NORTHWEST SARCOMA FOUNDATION

No one should face sarcoma alone

Seattle, WA   |  www.nwsarcoma.org
GuideStar Charity Check

NORTHWEST SARCOMA FOUNDATION

EIN: 91-1717600


Mission

We provide hope, education, and support to sarcoma patients and their families in the Pacific Northwest, while investing in research to improve cure rates for sarcoma cancers.

Ruling year info

1997

Executive DIrector

Jo McNeal

Main address

117 E. Louisa Street #443

Seattle, WA 98102 USA

Show more contact info

Formerly known as

Northwest Memorial Sarcoma Foundation

EIN

91-1717600

Subject area info

Human services

Population served info

Children and youth

Adults

Families

People with diseases and illnesses

Academics

NTEE code info

Alliance/Advocacy Organizations (P01)

Cancer Research (H30)

Counseling Support Groups (F60)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Every year 13,000 individuals are diagnosed with a Sarcoma cancer in the US. Due to the relative rarity of the disease, the options available for treatment, support, and education are highly limited. Additionally, rare cancers often exact a larger financial and emotional burden on families. We provide direct financial support to these patients and their families.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Foundation Help$

Need-based financial assistance to adult sarcoma patients living or being treated in our region.

Population(s) Served
Adults
People with diseases and illnesses

Virtual group meet-ups for Sarcoma patients, survivors, and those who have lost someone to Sarcoma.

Population(s) Served
Families
People with diseases and illnesses

Need-based financial assistance for pediatric sarcoma patients living or being treated in our region.

Population(s) Served
Children and youth
People with diseases and illnesses

We provide directed research gifts to sarcoma specific research taking place in our region based on potential impact.

Population(s) Served
Family relationships
Health
Academics
Age groups

Providing direct access to Sarcoma researchers. Researchers share what has developed in their area of expertise in Sarcoma research.

Population(s) Served
People with diseases and illnesses
Academics
People with diseases and illnesses
Academics

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of clients served

This metric is no longer tracked.
Totals By Year
Type of Metric

Other - describing something else

Direction of Success

Increasing

Context Notes

Metrics are an accumulation of participants in our various programs: Help$ Grants, Researcher Update Nights, Sarcoma Journal Clubs, and care packages.

Number of groups/individuals benefiting from tools/resources/education materials provided

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Metrics are an accumulation of participants in our various programs: Help$ Grants, Researcher Update Nights, Sarcoma Journal Clubs, and care packages.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our goal is to ensure no one faces Sarcoma alone, and that investments are made in Sarcoma research and treatment options.

We are adding programs to provide education to our patients, families and supporters which include direct access to the researchers through Research Update Nights.
We provide a group setting for patients, caregivers, and those who have lost someone to Sarcoma to not feel isolated and be able to communicate together their feelings associated with Sarcoma.
We bring together researchers from across our five states to collaborate and discuss current research, through our Sarcoma Journal Club.
We provide care packages to patients and to those who have lost someone to Sarcoma, to futher connect our Sarcoma community.

Expand our Corporate Partnership program to help fund the important work of the organization.
Host virtual fundraising events to support programs.
Host hybrid Dragonslayer walk fundraising events in mutiple cities across our service area to support the mission of the organization.

We have expanded in 2020 with our Casual Chat groups. One group in particular has seen international response by having an attendee from Moscow, Russia. Proving the global need to connect survivors of Sarcoma Angels. We have added additional groups in 2021 to meet the needs of our patients and their families.

Next we are adding care packages for patients and survivors of Sarcoma angels. We are expanding our Researcher Update Nights to include research happening outside of the PNW.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    We serve financially at-risk Sarcoma patients. We provide financial grants to patients, along with care packages, peer-to-peer-led discussion groups, and educational opportunities.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys,

  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    We added new programming in 2020/2021 to enhance the educational opportunities for our Sarcoma patients and support community. We also added care packages that are not exclusive to the financially at-risk, enhancing our Sarcoma community experience and connection. We have added peer-to-peer-led groups to provide an outlet for patients, survivors, caregivers, and those who have lost someone to Sarcoma, furthering our support for the Sarcoma community.

  • With whom is the organization sharing feedback?

    Our staff, Our board,

  • How has asking for feedback from the people you serve changed your relationship?

    We added programming to better support one of their two biggest needs, by adding peer-to-peer-led groups.

