National Multiple Sclerosis Society HQ

New York, NY | https://www.nationalmssociety.org/Donate

GuideStar Charity Check

National Multiple Sclerosis Society

EIN: 13-5661935

Contributions tax deductible
as of September 2023

IRS BMF 509(a)(1)
as of September 18, 2023

View summary

Charity Check report

Mission

We will cure MS while empowering people affected by MS to live their best lives.

Ruling year info

1947

Principal Officer

Cyndi Zagieboylo

Main address

733 Third Avenue 3rd Floor

New York, NY 10017 USA

Show more contact info

EIN

13-5661935

Subject area info

Diseases and conditions

Multiple sclerosis

Population served info

People with diseases and illnesses

NTEE code info

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Show Forms 990

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Our mission: We will cure MS while empowering people affected by MS to live their best lives.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Client Programs

Programs facilitate education, recreation, physical and emotional wellness, and connection with others.

Population(s) Served

People with diseases and illnesses

Research

Our vision is a world free of MS. We are a driving force of MS research and treatment to stop disease progression, restore function, and end MS forever.

Population(s) Served

People with diseases and illnesses

Where we work

External reviews

Videos

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Percentage of people who connected to Society resources and support who felt more confident in addressing the challenges of MS.

Totals By Year

Population(s) Served

Related Program

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Context Notes

Based on survey responses from a variety of National MS Society programs

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Reports and documents

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

What is the organization aiming to accomplish?

Our strategic plan guides the impact we will achieve through 2024. It addresses the unique experiences of all people affected by MS and our role in reaching that future, while highlighting our firmly held belief—together we are stronger. Our strategic plan is focused on four impact areas: (1) improving access to personalized, high-quality MS healthcare (2) empower people affected by MS to solve everyday challenges, (3) accelerate cures through global leadership, and (4) strengthen the MS movement through more and deeper connections.

What are the organization's key strategies for making this happen?

Invest in global research that accelerates progress of the Pathways to Cures Roadmap
Provide leadership to coordinate and leverage global research investments
Expand and diversify the MS research workforce
Advocate for policy and regulatory changes that advance MS research and treatment
Engage people affected by MS in the development of research strategy and implementation
Increase awareness and recognition of MS and its symptoms among people at risk of MS and healthcare providers
Advance systemic policies (legislation, regulation, company policies) and changes that improve the lives of people with MS (cost, access)
Advance evidence-based MS care guidance (personalized healthcare)
Build capacity and understanding of MS within the healthcare system
Position the Society as the global leader in delivering trusted information and resources for people affected by MS
Partner with people affected by MS to develop a personalized roadmap to navigate their MS
Leverage the expertise of strategic partners to get people affected by MS what they need
Bring more people and diversity into the MS movement
Engage people how they want to be engaged
Create experiences to ensure continued engagement
Enable technologies to improve constituent experience
Strengthen our staff and volunteer workforce through talent acquisition, engagement, and professional development
Increase organizational innovation

What are the organization's capabilities for doing this?

We mobilize volunteers, staff, organizations, and communities to develop resources and deepen connections and action, including donor engagement at all levels. We facilitate worldwide research, scientific collaboration and training while creating connections to the resources, information and others so that people can live their best lives as we work to end MS forever. We engage people in local, state and national advocacy to ensure that decision-makers are fully informed, and we equip staff and volunteers with the tools, technology and training to work most effectively. We ensure an inclusive and powerful culture that compels people to be leaders in the MS movement as we engage the world in achieving a world free of MS.

What have they accomplished so far and what's next?

