GOLD2024

Project Spirit Sickle Cell - PSSC

SPIRIT = Sickle cell Pastoral Intervention Reaching Individuals in Transition¬

Gaithersburg, MD   |  http://www.projectspiritsicklecell.org
GuideStar Charity Check

Project Spirit Sickle Cell - PSSC

EIN: 87-2829281


Mission

Project SPIRIT Sickle Cell provides spiritual counseling for individuals to explore their personal beliefs and navigate medical and life transitions as well as the challenges of living with sickle cell disease.

Notes from the nonprofit

Thank you for your on-going support whether it be encouragement, monetary and/or service, we appreciate it all.

Ruling year info

2022

Executive Directoe

Rev Dr RL Brown

Main address

121 Spring St

Gaithersburg, MD 20877 USA

Show more contact info

EIN

87-2829281

Subject area info

Health

Religion

Population served info

Ethnic and racial groups

Religious groups

Economically disadvantaged people

Victims and oppressed people

People with disabilities

Show more populations served

NTEE code info

Religion Related, Spiritual Development N.E.C. (X99)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Tax forms

Show Forms 990

Communication

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Project SPIRIT Sickle Cell

Through one-on-one virtual sessions with an assigned chaplain, participants explore strategies for coping with the things of life which may be a source of pain or trigger sickle cell painful episodes and increase their awareness of the importance of spiritual ownership. During these sessions, participants and chaplains address negative emotions and thinking, looking for the positives, as well as completing an advance planning (living will/health proxy/end-of-life) document. In addition to one-on-one support, a monthly chaplain-led spiritual support group is available along with opportunities for giving their voice to creating and contributing to the monthly Bloodline podcast.

Population(s) Served
Ethnic and racial groups
People with disabilities
People with diseases and illnesses
Religious groups
At-risk youth

Where we work

Affiliations & memberships

Sickle Cell Consortium 2023

Global Genes 2022

SiNERGe 2023

SC REd 2023

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Project Spirit Sickle Cell - PSSC

Financial data

SOURCE: Self-reported by organization

Project Spirit Sickle Cell - PSSC

Revenue & expenses

Fiscal Year: 2023

SOURCE: Self-reported by organization

Revenue
Contributions, Grants, Gifts $25,653
Program Services $0
Membership Dues $0
Special Events $370
Other Revenue $90
Total Revenue $26,238
Expenses
Program Services $5,483
Administration $3,325
Fundraising $0
Payments to Affiliates $0
Other Expenses $0
Total Expenses $8,808

Project Spirit Sickle Cell - PSSC

Balance sheet

Fiscal Year: 2023

SOURCE: Self-reported by organization

Assets
Total Assets $0
Liabilities
Total Liabilities $0
Fund balance (EOY)
Net Assets $21,295

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Form 1023/1024 is not available for this organization

Executive Directoe

Rev Dr RL Brown

Executive Director with nursing, public health, & ministry experience including working with individuals/families affected by sickle cell for over 35 years. Providing direction for PSSC’s multi-funded research projects since 2015 & continuing to provide strategic oversight for PSSC a 501(c)3 non-profit organization to ensure meeting goals and objectives, and serve as a chaplain, providing spiritual pastoral care for and with individuals living with sickle cell disease.

There are no officers, directors or key employees recorded for this organization

There are no highest paid employees recorded for this organization.

Project Spirit Sickle Cell - PSSC

Board of directors
as of 02/06/2024
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Natasha Thomas

Project SPIRIT Sickle Cell (PSSC), Inc.

Term: 2024 - 2027

David Dandridge

PSSC

Tisha Valle

PSSC

Joeann Walker

PSSC

Lydia Pecker

PSSC

Alissia Cofer

PSSC

John Constantinides

{SSC

Patricia Fahey

PSSC

James Black

PSSC

R. Lorraine Brown

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 2/5/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Black/African American
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 02/05/2024

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.