PLATINUM2024

Childrens Leukemia Research Association Inc

Funding blood cancer research, supporting families.

aka Childrens Leukemia Research Association Inc   |   GARDEN CITY, NY   |  www.childrensleukemia.org

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GuideStar Charity Check

Childrens Leukemia Research Association Inc

EIN: 11-2106778


Mission

CLRA supports research efforts towards finding the causes and a cure for leukemia and assists families in meeting the financial obligations incurred in treatment. We strive to be at the forefront of funding medical expenses for families affected by blood cancers and supporting groundbreaking hospital research, ultimately leading to enhanced treatments and a cure.

Notes from the nonprofit

As a small not-for-profit organization competing against major organizations who receive corporate/political huge sums of donation dollars, we do all possible to meet our funding goals and enhance donor base. Most importantly we actively build constituent, patient and researcher relationships adding a personalized and appreciative touch.

Ruling year info

1966

President

Mr. Pasquale "Pat" Alesia

Main address

585 STEWART AVENUE Suite 520

GARDEN CITY, NY 11530 USA

Show more contact info

Formerly known as

National Leukemia Research Association

EIN

11-2106778

Subject area info

Health care financing

Leukemia

Diseases and conditions

Population served info

Children and youth

Families

Caregivers

People with diseases and illnesses

Academics

NTEE code info

Fund Raising and/or Fund Distribution (G12)

Cancer Research (H30)

Cancer Research (H30)

What we aim to solve

SOURCE: Self-reported by organization

The greatest problem we face is building our donor base. Due to previous mis-management and inadequate oversight, former personnel was replaced in the last quarter of 2018. In addition, ineffective board members and the Executive Director were relieved of their duties. In 2019 the new team was well into re-establishing and refining all administrative and operational protocol. By 2020 the organization was prepared implement new policies and procedures. Then COVID hit and seriously impacted our projected strategic plan. Unfortunately, this setback spilled through 2021. By the last quarter of 2021, it was determined a revised evaluation was needed. We were awarded a $10,000.00 Grant through Nassau County to help offset the cost of new technology required to promote and support our 2 prong mission of financing research grants to find a cure and more effective treatments for Leukemia and all blood cancers and financially assisting patients of all ages with co-pay medical expenses.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Aid

Children’s Leukemia Research Association is dedicated to supporting blood cancer patients across the United States. We love to talk to our patients, to learn their names and stories. We get to know our patients because we care. We understand the need for financial assistance with medical bills. This is what sets our small and mighty organization apart from others.
Since the early 2000s, we have provided financial assistance to children and adults with blood cancer and their families. While there have been great strides in research and treatments, there is still a long way to go. We aren’t ready to stop.

Population(s) Served
People with diseases and illnesses
Families
Children and youth
Non-adult children
Adults

For more than 55 years, the Children’s Leukemia Research Association has been on the leading edge of blood cancer research. Each year our Medical Advisory Committee of internationally known hematologists reviews research proposals from doctors nationwide. To date, we have supported more than 550 researchers with more than $5,000,000 of grant money to support the most promising blood cancer research that is not duplicated elsewhere.

Population(s) Served
Academics
Researchers

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Patient Aid

This metric is no longer tracked.
Totals By Year
Population(s) Served

Terminally ill people, Chronically ill people

Related Program

Patient Aid

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Financial support for children and adults with a blood cancer diagnosis.

Research Grants

This metric is no longer tracked.
Totals By Year
Population(s) Served

Researchers

Related Program

Research Grants

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Number of children receiving medical services

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people

Related Program

Patient Aid

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Context Notes

We provide financial assistance for all age groups.

Average grant amount

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth

Related Program

Patient Aid

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of research studies funded

This metric is no longer tracked.
Totals By Year
Related Program

Research Grants

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Number of chronically ill patients served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people

Related Program

Patient Aid

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To raise more funds enabling our organization to grow and exceed our 2 prong mission of financing scientific research grants to find a cure and/or more effective treatments for Leukemia, Lymphoma and all blood cancers and increase the number of patients we can financially assist with treatment and pharmaceutical co-pay expenses.

