign and stunning photo series. With more than 1,100 photos from all 50 U.S. states and 42 countries, Narcolepsy: Not Alone is proving that narcolepsy is real and that people living with the condition are not alone.

Population(s) Served
Adults

Since 2015, Project Sleep has invited participants to join the annual international Sleep In, a social media-driven event, to raise awareness about sleep health and sleep disorders during Sleep Awareness Week in March. Participants are challenged to stay in bed for 12-48 hours, to raise awareness with friends and family via social media events. This event also serves as an optional DIY fundraiser for participants interested in supporting Project Sleep.

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of advocate or trained spokesperson citations in the media

This metric is no longer tracked.
Totals By Year
Related Program

Rising Voices

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Number of individuals attending briefings and presentations

This metric is no longer tracked.
Totals By Year
Related Program

Advocacy

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Number of academic scholarships awarded

This metric is no longer tracked.
Totals By Year
Related Program

Jack & Julie Narcolepsy Scholarship

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Project Sleep aims to improve public health by educating individuals about the importance of sleep health, sleep equity, and sleep disorders. Project Sleep educates and empowers individuals using events, campaigns, and programs to bring people together and talk about sleep as a pillar of health.

Project Sleep works with Congressional leaders on Capitol Hill to advance sleep advocacy efforts that aim to advance sleep research, awareness and education, and treatment options for people living with sleep disorders. Project Sleep works with the media to raise awareness and hosted an event for journalists to empower communications professionals to include sleep disorders in their sleep coverage. We also developed a toolkit for journalists to cover sleep disorders.

Project Sleep is well equipped to meet our goals, we work with a multidisciplinary team of experts, including researchers, clinicians and patient advocates to advance our programs and improve outcomes.

Project Sleep collaborated with the White House Office of Public Engagement to host the first-of-its-kind Sleep Equity Convening in 2023. We will continue to look for opportunities to raise awareness and advocate for sleep health, sleep equity, and sleep disorders -- including working with the media and entertainment industry.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

PROJECT SLEEP
Fiscal year: Jan 01 - Dec 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2022 info

SOURCE: IRS Form 990

0.00

Average of 0.00 over 7 years

Months of cash in 2022 info

SOURCE: IRS Form 990

18.6

Average of 11.8 over 7 years

Fringe rate in 2022 info

SOURCE: IRS Form 990

21%

Average of 12% over 7 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

PROJECT SLEEP

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

PROJECT SLEEP

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

PROJECT SLEEP

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

This snapshot of PROJECT SLEEP’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

Created in partnership with

Business model indicators

Profitability info 2018 2019 2020 2021 2022
Unrestricted surplus (deficit) before depreciation $10,040 $14,849 $25,301 $165,599 $63,760
As % of expenses 7.2% 9.7% 10.4% 53.5% 15.1%
Unrestricted surplus (deficit) after depreciation $10,040 $14,849 $25,301 $165,599 $63,760
As % of expenses 7.2% 9.7% 10.4% 53.5% 15.1%
Revenue composition info
Total revenue (unrestricted & restricted) $148,913 $167,503 $376,890 $460,177 $695,549
Total revenue, % change over prior year 24.2% 12.5% 125.0% 22.1% 51.1%
Program services revenue 0.0% 0.0% 0.0% 0.0% 0.0%
Membership dues 0.0% 0.0% 0.0% 0.0% 0.0%
Investment income 0.0% 0.0% 0.0% 0.0% 0.0%
Government grants 9.1% 0.0% 0.0% 0.0% 0.0%
All other grants and contributions 90.9% 100.0% 100.0% 100.0% 100.0%
Other revenue 0.0% 0.0% 0.0% 0.0% 0.0%
Expense composition info
Total expenses before depreciation $138,873 $152,654 $243,863 $309,593 $423,644
Total expenses, % change over prior year 102.1% 9.9% 59.7% 27.0% 36.8%
Personnel 54.1% 56.8% 48.5% 58.4% 56.8%
Professional fees 9.6% 5.6% 26.7% 19.4% 15.3%
Occupancy 0.6% 0.6% 0.0% 0.0% 1.5%
Interest 0.0% 0.0% 0.0% 0.0% 0.0%
Pass-through 10.1% 11.8% 11.1% 10.8% 7.1%
All other expenses 25.7% 25.2% 13.8% 11.4% 19.3%
Full cost components (estimated) info 2018 2019 2020 2021 2022
Total expenses (after depreciation) $138,873 $152,654 $243,863 $309,593 $423,644
One month of savings $11,573 $12,721 $20,322 $25,799 $35,304
Debt principal payment $0 $0 $0 $0 $0
Fixed asset additions $0 $0 $0 $0 $0
Total full costs (estimated) $150,446 $165,375 $264,185 $335,392 $458,948

Capital structure indicators

Liquidity info 2018 2019 2020 2021 2022
Months of cash 7.5 8.0 11.6 15.0 18.6
Months of cash and investments 7.5 8.0 11.6 15.0 18.6
Months of estimated liquid unrestricted net assets 7.5 8.0 6.3 11.4 10.1
Balance sheet composition info 2018 2019 2020 2021 2022
Cash $87,248 $102,097 $235,124 $385,708 $657,613
Investments $0 $0 $0 $0 $0
Receivables $0 $0 $0 $0 $0
Gross land, buildings, equipment (LBE) $0 $0 $0 $0 $0
Accumulated depreciation (as a % of LBE) 0.0% 0.0% 0.0% 0.0% 0.0%
Liabilities (as a % of assets) 0.0% 0.0% 0.0% 0.0% 0.0%
Unrestricted net assets $87,248 $102,097 $127,398 $292,997 $356,757
Temporarily restricted net assets $0 N/A N/A N/A N/A
Permanently restricted net assets $0 N/A N/A N/A N/A
Total restricted net assets $0 $0 $107,726 $92,711 $300,856
Total net assets $87,248 $102,097 $235,124 $385,708 $657,613

Key data checks

Key data checks info 2018 2019 2020 2021 2022
Material data errors No No No No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Form 1023/1024 is not available for this organization

President & CEO

Julie Flygare

Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Number of employees

Source: IRS Form 990

PROJECT SLEEP

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

PROJECT SLEEP

Board of directors
as of 12/28/2023
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Julie Glazer Scher

Tracy Christensen

Emma Cooksey

Kamali Barron

Kristyn Beecher

Kenya Gradnigo

Ana Lara

Anne Taylor

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 12/28/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Disability status
Person with a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

We do not display disability information for organizations with fewer than 15 staff.