WILLIAMS SYNDROME ASSOCIATION INC

Extraordinary Gifts/Unique Challenges

aka WSA | Newark, NJ | www.williams-syndrome.org

GuideStar Charity Check

EIN: 22-3305007

Contributions tax deductible
as of September 2023

IRS BMF 509(a)(1)
as of September 18, 2023

View summary

Charity Check report

Mission

The Williams Syndrome Association works to advance the interests of all individuals with Williams syndrome throughout their lifespan by providing programming and resources, supporting research, promoting partnerships and connections, and ensuring that the infrastructure of the organization has the capacity to lead our community toward its goals.

Ruling year info

1995

Executive Director

Dr. Mary Van Haneghan

Main address

243 Broadway #9188

Newark, NJ 07104 USA

Show more contact info

EIN

22-3305007

Subject area info

Genetic conditions and birth defects

Human services

Developmental disability services

Population served info

People with disabilities

NTEE code info

Developmentally Disabled Services/Centers (P82)

Human Service Organizations (P20)

Services to Promote the Independence of Specific Populations (P80)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Show Forms 990

Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The Williams Syndrome Association (WSA) works across the US to provide essential support for all individuals with Williams syndrome & their families by addressing their greatest needs including healthcare, education, housing, employment, integration into society, and creation of an inclusive community.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Supports & Services, Ed & Awareness & Research

1- Supports and Services
We provide programs and services (both in-person and remote) in:
• Early intervention
• Education support
• Best practices for age-appropriate interventions
• Transitional services
• Continuing education
• Employment opportunities
• Independent living
• Long-term support
• Bereavement

2 - Awareness and Education
• We increase public awareness, understanding and support
• We provide training and support in patient and family advocacy
• We hold camps, conferences, and biennial international conventions
• We offer national and regional support groups and social gatherings
• We provide scholarships to address barriers to access and socioeconomic inequalities
• We disseminate current and cutting edge medical and educational information

3 - Research
• We disseminate current and cutting edge medical and educational information
• We fund and support research to uncover and mitigate the medical complications of many individuals with WS, including funding the world’s

Population(s) Served

Adults

Children and youth

Ethnic and racial groups

Economically disadvantaged people

Families

Where we work

External reviews

Photos

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total number of conferences held

Totals By Year

Population(s) Served

Related Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

2022 -convention touched 1220 attendees from the William syndrome community with national & international representation.60+ ed sessions for parents & professionals.

Goals & Strategy

SOURCE: Self-reported by organization

Reports and documents

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

What is the organization aiming to accomplish?

To ensure all individuals with Williams syndrome have the support they need throughout their lifespan to live healthy, self-directed, productive and meaningful lives.

What are the organization's key strategies for making this happen?

Our approach's efficacy is evidenced by our successful initiatives, including national and regional conventions, professional conferences, frequent virtual programs, camps, and 100+ social and annual awareness events for individuals with Williams Syndrome. Our biennial National Convention, attracting 1200 attendees including international participation, offers 60+ educational programs for parents & professionals, specialized programming for children & adults with WS and their siblings, individual-specific consulting, clinical research opportunities, and a resource fair.
We actively support research in medical, educational, behavioral, and social aspects of the syndrome, funding essential medical research where institutional support is scarce. Our collaborations span Boston Children’s Hospital, Johns Hopkins University, Massachusetts General Hospital, the University of Louisville, among others. The Collaborative Registry for Williams Syndrome (CReWS), our initiative, collects clinical data to advance our understanding and develop treatments. We also oversee the national Williams Syndrome Clinical Consortium and Research Network, enabling data sharing across many centers and addressing data bottlenecks common for orphan disease research. Our Young Investigator award ensures a continual pipeline on Williams Syndrome research, encouraging early-career researchers to contribute.
Through the WSA’s efforts, many individuals have been able to live independently, find meaningful work, and access medical care from health care professionals who understand the intricacies of WS. Our goal, however, is to provide that level of support to individuals with WS regardless of their economic, racial, or social environment.

What are the organization's capabilities for doing this?

What have they accomplished so far and what's next?

