Cutaneous Lymphoma Foundation

Warren, MI | http://clfoundation.org

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GuideStar Charity Check

EIN: 38-3443135

Contributions tax deductible
as of March 2023

IRS BMF 509(a)(1)
as of March 13, 2023

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Charity Check report

Mission

Vision: A life free of cutaneous lymphoma Mission: Eliminate the burden of cutaneous lymphoma by; • Promoting awareness • Providing education • Advancing patient care • Fostering research

Ruling year info

1999

Chief Executive Officer

Ms. Susan Thornton

Main address

PO Box 969

Warren, MI 48090 USA

Show more contact info

Formerly known as

Mycosis Fungoides Foundation

EIN

38-3443135

Subject area info

Mental health counseling

Skin conditions

Cancers

Population served info

Adults

Families

People with diseases and illnesses

NTEE code info

Cancer (G30)

Cancer Research (H30)

Counseling Support Groups (F60)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Show Forms 990

Communication

Programs and results

Reports and documents

What we aim to solve

This profile needs more info.

If it is your nonprofit, add a problem overview.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Educational Events

Through both in person and online we offer over 20 educational events annually; hour long virtual as well as evening, one day and two day in person programs for people affected by cutaneous lymphomas

Population(s) Served

Adults

Online Learning Center

The Foundation has a robust online learning center located within our website. This includes vetted electronic educational publications, videos and articles, along with stories of help and hope, treatment center and clinical trial listings.

Population(s) Served

People with diseases and illnesses

Families

Research

Through our Research Awards Program the Foundation supports research and researchers in the area of cutaneous lymphoma

Population(s) Served

Adults

Publications and Educational Materials

We offer a wide verity of educational and inspirational publications available for distribution in hard copy. Newsletters, Patient's Guide to Cutaneous Lymphoma, an assortment of disease specific Fast Facts brochures, Supplements to the Guide, and others.

Population(s) Served

People with diseases and illnesses

Families

Patient Advocacy and Awareness

We provide the patient's voice and perspective across a wide variety of global alliances, governments, regulatory, as well as collaborative efforts.

Where we work

External reviews

Videos

Financials

Cutaneous Lymphoma Foundation

Fiscal year: Jul 01 - Jun 30

Financial documents

Yes, financials were audited by an independent accountant.

Revenue vs. expenses: breakdown

SOURCE: IRS Form 990

NET GAIN/LOSS: in

Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2021

SOURCE: IRS Form 990

37.96

Average of 14.99 over 10 years

Months of cash in 2021

SOURCE: IRS Form 990

25.4

Average of 15.2 over 10 years

Fringe rate in 2021

SOURCE: IRS Form 990

21%

Average of 20% over 10 years

Funding sources

Source: IRS Form 990

Assets & liabilities

Source: IRS Form 990

Financial data

Source: IRS Form 990

Digitizing IRS form 990 data

Cutaneous Lymphoma Foundation

Revenue & expenses

Fiscal Year: Jul 01 - Jun 30

SOURCE: IRS Form 990

Fiscal year ending: Download Data

Revenue
Contributions	$495,195
Program Services	$0
Investments	$6,376
Special Events	$0
Sales	$579
Other	$0
Total Revenue	$502,150

Expenses
Grants	$0
Salaries & Employee Benefits	$151,618
Professional Fees	$10,570
Occupancy	$0
Printing, Publications, Postage, etc.	$23,597
Other Expenses	$182,937
Total Expenses	$368,722
Net Gain/Loss	$133,428

Revenue
Contributions	$1,039,040
Government Grants	$0
Program Services	$0
Investments	$4,444
Special Events	$0
Sales	$0
Other	$213
Total Revenue	$1,043,697

Expenses
Program Services	$493,463
Administration	$31,852
Fundraising	$10,663
Total Expenses	$535,978
Net Gain/Loss	$507,719

Functional expenses
Accounting Fees	$7,524
Advertising & Promotion	$0
Information Technology Expenses	$3,367
Insurance Expenses	$0
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$745,451
Government Grants	$0
Program Services	$0
Investments	$1,342
Special Events	$0
Sales	$0
Other	$440
Total Revenue	$747,233