• The National MS Society is the world’s leading private funder of MS research, investing $1.1 billion since 1946.
• The National MS Society is relentless in ensuring all decision-makers are clear about the financial devastation that the high cost of medications can cause – a complex problem that requires all stakeholders coming together to solve.
• The National MS Society advanced the careers of over 1,000 researchers who have been behind nearly every major breakthrough and treatment in MS.
• The National MS Society has launched the careers of 120 MS specialists who provide care to more than 100,000 people with MS.
• The National MS Society tackles the complex challenges of MS from many angles, like MS Navigator for individual solutions, advocacy to create systemic change and lifestyle research to inform what people can do every day to live their best lives.
• People affected by MS are more resilient and live better lives when they are connected with the National MS Society.
• In the United States, 100% of people affected by MS have access to an MS Navigator who will partner with them to address individual challenges and concerns. MS Navigators spend 3.5 hours on average working with each person, and care management is available when problems are so complex they require home visits.
• Over 500,000 of the nearly 1 million people living with MS in the United States are connect to the National MS Society.
• People who participate in National MS Society programs live better lives – they are less isolated, better informed and happier.
• The National MS Society has invested in early research that has led to the discovery of every effective treatment for MS, including the first therapies for primary progressive and pediatric MS.
• As lead agency of the International Progressive MS Alliance, we lead a coordinated, global effort to fuel breakthroughs for people with progressive MS. 20 MS organizations from 19 countries have joined the Alliance.
• The National MS Society has provided early career support and funding to nearly every recognized MS expert.
• Nationwide, more than 35,000 MS activists amplify the voices of the MS community, shaping government decisions affecting people with MS, and making new solutions possible, affordable, and accessible.
• MS activism has led to $93.1 million in MS research funding through the Department of Defense.
• MS activists have played a direct role in increasing access to generic MS medications and ending surprise medical billing.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

We shared information about our current feedback practices.

How is your organization using feedback from the people you serve?

To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
Which of the following feedback practices does your organization routinely carry out?

We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve
What challenges does the organization face when collecting feedback?

We don't have any major challenges to collecting feedback

Financials

National Multiple Sclerosis Society

Fiscal year: Oct 01 - Sep 30

Financial documents

Yes, financials were audited by an independent accountant.

Revenue vs. expenses: breakdown

SOURCE: IRS Form 990

NET GAIN/LOSS: in

Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2022

SOURCE: IRS Form 990

2.65

Average of 1.89 over 10 years

Months of cash in 2022

SOURCE: IRS Form 990

5.3

Average of 4.6 over 10 years

Fringe rate in 2022

SOURCE: IRS Form 990

29%

Average of 27% over 10 years

Funding sources

Source: IRS Form 990

Assets & liabilities

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

Digitizing IRS form 990 data

National Multiple Sclerosis Society

Revenue & expenses

Fiscal Year: Oct 01 - Sep 30

SOURCE: IRS Form 990 info

Fiscal year ending: Download Data

Revenue
Contributions	$88,479,016
Government Grants	$495,285
Program Services	$440,291
Investments	$86,935
Special Events	$0
Sales	$0
Other	$1,882,379
Total Revenue	$91,383,906

Expenses
Program Services	$77,402,518
Administration	$5,773,478
Fundraising	$6,986,461
Total Expenses	$90,162,457
Net Gain/Loss	$1,221,449

Functional expenses
Accounting Fees	$115,794
Advertising & Promotion	$0
Information Technology Expenses	$0
Insurance Expenses	$425,914
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$53,968
Pension Plan Contributions	$0
Professional Fundraising Expenses	$2,300,266

Revenue
Contributions	$98,548,788
Government Grants	$485,200
Program Services	$1,227,503
Investments	$799,703
Special Events	$0
Sales	$0
Other	$1,728,550
Total Revenue	$102,789,744

Expenses
Program Services	$78,859,294
Administration	$6,425,880
Fundraising	$7,298,429
Total Expenses	$92,583,603
Net Gain/Loss	$10,206,141

Functional expenses
Accounting Fees	$0
Advertising & Promotion	$0
Information Technology Expenses	$0
Insurance Expenses	$191,235
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$93,640,391
Government Grants	$472,183
Program Services	$305,161
Investments	$28,827
Special Events	$0
Sales	$0
Other	$2,765,698
Total Revenue	$97,212,260

Expenses
Program Services	$83,477,380
Administration	$7,699,676
Fundraising	$6,970,245
Total Expenses	$98,147,301
Net Gain/Loss	($935,041)

Functional expenses
Accounting Fees	$167,560
Advertising & Promotion	$0
Information Technology Expenses	$0
Insurance Expenses	$392,455
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$81,598
Pension Plan Contributions	$246,963
Professional Fundraising Expenses	$0

Revenue
Contributions	$97,248,883
Government Grants	$0
Program Services	$864,665
Investments	($838,435)
Special Events	$143,813
Sales	$42,406
Other	$2,045,454
Total Revenue	$99,506,786

Expenses
Program Services	$82,504,818
Administration	$6,734,059
Fundraising	$11,902,661
Total Expenses	$101,141,538
Net Gain/Loss	($1,634,752)