The WSA has grown from a small group of families in 1982 to supporting over 7,000 families worldwide with a $2M annual budget. We've established enduring partnerships with educational, medical, and WS communities, and oversee national medical and research networks.
Direct program expenses are approximately 80% of total expenses demonstrating our commitment to maximizing the direct support we provide. Membership satisfaction data showcases our effectiveness and the value our members place in our services.
The WSA conducts regular surveys of our members and listening sessions to understand the needs of our community and evaluate the success of our programs and resources. Listening sessions in 2022 involved 88 members and caused us to put more emphasis on regional support and communication

Financials

WILLIAMS SYNDROME ASSOCIATION INC

Fiscal year: Jan 01 - Dec 31

Financial documents

Yes, financials were audited by an independent accountant.

Revenue vs. expenses: breakdown

SOURCE: IRS Form 990

NET GAIN/LOSS: in

Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2021

SOURCE: IRS Form 990

21.38

Average of 35.49 over 10 years

Months of cash in 2021

SOURCE: IRS Form 990

2.9

Average of 3.5 over 10 years

Fringe rate in 2021

SOURCE: IRS Form 990

18%

Average of 17% over 10 years

Funding sources

Source: IRS Form 990

Assets & liabilities

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

Digitizing IRS form 990 data

WILLIAMS SYNDROME ASSOCIATION INC

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: Download Data

Revenue
Contributions	$311,552
Program Services	$314,027
Investments	$0
Special Events	$44,291
Sales	$0
Other	$28,295
Total Revenue	$698,165

Expenses
Grants	$29,700
Salaries & Employee Benefits	$219,473
Professional Fees	$36,275
Occupancy	$26,400
Printing, Publications, Postage, etc.	$15,885
Other Expenses	$738,847
Total Expenses	$1,066,580
Net Gain/Loss	($368,415)

Revenue
Contributions	$790,719
Government Grants	$0
Program Services	$140,929
Investments	$24,079
Special Events	($71,654)
Sales	$0
Other	$0
Total Revenue	$884,073

Expenses
Program Services	$460,918
Administration	$133,099
Fundraising	$91,800
Total Expenses	$685,817
Net Gain/Loss	$198,256

Functional expenses
Accounting Fees	$10,070
Advertising & Promotion	$11,365
Information Technology Expenses	$0
Insurance Expenses	$7,929
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$890,278
Government Grants	$0
Program Services	$294,457
Investments	$60,270
Special Events	($6,225)
Sales	$0
Other	$0
Total Revenue	$1,238,780

Expenses
Program Services	$942,738
Administration	$147,808
Fundraising	$83,680
Total Expenses	$1,174,226
Net Gain/Loss	$64,554

Functional expenses
Accounting Fees	$10,263
Advertising & Promotion	$0
Information Technology Expenses	$0
Insurance Expenses	$7,402
Interest Expenses	$0
Investment Management Fees	$7,425
Legal Fees	$0
Pension Plan Contributions	$4,805
Professional Fundraising Expenses	$0

Revenue
Contributions	$935,363
Government Grants	$0
Program Services	$126,278
Investments	$42,280
Special Events	($96,198)
Sales	$0
Other	$0
Total Revenue	$1,007,723

Expenses
Program Services	$544,756
Administration	$158,764
Fundraising	$44,774
Total Expenses	$748,294
Net Gain/Loss	$259,429

Functional expenses
Accounting Fees	$10,300
Advertising & Promotion	$0
Information Technology Expenses	$0
Insurance Expenses	$6,716
Interest Expenses	$0
Investment Management Fees	$7,200
Legal Fees	$92
Pension Plan Contributions	$3,023
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,106,290
Government Grants	$0
Program Services	$380,677
Investments	$147,018
Special Events	($17,598)
Sales	$0
Other	$0
Total Revenue	$1,616,387

Expenses
Program Services	$975,929
Administration	$123,760
Fundraising	$53,058
Total Expenses	$1,152,747
Net Gain/Loss	$463,640

Functional expenses
Accounting Fees	$11,186
Advertising & Promotion	$7,242
Information Technology Expenses	$0
Insurance Expenses	$13,837
Interest Expenses	$0
Investment Management Fees	$11,106
Legal Fees	$0
Pension Plan Contributions	$2,802
Professional Fundraising Expenses	$0