Expenses
Program Services	$458,012
Administration	$69,915
Fundraising	$25,775
Total Expenses	$553,702
Net Gain/Loss	$193,531

Functional expenses
Accounting Fees	$11,051
Advertising & Promotion	$0
Information Technology Expenses	$38,131
Insurance Expenses	$928
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$1,507
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$436,532
Government Grants	$0
Program Services	$0
Investments	$3,822
Special Events	$0
Sales	$0
Other	$6
Total Revenue	$440,360

Expenses
Program Services	$458,837
Administration	$88,253
Fundraising	$50,065
Total Expenses	$597,155
Net Gain/Loss	($156,795)

Functional expenses
Accounting Fees	$8,260
Advertising & Promotion	$0
Information Technology Expenses	$41,100
Insurance Expenses	$1,281
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$416,954
Government Grants	$0
Program Services	$0
Investments	$561
Special Events	$0
Sales	($402)
Other	$0
Total Revenue	$417,113

Expenses
Program Services	$435,650
Administration	$89,110
Fundraising	$76,744
Total Expenses	$601,504
Net Gain/Loss	($184,391)

Functional expenses
Accounting Fees	$0
Advertising & Promotion	$0
Information Technology Expenses	$20,572
Insurance Expenses	$3,393
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$862,353
Government Grants	$0
Program Services	$0
Investments	$941
Special Events	$0
Sales	$226
Other	$0
Total Revenue	$863,520

Expenses
Program Services	$689,573
Administration	$82,753
Fundraising	$70,273
Total Expenses	$842,599
Net Gain/Loss	$20,921

Functional expenses
Accounting Fees	$0
Advertising & Promotion	$0
Information Technology Expenses	$23,869
Insurance Expenses	$2,507
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$738,196
Government Grants	$0
Program Services	$0
Investments	$548
Special Events	$0
Sales	($673)
Other	$600
Total Revenue	$738,671

Expenses
Program Services	$742,371
Administration	$71,933
Fundraising	$71,725
Total Expenses	$886,029
Net Gain/Loss	($147,358)

Functional expenses
Accounting Fees	$0
Advertising & Promotion	$0
Information Technology Expenses	$9,183
Insurance Expenses	$2,557
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$720,588
Government Grants	$0
Program Services	$0
Investments	$325
Special Events	$0
Sales	($10)
Other	$0
Total Revenue	$720,903

Expenses
Program Services	$788,925
Administration	$68,329
Fundraising	$52,823
Total Expenses	$910,077
Net Gain/Loss	($189,174)

Functional expenses
Accounting Fees	$5,185
Advertising & Promotion	$5,012
Information Technology Expenses	$5,964
Insurance Expenses	$2,642
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$801,910
Government Grants	$0
Program Services	$0
Investments	$201
Special Events	$0
Sales	($172)
Other	$0
Total Revenue	$801,939

Expenses
Program Services	$695,708
Administration	$98,704
Fundraising	$58,377
Total Expenses	$852,789
Net Gain/Loss	($50,850)

Functional expenses
Accounting Fees	$5,410
Advertising & Promotion	$640
Information Technology Expenses	$13,293
Insurance Expenses	$2,606
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$890,365
Government Grants	$0
Program Services	$0
Investments	$211
Special Events	$0
Sales	$21
Other	$0
Total Revenue	$890,597

Expenses
Program Services	$599,963
Administration	$90,501
Fundraising	$37,490
Total Expenses	$727,954
Net Gain/Loss	$162,643

Functional expenses
Accounting Fees	$5,395
Advertising & Promotion	$39
Information Technology Expenses	$7,434
Insurance Expenses	$2,778
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,068,215
Government Grants	$0
Program Services	$0
Investments	$3,758
Special Events	$0
Sales	$0
Other	$0
Total Revenue	$1,071,973

Expenses
Program Services	$670,017
Administration	$103,537
Fundraising	$67,223
Total Expenses	$840,777
Net Gain/Loss	$231,196

Functional expenses
Accounting Fees	$5,445
Advertising & Promotion	$0
Information Technology Expenses	$10,503
Insurance Expenses	$2,774
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,007,081
Government Grants	$0
Program Services	$0
Investments	$2,176
Special Events	$0
Sales	$0
Other	$0
Total Revenue	$1,009,257