Functional expenses
Accounting Fees	$190,247
Advertising & Promotion	$0
Information Technology Expenses	$5,579,560
Insurance Expenses	$257,467
Interest Expenses	$0
Investment Management Fees	$163,752
Legal Fees	$115,556
Pension Plan Contributions	$496,127
Professional Fundraising Expenses	$4,779,405

Revenue
Contributions	$99,409,632
Government Grants	$0
Program Services	$849,766
Investments	$4,052,046
Special Events	($16,608)
Sales	$30,453
Other	$1,420,657
Total Revenue	$105,745,946

Expenses
Program Services	$85,272,100
Administration	$9,044,615
Fundraising	$9,974,686
Total Expenses	$104,291,401
Net Gain/Loss	$1,454,545

Functional expenses
Accounting Fees	$272,468
Advertising & Promotion	$0
Information Technology Expenses	$6,958,641
Insurance Expenses	$1,306,675
Interest Expenses	$0
Investment Management Fees	$134,645
Legal Fees	$7,535
Pension Plan Contributions	$479,664
Professional Fundraising Expenses	$4,022,564

Revenue
Contributions	$108,092,743
Government Grants	$0
Program Services	$637,827
Investments	$5,430,878
Special Events	$0
Sales	$0
Other	$1,810,988
Total Revenue	$115,972,436

Expenses
Program Services	$88,847,855
Administration	$9,514,732
Fundraising	$10,465,876
Total Expenses	$108,828,463
Net Gain/Loss	$7,143,973

Functional expenses
Accounting Fees	$250,572
Advertising & Promotion	$0
Information Technology Expenses	$7,575,998
Insurance Expenses	$1,478,618
Interest Expenses	$0
Investment Management Fees	$186,092
Legal Fees	$11,942
Pension Plan Contributions	$513,917
Professional Fundraising Expenses	$3,935,588

Revenue
Contributions	$110,102,818
Government Grants	$0
Program Services	$604,323
Investments	$598,706
Special Events	$0
Sales	$0
Other	$2,274,744
Total Revenue	$113,580,591

Expenses
Program Services	$98,097,450
Administration	$9,114,235
Fundraising	$10,111,398
Total Expenses	$117,323,083
Net Gain/Loss	($3,742,492)

Functional expenses
Accounting Fees	$136,685
Advertising & Promotion	$0
Information Technology Expenses	$8,078,859
Insurance Expenses	$1,337,141
Interest Expenses	$0
Investment Management Fees	$168,856
Legal Fees	$36,143
Pension Plan Contributions	$579,450
Professional Fundraising Expenses	$3,378,723

Revenue
Contributions	$106,277,577
Government Grants	$0
Program Services	$646,108
Investments	($96,431)
Special Events	$0
Sales	$0
Other	$1,608,562
Total Revenue	$108,435,816

Expenses
Program Services	$97,078,549
Administration	$10,557,555
Fundraising	$9,881,668
Total Expenses	$117,517,772
Net Gain/Loss	($9,081,956)

Functional expenses
Accounting Fees	$138,003
Advertising & Promotion	$0
Information Technology Expenses	$6,028,785
Insurance Expenses	$1,271,625
Interest Expenses	$0
Investment Management Fees	$151,047
Legal Fees	$24,526
Pension Plan Contributions	$2,278,895
Professional Fundraising Expenses	$3,042,702

Revenue
Contributions	$175,623,990
Government Grants	$74,727
Program Services	$77,872
Investments	$3,055,742
Special Events	$0
Sales	$0
Other	$2,415,540
Total Revenue	$181,247,871

Expenses
Program Services	$130,765,033
Administration	$16,758,403
Fundraising	$38,001,609
Total Expenses	$185,525,045
Net Gain/Loss	($4,277,174)

Functional expenses
Accounting Fees	$256,700
Advertising & Promotion	$2,905,831
Information Technology Expenses	$4,086,794
Insurance Expenses	$1,383,011
Interest Expenses	$0
Investment Management Fees	$248,518
Legal Fees	$25,641
Pension Plan Contributions	$1,193,103
Professional Fundraising Expenses	$3,472,372

Revenue
Contributions	$189,632,078
Government Grants	$75,140
Program Services	$85,488
Investments	$5,067,582
Special Events	$0
Sales	$0
Other	$1,690,250
Total Revenue	$196,550,538

Expenses
Program Services	$122,427,267
Administration	$15,650,372
Fundraising	$38,020,974
Total Expenses	$176,098,613
Net Gain/Loss	$20,451,925

