PLATINUM2022

Childrens Leukemia Research Association Inc

aka Childrens Leukemia Research Association Inc   |   GARDEN CITY, NY   |  www.childrensleukemia.org
GuideStar Charity Check

Childrens Leukemia Research Association Inc

EIN: 11-2106778


Mission

CLRA has been helping Americans for over 50 years. Under the direction of our Medical Advisory Committee, CLRA is committed to directing the funds of the Association to the most promising leukemia (BLOOD CANCER) research projects in the hopes of isolating the causes, finding a cure, and where funding is not duplicated from other sources. Providing financial assistant to children and adults helps lessen the immense financial burden of treatment. Advances in treatment and the ability to continue treatment brings patients closer to remission. The CLRA is a not-for-profit 501(c)3 organization governed by a volunteer Bo The CLRA is a not-for-profit 501(c)3 organization governed by a volunteer Board of Directors. All our work is funded by voluntary donations from generous and caring Americans.

Notes from the nonprofit

As a small not-for-profit organization competing against major organizations who receive corporate/political huge sums of donation dollars, we do all possible to meet our funding goals and enhance donor base. Most importantly we actively build constituent, patient and researcher relationships adding a personalized and appreciative touch.

Ruling year info

1966

President

Mr. Anthony R Pasqua

Main address

585 STEWART AVENUE Suite 520

GARDEN CITY, NY 11530 USA

Show more contact info

Formerly known as

National Leukemia Research Association

EIN

11-2106778

Subject area info

Diseases and conditions

Leukemia

Population served info

Children and youth

Families

Caregivers

People with diseases and illnesses

Academics

NTEE code info

Fund Raising and/or Fund Distribution (G12)

Cancer Research (H30)

Cancer Research (H30)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Communication

What we aim to solve

SOURCE: Self-reported by organization

The greatest problem we face is building our donor base. Due to previous mis-management and inadequate oversight, former personnel was replaced in the last quarter of 2018. In addition, ineffective board members and the Executive Director were relieved of their duties. In 2019 the new team was well into re-establishing and refining all administrative and operational protocol. By 2020 the organization was prepared implement new policies and procedures. Then COVID hit and seriously impacted our projected strategic plan. Unfortunately, this setback spilled through 2021. By the last quarter of 2021, it was determined a revised evaluation was needed. We were awarded a $10,000.00 Grant through Nassau County to help offset the cost of new technology required to promote and support our 2 prong mission of financing research grants to find a cure and more effective treatments for Leukemia and all blood cancers and financially assisting patients of all ages with co-pay medical expenses.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Children's Leukemia Research Association

CLRA has been helping Americans for over 50 years. The Children’s Leukemia Research Association, Inc., formerly known as the National Leukemia Research Association, was founded in 1965 to support research efforts towards finding the causes and cure for Leukemia. In addition CLRA provides patients with co-pay financial assistance for treatment and medications.

Population(s) Served
People with diseases and illnesses
Families

CLRA has been helping Americans for over 50 years.
Under the direction of our Medical Advisory Committee, CLRA is committed to directing the funds of the Association to the most promising leukemia (BLOOD CANCER) research projects in the hopes of isolating the causes, finding a cure, and where funding is not duplicated from other sources.

Population(s) Served
Academics
Caregivers

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Patient Aid

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

Children's Leukemia Research Association

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Research Grants

This metric is no longer tracked.
Totals By Year
Population(s) Served

Researchers

Related Program

Awarding Scientific Research Grants

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Context Notes

Due to COVID 2020 recipients requested extensions for 2021. Fewer qualifying requests for research grants in 2021

Number of industry standards/practices developed by nonprofit

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

Children's Leukemia Research Association

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Context Notes

Implemented virtual and technical industry standard programs

Number of families served in cancer treatment

This metric is no longer tracked.
Totals By Year
Population(s) Served

Researchers, Families

Related Program

Children's Leukemia Research Association

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Number of children receiving medical services

This metric is no longer tracked.
Totals By Year
Related Program

Children's Leukemia Research Association

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Context Notes

We provide financial assistance for all age groups.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To raise more funds enabling our organization to grow and exceed our 2 prong mission of financing scientific research grants to find a cure and/or more effective treatments for Leukemia, Lymphoma and all blood cancers and increase the number of patients we can financially assist with treatment and pharmaceutical co-pay expenses.