Expenses
Program Services	$697,741
Administration	$121,592
Fundraising	$60,394
Total Expenses	$879,727
Net Gain/Loss	$129,530

Functional expenses
Accounting Fees	$5,465
Advertising & Promotion	$0
Information Technology Expenses	$14,983
Insurance Expenses	$4,328
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,019,208
Government Grants	$80,400
Program Services	$0
Investments	$602
Special Events	$0
Sales	$0
Other	$0
Total Revenue	$1,100,210

Expenses
Program Services	$565,042
Administration	$119,108
Fundraising	$35,068
Total Expenses	$719,218
Net Gain/Loss	$380,992

Functional expenses
Accounting Fees	$5,525
Advertising & Promotion	$0
Information Technology Expenses	$36,958
Insurance Expenses	$6,060
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Cutaneous Lymphoma Foundation

Balance sheet

Fiscal Year: Jul 01 - Jun 30

SOURCE: IRS Form 990

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: Download Data

Assets	Jul 01, 2008	Jun 30, 2009	Change
Contributions	$495,195
Cash & Equivalents	$537,900	$683,393	$145,493
Fixed Assets (LBE - Depreciation)	$0	$0	$0
Other	$5,731	$4,802	($929)
Total Assets	$543,631	$688,195	$144,564

Liabilities	Jul 01, 2008	Jun 30, 2009	Change
Total Liabilities	$1,317	$12,453	$11,136

Fund balance	Jul 01, 2008	Jun 30, 2009	Change
Net Assets	$542,314	$675,742	$133,428

Assets	Jul 01, 2009	Jun 30, 2010	Change
Contributions	$1,039,040
Cash & Equivalents	$683,393	$1,110,905	$427,512
Accounts Receivable	$0	$0	$0
Pledges & Grants Receivable	$0	$74,500	$74,500
Receivable, Other	$0	$0	$0
Inventories for Sale or Use	$0	$0	$0
Investment, Securities	$0	$0	$0
Investment, Other	$0	$0	$0
Fixed Assets (LBE - Depreciation)	$0	$0	$0
Other	$4,802	$2,266	($2,536)
Total Assets	$688,195	$1,187,671	$499,476

Liabilities	Jul 01, 2009	Jun 30, 2010	Change
Accounts Payable	$12,454	$4,211	($8,243)
Grants Payable	$0	$0	$0
Deferred Revenue	$0	$0	$0
Loans and Notes	$0	$0	$0
Tax-Exempt Bond Liabilities	$0	$0	$0
Other	$0	$0	$0
Total Liabilities	$12,454	$4,211	($8,243)

Fund balance	Jul 01, 2009	Jun 30, 2010	Change
Temporarily Restricted Net Assets	$0	$591,813	$591,813
Permanently Restricted Net Assets	$0	$0	$0
Total Restricted Net Assets	$0	$591,813	$591,813
Unrestricted Net Assets	$675,741	$591,647	($84,094)
Net Assets	$675,741	$1,183,460	$507,719

Assets	Jul 01, 2010	Jun 30, 2011	Change
Contributions	$745,451
Cash & Equivalents	$1,110,905	$1,256,353	$145,448
Accounts Receivable	$0	$0	$0
Pledges & Grants Receivable	$74,500	$35,775	($38,725)
Receivable, Other	$0	$0	$0
Inventories for Sale or Use	$0	$0	$0
Investment, Securities	$0	$5,973	$5,973
Investment, Other	$0	$0	$0
Fixed Assets (LBE - Depreciation)	$0	$0	$0
Other	$2,266	$3,802	$1,536
Total Assets	$1,187,671	$1,301,903	$114,232

Liabilities	Jul 01, 2010	Jun 30, 2011	Change
Accounts Payable	$4,211	$19,630	$15,419
Grants Payable	$0	$0	$0
Deferred Revenue	$0	$0	$0
Loans and Notes	$0	$0	$0
Tax-Exempt Bond Liabilities	$0	$0	$0
Other	$0	$0	$0
Total Liabilities	$4,211	$19,630	$15,419