C.L.R.A antiquated By-Laws were revised in 2021 as well as organizing a relevant and engaged board. Most recently we launched new technology rebranding and promoting the association consisting of a new website, enhanced all social media, efficient CRM platform, automated application through our website for researchers and patients.
We additionally reformatted and elevated our donor recognition program and will be hosting 2 fundraising events during the month of October. We are doing all possible to promote and advertise the amazing work we do as a very small, but mighty charitable organization.

In addition to the above strategies, to keep costs at a minimum, the C.L.R.A staff is working in concert to reach as many individuals, businesses, hospitals, labor unions, religious organizations, local newspapers, social media and word of mouth to publicize our work. In addition, we attend networking events and are in the process of planning future fundraising events. We also attend a significant number of virtual webinars to further enhance our skillset and implement best business practices. Our organization consists of 2 employees and 5 board members. By the use of all technology available to us, we optimize our ability to meet our goals and hopefully to exceed our expectation in the future.

Strategic Plan 2022

Action
Enhance technology Implemented fully automated patient Aid Program/ look for additional virtual
methods of promoting CLRA
Build donor base All hands-on deck promoting CLRA through Face Book which, combined with board engagement will reach thousands of FB users

Cultivate current Constituents Stay in touch using tools we currently have and finding new virtual paths most
applicable to meet our specific needs as a small non-profit organization
Website update In process of repositioning pertinent information on landing page / updating
medical committee tab- substituting outdated information with recently received
revisions / entering most recent grant recipients to the list of grant awards.
Totally automated P/A application / claims replaced former manual procedure
Staff to attend Webinars To optimize knowledge of virtual development and fundraising
Determine best practices Follow standard non-profit models of appeals in a novel virtual environment,
which is now the new norm
Optimize board engagement Interim Zoom informative / brainstorming meetings

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time, It is hard to come up with good questions to ask people, It is difficult to get honest feedback from the people we serve, It is difficult to identify actionable feedback

Financials

Childrens Leukemia Research Association Inc
Fiscal year: Jan 01 - Dec 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2022 info

SOURCE: IRS Form 990

128.17

Average of 145.70 over 10 years

Months of cash in 2022 info

SOURCE: IRS Form 990

4

Average of 8.3 over 10 years

Fringe rate in 2022 info

SOURCE: IRS Form 990

8%

Average of 9% over 10 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

Childrens Leukemia Research Association Inc

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

Childrens Leukemia Research Association Inc

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

Childrens Leukemia Research Association Inc

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

This snapshot of Childrens Leukemia Research Association Inc’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

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Business model indicators

Profitability info 2018 2019 2020 2021 2022
Unrestricted surplus (deficit) before depreciation -$550,197 -$64,688 -$492,320 -$142,544 -$652,304
As % of expenses -99.2% -11.9% -79.4% -30.6% -112.4%
Unrestricted surplus (deficit) after depreciation -$550,841 -$68,529 -$494,971 -$144,381 -$653,662
As % of expenses -99.2% -12.5% -79.5% -30.8% -112.3%
Revenue composition info
Total revenue (unrestricted & restricted) $261,458 $276,391 $122,000 $360,724 $221,028
Total revenue, % change over prior year -73.0% 5.7% -55.9% 195.7% -38.7%
Program services revenue 0.0% 0.0% 0.0% 0.0% 0.0%
Membership dues 0.0% 0.0% 0.0% 0.0% 0.0%
Investment income 31.5% 33.7% 25.3% 15.2% 18.2%
Government grants 0.0% 0.0% 0.0% 0.0% 4.5%
All other grants and contributions 57.2% 44.7% 44.4% 12.7% 34.0%
Other revenue 11.3% 21.6% 30.3% 72.0% 43.3%
Expense composition info
Total expenses before depreciation $554,566 $545,454 $619,866 $466,330 $580,492
Total expenses, % change over prior year -49.3% -1.6% 13.6% -24.8% 24.5%
Personnel 10.7% 16.3% 13.9% 19.2% 17.9%
Professional fees 11.8% 2.7% 3.8% 11.0% 2.6%
Occupancy 4.3% 6.0% 4.6% 6.3% 5.6%
Interest 0.0% 0.5% 0.0% 0.0% 0.0%
Pass-through 34.3% 22.0% 35.5% 19.3% 20.7%
All other expenses 39.0% 52.5% 42.3% 44.3% 53.1%
Full cost components (estimated) info 2018 2019 2020 2021 2022
Total expenses (after depreciation) $555,210 $549,295 $622,517 $468,167 $581,850
One month of savings $46,214 $45,455 $51,656 $38,861 $48,374
Debt principal payment $0 $0 $0 $0 $0
Fixed asset additions $13,276 $0 $0 $0 $0
Total full costs (estimated) $614,700 $594,750 $674,173 $507,028 $630,224

