GOLD2024

I AM ALS

Community, Change, Cures

aka I AM ALS   |   Washington, DC   |  http://www.iamals.org
GuideStar Charity Check

I AM ALS

EIN: 83-2016277


Mission

I AM ALS is a patient-led community that provides critical support and resources to patients, caregivers and loved ones. We empower advocates to raise mainstream awareness and lead the revolution against ALS in driving the development of cures.

Ruling year info

2019

Chief Executive Officer

Andrea Goodman

Main address

1200 Pennsylvania Avenue, NW #14135

Washington, DC 20044 USA

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EIN

83-2016277

Subject area info

Neurology

Population served info

Adults

People with diseases and illnesses

NTEE code info

Neurology, Neuroscience (G96)

Neurology, Neuroscience (H96)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Show Forms 990

Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Awareness and Advocacy

Mobilize patients and their networks to transform
public understanding and dramatically increase research funding and speeding of cures.

Population(s) Served
People with diseases and illnesses
Adults

Where we work

Financials

I AM ALS
Fiscal year: Jan 01 - Dec 31
Financial documents
2022 I AM ALS
done  Yes, financials were audited by an independent accountant. info

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2022 info

SOURCE: IRS Form 990

39.71

Average of 32.59 over 5 years

Months of cash in 2022 info

SOURCE: IRS Form 990

6.9

Average of 8.1 over 5 years

Fringe rate in 2022 info

SOURCE: IRS Form 990

23%

Average of 15% over 5 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

I AM ALS

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

I AM ALS

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

I AM ALS

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

This snapshot of I AM ALS’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

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Business model indicators

Profitability info 2019 2020 2021 2022
Unrestricted surplus (deficit) before depreciation $913,589 -$386,812 $1,030,085 -$216,223
As % of expenses 98.5% -16.3% 43.4% -9.4%
Unrestricted surplus (deficit) after depreciation $913,589 -$386,812 $1,030,085 -$216,223
As % of expenses 98.5% -16.3% 43.4% -9.4%
Revenue composition info
Total revenue (unrestricted & restricted) $2,591,486 $1,632,477 $3,345,834 $1,631,851
Total revenue, % change over prior year 0.0% -37.0% 105.0% -51.2%
Program services revenue 0.0% 0.0% 0.0% 0.0%
Membership dues 0.0% 0.0% 0.0% 0.0%
Investment income 0.6% 0.1% 0.0% 0.1%
Government grants 0.0% 0.0% 7.0% 0.0%
All other grants and contributions 99.4% 99.9% 92.8% 98.6%
Other revenue 0.0% 0.0% 0.2% 1.3%
Expense composition info
Total expenses before depreciation $927,499 $2,366,291 $2,374,530 $2,291,456
Total expenses, % change over prior year 0.0% 155.1% 0.3% -3.5%
Personnel 25.3% 37.6% 50.9% 63.4%
Professional fees 51.1% 33.3% 35.1% 24.5%
Occupancy 0.3% 0.9% 1.0% 2.4%
Interest 0.0% 0.0% 0.0% 0.0%
Pass-through 1.1% 21.1% 0.1% 0.0%
All other expenses 22.3% 7.1% 13.0% 9.6%
Full cost components (estimated) info 2019 2020 2021 2022
Total expenses (after depreciation) $927,499 $2,366,291 $2,374,530 $2,291,456
One month of savings $77,292 $197,191 $197,878 $190,955
Debt principal payment $0 $0 $100,900 $0
Fixed asset additions $0 $0 $0 $0
Total full costs (estimated) $1,004,791 $2,563,482 $2,673,308 $2,482,411

Capital structure indicators

Liquidity info 2019 2020 2021 2022
Months of cash 21.8 3.5 8.2 6.9
Months of cash and investments 21.8 3.5 8.2 6.9
Months of estimated liquid unrestricted net assets 11.8 2.7 7.9 7.0
Balance sheet composition info 2019 2020 2021 2022
Cash $1,685,514 $690,066 $1,612,905 $1,310,768
Investments $0 $0 $0 $0
Receivables $0 $349,643 $803,045 $344,043
Gross land, buildings, equipment (LBE) $0 $0 $0 $0
Accumulated depreciation (as a % of LBE) 0.0% 0.0% 0.0% 0.0%
Liabilities (as a % of assets) 1.2% 11.0% 2.3% 2.3%
Unrestricted net assets $914,514 $527,702 $1,557,787 $1,341,564
Temporarily restricted net assets N/A N/A N/A N/A
Permanently restricted net assets N/A N/A N/A N/A
Total restricted net assets $750,398 $403,396 $819,615 $301,233
Total net assets $1,664,912 $931,098 $2,377,402 $1,642,797

Key data checks

Key data checks info 2019 2020 2021 2022
Material data errors No No No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Letter of Determination is not available for this organization
Form 1023/1024 is not available for this organization

Chief Executive Officer

Andrea Goodman

Number of employees

Source: IRS Form 990

I AM ALS

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
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Compensation data
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I AM ALS

Highest paid employees

SOURCE: IRS Form 990

Compensation
Other
Related
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Compensation data
Download up to 5 most recent years of highest paid employee data for this organization

I AM ALS

Board of directors
as of 02/21/2024
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Peter Bowen

Organizational demographics

SOURCE: Self-reported; last updated 2/21/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Gender identity
Female

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data

Contractors

Fiscal year ending
There are no fundraisers recorded for this organization.