Fund balance	Jul 01, 2010	Jun 30, 2011	Change
Temporarily Restricted Net Assets	$591,813	$621,524	$29,711
Permanently Restricted Net Assets	$0	$0	$0
Total Restricted Net Assets	$591,813	$621,524	$29,711
Unrestricted Net Assets	$591,647	$660,749	$69,102
Net Assets	$1,183,460	$1,282,273	$98,813

Assets	Jul 01, 2011	Jun 30, 2012	Change
Contributions	$436,532
Cash & Equivalents	$1,256,353	$1,121,695	($134,658)
Accounts Receivable	$0	$0	$0
Pledges & Grants Receivable	$35,775	$25,000	($10,775)
Receivable, Other	$0	$0	$0
Inventories for Sale or Use	$3,802	$4,307	$505
Investment, Securities	$5,973	$0	($5,973)
Investment, Other	$0	$0	$0
Fixed Assets (LBE - Depreciation)	$0	$3,221	$3,221
Other	$0	$2,352	$2,352
Total Assets	$1,301,903	$1,156,575	($145,328)

Liabilities	Jul 01, 2011	Jun 30, 2012	Change
Accounts Payable	$19,630	$24,226	$4,596
Grants Payable	$0	$0	$0
Deferred Revenue	$0	$0	$0
Loans and Notes	$0	$0	$0
Tax-Exempt Bond Liabilities	$0	$0	$0
Other	$0	$6,871	$6,871
Total Liabilities	$19,630	$31,097	$11,467

Fund balance	Jul 01, 2011	Jun 30, 2012	Change
Temporarily Restricted Net Assets	$621,524	$616,124	($5,400)
Permanently Restricted Net Assets	$0	$0	$0
Total Restricted Net Assets	$621,524	$616,124	($5,400)
Unrestricted Net Assets	$660,749	$509,354	($151,395)
Net Assets	$1,282,273	$1,125,478	($156,795)

Cutaneous Lymphoma Foundation

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jul 01 - Jun 30

SOURCE: IRS Form 990

This snapshot of Cutaneous Lymphoma Foundation’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

Created in partnership with

Fiscal year: Jul 01 - Jun 30 View full report Download data

Business model indicators

Profitability	2017	2018	2019	2020	2021
Unrestricted surplus (deficit) before depreciation	$12,483	$79,607	$130,568	$33,241	$350,769
As % of expenses	1.5%	11.2%	15.9%	3.9%	49.7%
Unrestricted surplus (deficit) after depreciation	$12,483	$63,730	$109,398	$12,072	$336,642
As % of expenses	1.5%	8.8%	13.0%	1.4%	46.8%

Revenue composition
Total revenue (unrestricted & restricted)	$801,939	$890,597	$1,071,973	$1,009,257	$1,100,210
Total revenue, % change over prior year	11.2%	11.1%	20.4%	-5.9%	9.0%
Program services revenue	0.0%	0.0%	0.0%	0.0%	0.0%
Membership dues	0.0%	0.0%	0.0%	0.0%	0.0%
Investment income	0.0%	0.0%	0.4%	0.2%	0.1%
Government grants	0.0%	0.0%	0.0%	0.0%	7.3%
All other grants and contributions	100.0%	100.0%	99.6%	99.8%	92.6%
Other revenue	0.0%	0.0%	0.0%	0.0%	0.0%

Expense composition
Total expenses before depreciation	$852,789	$712,077	$819,607	$858,558	$705,091
Total expenses, % change over prior year	-6.3%	-16.5%	15.1%	4.8%	-17.9%
Personnel	50.6%	56.6%	52.5%	52.5%	61.3%
Professional fees	5.0%	10.3%	9.4%	7.1%	8.5%
Occupancy	2.1%	2.5%	2.0%	2.3%	2.6%
Interest	0.0%	0.0%	0.0%	0.0%	0.0%
Pass-through	6.2%	0.4%	0.7%	17.8%	7.1%
All other expenses	36.0%	30.2%	35.4%	20.2%	20.5%

Full cost components (estimated)	2017	2018	2019	2020	2021
Total expenses (after depreciation)	$852,789	$727,954	$840,777	$879,727	$719,218
One month of savings	$71,066	$59,340	$68,301	$71,547	$58,758
Debt principal payment	$0	$0	$0	$0	$80,400
Fixed asset additions	$51,354	$0	$0	$0	$26,499
Total full costs (estimated)	$975,209	$787,294	$909,078	$951,274	$884,875