Functional expenses
Accounting Fees	$149,792
Advertising & Promotion	$2,926,307
Information Technology Expenses	$5,660,702
Insurance Expenses	$1,223,126
Interest Expenses	$0
Investment Management Fees	$255,342
Legal Fees	$132,814
Pension Plan Contributions	$1,887,169
Professional Fundraising Expenses	$3,364,545

Revenue
Contributions	$190,979,088
Government Grants	$75,000
Program Services	$68,661
Investments	$4,219,366
Special Events	$0
Sales	$0
Other	$1,547,722
Total Revenue	$196,889,837

Expenses
Program Services	$129,066,251
Administration	$15,742,827
Fundraising	$36,484,624
Total Expenses	$181,293,702
Net Gain/Loss	$15,596,135

Functional expenses
Accounting Fees	$165,610
Advertising & Promotion	$2,630,882
Information Technology Expenses	$6,712,814
Insurance Expenses	$1,214,756
Interest Expenses	$0
Investment Management Fees	$293,304
Legal Fees	$109,265
Pension Plan Contributions	$1,863,297
Professional Fundraising Expenses	$3,227,503

Revenue
Contributions	$149,570,946
Government Grants	$437,120
Program Services	$24,770
Investments	$3,910,046
Special Events	$0
Sales	$0
Other	$1,287,632
Total Revenue	$155,230,514

Expenses
Program Services	$114,089,769
Administration	$14,678,540
Fundraising	$29,825,360
Total Expenses	$158,593,669
Net Gain/Loss	($3,363,155)

Functional expenses
Accounting Fees	$155,636
Advertising & Promotion	$1,862,887
Information Technology Expenses	$6,758,187
Insurance Expenses	$1,147,972
Interest Expenses	$0
Investment Management Fees	$271,772
Legal Fees	$38,696
Pension Plan Contributions	$1,783,988
Professional Fundraising Expenses	$2,196,878

Revenue
Contributions	$138,918,363
Government Grants	$368,594
Program Services	$0
Investments	$5,744,432
Special Events	$0
Sales	$0
Other	$1,393,263
Total Revenue	$146,424,652

Expenses
Program Services	$100,634,158
Administration	$12,265,818
Fundraising	$25,526,402
Total Expenses	$138,426,378
Net Gain/Loss	$7,998,274

Functional expenses
Accounting Fees	$142,980
Advertising & Promotion	$2,326,516
Information Technology Expenses	$6,013,544
Insurance Expenses	$997,428
Interest Expenses	$0
Investment Management Fees	$295,710
Legal Fees	$257,507
Pension Plan Contributions	$1,702,718
Professional Fundraising Expenses	$2,900,044

Revenue
Contributions	$156,384,582
Government Grants	$10,611,099
Program Services	$7,830
Investments	$4,105,287
Special Events	$0
Sales	$0
Other	$836,666
Total Revenue	$171,945,464

Expenses
Program Services	$114,877,337
Administration	$14,231,790
Fundraising	$30,559,164
Total Expenses	$159,668,291
Net Gain/Loss	$12,277,173

Functional expenses
Accounting Fees	$159,433
Advertising & Promotion	$2,783,910
Information Technology Expenses	$6,261,468
Insurance Expenses	$1,209,152
Interest Expenses	$0
Investment Management Fees	$313,849
Legal Fees	$94,217
Pension Plan Contributions	$1,932,218
Professional Fundraising Expenses	$2,629,458

National Multiple Sclerosis Society

Balance sheet

Fiscal Year: Oct 01 - Sep 30

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: Download Data

Assets	Oct 01, 2008	Sep 30, 2009	Change
Contributions	$88,479,016
Cash & Equivalents	$16,514,273	$13,333,930	($3,180,343)
Accounts Receivable	$11,525,833	$13,196,477	$1,670,644
Pledges & Grants Receivable	$2,444,511	$2,016,606	($427,905)
Receivable, Other	$0	$0	$0
Inventories for Sale or Use	$347,389	$280,582	($66,807)
Investment, Securities	$22,803,780	$23,218,568	$414,788
Investment, Other	$0	$0	$0
Fixed Assets (LBE - Depreciation)	$8,265,853	$6,947,259	($1,318,594)
Other	$2,659,387	$2,879,592	$220,205
Total Assets	$64,561,026	$61,873,013	($2,688,013)

