Propel A Cure for Crohn's Disease
We believe it is time for a CURE for Crohn's Disease
Propel A Cure for Crohn's Disease
EIN: 81-3274536
Mission
Our Mission is to raise awareness and funds for innovative medical research that will lead to a CURE for Crohn’s disease. Our Vision is to build a sustainable platform for funding research into cures, focusing on restoring the health and well-being of sufferers so that they can live prosperous, active lives free from pain and drugs. Our Values are embodied in our organization. We are an international, all volunteer, efficient and fully transparent organization promoting global cooperation and collaboration serving patient interests through improving health.
Ruling year
2016
President & CEO, Founder
Ms. Annabelle Hall
Vice President & Treasurer
Ms. Angela Clark
Main address
259 Glenleigh Road
Charlottesville, VA 22911 USA
EIN
81-3274536
Health
Diseases and conditions
Population served
Children and youth
Adults
NTEE code
Specifically Named Diseases (G80)
IRS subsection
501(c)(3) Public Charity
IRS filing requirement
This organization is required to file an IRS Form 990-N.
Communication
Programs and results
What we aim to solve
Although much research has been carried out to find a cure for Crohn’s disease, scientists and doctors are still debating the cause. Whilst treatments have improved for some, many still suffer daily and end up in the hospital with acute, at times life-threatening conditions. The number of Crohn’s disease cases continue to increase, and in certain places at an alarming rate. Younger and younger children are being diagnosed with this horrific disease and are destined to live their childhood in and out of the hospital. Although for some, treatments effectively keep the symptoms in remission, however, not for everyone and the treatments eventually fail even for those who respond initially. Worse, the medicines themselves carry an enormous risk of dangerous side effects. Clearly, something must be done to change this situation. Accepting the status quo is simply unacceptable. We must do better.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Roadmap to a Cure for Crohn's Disease
To date, no coordinated effort has EVER been made to map out the "knowns" and "unknowns" of Crohn's disease and to devise a research strategy to address our key knowledge gaps. Propel a Cure's Roadmap to Propel a Cure for Crohn's is bringing together the brightest research minds in the world to:
(1) Systematize what we know across fields like genetics, immunology, the microbiome, and more;
(2) Identify what is missing as well as barriers and challenges; and
(3) Develop a detailed research plan to CURE Crohn's.
THE TIME IS LONG PAST DUE!
Propel a Cure has joined forces with the world's most brilliant and motivated researchers and gastroenterologists across the United States, Europe, Canada, and elsewhere in this ambitious, ground-breaking, multi-year, and MUCH-NEEDED research effort.
Where we work
External reviews
Our results
How does this organization measure their results? It's a hard question but an important one.
Estimated number of funding dollars secured for the sector
This metric is no longer tracked.Totals By Year
Population(s) Served
Health, Adults, Children and youth, Caregivers, Families
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Average number of dollars received per donor
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of new donors
This metric is no longer tracked.Totals By Year
Population(s) Served
Health
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of community initiatives in which the organization participates
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, Caregivers, Families, Adults, Children and youth
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
In 2020 it wasn't possible because of Covid. In 2021 because of Covid we pivoted to online video Q&A with research scientists. In 2022 we launched our Roadmap to a Cure for Crohn's disease.
Number of public events held to further mission
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Covid did not allow us to have any public events in 2020 or 2021! 2022 saw our first online peer to peer campaign.
Number of unique website visitors
This metric is no longer tracked.Totals By Year
Population(s) Served
Health, Adults, Children and youth, Caregivers, Families
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Our social media presence along with our video series interviewing key scientists have attracted a lot of visitors
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Propel a Cure was born out of the realization that there are brilliant minds out in the research world who can make a difference in the fight to cure Crohn's disease. They have the ideas, but they lack the money to carry out the necessary work to bring us a cure. The goal then, for Propel a Cure is to raise funds for promising projects that will bring us one step closer to our goal. All money raised goes to research. There are no overhead costs. It is a nonprofit, tax-exempt 501 © (3) organization.
What are the organization's key strategies for making this happen?
Through social media (Facebook, Twitter, Instagram), we are attracting more and more attention, and awareness and encouraging donations via donation buttons.
We have a website with a donate tab.
We had a gala in 2019 which raised a considerable sum and we will reflect on doing one again in the future.
We now have a curated video series where we interview leading researchers in their quest to find a cure for Crohn's disease.