Revenue
Contributions	$890,583
Government Grants	$0
Program Services	$149,571
Investments	$93,582
Special Events	($91,030)
Sales	$0
Other	$0
Total Revenue	$1,042,706

Expenses
Program Services	$728,027
Administration	$137,308
Fundraising	$38,531
Total Expenses	$903,866
Net Gain/Loss	$138,840

Functional expenses
Accounting Fees	$11,004
Advertising & Promotion	$13,705
Information Technology Expenses	$0
Insurance Expenses	$9,221
Interest Expenses	$0
Investment Management Fees	$11,400
Legal Fees	$99
Pension Plan Contributions	$5,714
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,205,715
Government Grants	$0
Program Services	$344,646
Investments	$141,489
Special Events	($164,812)
Sales	$0
Other	$0
Total Revenue	$1,527,038

Expenses
Program Services	$1,145,244
Administration	$162,205
Fundraising	$45,149
Total Expenses	$1,352,598
Net Gain/Loss	$174,440

Functional expenses
Accounting Fees	$1,989
Advertising & Promotion	$35,788
Information Technology Expenses	$0
Insurance Expenses	$19,989
Interest Expenses	$0
Investment Management Fees	$17,453
Legal Fees	$0
Pension Plan Contributions	$6,752
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,057,181
Government Grants	$0
Program Services	$73,892
Investments	$71,728
Special Events	($132,990)
Sales	$0
Other	$0
Total Revenue	$1,069,811

Expenses
Program Services	$806,702
Administration	$166,731
Fundraising	$49,720
Total Expenses	$1,023,153
Net Gain/Loss	$46,658

Functional expenses
Accounting Fees	$14,588
Advertising & Promotion	$14,631
Information Technology Expenses	$7,619
Insurance Expenses	$17,721
Interest Expenses	$0
Investment Management Fees	$18,080
Legal Fees	$0
Pension Plan Contributions	$6,420
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,167,889
Government Grants	$0
Program Services	$337,127
Investments	$184,691
Special Events	($127,887)
Sales	$0
Other	$0
Total Revenue	$1,561,820

Expenses
Program Services	$1,424,441
Administration	$162,071
Fundraising	$42,132
Total Expenses	$1,628,644
Net Gain/Loss	($66,824)

Functional expenses
Accounting Fees	$17,832
Advertising & Promotion	$16,673
Information Technology Expenses	$9,562
Insurance Expenses	$9,354
Interest Expenses	$0
Investment Management Fees	$18,799
Legal Fees	$2,139
Pension Plan Contributions	$6,781
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,724,379
Government Grants	$0
Program Services	$76,750
Investments	$63,682
Special Events	($311,408)
Sales	$0
Other	$0
Total Revenue	$1,553,403

Expenses
Program Services	$2,006,713
Administration	$214,589
Fundraising	$82,444
Total Expenses	$2,303,746
Net Gain/Loss	($750,343)

Functional expenses
Accounting Fees	$17,000
Advertising & Promotion	$26,416
Information Technology Expenses	$40,085
Insurance Expenses	$9,464
Interest Expenses	$0
Investment Management Fees	$19,939
Legal Fees	$0
Pension Plan Contributions	$9,057
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,224,251
Government Grants	$0
Program Services	$390,322
Investments	$236,645
Special Events	($129,595)
Sales	$0
Other	$0
Total Revenue	$1,721,623

Expenses
Program Services	$1,415,807
Administration	$324,349
Fundraising	$75,509
Total Expenses	$1,815,665
Net Gain/Loss	($94,042)

Functional expenses
Accounting Fees	$18,892
Advertising & Promotion	$8,761
Information Technology Expenses	$13,758
Insurance Expenses	$15,502
Interest Expenses	$0
Investment Management Fees	$20,315
Legal Fees	$2,003
Pension Plan Contributions	$9,079
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,906,948
Government Grants	$0
Program Services	$112,832
Investments	$87,037
Special Events	($188,390)
Sales	$0
Other	$0
Total Revenue	$1,918,427

Expenses
Program Services	$1,506,738
Administration	$220,245
Fundraising	$197,993
Total Expenses	$1,924,976
Net Gain/Loss	($6,549)

Functional expenses
Accounting Fees	$15,440
Advertising & Promotion	$5,388
Information Technology Expenses	$13,596
Insurance Expenses	$15,937
Interest Expenses	$0
Investment Management Fees	$19,278
Legal Fees	$4,121
Pension Plan Contributions	$8,253
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,548,029
Government Grants	$0
Program Services	$11,189
Investments	$110,564
Special Events	($23,418)
Sales	$0
Other	$0
Total Revenue	$1,646,364

Expenses
Program Services	$693,084
Administration	$161,997
Fundraising	$152,291
Total Expenses	$1,007,372
Net Gain/Loss	$638,992

Functional expenses
Accounting Fees	$18,045
Advertising & Promotion	$1,776
Information Technology Expenses	$17,991
Insurance Expenses	$16,168
Interest Expenses	$0
Investment Management Fees	$9,922
Legal Fees	$491
Pension Plan Contributions	$10,205
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,366,018
Government Grants	$0
Program Services	$55,858
Investments	$94,012
Special Events	($43,494)
Sales	$0
Other	$0
Total Revenue	$1,472,394

Expenses
Program Services	$1,019,569
Administration	$192,315
Fundraising	$97,335
Total Expenses	$1,309,219
Net Gain/Loss	$163,175

Functional expenses
Accounting Fees	$17,470
Advertising & Promotion	$225
Information Technology Expenses	$7,996
Insurance Expenses	$17,844
Interest Expenses	$0
Investment Management Fees	$21,791
Legal Fees	$882
Pension Plan Contributions	$9,897
Professional Fundraising Expenses	$0

WILLIAMS SYNDROME ASSOCIATION INC

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: Download Data

Assets	Jan 01, 2008	Dec 31, 2008	Change
Contributions	$311,552
Cash & Equivalents	$204,446	$152,019	($52,427)
Fixed Assets (LBE - Depreciation)	$9,424	$6,552	($2,872)
Other	$1,375,584	$1,063,830	($311,754)
Total Assets	$1,589,454	$1,222,401	($367,053)

Liabilities	Jan 01, 2008	Dec 31, 2008	Change
Total Liabilities	$56,710	$58,072	$1,362

Fund balance	Jan 01, 2008	Dec 31, 2008	Change
Net Assets	$1,532,744	$1,164,329	($368,415)

Assets	Jan 01, 2009	Dec 31, 2009	Change
Contributions	$790,719
Cash & Equivalents	$152,019	$182,874	$30,855
Accounts Receivable	$0	$16,102	$16,102
Pledges & Grants Receivable	$5,000	$24,712	$19,712
Receivable, Other	$0	$0	$0
Inventories for Sale or Use	$0	$0	$0
Investment, Securities	$1,048,516	$1,242,799	$194,283
Investment, Other	$0	$0	$0
Fixed Assets (LBE - Depreciation)	$6,552	$9,696	$3,144
Other	$10,314	$17,579	$7,265
Total Assets	$1,222,401	$1,493,762	$271,361

Liabilities	Jan 01, 2009	Dec 31, 2009	Change
Accounts Payable	$23,462	$41,201	$17,739
Grants Payable	$0	$0	$0
Deferred Revenue	$34,610	$19,746	($14,864)
Loans and Notes	$0	$0	$0
Tax-Exempt Bond Liabilities	$0	$0	$0
Other	$0	$0	$0
Total Liabilities	$58,072	$60,947	$2,875

Fund balance	Jan 01, 2009	Dec 31, 2009	Change
Temporarily Restricted Net Assets	$110,089	$333,692	$223,603
Permanently Restricted Net Assets	$71,425	$75,637	$4,212
Total Restricted Net Assets	$181,514	$409,329	$227,815
Unrestricted Net Assets	$982,815	$1,023,486	$40,671
Net Assets	$1,164,329	$1,432,815	$268,486

Assets	Jan 01, 2010	Dec 31, 2010	Change
Contributions	$890,278
Cash & Equivalents	$182,874	$173,438	($9,436)
Accounts Receivable	$16,102	$730	($15,372)
Pledges & Grants Receivable	$24,712	$10,600	($14,112)
Receivable, Other	$0	$0	$0
Inventories for Sale or Use	$0	$0	$0
Investment, Securities	$1,242,799	$1,335,764	$92,965
Investment, Other	$0	$0	$0
Fixed Assets (LBE - Depreciation)	$9,696	$7,973	($1,723)
Other	$17,579	$29,292	$11,713
Total Assets	$1,493,762	$1,557,797	$64,035

Liabilities	Jan 01, 2010	Dec 31, 2010	Change
Accounts Payable	$41,201	$24,549	($16,652)
Grants Payable	$0	$0	$0
Deferred Revenue	$19,746	$3,014	($16,732)
Loans and Notes	$0	$0	$0
Tax-Exempt Bond Liabilities	$0	$0	$0
Other	$0	$0	$0
Total Liabilities	$60,947	$27,563	($33,384)

Fund balance	Jan 01, 2010	Dec 31, 2010	Change
Temporarily Restricted Net Assets	$333,692	$213,955	-$119,737
Permanently Restricted Net Assets	$75,637	$75,637	$0
Total Restricted Net Assets	$409,329	$289,592	($119,737)
Unrestricted Net Assets	$1,023,486	$1,240,642	$217,156
Net Assets	$1,432,815	$1,530,234	$97,419

WILLIAMS SYNDROME ASSOCIATION INC

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

This snapshot of WILLIAMS SYNDROME ASSOCIATION INC’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

Created in partnership with

Fiscal year: Jan 01 - Dec 31 View full report Download data

Business model indicators

Profitability	2017	2018	2019	2020	2021
Unrestricted surplus (deficit) before depreciation	-$497,639	-$387,249	$151,469	$371,740	$578,640
As % of expenses	-21.7%	-21.4%	7.9%	37.1%	44.3%
Unrestricted surplus (deficit) after depreciation	-$507,510	-$396,181	$142,606	$367,079	$576,008
As % of expenses	-22.0%	-21.8%	7.4%	36.4%	44.0%

Revenue composition
Total revenue (unrestricted & restricted)	$1,553,403	$1,721,623	$1,918,427	$1,646,364	$1,472,394
Total revenue, % change over prior year	-0.5%	10.8%	11.4%	-14.2%	-10.6%
Program services revenue	4.9%	22.7%	5.9%	0.7%	3.8%
Membership dues	0.8%	0.3%	0.2%	0.3%	0.3%
Investment income	3.4%	3.6%	3.0%	3.5%	3.3%
Government grants	0.0%	0.0%	0.0%	0.0%	0.0%
All other grants and contributions	90.2%	63.3%	89.3%	92.3%	89.5%
Other revenue	0.7%	10.2%	1.5%	3.2%	3.1%

Expense composition
Total expenses before depreciation	$2,293,875	$1,806,733	$1,916,113	$1,002,711	$1,306,587
Total expenses, % change over prior year	41.5%	-21.2%	6.1%	-47.7%	30.3%
Personnel	23.0%	30.1%	37.6%	71.1%	51.2%
Professional fees	1.6%	7.1%	3.6%	3.1%	3.9%
Occupancy	1.9%	2.5%	2.5%	4.6%	2.6%
Interest	0.0%	0.0%	0.0%	0.0%	0.0%
Pass-through	58.8%	13.6%	39.3%	5.0%	28.3%
All other expenses	14.7%	46.7%	17.0%	16.1%	13.9%

Full cost components (estimated)	2017	2018	2019	2020	2021
Total expenses (after depreciation)	$2,303,746	$1,815,665	$1,924,976	$1,007,372	$1,309,219
One month of savings	$191,156	$150,561	$159,676	$83,559	$108,882
Debt principal payment	$0	$0	$0	$0	$0
Fixed asset additions	$22,485	$0	$0	$0	$5,136
Total full costs (estimated)	$2,517,387	$1,966,226	$2,084,652	$1,090,931	$1,423,237