Liabilities	Oct 01, 2008	Sep 30, 2009	Change
Accounts Payable	$15,429,655	$13,840,453	($1,589,202)
Grants Payable	$35,991,131	$32,151,836	($3,839,295)
Deferred Revenue	$83,550	$697,576	$614,026
Loans and Notes	$0	$0	$0
Tax-Exempt Bond Liabilities	$0	$0	$0
Other	$119,302	$102,479	($16,823)
Total Liabilities	$51,623,638	$46,792,344	($4,831,294)

Fund balance	Oct 01, 2008	Sep 30, 2009	Change
Temporarily Restricted Net Assets	$8,549,833	$9,172,658	$622,825
Permanently Restricted Net Assets	$3,634,833	$3,634,833	$0
Total Restricted Net Assets	$12,184,666	$12,807,491	$622,825
Unrestricted Net Assets	$752,722	$2,273,178	$1,520,456
Net Assets	$12,937,388	$15,080,669	$2,143,281

Assets	Oct 01, 2009	Sep 30, 2010	Change
Contributions	$98,548,788
Cash & Equivalents	$13,333,930	$15,930,373	$2,596,443
Accounts Receivable	$13,196,477	$16,976,842	$3,780,365
Pledges & Grants Receivable	$2,016,606	$1,238,440	($778,166)
Receivable, Other	$0	$0	$0
Inventories for Sale or Use	$280,582	$272,214	($8,368)
Investment, Securities	$23,218,568	$26,816,232	$3,597,664
Investment, Other	$0	$0	$0
Fixed Assets (LBE - Depreciation)	$6,947,259	$5,725,383	($1,221,876)
Other	$2,879,591	$4,379,902	$1,500,311
Total Assets	$61,873,013	$71,339,386	$9,466,373

Liabilities	Oct 01, 2009	Sep 30, 2010	Change
Accounts Payable	$13,840,453	$13,139,663	($700,790)
Grants Payable	$32,151,836	$29,430,642	($2,721,194)
Deferred Revenue	$697,576	$882,293	$184,717
Loans and Notes	$0	$0	$0
Tax-Exempt Bond Liabilities	$0	$0	$0
Other	$102,479	$84,350	($18,129)
Total Liabilities	$46,792,344	$43,536,948	($3,255,396)

Fund balance	Oct 01, 2009	Sep 30, 2010	Change
Temporarily Restricted Net Assets	$9,172,658	$9,879,919	$707,261
Permanently Restricted Net Assets	$3,634,833	$3,744,833	$110,000
Total Restricted Net Assets	$12,807,491	$13,624,752	$817,261
Unrestricted Net Assets	$2,273,178	$14,177,686	$11,904,508
Net Assets	$15,080,669	$27,802,438	$12,721,769

Assets	Oct 01, 2010	Sep 30, 2011	Change
Contributions	$93,640,391
Cash & Equivalents	$15,930,373	$31,529,755	$15,599,382
Accounts Receivable	$16,976,842	$9,106,691	($7,870,151)
Pledges & Grants Receivable	$1,238,440	$511,655	($726,785)
Receivable, Other	$0	$0	$0
Inventories for Sale or Use	$272,214	$247,048	($25,166)
Investment, Securities	$26,816,232	$26,197,259	($618,973)
Investment, Other	$0	$0	$0
Fixed Assets (LBE - Depreciation)	$5,725,383	$5,329,662	($395,721)
Other	$4,379,902	$3,098,253	($1,281,649)
Total Assets	$71,339,386	$76,020,323	$4,680,937

Liabilities	Oct 01, 2010	Sep 30, 2011	Change
Accounts Payable	$13,139,663	$16,709,033	$3,569,370
Grants Payable	$29,430,642	$34,118,322	$4,687,680
Deferred Revenue	$882,293	$666,298	($215,995)
Loans and Notes	$0	$0	$0
Tax-Exempt Bond Liabilities	$0	$0	$0
Other	$84,350	$64,814	($19,536)
Total Liabilities	$43,536,948	$51,558,467	$8,021,519

National Multiple Sclerosis Society

Financial trends analysis Glossary & formula definitions

Fiscal Year: Oct 01 - Sep 30

SOURCE: IRS Form 990 info

This snapshot of National Multiple Sclerosis Society’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

