Cheyanna Foundation for Children
Uplifting the Rare andUndiagnosed
Cheyanna Foundation for Children
EIN: 45-3772547
Mission
CC4C enhances the lives of children battling rare and undiagnosed conditions in Texas. We achieve this by giving children and families access to mental health and wellness programs, providing financial assistance, and giving them access to events and experiences that would otherwise be impossible.
Ruling year
2012
Founder/Executive Director
Monica Gelinas
Main address
11701 Bee Caves Rd Ste 200
Bee Cave, TX 78738 USA
Formerly known as
Cheyanna Foundation for Childre
EIN
45-3772547
Diseases and conditions
Population served
Children and youth
People with diseases and illnesses
NTEE code
Health Support Services (E60)
IRS subsection
501(c)(3) Public Charity
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
Tax forms
Communication
Programs and results
Reports and documents
Download annual reportsWhat we aim to solve
CC4C will serve more than 200 families, increase the percent of families receiving direct financial assistance, and meaningfully increase each family's well-being. As we increase our overall impact on families, will also build a diverse set of revenue streams to sustainably fund the mission into the future.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Dream Team Program
CC4C’s Dream Team program matches a child with a volunteer group based on the child’s interest. Dream Teams can be local high school teams, companies, or other organizations. The Dream Team helps our children with rare conditions participate in “normal” childhood experiences, like being part of a sports team or music group, and feel uplifted/supported by their community. During the school year, Dream Teams spend time providing enriching, uplifting experiences for their child. These experiences are tailor-made to suit the interests of each child. One child might get special 50-yard-line seats at a high school football game and get to run through the tunnel with the team. Another child might get to ride with the cheerleaders on a homecoming parade float. A child who has a passion for furry friends might get to play with puppies at a doggie daycare. Children with rare conditions face difficulties like painful symptoms, isolation from peers, and a lot of time spent in doctor's offices, the
Family Well-Being Program
Our Family Well-Being program’s goal is to help families build connections with others who are walking a similar journey. TRIBE 4 Moms and TRIBE for Dads are parent-peer support groups held regularly throughout the year. Moms and dads are provided opportunities to gather to connect, share resources, and have fun. During our Sibling Adventure Days, CC4C offers special events designed to focus on siblings. We partner with other organizations to provide fun, special one-on-one experiences with their parents and peers. Family Fun Days are opportunities for all CC4C families to gather for fun and fellowship. Lastly, we offer workshops throughout the year. Past workshop topics have included hope/vision board, self-compassion and caring for the caregiver.
Financial Assistance Program
Our Financial assistance program lightens the burden of financial expenses associated with caring for a child with rare or undiagnosed conditions. 95% of rare and/or undiagnosed disease treatments, therapies, and medications are not covered by insurance and families spend thousands of dollars out-of-pocket for their child's medical needs. Our financial assistance program reimburses qualified medical expenses not covered by insurance.
Where we work
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of volunteers
This metric is no longer tracked.Totals By Year
Related Program
Family Well-Being Program
Type of Metric
Input - describing resources we use
Direction of Success
Holding steady
Context Notes
CC4C used to have volunteer parades for each child which stopped after 2021.
Total dollars received in contributions
This metric is no longer tracked.Totals By Year
Related Program
Financial Assistance Program
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of overall donors
This metric is no longer tracked.Totals By Year
Related Program
Financial Assistance Program
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Number of Donors has decreased but amount of donation per donor has increased.
Number of children served
This metric is no longer tracked.Totals By Year
Related Program
Financial Assistance Program
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
We will increase our revenue through combining all fundraising, corporate, individual, grants, events and investments so CC4C can support more children and families facing rare and undiagnosed conditions.
With this revenue we will focus on expanding the family programs:
We will serve more families.
We will increase the percent of families receiving direct financial assistance.
We will increase average wellbeing per family.
What are the organization's key strategies for making this happen?
1. Serve 200 families overall: measure by yearly active families, includes statewide families, does not include inactive and alumni families
2. Increase percent of families receiving direct financial assistance to 82%: families who receive some direct financial assistance, doesnt include money spent on family programs
3. Increase average wellbeing per family: defined by per family results from Well-Being questionnaire and family surveys
4. Align development strategy to fund the mission and sustain the organization.
What are the organization's capabilities for doing this?
Align the development strategy to fund the mission and sustain the organization.
What have they accomplished so far and what's next?
Created new Strategic Plan, aligned key performance indicators for team, developed Board and Advisory Board to assist with meeting our goals.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
Revenue vs. expenses: breakdown
Liquidity in 2023 info
38.77
Months of cash in 2023 info
12.6
Fringe rate in 2023 info
16%
Funding sources info
Assets & liabilities info
Financial data
Cheyanna Foundation for Children
Revenue & expensesFiscal Year: Aug 01 - Jul 31
Cheyanna Foundation for Children
Balance sheetFiscal Year: Aug 01 - Jul 31
The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.
Fiscal Year: Aug 01 - Jul 31
This snapshot of Cheyanna Foundation for Children’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.
Created in partnership with
Business model indicators
| Profitability info | 2019 | 2020 | 2021 | 2022 | 2023 |
|---|---|---|---|---|---|
| Unrestricted surplus (deficit) before depreciation | -$14,872 | $60,742 | $137,099 | $114,637 | -$71,404 |
| As % of expenses | -2.0% | 9.0% | 35.8% | 18.9% | -8.5% |
| Unrestricted surplus (deficit) after depreciation | -$16,893 | $60,742 | $137,099 | $114,637 | -$71,404 |
| As % of expenses | -2.2% | 9.0% | 35.8% | 18.9% | -8.5% |
| Revenue composition info | |||||
|---|---|---|---|---|---|
| Total revenue (unrestricted & restricted) | $744,515 | $738,709 | $520,116 | $718,140 | $764,415 |
| Total revenue, % change over prior year | -2.4% | -0.8% | -29.6% | 38.1% | 6.4% |
| Program services revenue | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Membership dues | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Investment income | 0.8% | 1.2% | 0.5% | 0.3% | 1.7% |
| Government grants | 0.0% | 0.0% | 5.5% | 4.8% | 0.0% |
| All other grants and contributions | 99.2% | 98.8% | 93.9% | 94.9% | 98.3% |
| Other revenue | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Expense composition info | |||||
|---|---|---|---|---|---|
| Total expenses before depreciation | $759,391 | $677,967 | $383,017 | $606,411 | $835,819 |
| Total expenses, % change over prior year | 25.4% | -10.7% | -43.5% | 58.3% | 37.8% |
| Personnel | 19.8% | 23.5% | 40.1% | 38.2% | 44.5% |
| Professional fees | 5.5% | 10.5% | 5.4% | 3.2% | 2.1% |
| Occupancy | 1.8% | 1.4% | 1.7% | 0.7% | 0.9% |
| Interest | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Pass-through | 60.0% | 45.4% | 47.4% | 45.2% | 31.1% |
| All other expenses | 13.0% | 19.3% | 5.4% | 12.7% | 21.3% |
| Full cost components (estimated) info | 2019 | 2020 | 2021 | 2022 | 2023 |
|---|---|---|---|---|---|
| Total expenses (after depreciation) | $761,412 | $677,967 | $383,017 | $606,411 | $835,819 |
| One month of savings | $63,283 | $56,497 | $31,918 | $50,534 | $69,652 |
| Debt principal payment | $0 | $0 | $0 | $0 | $0 |
| Fixed asset additions | $0 | $0 | $0 | $0 | $0 |
| Total full costs (estimated) | $824,695 | $734,464 | $414,935 | $656,945 | $905,471 |
Capital structure indicators
| Liquidity info | 2019 | 2020 | 2021 | 2022 | 2023 |
|---|---|---|---|---|---|
| Months of cash | 10.4 | 12.9 | 27.3 | 19.4 | 12.6 |
| Months of cash and investments | 10.4 | 12.9 | 27.3 | 19.4 | 12.6 |
| Months of estimated liquid unrestricted net assets | 10.0 | 12.3 | 26.1 | 18.8 | 12.6 |
| Balance sheet composition info | 2019 | 2020 | 2021 | 2022 | 2023 |
|---|---|---|---|---|---|
| Cash | $655,654 | $727,276 | $872,746 | $979,279 | $874,446 |
| Investments | $0 | $0 | $0 | $0 | $0 |
| Receivables | $5,993 | $0 | $0 | $0 | $0 |
| Gross land, buildings, equipment (LBE) | $2,021 | $2,021 | $2,021 | $2,021 | $2,021 |
| Accumulated depreciation (as a % of LBE) | 100.0% | 100.0% | 100.0% | 100.0% | 100.0% |
| Liabilities (as a % of assets) | 4.3% | 4.3% | 4.5% | 3.4% | 2.5% |
| Unrestricted net assets | $0 | $0 | $0 | $0 | $0 |
| Temporarily restricted net assets | $0 | N/A | N/A | N/A | N/A |
| Permanently restricted net assets | $0 | N/A | N/A | N/A | N/A |
| Total restricted net assets | $0 | $0 | $0 | $0 | $0 |
| Total net assets | $635,334 | $696,076 | $833,175 | $947,812 | $876,408 |
Key data checks
| Key data checks info | 2019 | 2020 | 2021 | 2022 | 2023 |
|---|---|---|---|---|---|
| Material data errors | No | No | No | No | No |
Operations
The people, governance practices, and partners that make the organization tick.
Documents
Founder/Executive Director
Monica Gelinas
Talaya Frazier, founded CC4C in 2011 after the journey of pursuing health for her youngest daughter, Cheyanna who is now 16.
This long journey started her running career as she used it as a tool to cope with the emotional turmoil. This emotional therapy led to 7 consecutive Boston Marathons and competing on Team USA for the World’s Half Ironman.
Talaya graduated Summa Cum Laude with a degree in Biomed/Nutritional Science. Along with her passion for alternative health she is a business entrepreneur. She currently owns Talaya’s Collection, a fine sterling silver and 14k gold jewelry business for over 16 years. She and her husband have also previously owned franchises such as Marble Slab Creameries and Quizno’s Subs.
Number of employees
Source: IRS Form 990
Cheyanna Foundation for Children
Officers, directors, trustees, and key employeesSOURCE: IRS Form 990
Compensation data
There are no highest paid employees recorded for this organization.
Cheyanna Foundation for Children
Board of directorsas of 05/29/2024
Board of directors data
Joey Berger
Joey Berger
Rigby Slack Lawrence Berger Akinc Pepper + Comerford PLLC
David DeStefano
Texas Regional Bank
Dr. Susan Rao
Rao Family Chiropractic & Wellness Center
Talaya Frazier
CC4C, Founder
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
Disability
Equity strategies
Last updated: 01/11/2024GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We review compensation data across the organization (and by staff levels) to identify disparities by race.
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We use a vetting process to identify vendors and partners that share our commitment to race equity.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.
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- Contractor and/or Paid Preparer data for 2023, 2022, 2021
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