In September 2022 we launched our Roadmap to a Cure for Crohn's disease and raised $45,000 and are planning to meet with key scientists in the spring of 2023 to implement our program.
What are the organization's capabilities for doing this?
We are a determined group of individuals, primarily parents of children who are sick. Momma bears if you will! We will not accept failure. If one thing doesn't work, we will find something else that will. We are persistent, resourceful, and resilient. We are rapidly building our support base of like-minded individuals, including patients, caregivers, scientists, and physicians.
What have they accomplished so far and what's next?
Covid took a bite out of all our events but we maintained our presence online. In 2020 we improved our beautiful website, and consistently shared published, peer-reviewed articles on our Facebook page and on our Twitter account.
In 2021 the research project we funded continued to progress and publication is slated for 2023 or 2024.
2022 was a highly productive year where we gained followers and launched our video series interviewing key scientists, enabling the average person to access information not normally available to the layperson. We also launched our Roadmap to a Cure for Crohn's disease campaign, raising $45,000 in funds for this innovative project.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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Who are the people you serve with your mission?
All people who are in the Crohn's community including those who are sick, their family members and friends and co-workers.
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How is your organization collecting feedback from the people you serve?
Suggestion box/email,
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How is your organization using feedback from the people you serve?
To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To strengthen relationships with the people we serve,
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What significant change resulted from feedback?
We have started a quarterly newsletter that helps us keep in touch with our donors.
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With whom is the organization sharing feedback?
Our board,
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Which of the following feedback practices does your organization routinely carry out?
We aim to collect feedback from as many people we serve as possible, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We act on the feedback we receive,
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback,
Financials
Financial data
Propel A Cure for Crohn's Disease
Revenue & expensesFiscal Year: 2022
SOURCE: Self-reported by organization
| Revenue | |
|---|---|
| Contributions, Grants, Gifts | $67,591 |
| Program Services | $0 |
| Membership Dues | $0 |
| Special Events | $0 |
| Other Revenue | $0 |
| Total Revenue | $67,591 |
| Expenses | |
|---|---|
| Program Services | $0 |
| Administration | $0 |
| Fundraising | $0 |
| Payments to Affiliates | $0 |
| Other Expenses | $0 |
| Total Expenses | $240 |
Propel A Cure for Crohn's Disease
Balance sheetFiscal Year: 2022
SOURCE: Self-reported by organization
| Assets | |
|---|---|
| Total Assets | $67,591 |
| Liabilities | |
|---|---|
| Total Liabilities | $240 |
| Fund balance (EOY) | |
|---|---|
| Net Assets | $67,351 |
Operations
The people, governance practices, and partners that make the organization tick.
Documents
President & CEO, Founder
Ms. Annabelle Hall
Annabelle joined the quest for a cure for Crohn’s disease in September 2014 after her son was diagnosed. She watched as her son’s condition quickly deteriorated and feared for his future. Refusing to accept that no cure was possible, she dove into research. Highly committed to helping find a cure, she has been deeply involved in raising awareness and funds for promising research including the Crohn’s MAP Vaccine. In addition, she was the Special Events coordinator for Human Para Foundation. She has strong faith in the power of science and firmly believes that by providing financial support to innovative scientists, a cure is within grasp. Fluent in French, she spent most of her professional career as a high school teacher in Africa, France, Asia and the U.S. She has a B.A. in Cultural Anthropology and History from the University of California, San Diego and an M.A with Honors in Leadership from Saint Mary’s College of California.
Vice President & Treasurer
Angela Clark
Originally from Georgia, Angela received her B.A. in political science from Maryville College (TN) and her master’s degree in Western European government and politics from the London School of Economics and Political Science. In the past, she enjoyed a career in the federal government and also worked in local radio and television. Most recently, she served as a marketing director at a private school. She and her husband have a son and a daughter. Angela became involved in Propel a Cure after the Crohn’s diagnosis of a relative and is passionate about supporting innovative research that pushes beyond the current therapy landscape to ultimately lead us to a cure.
There are no officers, directors or key employees recorded for this organization
There are no highest paid employees recorded for this organization.
Propel A Cure for Crohn's Disease
Board of directorsas of 01/27/2023
Board of directors data
Ms. Annabelle Hall
Propel a Cure
Term: 2020 - 2023
Ildiko Mehes
Angela Clark
Natalie Muccioli
Antony Gout
Tracy Goode Loewenthalw
Linda Metzler
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Not applicable -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
Equity strategies
Last updated: 01/31/2022GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.
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