C.L.R.A antiquated By-Laws were revised in 2021 as well as organizing a relevant and engaged board. Most recently we launched new technology rebranding and promoting the association consisting of a new website, enhanced all social media, efficient CRM platform, automated application through our website for researchers and patients.
We additionally reformatted and elevated our donor recognition program and will be hosting 2 fundraising events during the month of October. We are doing all possible to promote and advertise the amazing work we do as a very small, but mighty charitable organization.

In addition to the above strategies, to keep costs at a minimum, the C.L.R.A staff is working in concert to reach as many individuals, businesses, hospitals, labor unions, religious organizations, local newspapers, social media and word of mouth to publicize our work. In addition, we attend networking events and are in the process of planning future fundraising events. We also attend a significant number of virtual webinars to further enhance our skillset and implement best business practices. Our organization consists of 2 employees and 5 board members. By the use of all technology available to us, we optimize our ability to meet our goals and hopefully to exceed our expectation in the future.

Strategic Plan 2022

Action
Enhance technology Implemented fully automated patient Aid Program/ look for additional virtual
methods of promoting CLRA
Build donor base All hands-on deck promoting CLRA through Face Book which, combined with board engagement will reach thousands of FB users

Cultivate current Constituents Stay in touch using tools we currently have and finding new virtual paths most
applicable to meet our specific needs as a small non-profit organization
Website update In process of repositioning pertinent information on landing page / updating
medical committee tab- substituting outdated information with recently received
revisions / entering most recent grant recipients to the list of grant awards.
Totally automated P/A application / claims replaced former manual procedure
Staff to attend Webinars To optimize knowledge of virtual development and fundraising
Determine best practices Follow standard non-profit models of appeals in a novel virtual environment,
which is now the new norm
Optimize board engagement Interim Zoom informative / brainstorming meetings

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Scientific Researchers - Leukemia and all blood cancers by providing grant awards Leukemia/ blood cancer patients - Provide Financial Patient Aid program

  • How is your organization collecting feedback from the people you serve?

    SMS text surveys, Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person), Case management notes, Constituent (client or resident, etc.) advisory committees, Suggestion box/email, Thank you letters,

  • How is your organization using feedback from the people you serve?

    We don't actively use collected feedback,

  • What significant change resulted from feedback?

    New website design, content writing, enhanced social media, increased appeals and campaigns, increased recognition and acknowledgment, implemented improved fundraising strategies, reaching out to patient advocates/Social Workers to further assist patients in need.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    By sharing feedback from patients, we assist and scientists we fund with research grants we have promoted the extraordinary work we do.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

Childrens Leukemia Research Association Inc
Fiscal year: Jan 01 - Dec 31
Financial documents
2021 Children's Leukemia Research Association 2020 Children's Leukemia Research Assoc 2020
done  Yes, financials were audited by an independent accountant. info

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2020 info

SOURCE: IRS Form 990

85.89

Average of 130.23 over 10 years

Months of cash in 2020 info

SOURCE: IRS Form 990

5.2

Average of 8.2 over 10 years

Fringe rate in 2020 info

SOURCE: IRS Form 990

8%

Average of 9% over 10 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

Source: IRS Form 990 info

Childrens Leukemia Research Association Inc

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990

Fiscal year ending: cloud_download Download Data

Childrens Leukemia Research Association Inc

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

Childrens Leukemia Research Association Inc

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990

This snapshot of Childrens Leukemia Research Association Inc’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

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Business model indicators

Profitability info 2016 2017 2018 2019 2020
Unrestricted surplus (deficit) before depreciation $266,260 $48,679 -$550,197 -$64,688 -$492,320
As % of expenses 11.3% 4.5% -99.2% -11.9% -79.4%
Unrestricted surplus (deficit) after depreciation $266,118 $48,598 -$550,841 -$68,529 -$494,971
As % of expenses 11.3% 4.4% -99.2% -12.5% -79.5%
Revenue composition info
Total revenue (unrestricted & restricted) $2,538,018 $969,241 $261,458 $276,391 $122,000
Total revenue, % change over prior year 1.2% -61.8% -73.0% 5.7% -55.9%
Program services revenue 0.0% 0.0% 0.0% 0.0% 0.0%
Membership dues 0.0% 0.0% 0.0% 0.0% 0.0%
Investment income 2.0% 6.8% 31.5% 33.7% 25.3%
Government grants 0.0% 0.0% 0.0% 0.0% 0.0%
All other grants and contributions 97.2% 89.6% 57.2% 44.7% 44.4%
Other revenue 0.7% 3.6% 11.3% 21.6% 30.3%
Expense composition info
Total expenses before depreciation $2,362,414 $1,093,251 $554,566 $545,454 $619,866
Total expenses, % change over prior year 0.1% -53.7% -49.3% -1.6% 13.6%
Personnel 1.5% 4.6% 10.7% 16.3% 13.9%
Professional fees 78.9% 62.2% 11.8% 2.7% 3.8%
Occupancy 0.9% 2.1% 4.3% 6.0% 4.6%
Interest 0.0% 0.0% 0.0% 0.5% 0.0%
Pass-through 9.3% 18.7% 34.3% 22.0% 35.5%
All other expenses 9.3% 12.4% 39.0% 52.5% 42.3%
Full cost components (estimated) info 2016 2017 2018 2019 2020
Total expenses (after depreciation) $2,362,556 $1,093,332 $555,210 $549,295 $622,517
One month of savings $196,868 $91,104 $46,214 $45,455 $51,656
Debt principal payment $0 $0 $0 $0 $0
Fixed asset additions $0 $0 $13,276 $0 $0
Total full costs (estimated) $2,559,424 $1,184,436 $614,700 $594,750 $674,173

Capital structure indicators

Liquidity info 2016 2017 2018 2019 2020
Months of cash 5.9 10.5 14.8 5.9 5.2
Months of cash and investments 16.2 35.5 57.9 57.2 41.2
Months of estimated liquid unrestricted net assets 16.4 35.9 58.6 58.2 41.7
Balance sheet composition info 2016 2017 2018 2019 2020
Cash $1,156,692 $954,449 $684,719 $267,969 $266,272
Investments $2,035,205 $2,281,957 $1,990,842 $2,331,652 $1,860,275
Receivables $26,532 $4,436 $8,859 $8,201 $2,035
Gross land, buildings, equipment (LBE) $12,461 $12,461 $25,737 $23,201 $23,201
Accumulated depreciation (as a % of LBE) 99.3% 100.0% 50.9% 62.1% 73.5%
Liabilities (as a % of assets) 1.3% 0.4% 0.9% 0.5% 1.1%
Unrestricted net assets $3,223,426 $3,272,024 $2,721,183 $2,652,654 $2,157,683
Temporarily restricted net assets $0 $0 $0 N/A N/A
Permanently restricted net assets $0 $0 $0 N/A N/A
Total restricted net assets $0 $0 $0 $0 $0
Total net assets $3,223,426 $3,272,024 $2,721,183 $2,652,654 $2,157,683

Key data checks

Key data checks info 2016 2017 2018 2019 2020
Material data errors No No No No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Form 1023/1024 is not available for this organization

President

Mr. Anthony R Pasqua

Anthony R. Pasqua holds a Bachelors Degree in accounting from Iona College and Masters Degree in public administration from Marist College. He is also a graduate of the U.S. Army Command and General Staff College, and the U.S. Army War College. He retired as a Brigadier General from the New York Army National Guard after 32 years of service. He also has over 30 years of experience in the business community. Currently, he is an independent Financial Planner with Integrated Financial Partners, Inc., offering advisory services through LPL Financial, a broker/dealer (member SIPC) and registered investment advisor. *IFP is not an affiliate of LPL Financial. His area of concentration is in Retirement Planning, Estate Planning, Family Legacy Planning, and Charitable Gifting. Anthony has been a board member since 1998. Anthony currently resides in Bonita Springs, Florida. He has two children and two grandchildren.

Number of employees

Source: IRS Form 990

Childrens Leukemia Research Association Inc

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

Childrens Leukemia Research Association Inc

Board of directors
as of 01/05/2023
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board co-chair

Mr. Anthony R Pasqua

Childrens' Leukemia Research Association

Term: 1998 -


Board co-chair

Mr. Pasquale Alisia

Childrens' Leukemia Research Association

Term: 2020 -

John Digillio

Childrens' Leukemia Research Association

Hubert Gibbons

Childrens' Leukemia Research Association

Carol A Hassett

Childrens' Leukemia Research Association

Pasquale Alisia

Childrens' Leukemia Research Association

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 9/23/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 10/14/2020

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.

Contractors

Fiscal year ending

Professional fundraisers

Fiscal year ending

SOURCE: IRS Form 990 Schedule G

Solicitation activities
Gross receipts from fundraising
Retained by organization
Paid to fundraiser