Cheyanna Foundation for Children
Uplifting the Rare andUndiagnosed
Cheyanna Foundation for Children
EIN: 45-3772547
as of September 2023
as of September 18, 2023
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Dream Team Program
CC4C’s Dream Team program matches a child with a volunteer group based on the child’s interest. Dream Teams can be local high school teams, companies, or other organizations. The Dream Team helps our children with rare conditions participate in “normal” childhood experiences, like being part of a sports team or music group, and feel uplifted/supported by their community. During the school year, Dream Teams spend time providing enriching, uplifting experiences for their child. These experiences are tailor-made to suit the interests of each child. One child might get special 50-yard-line seats at a high school football game and get to run through the tunnel with the team. Another child might get to ride with the cheerleaders on a homecoming parade float. A child who has a passion for furry friends might get to play with puppies at a doggie daycare. Children with rare conditions face difficulties like painful symptoms, isolation from peers, and a lot of time spent in doctor's offices, the
Family Well-Being Program
Our Family Well-Being program’s goal is to help families build connections with others who are walking a similar journey. TRIBE 4 Moms and TRIBE for Dads are parent-peer support groups held regularly throughout the year. Moms and dads are provided opportunities to gather to connect, share resources, and have fun. During our Sibling Adventure Days, CC4C offers special events designed to focus on siblings. We partner with other organizations to provide fun, special one-on-one experiences with their parents and peers. Family Fun Days are opportunities for all CC4C families to gather for fun and fellowship. Lastly, we offer workshops throughout the year. Past workshop topics have included hope/vision board, self-compassion and caring for the caregiver.
Financial Assistance Program
Our Financial assistance program lightens the burden of financial expenses associated with caring for a child with rare or undiagnosed conditions. 95% of rare and/or undiagnosed disease treatments, therapies, and medications are not covered by insurance and families spend thousands of dollars out-of-pocket for their child's medical needs. Our financial assistance program reimburses qualified medical expenses not covered by insurance.
Where we work
External reviews

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Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Financials
Revenue vs. expenses: breakdown
Liquidity in 2022 info
29.80
Months of cash in 2022 info
19.4
Fringe rate in 2022 info
9%
Funding sources info
Assets & liabilities info
Financial data
Cheyanna Foundation for Children
Revenue & expensesFiscal Year: Aug 01 - Jul 31
Cheyanna Foundation for Children
Balance sheetFiscal Year: Aug 01 - Jul 31
The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.
Fiscal Year: Aug 01 - Jul 31
This snapshot of Cheyanna Foundation for Children’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.
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Business model indicators
Profitability info | 2018 | 2019 | 2020 | 2021 | 2022 |
---|---|---|---|---|---|
Unrestricted surplus (deficit) before depreciation | $151,929 | -$14,872 | $60,742 | $137,099 | $114,637 |
As % of expenses | 25.1% | -2.0% | 9.0% | 35.8% | 18.9% |
Unrestricted surplus (deficit) after depreciation | $151,929 | -$16,893 | $60,742 | $137,099 | $114,637 |
As % of expenses | 25.1% | -2.2% | 9.0% | 35.8% | 18.9% |
Revenue composition info | |||||
---|---|---|---|---|---|
Total revenue (unrestricted & restricted) | $763,078 | $744,515 | $738,709 | $520,116 | $718,140 |
Total revenue, % change over prior year | 0.0% | -2.4% | -0.8% | -29.6% | 38.1% |
Program services revenue | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Membership dues | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Investment income | 0.0% | 0.8% | 1.2% | 0.5% | 0.3% |
