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Compassionate Care ALS Inc

West Falmouth, MA   |  http://ccals.org
GuideStar Charity Check

Compassionate Care ALS Inc

EIN: 04-3567819

Mission

Compassionate Care ALS (CCALS) is a nonprofit organization with a mission to support people diagnosed with ALS, their families, healthcare providers, and communities as they navigate the complexities, both physical and emotional, associated with the disease. The organization provides resources including equipment, educational opportunities, Medicare/Medicaid assistance, communication assistance, guidance and awareness with regards to living with ALS, caregiving, and exploring end-of-life when invited. CCALS offers an innovative approach to delivering support and services to our clients, which we tailor to the needs of each individual and their support network.

Ruling year info

2002

Founder/Executive Director

Mr. Ronald Hoffman

Main address

PO Box 1052

West Falmouth, MA 02574 USA

Show more contact info

EIN

04-3567819

Subject area info

Diseases and conditions

ALS

Human services

Family disability resources

Population served info

Adults

Caregivers

NTEE code info

Diseases of Specific Organs (G40)

Human Service Organizations (P20)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

ALS, also known as Lou Gehrig’s disease, is a terminal disease. ALS can strike anyone, regardless of age, race, gender, or economic status. As a degenerative and fatal neuromuscular disease, it causes patients to gradually lose control of the voluntary muscles in their body. Some individuals end up requiring intensive 24-hour care. The disease progresses differently in each case, and patients often die when they lose the capacity to breathe or swallow, most often while retaining their ability to see, hear, and comprehend what is happening to them. CCALS is proud to provide individualized assistance to each client and their families though our programming. Our goal for each and every on of our clients is to underunderstand their individual experiences and struggles with ALS, and provide them with authentic and considerate service. We also work with family members to help them navigate the difficult circumstance of a family member living and dying with ALS.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

ALS Patient, Family and Caregiver Support Program

Key services include:
• Home Assessments: CCALS staff members make multiple and ongoing home visits. We meet the family in their home environment to evaluate the accessibility of the living space at different stages of the disease and assess how else we can best support the individual. Our staff average 87 home visits a month to assess and deliver equipment and consult with families.
• Equipment for the Home: CCALS helps provide critical equipment for those living with ALS. These durable goods include power wheelchairs, vertical lifts, stair lifts, bath chairs, portable ramps and ramp sytems. This equipment allows individuals diagnosed with ALS and their caregiver(s), often their spouse, to maintain a higher quality of life in face of this degenerative disease. We have an inventory of ramp supplies both donated and purchased. We are allowed to store them with one of our vendors through a strategic partnership. We sometimes pay for ramp installations and regularly pay for ramp rentals to assure that ALS patients have full accessibility.
• One-on-One Guidance: CCALS provides one-on-one consultations to discuss disease progression, living with ALS, death and dying, and coping with a family member’s death. We offer in depth Medicare and Medicaid assistance and our staff is always available for impromptu communication and phone consultations.
• Referrals: CCALS staff members regularly make referrals to local hospice and ALS providers, integrative therapy practitioners such as trauma and grief counselors, as well as other specialists. CCALS and Massachusetts General Hospitals’ Healy ALS Clinic (MGH) have developed a release form that allows the two organizations to share information about ALS patients we have in common. We currently work with 200 mutual release patients and in 2018 we received 129 referrals from MGH. Having this agreement in place assists our ability to address needs of ALS patients and their families. Having a signed release form increases both communication with the hospital and our ability to collaborate with and help the staff at MGH track progression of the families we work with. All of this is in addition to individual organizational work with families.
• ALS House Calls Program:
CCALS has partnered with Massachusetts General Hospital’s (MGH’s) ALS Clinic on The ALS House Call Program which gives homebound ALS patients of all socioeconomic situations access to medical services in the home. CCALS and MGH bring high quality and patient-centered care to ALS patients in their own homes. The exciting partnership is being led by Dr. Merit Cudkowicz, Chief of the Department of Neurology at MGH and CCALS’ Founder/Executive Director Ron Hoffman.
• The Heald Center, Education, Retreat, Sanctuary
CCALS has recently opened our retreat center where CCALS patients, families and other caregivers come for respite. We also have begun holding Cultivating Compassion Workshops at the site.

Population(s) Served
Adults
Caregivers

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our organizational objectives are to:
● Provide services to more than 300 new ALS families annually.
● Conduct over 800 visits to people living with ALS and their families at home to provide guidance and emotional support, to assess their current circumstance and to deliver equipment.
● Provide more than 1,100 phone consultations with ALS patients, families and friends.
● Continue to provide referrals and subsidize those living with ALS to specialists who provide necessary services outside of our scope.
● Provide over $500,000 worth of durable goods, including, but not limited to; ramps, wheelchairs, shower chairs, lifts, and other durable goods not covered by insurance or provided by other organizations.
● Subsidize respite services and durable goods and equipment that we cannot provide for free.
● Provide over 10 workshops through the Cultivating Compassion Workshop Series.

We currently have a staff of 12 individuals. In addition to our founder Ron Hoffman, we have two senior care liaisons, which include a licensed social worker. We have a full-time Equipment Program staff member who delivers, installs and repairs equipment and orients families on equipment use. We have an Augmentative Services Manager who works directly with patients primarily on communication. We also have a Government Affairs Liaison who works directly with ALS patients on Medicaid/Mass Health issues. Our five program staff members share administrative duties, family visits, follow up, check-ins and equipment pick up and drop offs.

CCALS has more than 20 years of direct experience working with ALS patient, their families and their caregivers. The majority of our staff have been directly impacted by ALS in their own family or community. We are highly regarding and receive referrals from major medical institutions all over the country.

Since 1998, CCALS has developed an incredibly supportive community that has allowed us to continuously fulfill our mission through donations, in-kind gifts and leveraging their contacts. We have support from a number of venues and the fundraising techniques we utilize are cutting edge. Funds from individuals, corporations and private foundations have allowed us to continue to expand to meet the growing need. In addition, our partnerships with major hospitals have brought us a higher profile. Our staff and board are proud of our accomplishments and the people we have assisted. We look to continually add staff to keep up with the demand for our services.

Financials

Compassionate Care ALS Inc
Fiscal year: Jan 01 - Dec 31
Financial documents
2021 Compassionate Care ALS 2020 Ted Trevens 2018 Compassionate Care ALS
done  Yes, financials were audited by an independent accountant. info

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2019 info

SOURCE: IRS Form 990

1.28

Average of 4.26 over 10 years

Months of cash in 2019 info

SOURCE: IRS Form 990

5

Average of 7.8 over 10 years

Fringe rate in 2019 info

SOURCE: IRS Form 990

17%

Average of 19% over 10 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

Source: IRS Form 990 info

Compassionate Care ALS Inc

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990

Fiscal year ending: cloud_download Download Data

Compassionate Care ALS Inc

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

Compassionate Care ALS Inc

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990

This snapshot of Compassionate Care ALS Inc’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

Created in partnership with

Fiscal year: Jan 01 - Dec 31 picture_as_pdf View full report cloud_downloadDownload data

Business model indicators

Profitability info 2015 2016 2017 2018 2019
Unrestricted surplus (deficit) before depreciation -$85,902 $199,312 $673,613 $1,575,457 $1,750,279
As % of expenses -8.2% 18.6% 55.2% 118.2% 98.8%
Unrestricted surplus (deficit) after depreciation -$203,285 $95,275 $562,782 $1,471,229 $1,567,476
As % of expenses -17.4% 8.1% 42.3% 102.4% 80.2%
Revenue composition info
Total revenue (unrestricted & restricted) $1,364,171 $2,666,858 $1,490,950 $1,842,456 $3,706,460
Total revenue, % change over prior year -19.9% 95.5% -44.1% 23.6% 101.2%
Program services revenue 0.3% 0.1% 0.1% 0.0% 0.0%
Membership dues 0.0% 0.0% 0.0% 0.0% 0.0%
Investment income 0.0% 0.0% 0.2% 0.3% 0.1%
Government grants 0.0% 0.0% 0.0% 0.0% 0.0%
All other grants and contributions 101.5% 99.8% 101.0% 100.0% 99.9%
Other revenue -1.8% 0.0% -1.3% -0.3% 0.0%
Expense composition info
Total expenses before depreciation $1,049,669 $1,069,221 $1,219,453 $1,333,046 $1,772,394
Total expenses, % change over prior year 3.2% 1.9% 14.1% 9.3% 33.0%
Personnel 38.5% 39.8% 40.7% 40.3% 39.9%
Professional fees 11.0% 11.1% 10.8% 12.4% 9.1%
Occupancy 6.3% 4.8% 4.3% 4.9% 3.4%
Interest 2.6% 2.4% 0.1% 0.0% 0.8%
Pass-through 24.7% 22.5% 28.6% 27.9% 22.4%
All other expenses 16.9% 19.4% 15.6% 14.5% 24.5%
Full cost components (estimated) info 2015 2016 2017 2018 2019
Total expenses (after depreciation) $1,167,052 $1,173,258 $1,330,284 $1,437,274 $1,955,197
One month of savings $87,472 $89,102 $101,621 $111,087 $147,700
Debt principal payment $0 $23,957 $26,273 $0 $24,175
Fixed asset additions $0 $185,565 $736,617 $1,638,989 $1,712,625
Total full costs (estimated) $1,254,524 $1,471,882 $2,194,795 $3,187,350 $3,839,697

Capital structure indicators

Liquidity info 2015 2016 2017 2018 2019
Months of cash 8.7 21.1 16.4 5.8 5.0
Months of cash and investments 8.7 21.1 16.4 5.8 5.0
Months of estimated liquid unrestricted net assets 1.2 3.6 2.3 1.6 1.3
Balance sheet composition info 2015 2016 2017 2018 2019
Cash $763,082 $1,878,970 $1,671,022 $639,357 $739,962
Investments $0 $0 $0 $0 $0
Receivables $124,766 $388,815 $106,481 $18,706 $130,274
Gross land, buildings, equipment (LBE) $1,704,976 $1,890,541 $2,481,933 $4,055,769 $5,699,406
Accumulated depreciation (as a % of LBE) 27.3% 30.1% 21.6% 14.2% 12.1%
Liabilities (as a % of assets) 30.0% 16.9% 15.8% 14.5% 10.2%
Unrestricted net assets $727,751 $1,048,026 $1,610,808 $3,082,037 $4,649,513
Temporarily restricted net assets $780,926 $1,954,251 $1,552,135 $486,088 N/A
Permanently restricted net assets $0 $0 $0 $0 N/A
Total restricted net assets $780,926 $1,954,251 $1,552,135 $486,088 $669,875
Total net assets $1,508,677 $3,002,277 $3,162,943 $3,568,125 $5,319,388

Key data checks

Key data checks info 2015 2016 2017 2018 2019
Material data errors No No No No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Letter of Determination is not available for this organization
Form 1023/1024 is not available for this organization

Founder/Executive Director

Mr. Ronald Hoffman

Ron Hoffman co-founded the Gordon T. Heald ALS fund along with Elizabeth Heald following the death of her husband Gordon on October 30, 1998. In time Ron’s work led to the creation of the nonprofit organization Compassionate Care ALS. He has served as founder and director working with thousands of individuals, families and communities living with Lou Gehrig’s Disease in the US and around the world. He facilitates and guides intimate discussions for those engaged in the complexities of living with and dying with this catastrophic illness. Ron’s work helps examine the myriad of choices and possibilities that people confront including the process of death and dying and the questions that arise as together they create space for dialogue around their decisions.

Number of employees

Source: IRS Form 990

Compassionate Care ALS Inc

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

Compassionate Care ALS Inc

Board of directors
as of 01/19/2023
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Mr. James Bruce

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 2/23/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 02/23/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.

Contractors

Fiscal year ending
There are no fundraisers recorded for this organization.