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.),

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback,

Financials

NORTHWEST SARCOMA FOUNDATION
Fiscal year: Jan 01 - Dec 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2019 info

SOURCE: IRS Form 990

19.78

Average of 114.86 over 10 years

Months of cash in 2019 info

SOURCE: IRS Form 990

1.4

Average of 6.8 over 10 years

Fringe rate in 2019 info

SOURCE: IRS Form 990

11%

Average of 9% over 10 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

Source: IRS Form 990 info

NORTHWEST SARCOMA FOUNDATION

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990

Fiscal year ending: cloud_download Download Data

NORTHWEST SARCOMA FOUNDATION

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

NORTHWEST SARCOMA FOUNDATION

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990

This snapshot of NORTHWEST SARCOMA FOUNDATION’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

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Business model indicators

Profitability info 2015 2016 2017 2018 2019
Unrestricted surplus (deficit) before depreciation -$21,003 -$2,898 $75,303 -$64,323 $59,568
As % of expenses -7.9% -0.9% 21.6% -18.2% 16.5%
Unrestricted surplus (deficit) after depreciation -$23,451 -$3,650 $74,737 -$65,293 $56,513
As % of expenses -8.7% -1.2% 21.4% -18.5% 15.6%
Revenue composition info
Total revenue (unrestricted & restricted) $251,163 $297,232 $374,824 $303,897 $327,716
Total revenue, % change over prior year -12.8% 18.3% 26.1% -18.9% 7.8%
Program services revenue 0.0% 0.0% 0.0% 0.0% 0.0%
Membership dues 0.0% 0.0% 0.0% 0.0% 0.0%
Investment income 6.8% 5.8% 6.2% 8.7% 6.4%
Government grants 0.0% 0.0% 0.0% 0.0% 0.0%
All other grants and contributions 93.2% 94.2% 93.8% 91.3% 93.6%
Other revenue 0.0% 0.0% 0.0% 0.0% 0.0%
Expense composition info
Total expenses before depreciation $265,802 $313,184 $349,374 $352,526 $359,945
Total expenses, % change over prior year 20.5% 17.8% 11.6% 0.9% 2.1%
Personnel 27.3% 44.6% 39.6% 40.9% 49.5%
Professional fees 5.4% 3.6% 2.8% 2.0% 7.0%
Occupancy 0.4% 0.5% 0.9% 0.8% 0.3%
Interest 0.0% 0.0% 0.0% 0.0% 0.0%
Pass-through 50.3% 40.9% 45.5% 45.5% 35.0%
All other expenses 16.6% 10.4% 11.2% 10.7% 8.2%
Full cost components (estimated) info 2015 2016 2017 2018 2019
Total expenses (after depreciation) $268,250 $313,936 $349,940 $353,496 $363,000
One month of savings $22,150 $26,099 $29,115 $29,377 $29,995
Debt principal payment $0 $0 $0 $0 $0
Fixed asset additions $0 $0 $0 $3,157 $3,390
Total full costs (estimated) $290,400 $340,035 $379,055 $386,030 $396,385

Capital structure indicators

Liquidity info 2015 2016 2017 2018 2019
Months of cash 6.5 4.1 3.5 1.4 1.4
Months of cash and investments 24.7 21.1 21.3 17.4 19.0
Months of estimated liquid unrestricted net assets 20.4 17.2 18.0 15.5 17.1
Balance sheet composition info 2015 2016 2017 2018 2019
Cash $143,677 $106,780 $103,297 $41,857 $40,880
Investments $403,595 $444,238 $517,172 $469,216 $527,642
Receivables $3,708 $518 $0 $0 $0
Gross land, buildings, equipment (LBE) $0 $0 $0 $2,249 $3,823
Accumulated depreciation (as a % of LBE) 0.0% 0.0% 0.0% 2.8% 34.0%
Liabilities (as a % of assets) 0.9% 2.3% 2.1% 2.9% 5.0%
Unrestricted net assets $452,371 $448,721 $523,458 $458,165 $514,678
Temporarily restricted net assets $99,181 $96,747 $95,625 $46,105 N/A
Permanently restricted net assets $0 $0 $0 $0 N/A
Total restricted net assets $99,181 $96,747 $95,625 $46,105 $32,807
Total net assets $551,552 $545,468 $619,083 $504,270 $547,485

Key data checks

Key data checks info 2015 2016 2017 2018 2019
Material data errors No No No No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Form 1023/1024 is not available for this organization

Executive DIrector

Jo McNeal

Jo McNeal has been working in non-profit since 2001. Her experience ranges from neighborhood chamber of commerce to national health focused organizations. She is organized and focused executive leader with vast experience developing and implementing strategic plans, nurturing volunteers, and organizing growth-driven fund raising initiatives.

Number of employees

Source: IRS Form 990

NORTHWEST SARCOMA FOUNDATION

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

NORTHWEST SARCOMA FOUNDATION

Board of directors
as of 08/02/2022
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board co-chair

Ian Walsh

Baufest Consulting

Term: 2022 - 2023


Board co-chair

Jeffrey Sweeney

CBRE

Term: 2011 -

Jeff Sweeney

CBRE

John Anderson

Nike

Ernest Conrad

University of Texas

Patricia Read-Williams

Overlake Medical Centers

Lara Davis

Oregon Health & Science University

Robert Ortblad

Retired

Ian Walsh

Baufest Consulting

Donna Anderson

State of Washington

Kelly Sweeney

Grad Student

Ashley Glover

LifeNet Health

Michael Wagner

FredHutch Cancer Center

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 8/2/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

No data

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 08/02/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We disaggregate data by demographics, including race, in every policy and program measured.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.