Capital structure indicators

Liquidity	2017	2018	2019	2020	2021
Months of cash	1.6	0.3	0.8	4.2	2.9
Months of cash and investments	14.8	13.6	14.3	33.0	26.7
Months of estimated liquid unrestricted net assets	9.9	10.0	10.3	24.1	23.8

Balance sheet composition	2017	2018	2019	2020	2021
Cash	$306,281	$46,969	$120,408	$350,991	$318,882
Investments	$2,518,640	$1,994,450	$2,155,357	$2,406,877	$2,589,226
Receivables	$3,320	$0	$156	$156	$152,360
Gross land, buildings, equipment (LBE)	$67,045	$69,122	$71,331	$74,336	$71,705
Accumulated depreciation (as a % of LBE)	69.4%	80.2%	90.2%	92.8%	89.0%
Liabilities (as a % of assets)	29.4%	21.6%	21.6%	7.7%	4.6%
Unrestricted net assets	$1,909,152	$1,512,971	$1,655,577	$2,022,656	$2,598,664
Temporarily restricted net assets	$55,815	$60,323	N/A	N/A	N/A
Permanently restricted net assets	$75,637	$67,252	N/A	N/A	N/A
Total restricted net assets	$131,452	$127,575	$187,100	$589,365	$364,868
Total net assets	$2,040,604	$1,640,546	$1,842,677	$2,612,021	$2,963,532

Key data checks

Key data checks	2017	2018	2019	2020	2021
Material data errors	No	No	No	No	No

Operations

The people, governance practices, and partners that make the organization tick.

Documents

Letter of Determination is not available for this organization

Form 1023/1024 is not available for this organization

Executive Director

Dr. Mary Van Haneghan

LinkedIn profile

Throughout her 20-year career, Mary has demonstrated the skills necessary to lead across a variety of areas crucial to the WSA’s continued progress. Mary began her career as a direct service professional working in residential programming; during her tenure, she worked in various capacities including day habilitation, residential habilitation, post-secondary education, transitional services, case management, supported employment, behavioral health, nursing, and early intervention. Since 2013, she has served as the Chief Executive Officer for chapters of The Arc in both Alaska and Texas. Prior to these roles, she worked for one of Western New York’s largest nonprofit health and human service agencies and assisted in creating systematic change across the state. Dr. Van Haneghan earned a bachelor’s degree in business management from the University of Buffalo, a master’s degree in adult education and literacy from Buffalo State College, and a doctorate in education from Walden University.

Number of employees

Source: IRS Form 990

WILLIAMS SYNDROME ASSOCIATION INC

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation

Other

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Compensation data

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There are no highest paid employees recorded for this organization.

WILLIAMS SYNDROME ASSOCIATION INC

Board of directors
as of 06/09/2023

SOURCE: Self-reported by organization

Board of directors data

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Board chair

WILLIAMS SYNDROME ASSOCIATION INC

Extraordinary Gifts/Unique Challenges

Mission

Is this your nonprofit?

Programs and results

What we aim to solve

Our programs

Supports & Services, Ed & Awareness & Research

Where we work

Our results

Evaluation documents

Total number of conferences held

Totals By Year

Population(s) Served

Related Program

Type of Metric

Direction of Success

Context Notes

Goals & Strategy

Reports and documents

Charting impact

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

What have they accomplished so far and what's next?

Financials

Financial documents

Revenue vs. expenses: breakdown

Liquidity in 2021 info

21.38

Months of cash in 2021 info

2.9

Fringe rate in 2021 info

18%

Funding sources info

Assets & liabilities info

Financial data

Digitizing IRS form 990 data

WILLIAMS SYNDROME ASSOCIATION INC

WILLIAMS SYNDROME ASSOCIATION INC

WILLIAMS SYNDROME ASSOCIATION INC

Business model indicators

Capital structure indicators

Key data checks

Operations

Documents

Executive Director

Dr. Mary Van Haneghan

Number of employees

WILLIAMS SYNDROME ASSOCIATION INC

Compensation data

WILLIAMS SYNDROME ASSOCIATION INC

Board of directors data

Cyndra Cole

Liquidity in 2021

Months of cash in 2021

Fringe rate in 2021

Funding sources

Assets & liabilities