Created in partnership with

Fiscal year: Oct 01 - Sep 30 View full report Download data

Business model indicators

Profitability	2018	2019	2020	2021	2022
Unrestricted surplus (deficit) before depreciation	$10,150,893	$6,833,004	-$6,718,904	$15,547,724	$1,999,045
As % of expenses	5.8%	3.8%	-4.3%	11.3%	1.3%
Unrestricted surplus (deficit) after depreciation	$7,787,242	$4,835,449	-$8,325,981	$14,347,470	$1,173,452
As % of expenses	4.4%	2.7%	-5.2%	10.4%	0.7%

Revenue composition
Total revenue (unrestricted & restricted)	$196,550,538	$196,889,837	$155,230,514	$146,424,652	$171,945,464
Total revenue, % change over prior year	8.4%	0.2%	-21.2%	-5.7%	17.4%
Program services revenue	0.0%	0.0%	0.0%	0.0%	0.0%
Membership dues	0.0%	0.0%	0.0%	0.0%	0.0%
Investment income	1.0%	1.5%	1.8%	1.4%	1.8%
Government grants	0.0%	0.0%	0.3%	0.3%	6.2%
All other grants and contributions	96.5%	97.0%	96.4%	94.9%	91.0%
Other revenue	2.4%	1.4%	1.5%	3.5%	1.1%

Expense composition
Total expenses before depreciation	$173,734,962	$179,296,147	$156,986,592	$137,226,124	$158,842,698
Total expenses, % change over prior year	-5.0%	3.2%	-12.4%	-12.6%	15.8%
Personnel	47.2%	47.0%	51.2%	50.9%	49.7%
Professional fees	7.0%	7.1%	6.7%	7.7%	8.1%
Occupancy	5.8%	5.6%	6.4%	6.3%	5.1%
Interest	0.0%	0.0%	0.0%	0.0%	0.0%
Pass-through	22.3%	22.9%	20.3%	22.3%	22.3%
All other expenses	17.8%	17.4%	15.5%	12.8%	14.8%

Full cost components (estimated)	2018	2019	2020	2021	2022
Total expenses (after depreciation)	$176,098,613	$181,293,702	$158,593,669	$138,426,378	$159,668,291
One month of savings	$14,477,914	$14,941,346	$13,082,216	$11,435,510	$13,236,892
Debt principal payment	$0	$0	$0	$0	$0
Fixed asset additions	$0	$0	$0	$0	$1,564,857
Total full costs (estimated)	$190,576,527	$196,235,048	$171,675,885	$149,861,888	$174,470,040

Capital structure indicators

Liquidity	2018	2019	2020	2021	2022
Months of cash	3.9	4.2	5.5	6.1	5.3
Months of cash and investments	10.0	10.6	11.3	15.5	12.2
Months of estimated liquid unrestricted net assets	4.1	4.3	4.4	6.4	5.6

Balance sheet composition	2018	2019	2020	2021	2022
Cash	$56,262,921	$62,786,233	$71,802,303	$69,719,306	$70,424,239
Investments	$89,054,621	$95,317,761	$75,742,539	$107,732,616	$91,395,739
Receivables	$17,394,163	$13,283,248	$14,923,395	$13,550,138	$13,961,357
Gross land, buildings, equipment (LBE)	$14,895,997	$15,727,499	$15,166,212	$15,288,473	$9,096,234
Accumulated depreciation (as a % of LBE)	66.8%	76.0%	85.3%	92.2%	78.8%
Liabilities (as a % of assets)	40.2%	35.8%	33.2%	33.4%	32.9%
Unrestricted net assets	$63,827,269	$68,662,718	$60,336,737	$74,684,207	$75,857,659
Temporarily restricted net assets	$23,046,932	$32,085,925	N/A	N/A	N/A
Permanently restricted net assets	$17,571,146	$17,806,064	N/A	N/A	N/A
Total restricted net assets	$40,618,078	$49,891,989	$55,494,930	$59,539,428	$48,536,132
Total net assets	$104,445,347	$118,554,707	$115,831,667	$134,223,635	$124,393,791

Key data checks

Key data checks	2018	2019	2020	2021	2022
Material data errors	No	No	No	No	No

Operations

The people, governance practices, and partners that make the organization tick.