Government grants | 0.0% | 0.0% | 0.0% | 5.5% | 4.8% |
All other grants and contributions | 100.0% | 99.2% | 98.8% | 93.9% | 94.9% |
Other revenue | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Expense composition info | |||||
---|---|---|---|---|---|
Total expenses before depreciation | $605,374 | $759,391 | $677,967 | $383,017 | $606,411 |
Total expenses, % change over prior year | 0.0% | 25.4% | -10.7% | -43.5% | 58.3% |
Personnel | 20.8% | 19.8% | 23.5% | 40.1% | 38.2% |
Professional fees | 12.8% | 5.5% | 10.5% | 5.4% | 3.2% |
Occupancy | 2.4% | 1.8% | 1.4% | 1.7% | 0.7% |
Interest | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Pass-through | 34.7% | 60.0% | 45.4% | 47.4% | 45.2% |
All other expenses | 29.3% | 13.0% | 19.3% | 5.4% | 12.7% |
Full cost components (estimated) info | 2018 | 2019 | 2020 | 2021 | 2022 |
---|---|---|---|---|---|
Total expenses (after depreciation) | $605,374 | $761,412 | $677,967 | $383,017 | $606,411 |
One month of savings | $50,448 | $63,283 | $56,497 | $31,918 | $50,534 |
Debt principal payment | $0 | $0 | $0 | $0 | $0 |
Fixed asset additions | $0 | $0 | $0 | $0 | $0 |
Total full costs (estimated) | $655,822 | $824,695 | $734,464 | $414,935 | $656,945 |
Capital structure indicators
Liquidity info | 2018 | 2019 | 2020 | 2021 | 2022 |
---|---|---|---|---|---|
Months of cash | 13.5 | 10.4 | 12.9 | 27.3 | 19.4 |
Months of cash and investments | 13.5 | 10.4 | 12.9 | 27.3 | 19.4 |
Months of estimated liquid unrestricted net assets | 12.9 | 10.0 | 12.3 | 26.1 | 18.8 |
Balance sheet composition info | 2018 | 2019 | 2020 | 2021 | 2022 |
---|---|---|---|---|---|
Cash | $682,516 | $655,654 | $727,276 | $872,746 | $979,279 |
Investments | $0 | $0 | $0 | $0 | $0 |
Receivables | $0 | $5,993 | $0 | $0 | $0 |
Gross land, buildings, equipment (LBE) | $0 | $2,021 | $2,021 | $2,021 | $2,021 |
Accumulated depreciation (as a % of LBE) | 0.0% | 100.0% | 100.0% | 100.0% | 100.0% |
Liabilities (as a % of assets) | 4.8% | 4.3% | 4.3% | 4.5% | 3.4% |
Unrestricted net assets | $0 | $0 | $0 | $0 | $0 |
Temporarily restricted net assets | $0 | $0 | N/A | N/A | N/A |
Permanently restricted net assets | $0 | $0 | N/A | N/A | N/A |
Total restricted net assets | $0 | $0 | $0 | $0 | $0 |
Total net assets | $652,227 | $635,334 | $696,076 | $833,175 | $947,812 |
Key data checks
Key data checks info | 2018 | 2019 | 2020 | 2021 | 2022 |
---|---|---|---|---|---|
Material data errors | No | No | No | No | No |
Operations
The people, governance practices, and partners that make the organization tick.
Documents
Founder/Executive Director
Monica Gelinas
Talaya Frazier, founded CC4C in 2011 after the journey of pursuing health for her youngest daughter, Cheyanna who is now 16.
This long journey started her running career as she used it as a tool to cope with the emotional turmoil. This emotional therapy led to 7 consecutive Boston Marathons and competing on Team USA for the World’s Half Ironman.
Talaya graduated Summa Cum Laude with a degree in Biomed/Nutritional Science. Along with her passion for alternative health she is a business entrepreneur. She currently owns Talaya’s Collection, a fine sterling silver and 14k gold jewelry business for over 16 years. She and her husband have also previously owned franchises such as Marble Slab Creameries and Quizno’s Subs.
Number of employees
Source: IRS Form 990
Cheyanna Foundation for Children
Officers, directors, trustees, and key employeesSOURCE: IRS Form 990
Compensation data
There are no highest paid employees recorded for this organization.
Cheyanna Foundation for Children
Board of directorsas of 08/10/2023
Board of directors data
Joey Berger
Joey Berger
Rigby Slack Lawrence Berger Akinc Pepper + Comerford PLLC
David DeStefano
Texas Regional Bank
Dr. Susan Rao
Rao Family Chiropractic & Wellness Center
Casey McPherson
To Cure a Rose Foundation, Founder
Talaya Frazier
CC4C, Founder
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as: