NORTHWEST SARCOMA FOUNDATION
No one should face sarcoma alone
NORTHWEST SARCOMA FOUNDATION
EIN: 91-1717600
as of September 2023
as of September 18, 2023
Programs and results
Reports and documents
Download annual reportsWhat we aim to solve
Every year 13,000 individuals are diagnosed with a Sarcoma cancer in the US. Due to the relative rarity of the disease, the options available for treatment, support, and education are highly limited. Additionally, rare cancers often exact a larger financial and emotional burden on families. We provide direct financial support to these patients and their families.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Foundation Help$
Need-based financial assistance to adult sarcoma patients living or being treated in our region.
Casual Chats
Virtual group meet-ups for Sarcoma patients, survivors, and those who have lost someone to Sarcoma.
Jenna Help$
Need-based financial assistance for pediatric sarcoma patients living or being treated in our region.
Research Fund
We provide directed research gifts to sarcoma specific research taking place in our region based on potential impact.
Researcher Update Nights
Providing direct access to Sarcoma researchers. Researchers share what has developed in their area of expertise in Sarcoma research.
Where we work
External reviews

Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of clients served
This metric is no longer tracked.Totals By Year
Type of Metric
Other - describing something else
Direction of Success
Increasing
Context Notes
Metrics are an accumulation of participants in our various programs: Help$ Grants, Researcher Update Nights, Sarcoma Journal Clubs, and care packages.
Number of groups/individuals benefiting from tools/resources/education materials provided
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Metrics are an accumulation of participants in our various programs: Help$ Grants, Researcher Update Nights, Sarcoma Journal Clubs, and care packages.
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our goal is to ensure no one faces Sarcoma alone, and that investments are made in Sarcoma research and treatment options.
What are the organization's key strategies for making this happen?
We are adding programs to provide education to our patients, families and supporters which include direct access to the researchers through Research Update Nights.
We provide a group setting for patients, caregivers, and those who have lost someone to Sarcoma to not feel isolated and be able to communicate together their feelings associated with Sarcoma.
We bring together researchers from across our five states to collaborate and discuss current research, through our Sarcoma Journal Club.
We provide care packages to patients and to those who have lost someone to Sarcoma, to futher connect our Sarcoma community.
What are the organization's capabilities for doing this?
Expand our Corporate Partnership program to help fund the important work of the organization.
Host virtual fundraising events to support programs.
Host hybrid Dragonslayer walk fundraising events in mutiple cities across our service area to support the mission of the organization.
What have they accomplished so far and what's next?
We have expanded in 2020 with our Casual Chat groups. One group in particular has seen international response by having an attendee from Moscow, Russia. Proving the global need to connect survivors of Sarcoma Angels. We have added additional groups in 2021 to meet the needs of our patients and their families.
Next we are adding care packages for patients and survivors of Sarcoma angels. We are expanding our Researcher Update Nights to include research happening outside of the PNW.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.)
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback
Financials
Financial documents
Download audited financialsRevenue vs. expenses: breakdown
Liquidity in 2021 info
63.66
Months of cash in 2021 info
2.8
Fringe rate in 2021 info
14%
Funding sources info
Assets & liabilities info
Financial data
NORTHWEST SARCOMA FOUNDATION
Balance sheetFiscal Year: Jan 01 - Dec 31
The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.
Fiscal Year: Jan 01 - Dec 31
This snapshot of NORTHWEST SARCOMA FOUNDATION’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.
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Business model indicators
Profitability info | 2017 | 2018 | 2019 | 2020 | 2021 |
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Unrestricted surplus (deficit) before depreciation | $75,303 | -$64,323 | $59,568 | -$42,475 | $141,214 |
As % of expenses | 21.6% | -18.2% | 16.5% | -17.4% | 45.9% |
Unrestricted surplus (deficit) after depreciation | $74,737 | -$65,293 | $56,513 | -$43,714 | $139,459 |
As % of expenses | 21.4% | -18.5% | 15.6% | -17.8% | 45.1% |
Revenue composition info | |||||
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Total revenue (unrestricted & restricted) | $374,824 | $303,897 | $327,716 | $175,227 | $375,115 |
Total revenue, % change over prior year | 26.1% | -18.9% | 7.8% | -46.5% | 114.1% |
Program services revenue | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Membership dues | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Investment income | 6.2% | 8.7% | 6.4% | 10.6% | 7.8% |
Government grants | 0.0% | 0.0% | 0.0% | 0.0% | 18.7% |
All other grants and contributions | 93.8% | 91.3% | 93.6% | 89.4% | 73.5% |
Other revenue | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Expense composition info | |||||
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Total expenses before depreciation | $349,374 | $352,526 | $359,945 | $243,740 | $307,564 |
Total expenses, % change over prior year | 11.6% | 0.9% | 2.1% | -32.3% | 26.2% |
Personnel | 39.6% | 40.9% | 49.5% | 67.0% | 55.2% |
Professional fees | 2.8% | 2.0% | 7.0% | 6.6% | 4.6% |
Occupancy | 0.9% | 0.8% | 0.3% | 0.7% | 0.6% |
Interest | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
Pass-through | 45.5% | 45.5% | 35.0% | 19.4% | 33.3% |
All other expenses | 11.2% | 10.7% | 8.2% | 6.4% | 6.2% |
Full cost components (estimated) info | 2017 | 2018 | 2019 | 2020 | 2021 |
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Total expenses (after depreciation) | $349,940 | $353,496 | $363,000 | $244,979 | $309,319 |
One month of savings | $29,115 | $29,377 | $29,995 | $20,312 | $25,630 |
Debt principal payment | $0 | $0 | $0 | $0 | $0 |
Fixed asset additions | $0 | $3,157 | $3,390 | $0 | $3,605 |
Total full costs (estimated) | $379,055 | $386,030 | $396,385 | $265,291 | $338,554 |
Capital structure indicators
Liquidity info | 2017 | 2018 | 2019 | 2020 | 2021 |
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Months of cash | 3.5 | 1.4 | 1.4 | 4.9 | 2.8 |
Months of cash and investments | 21.3 | 17.4 | 19.0 | 27.8 | 24.4 |
Months of estimated liquid unrestricted net assets | 18.0 | 15.5 | 17.1 | 23.1 | 23.7 |
Balance sheet composition info | 2017 | 2018 | 2019 | 2020 | 2021 |
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Cash | $103,297 | $41,857 | $40,880 | $99,181 | $71,656 |
Investments | $517,172 | $469,216 | $527,642 | $465,071 | $553,969 |
Receivables | $0 | $0 | $0 | $1,359 | $146 |
Gross land, buildings, equipment (LBE) | $0 | $2,249 | $3,823 | $3,823 | $7,428 |
Accumulated depreciation (as a % of LBE) | 0.0% | 2.8% | 34.0% | 66.4% | 57.8% |
Liabilities (as a % of assets) | 2.1% | 2.9% | 5.0% | 9.8% | 1.5% |
Unrestricted net assets | $523,458 | $458,165 | $514,678 | $470,964 | $610,423 |
Temporarily restricted net assets | $95,625 | $46,105 | N/A | N/A | N/A |
Permanently restricted net assets | $0 | $0 | N/A | N/A | N/A |
Total restricted net assets | $95,625 | $46,105 | $32,807 | $44,925 | $34,009 |
Total net assets | $619,083 | $504,270 | $547,485 | $515,889 | $644,432 |
Key data checks
Key data checks info | 2017 | 2018 | 2019 | 2020 | 2021 |
---|---|---|---|---|---|
Material data errors | No | No | No | No | No |
Operations
The people, governance practices, and partners that make the organization tick.
Documents
Executive DIrector
Jo McNeal
Jo McNeal has been working in non-profit since 2001. Her experience ranges from neighborhood chamber of commerce to national health focused organizations. She is organized and focused executive leader with vast experience developing and implementing strategic plans, nurturing volunteers, and organizing growth-driven fund raising initiatives.
Number of employees
Source: IRS Form 990
NORTHWEST SARCOMA FOUNDATION
Officers, directors, trustees, and key employeesSOURCE: IRS Form 990
Compensation data
There are no highest paid employees recorded for this organization.
NORTHWEST SARCOMA FOUNDATION
Board of directorsas of 06/07/2023
Board of directors data
Ian Walsh
Baufest Consulting
Term: 2022 - 2023
Jeffrey Sweeney
CBRE
Term: 2011 -
Jeff Sweeney
Retired
John Anderson
Nike
Ernest Conrad
University of Texas
Lara Davis
Oregon Health & Science University
Ian Walsh
Baufest Consulting
Ashley Glover
BloodWorks NW
Michael Wagner
FredHutch Cancer Center
Elana Emlen
Retired
Kenny Gundle
Oregon Health & Science University
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Sexual orientation
Disability
No data
We do not display disability information for organizations with fewer than 15 staff.
Equity strategies
Last updated: 08/02/2022GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We disaggregate data by demographics, including race, in every policy and program measured.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.