Documents

Letter of Determination is not available for this organization

Form 1023/1024 is not available for this organization

Principal Officer

Cyndi Zagieboylo

Number of employees

Source: IRS Form 990

National Multiple Sclerosis Society

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation

Other

Show data for fiscal year

Compensation data

Download up to 5 most recent years of officer and director compensation data for this organization

National Multiple Sclerosis Society

Highest paid employees

SOURCE: IRS Form 990

Compensation

Other

Show data for fiscal year

Compensation data

Download up to 5 most recent years of highest paid employee data for this organization

National Multiple Sclerosis Society

Board of directors
as of 08/29/2023

SOURCE: Self-reported by organization

Board of directors data

Download the most recent year of board of directors data for this organization

Board chair

Richard Knutson

Eugene May

Secretary

Peter Porrino

Retired

Mindy J Alpert

Smith Barney

Greg Bishop

Williams Mullen

Michal Bogdonoff

Chris Campbell

eFinancial

Hafiz Chandiwala

Coca-Cola Bottling Company

Kassaundra Escalera

Amazon

Dana Foote

KPMG LLP

Elizabeth Forstneger

Cushman & Wakefield

Brendon Gallagher

Sirius Wealth Management

Shyam Gidumal

WeWork

Peter Harbilas

CornerStone Partners LLC

Andy Harris

Janssen

Ian Harris

Investing Company

Lily Jung Henson

Piedmont Henry Hospital

Bonnie Higgins

Retired

William Holley

Parker, Hudson, Rainer & Dobbs, LLP

Mark Livingston

Rick McDermott

McDermott IP Law

William T Monahan

Imation Corporation

Elizabeth Page

Russell Parker

rpmAUM

Chet Porembski

Nannette L Reid

US Bank

Elizabeth Rodriguez

JLL's Project & Development Services

Tobi Rogowsky

David M Rottkamp

Grassi & Co.

Robert K Shin, MD

Georgetown Multiple Sclerosis and Nueroimmunology Center

Diana Twadell

Integrity Employee Benefits and Insurance Services

Laura Vaccaro

Valero Energy

Wendi Wasik

Wasik Consulting

Malcolm P Wattman

Retired

Caroline Whitacre, PhD

Retired

Mitzi Williams

Joi Life Wellness Group

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 7/7/2023

Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity

White/Caucasian/European

Gender identity

Female, Not transgender (cisgender)

Sexual orientation

Heterosexual or straight

Race & ethnicity

Gender identity

Sexual orientation

No data

Disability

Equity strategies

Last updated: 07/07/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data

We review compensation data across the organization (and by staff levels) to identify disparities by race.
We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.

Policies and processes

We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
We have community representation at the board level, either on the board itself or through a community advisory board.
We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.

Contractors

Fiscal year ending

Professional fundraisers

Fiscal year ending

SOURCE: IRS Form 990 Schedule G

Solicitation activities

Gross receipts from fundraising

Retained by organization

Paid to fundraiser

National Multiple Sclerosis Society HQ

Mission

Is this your nonprofit?

Programs and results

What we aim to solve

Our programs

Client Programs

Research

Where we work

Our results

Evaluation documents

Percentage of people who connected to Society resources and support who felt more confident in addressing the challenges of MS.

Totals By Year

Population(s) Served

Related Program

Type of Metric

Direction of Success

Context Notes

Our Sustainable Development Goals

Goals & Strategy

Reports and documents

Charting impact

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

What have they accomplished so far and what's next?

How we listen

Financials

Financial documents

Revenue vs. expenses: breakdown

Liquidity in 2022 info

2.65

Months of cash in 2022 info

5.3

Fringe rate in 2022 info

29%

Funding sources info

Assets & liabilities info

Financial data

Digitizing IRS form 990 data

National Multiple Sclerosis Society

National Multiple Sclerosis Society

National Multiple Sclerosis Society

Business model indicators

Capital structure indicators

Key data checks

Operations

Documents

Principal Officer

Cyndi Zagieboylo

Number of employees

National Multiple Sclerosis Society

Compensation data

National Multiple Sclerosis Society

Compensation data

National Multiple Sclerosis Society

Board of directors data

Richard Knutson

Board leadership practices

Board orientation and education

CEO oversight

Ethics and transparency

Board composition

Board performance

Organizational demographics

Leadership

Race & ethnicity

Gender identity

Sexual orientation

Disability

Equity strategies

Contractors

Professional fundraisers

Solicitation activities

Liquidity in 2022

Months of cash in 2022

Fringe rate in 2022

Funding sources

Assets & liabilities