Capital structure indicators

Liquidity info 2018 2019 2020 2021 2022
Months of cash 14.8 5.9 5.2 7.4 4.0
Months of cash and investments 57.9 57.2 41.2 50.4 28.0
Months of estimated liquid unrestricted net assets 58.6 58.2 41.7 51.7 28.0
Balance sheet composition info 2018 2019 2020 2021 2022
Cash $684,719 $267,969 $266,272 $289,220 $195,762
Investments $1,990,842 $2,331,652 $1,860,275 $1,671,014 $1,160,125
Receivables $8,859 $8,201 $2,035 $47,215 $9,926
Gross land, buildings, equipment (LBE) $25,737 $23,201 $23,201 $23,201 $23,201
Accumulated depreciation (as a % of LBE) 50.9% 62.1% 73.5% 81.5% 87.3%
Liabilities (as a % of assets) 0.9% 0.5% 1.1% 0.5% 0.8%
Unrestricted net assets $2,721,183 $2,652,654 $2,157,683 $2,013,302 $1,359,640
Temporarily restricted net assets $0 N/A N/A N/A N/A
Permanently restricted net assets $0 N/A N/A N/A N/A
Total restricted net assets $0 $0 $0 $0 $0
Total net assets $2,721,183 $2,652,654 $2,157,683 $2,013,302 $1,359,640

Key data checks

Key data checks info 2018 2019 2020 2021 2022
Material data errors No No No No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Form 1023/1024 is not available for this organization

President

Mr. Pasquale "Pat" Alesia

Pasquale Pat Alesia boasts a distinguished and multi-faceted career. He obtained his academic qualifications at the City College of New York, where he diligently pursued degrees in Education Administration and Supervision. Over a span of 30 years, Pat made significant contributions to the NYC Board of Education in a range of roles. In his military journey, he was commissioned through Army ROTC and undertook active duty from 1969 to 1972, including deployments with the 82nd Airborne Division and in Vietnam. Subsequently, within the New York Army National Guard, he ascended to the rank of Colonel, further achieving the prestigious rank of Brigadier General on the New York State Retired List. With a profound sense of family, he finds pride in his role as a loving grandparent to 12 grandchildren

Number of employees

Source: IRS Form 990

Childrens Leukemia Research Association Inc

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

Childrens Leukemia Research Association Inc

Board of directors
as of 03/01/2024
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board co-chair

Mr. Pasquale Alesia

Children's Leukemia Research Association

Term: 2023 -


Board co-chair

Dr. Carol Hassett

Children's Leukemia Research Association

Term: 2023 -

John Digillio

Childrens' Leukemia Research Association

Hubert Gibbons

Children's Leukemia Research Association

Angela Russo

Children's Leukemia Research Association

Tammy Legrys

Children's Leukemia Research Association

Glenn Hoffman

Children's Leukemia Research Association

John Cioni

Children's Leukemia Research Association

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Contractors

Fiscal year ending

Professional fundraisers

Fiscal year ending

SOURCE: IRS Form 990 Schedule G

Solicitation activities
Gross receipts from fundraising
Retained by organization
Paid to fundraiser