PLATINUM2024

A Lasting Strength

Change what it means to live with ALS

San Diego, CA   |  https://www.alastingstrength.net
GuideStar Charity Check

A Lasting Strength

EIN: 87-2705522


Mission

Change what it means to live with ALS. Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disease that presents with progressive muscular weakness and wasting. Since motor functions become severely limited, many daily life activities become extremely difficult or impossible. Our mission at A Lasting Strength is to raise the public's awareness of ALS with community outreach and help pALS (people/patients with ALS) change what it means to live with this disease by providing resources and grants. In addition, we contribute funds to organizations dedicated to the ongoing research to defeat ALS and to providing ALS patient support.

Notes from the nonprofit

A Lasting Strength, Inc. Bylaws enacted on 10/23/2021

Ruling year info

2022

Executive Director

Mr. Stephenson Jack Lu

Main address

2031 Crenshaw St

San Diego, CA 92105 USA

Show more contact info

Formerly known as

A Lasting Strength Fund

EIN

87-2705522

Subject area info

Nonprofits

ALS

Spinal cord injuries and diseases

Diseases and conditions

Population served info

People with physical disabilities

People with other disabilities

Chronically ill people

Terminally ill people

NTEE code info

Specifically Named Diseases (G80)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Tax forms

Show Forms 990

Communication

What we aim to solve

SOURCE: Self-reported by organization

Primary problem we aim to address: Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disease that presents with progressive muscular weakness and wasting. Since motor functions become severely limited, many activities of daily life eventually become extremely difficult or impossible. Secondary problem we aim to address: People with disabilities that affect their mobility make up a significant percentage of the disabled population. Due to financial constraints, acquiring a wheelchair is not always feasible for these people.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

ALS Patient Fund

We support and encourage patients diagnosed with Amyotrophic Lateral Sclerosis (ALS) to continue to live meaningful and productive lives through outreach and by providing online resources and monetary support in the form of grants. These funds are to be used to purchase equipment or other assistive devices and technology that will improve their quality of life and hopefully prolong life. They may also be used to have a life experience that would otherwise be unattainable with this disease.

Population(s) Served
Chronically ill people
Terminally ill people

We are dedicated to providing a free or low-cost solution to those needing assisted mobility through a mobility access program. This program is available to residents of San Diego County.

Population(s) Served
People with physical disabilities

The ALS Donor Fund provides small grants to other independent 501(c)3 organizations dedicated to ALS patient support, care, advocacy, and research. We want to encourage cooperation and collaboration among these organizations through mutually beneficial relationships and financial support. A small percentage of contributions made to A Lasting Strength is allocated to the Donor Fund.

Population(s) Served
Chronically ill people
Terminally ill people

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of website pageviews

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of organizational partners

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities, Chronically ill people, Terminally ill people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This metric can include local and national companies and organizations.

Number of new clients within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

Terminally ill people, Chronically ill people

Related Program

ALS Patient Fund

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Total dollars received in contributions

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people, People with physical disabilities

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of donors retained

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people, People with physical disabilities

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of clients served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people

Related Program

ALS Patient Fund

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of groups/individuals benefiting from tools/resources/education materials provided

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Related Program

Mobility Access Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of health outcomes improved

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Related Program

Mobility Access Program

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

This metric is based on the reported improvements in the recipient's livelihood or well-being as a result of the Mobility Access Program.

Average number of dollars received per donor

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people, People with physical disabilities

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Average grant amount

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people

Related Program

ALS Donor Fund

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Primary Goals:
We aim to help these patients change what it means to be living with ALS by providing guidance, resources, and financial support to ease the difficulties of this progression. By partnering with companies and organizations that can provide technology, equipment, or life experiences, we can guide patients in the right direction in getting back what ALS takes away. We also strive to help these patients be proactive in solving the problems that their individual situation presents to them.

Secondary Goals:

Our secondary goal is to increase affordable access to mobility equipment such as wheelchairs to residents of San Diego Count.

To address the primary problem, we strive to raise and maintain funds for an ALS Patient Fund and an ALS Donor Fund.

ALS Patient Fund - The ALS Patient Fund provides direct financial or material assistance to ALS patients to obtain equipment and technology to improve their quality of life. In addition, grants from the Patient Fund may be used to have a life experience that would be otherwise unattainable due to ALS.

ALS Donor Fund - The ALS Donor Fund supports other independent 501(c)3 organizations dedicated to ALS patient support, care, advocacy, and research. We want to encourage cooperation and collaboration among these organizations through mutually beneficial relationships and financial support.

To address the secondary problem, we offer a Mobility Access Program to residents of San Diego County. This program offers free or low-cost equipment such as wheelchairs to those who demonstrate a need and significant financial burden to their acquisition.

Primary Goals:
The ALS Patient Fund and ALS Donor Fund have been established, and we are accepting donations to fund these programs.

Secondary Goal:
The Mobility Access Program has been established.

Primary Goals:
In 2022 and 2023, we have supported the ALS Association and Team Gleason through small contributions from the ALS Donor Fund. We hope to continue to provide monetary support to these and other ALS organizations in the coming years.

Secondary Goals:
In 2023, we were able to provide a wheelchair to a family in need through the Mobility Access Program. We hope to sustainably increase the quantity and variety of our inventory in order to continue providing mobility support to those in need.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback

Financials

A Lasting Strength
Fiscal year: May 01 - Apr 30

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Financial data

SOURCE: IRS Form 990

A Lasting Strength

Revenue & expenses

Fiscal Year: May 01 - Apr 30

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

A Lasting Strength

Balance sheet

Fiscal Year: May 01 - Apr 30

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

Operations

The people, governance practices, and partners that make the organization tick.

Executive Director

Mr. Stephenson Jack Lu

Stephen is a social entrepreneur focused on solving social and leadership challenges through collaborative, innovative communication and technology solutions. He leverages strong analytical and interpersonal skills to drive positive change in local communities and organizations. He has 17 years of forensic experience, including Forensic Biology, Crime Scene Investigation and Reconstruction, and Firearms Analysis. He has testified as a qualified expert witness in courts in Arizona and California and in front of the U.S. District Court for the Central District of California. He currently serves as a member of the San Diego County Sheriff's LGBTQ+ Advisory Council. In September 2021, Stephen became the Executive Director of A Lasting Strength, a non-profit organization dedicated to supporting and improving the lives of people with Amyotrophic Lateral Sclerosis (ALS). Stephen also serves as a community member of the Patient and Family Advisory Council at UC San Diego Health.

A Lasting Strength

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

A Lasting Strength

Board of directors
as of 04/11/2024
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Mr. Stephenson Lu

A Lasting Strength

Term: 2021 -

Michael Ficklin-Badaloni

A Lasting Strength, Inc.

Kyle Ficklin-Badaloni

A Lasting Strength, Inc.

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 4/10/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Asian/Asian American
Gender identity
Male, Not transgender
Sexual orientation
Gay, Lesbian, Bisexual, or other sexual orientations in the LGBTQIA+ community
Disability status
Person with a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 04/10/2024

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.