Capital structure indicators

Liquidity	2017	2018	2019	2020	2021
Months of cash	7.8	12.8	13.4	16.5	25.4
Months of cash and investments	7.8	12.8	13.4	16.5	25.4
Months of estimated liquid unrestricted net assets	2.1	3.6	5.1	5.3	12.0

Balance sheet composition	2017	2018	2019	2020	2021
Cash	$556,671	$759,817	$915,500	$1,177,146	$1,492,588
Investments	$0	$0	$0	$0	$0
Receivables	$60,000	$0	$110,274	$5,000	$0
Gross land, buildings, equipment (LBE)	$55,219	$63,510	$67,375	$67,375	$90,009
Accumulated depreciation (as a % of LBE)	7.0%	25.0%	60.7%	92.1%	80.4%
Liabilities (as a % of assets)	14.6%	9.1%	8.4%	9.8%	2.6%
Unrestricted net assets	$198,590	$262,320	$371,718	$383,790	$720,432
Temporarily restricted net assets	$376,036	$474,949	$596,747	N/A	N/A
Permanently restricted net assets	$0	$0	$0	N/A	N/A
Total restricted net assets	$376,036	$474,949	$596,747	$714,205	$758,555
Total net assets	$574,626	$737,269	$968,465	$1,097,995	$1,478,987

Key data checks

Key data checks	2017	2018	2019	2020	2021
Material data errors	No	No	No	No	No

Operations

The people, governance practices, and partners that make the organization tick.

Documents

Letter of Determination

Form 1023/1024 is not available for this organization

Chief Executive Officer

Ms. Susan Thornton

LinkedIn profile

Number of employees

Source: IRS Form 990

Cutaneous Lymphoma Foundation

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation

Other

Show data for fiscal year

Compensation data

Download up to 5 most recent years of officer and director compensation data for this organization

Cutaneous Lymphoma Foundation

Highest paid employees

SOURCE: IRS Form 990

Compensation

Other

Show data for fiscal year

Compensation data

Download up to 5 most recent years of highest paid employee data for this organization

Cutaneous Lymphoma Foundation

Board of directors
as of 11/02/2022

SOURCE: Self-reported by organization

Board of directors data

Download the most recent year of board of directors data for this organization

Board co-chair

Ms. Luarel Carlson

No Affiliation

Board co-chair

Mr David Elefant

Michael Young

Susan Thornton

Laurel Carlson

Marianne Tawa

Jeff Ward

Steven Horwitz

Youn Kim

David Elefant

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 11/2/2022

Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

No data

Race & ethnicity

No data

Gender identity

No data

Sexual orientation

No data

Disability

No data

Cutaneous Lymphoma Foundation

Mission

Is this your nonprofit?

Programs and results

Reports and documents

What we aim to solve

This profile needs more info.

Our programs

Patient Educational Events

Online Learning Center

Research

Publications and Educational Materials

Patient Advocacy and Awareness

Where we work

Financials

Financial documents

Revenue vs. expenses: breakdown

Liquidity in 2021 info

37.96

Months of cash in 2021 info

25.4

Fringe rate in 2021 info

21%

Funding sources info

Assets & liabilities info

Financial data

Digitizing IRS form 990 data

Cutaneous Lymphoma Foundation

Cutaneous Lymphoma Foundation

Cutaneous Lymphoma Foundation

Business model indicators

Capital structure indicators

Key data checks

Operations

Documents

Chief Executive Officer

Ms. Susan Thornton

Number of employees

Cutaneous Lymphoma Foundation

Compensation data

Cutaneous Lymphoma Foundation

Compensation data

Cutaneous Lymphoma Foundation

Board of directors data

Ms. Luarel Carlson

Mr David Elefant

Board leadership practices

Board orientation and education

CEO oversight

Ethics and transparency

Board composition

Board performance

Organizational demographics

Leadership

Race & ethnicity

Gender identity

Sexual orientation

Disability

Liquidity in 2021

Months of cash in 2021

Fringe rate in 2021

Funding sources

Assets & liabilities